-
1
-
-
0035861017
-
Informed consent for population-based research involving genetics
-
BESKOW, L. M., BURKE, W., MERZ, J. F., BARR, P. A., TERRY, S., PENCHASZADEH, V. B., GOSTIN, L. O., GWINN, M., & KHOURY, M. J. (2001). Informed consent for population-based research involving genetics. JAMA: The Journal of the American Medical Association, 286 (18), 2315-2321.
-
(2001)
JAMA: The Journal of the American Medical Association
, vol.286
, Issue.18
, pp. 2315-2321
-
-
BESKOW, L.M.1
BURKE, W.2
MERZ, J.F.3
BARR, P.A.4
TERRY, S.5
PENCHASZADEH, V.B.6
GOSTIN, L.O.7
GWINN, M.8
KHOURY, M.J.9
-
2
-
-
53349107714
-
Informed consent for biorepositories: Assessing prospective participants' understanding and opinions
-
BESKOW, L. M. & DEAN, E. (2008). Informed consent for biorepositories: Assessing prospective participants' understanding and opinions. Cancer Epidemiology, Biomarkers & Prevention, 17(6), 1440-1451.
-
(2008)
Cancer Epidemiology, Biomarkers & Prevention
, vol.17
, Issue.6
, pp. 1440-1451
-
-
BESKOW, L.M.1
DEAN, E.2
-
3
-
-
33646254125
-
Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group
-
BOOKMAN, E. B., LANGEHORNE, A. A., ECKFELDT, J. H., GLASS, K. C., JARVIK, G. P., KLAG, M., KOSKI, G., MOTULSKY, A., WILFOND, B., MANOLIO, T. A., FABSITZ, R. R., & LUEPKER, R. V. (2006). Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group. American Journal of Medical Genetics, Part A, 140A (10), 1033-1040.
-
(2006)
American Journal of Medical Genetics, Part A
, vol.140 A
, Issue.10
, pp. 1033-1040
-
-
BOOKMAN, E.B.1
LANGEHORNE, A.A.2
ECKFELDT, J.H.3
GLASS, K.C.4
JARVIK, G.P.5
KLAG, M.6
KOSKI, G.7
MOTULSKY, A.8
WILFOND, B.9
MANOLIO, T.A.10
FABSITZ, R.R.11
LUEPKER, R.V.12
-
5
-
-
31644443407
-
Receiving a summary of the results of a trial: Qualitative study of participants' views
-
DIXON-WOODS, M., JACKSON, C., WINDRIDGE, K. C., & KENYON, S. (2006). Receiving a summary of the results of a trial: Qualitative study of participants' views. British Medical Journal, 332(7535), 206-210.
-
(2006)
British Medical Journal
, vol.332
, Issue.7535
, pp. 206-210
-
-
DIXON-WOODS, M.1
JACKSON, C.2
WINDRIDGE, K.C.3
KENYON, S.4
-
6
-
-
57349105254
-
-
FERNANDEZ, C. V. (2008). Public expectations for return of results - Time to stop being paternalistic? American Journal of Bioethics, 8 (11), 46-48.
-
FERNANDEZ, C. V. (2008). Public expectations for return of results - Time to stop being paternalistic? American Journal of Bioethics, 8 (11), 46-48.
-
-
-
-
7
-
-
0142149999
-
Informing study participants of research results: An ethical imperative
-
FERNANDEZ, C. V., KODISH, E., WEIJER, C. (2003). Informing study participants of research results: An ethical imperative. IRB: Ethics & Human Research, 25(3), 12-19.
-
(2003)
IRB: Ethics & Human Research
, vol.25
, Issue.3
, pp. 12-19
-
-
FERNANDEZ, C.V.1
KODISH, E.2
WEIJER, C.3
-
8
-
-
40849139474
-
Ethical, legal, and social implications of biobanks for genetics research
-
HAGA, S. B. & BESKOW, L. M. (2008). Ethical, legal, and social implications of biobanks for genetics research. Advances in Genetics, 60, 505-544.
-
(2008)
Advances in Genetics
, vol.60
, pp. 505-544
-
-
HAGA, S.B.1
BESKOW, L.M.2
-
9
-
-
57449115536
-
Subjects matter: A survey of public opinions about a large genetic cohort study
-
KAUFMAN, D., MURPHY, J., SCOTT, J., & HUDSON, K. (2008). Subjects matter: A survey of public opinions about a large genetic cohort study. Genetics in Medicine, 10(11), 831-839.
-
(2008)
Genetics in Medicine
, vol.10
, Issue.11
, pp. 831-839
-
-
KAUFMAN, D.1
MURPHY, J.2
SCOTT, J.3
HUDSON, K.4
-
10
-
-
33750388916
-
The emergence of an ethical duty to disclose genetic research results: International perspectives
-
KNOPPERS, B. M., JOLY, Y., SIMARD, J., & DUROCHER, F. (2006). The emergence of an ethical duty to disclose genetic research results: International perspectives. European Journal of Human Genetics, 14 (11), 1170-1178.
-
(2006)
European Journal of Human Genetics
, vol.14
, Issue.11
, pp. 1170-1178
-
-
KNOPPERS, B.M.1
JOLY, Y.2
SIMARD, J.3
DUROCHER, F.4
-
11
-
-
33750613452
-
-
MANOLIO, T. A. (2006). Taking our obligations to research participants seriously: Disclosing individual results of genetic research. American Journal of Bioethics, 6(6), 32-34.
-
MANOLIO, T. A. (2006). Taking our obligations to research participants seriously: Disclosing individual results of genetic research. American Journal of Bioethics, 6(6), 32-34.
-
-
-
-
12
-
-
33750624177
-
-
MELTZER, L. A. (2006). Undesirable implications of disclosing individual genetic results to research participants. American Journal of Bioethics, 6(6), 28-30.
-
MELTZER, L. A. (2006). Undesirable implications of disclosing individual genetic results to research participants. American Journal of Bioethics, 6(6), 28-30.
-
-
-
-
13
-
-
40649092107
-
Duty to disclose what? Querying the putative obligation to return research results to participants
-
MILLER, F. A., CHRISTENSEN, R., GIACOMINI, M., & ROBERT, J. S. (2008). Duty to disclose what? Querying the putative obligation to return research results to participants. Journal of Medical Ethics, 34(3), 210-213.
-
(2008)
Journal of Medical Ethics
, vol.34
, Issue.3
, pp. 210-213
-
-
MILLER, F.A.1
CHRISTENSEN, R.2
GIACOMINI, M.3
ROBERT, J.S.4
-
14
-
-
72349096151
-
Research Involving Human Biological Materials: Ethical Issues and Policy Guidance
-
1:, Rockville, MD: NBAC. Available online at
-
National Bioethics Advisory Commission. (1999). Research Involving Human Biological Materials: Ethical Issues and Policy Guidance, Volume 1: Report and Recommendations of the NBAC. Rockville, MD: NBAC. Available online at http://www.bioethics.gov/reports/past_commissions/ nbac_biological1.pdf.
-
(1999)
Report and Recommendations of the NBAC
-
-
-
15
-
-
59849085993
-
Assessing the understanding of biobank participants
-
ORMOND, K. E., CIRINO, A. L., HELENOWSKI, I. B., CHISHOLM, R. L., WOLF, W. A. (2009). Assessing the understanding of biobank participants. American Journal of Medical Genetics, Part A, 149A (2), 188-198.
-
(2009)
American Journal of Medical Genetics, Part A
, vol.149 A
, Issue.2
, pp. 188-198
-
-
ORMOND, K.E.1
CIRINO, A.L.2
HELENOWSKI, I.B.3
CHISHOLM, R.L.4
WOLF, W.A.5
-
16
-
-
33750628750
-
-
OSSORIO, P. N. (2006). Letting the gene out of the bottle: A comment on returning individual research results to participants. American Journal of Bioethics, 6(6), 24-25.
-
OSSORIO, P. N. (2006). Letting the gene out of the bottle: A comment on returning individual research results to participants. American Journal of Bioethics, 6(6), 24-25.
-
-
-
-
17
-
-
70349552214
-
-
PARKER, L. S. (2006). Rethinking respect for persons enrolled in research. American Society for Bioethics & Humanities Exchange, 9, 6-7.
-
PARKER, L. S. (2006). Rethinking respect for persons enrolled in research. American Society for Bioethics & Humanities Exchange, 9, 6-7.
-
-
-
-
18
-
-
0037454241
-
Do patients participating in clinical trials want to know study results?
-
PARTRIDGE, A. H., BURSTEIN, H. J., GELMAN, R. S., MARCOM, P. K., & WINER, E. P. (2003). Do patients participating in clinical trials want to know study results? JNCI: Journal of the National Cancer Institute, 95, 491-492.
-
(2003)
JNCI: Journal of the National Cancer Institute
, vol.95
, pp. 491-492
-
-
PARTRIDGE, A.H.1
BURSTEIN, H.J.2
GELMAN, R.S.3
MARCOM, P.K.4
WINER, E.P.5
-
19
-
-
67349194300
-
The impact of sharing results of a randomized breast cancer clinical trial with study participants
-
PARTRIDGE, A. H., WOLFF, A. C., MARCOM, P. K., KAUFMAN, P. A., ZHANG, L., GELMAN, R., MOORE, C., LAKE, D., FLEMING, G. F., RUGO, H. S., ATKINS, J., SAMPSON, E., COLLYAR, D., & WINER, E. P. (2009). The impact of sharing results of a randomized breast cancer clinical trial with study participants. Breast Cancer Research & Treatment, 115 (1), 123-129.
-
(2009)
Breast Cancer Research & Treatment
, vol.115
, Issue.1
, pp. 123-129
-
-
PARTRIDGE, A.H.1
WOLFF, A.C.2
MARCOM, P.K.3
KAUFMAN, P.A.4
ZHANG, L.5
GELMAN, R.6
MOORE, C.7
LAKE, D.8
FLEMING, G.F.9
RUGO, H.S.10
ATKINS, J.11
SAMPSON, E.12
COLLYAR, D.13
WINER, E.P.14
-
20
-
-
33750631748
-
Disclosing individual genetic results to research participants
-
RAVITSKY, V. (2006). Disclosing individual genetic results to research participants. American Journal of Bioethics, 6(6), 8-17.
-
(2006)
American Journal of Bioethics
, vol.6
, Issue.6
, pp. 8-17
-
-
RAVITSKY, V.1
-
21
-
-
0037397542
-
Issues of consent and feedback in a genetic epidemiological study of women with breast cancer
-
RICHARDS, M. P. M., PONDER, M., PHAROAH, P., EVEREST, S., & MACKAY, J. (2003). Issues of consent and feedback in a genetic epidemiological study of women with breast cancer. Journal of Medical Ethics, 29(2), 93-96.
-
(2003)
Journal of Medical Ethics
, vol.29
, Issue.2
, pp. 93-96
-
-
RICHARDS, M.P.M.1
PONDER, M.2
PHAROAH, P.3
EVEREST, S.4
MACKAY, J.5
-
22
-
-
0038410111
-
Impact on survivors of retinoblastoma when informed of study results on risk of second cancers
-
SCHULZ, C. J., RIDDLE, M. P., VALDIMIRSDOTTIR, H. B., ABRAMSON, D. H., & SKLAR, C. A. (2003). Impact on survivors of retinoblastoma when informed of study results on risk of second cancers. Medical & Pediatric Oncology, 41, 36-43.
-
(2003)
Medical & Pediatric Oncology
, vol.41
, pp. 36-43
-
-
SCHULZ, C.J.1
RIDDLE, M.P.2
VALDIMIRSDOTTIR, H.B.3
ABRAMSON, D.H.4
SKLAR, C.A.5
-
23
-
-
23344451021
-
Disclosing individual results of clinical research: Implications of respect for participants
-
SHALOWITZ, D. I. & MILLER, F. G. (2005). Disclosing individual results of clinical research: Implications of respect for participants. JAMA: The Journal of the American Medical Association, 294(6), 737-740.
-
(2005)
JAMA: The Journal of the American Medical Association
, vol.294
, Issue.6
, pp. 737-740
-
-
SHALOWITZ, D.I.1
MILLER, F.G.2
-
24
-
-
33750625575
-
Clinical utility and full disclosure of genetic results to research participants
-
SHARP, R. R. & FOSTER, M. W. (2006). Clinical utility and full disclosure of genetic results to research participants. American Journal of Bioethics, 6(6), 42-44.
-
(2006)
American Journal of Bioethics
, vol.6
, Issue.6
, pp. 42-44
-
-
SHARP, R.R.1
FOSTER, M.W.2
-
27
-
-
0037043254
-
The debate over research on stored biological samples: What do sources think?
-
WENDLER, D. & EMANUEL, E. (2002). The debate over research on stored biological samples: What do sources think? Archives of Internal Medicine, 162(13), 1457-1462.
-
(2002)
Archives of Internal Medicine
, vol.162
, Issue.13
, pp. 1457-1462
-
-
WENDLER, D.1
EMANUEL, E.2
|