메뉴 건너뛰기




Volumn 9, Issue 4, 2011, Pages 252-263

The genetic privacy carousel: A discourse on proposed genetic privacy bills and the co-evolution of law and science

Author keywords

Bill; Culture; Discrimination and genetic privacy; Genomics and public policy; Law and science; Law and society; Legislation; Science and personalized medicine; Upstream engagement in law

Indexed keywords

ARTICLE; BIOBANK; BIOTECHNOLOGY; BLOOD BANK; CULTURAL FACTOR; DRUG LEGISLATION; EMPLOYMENT; GENBANK; GENETIC PRIVACY; GENETIC PRIVACY BILL; GENETIC SCREENING; GENETICS; GENOMICS; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HUMAN; HUMAN GENOME; INFORMED CONSENT; KNOWLEDGE; LAW; MEDICAL ETHICS; MEDICAL INFORMATION; MEDICAL RECORD; MEDICOLEGAL ASPECT; NEWBORN SCREENING; OUTCOME ASSESSMENT; PERSONALIZED MEDICINE; PHARMACOGENETICS; PUBLIC HEALTH; SCIENCE; SOCIETY; UNITED STATES;

EID: 83455186291     PISSN: 18756921     EISSN: 18756913     Source Type: Journal    
DOI: 10.2174/187569211798377207     Document Type: Article
Times cited : (11)

References (99)
  • 1
    • 0038486820 scopus 로고    scopus 로고
    • The allure and peril of genetics exceptionalism: Do we need special genetics legislation?
    • Suter SM. The allure and peril of genetics exceptionalism: Do we need special genetics legislation? Wash ULQ 2001; 79(3): 669-748.
    • (2001) Wash ULQ , vol.79 , Issue.3 , pp. 669-748
    • Suter, S.M.1
  • 2
    • 0035347261 scopus 로고    scopus 로고
    • Protecting genetic privacy
    • Roche PA, Annas GJ. Protecting genetic privacy. Nat Rev Gen 2001; 2: 392-6.
    • (2001) Nat Rev Gen , vol.2 , pp. 392-396
    • Roche, P.A.1    Annas, G.J.2
  • 3
    • 0001814910 scopus 로고    scopus 로고
    • The genetic privacy act: A proposal for national legislation
    • Roche PA, Glantz LH, Annas GJ. The genetic privacy act: A proposal for national legislation. Jurimetrics 1996; 37(1): 1-11.
    • (1996) Jurimetrics , vol.37 , Issue.1 , pp. 1-11
    • Roche, P.A.1    Glantz, L.H.2    Annas, G.J.3
  • 4
    • 83455170114 scopus 로고
    • United States Congress,The Genetic Privacy and Nondiscrimination Act of 1995. 104th Congress
    • United States Congress. Senate Bill 1416 and House of Representatives Bill 2690. The Genetic Privacy and Nondiscrimination Act of 1995. 104th Congress. 1995.
    • (1995) Senate Bill 1416 and House of Representatives Bill 2690
  • 5
    • 83455174396 scopus 로고    scopus 로고
    • United States Congress. Senate Bill 1600, 104th Congress
    • United States Congress. Senate Bill 1600. The Genetic Fairness Act of 1996. 104th Congress. 1996.
    • (1996) The Genetic Fairness Act of 1996
  • 6
  • 9
    • 84855285289 scopus 로고    scopus 로고
    • Colorado state legislature (US).§10-3-1104.6
    • Colorado state legislature (US). Colorado Revised Statutes. §10-3-1104.6. 2010.
    • (2010) Colorado Revised Statutes
  • 10
    • 83455190063 scopus 로고    scopus 로고
    • Note
    • Florida state legislature (US). Florida Statutes. §760.40. 2010.
  • 11
    • 84855288113 scopus 로고    scopus 로고
    • Georgia state legislature (US). Georgia Code (OCGA). §33-54-1(1)
    • Georgia state legislature (US). Georgia Code (OCGA). §33-54-1(1). 2010.
    • (2010)
  • 12
    • 84855259745 scopus 로고    scopus 로고
    • Louisiana state legislature (US), §22:1023(E)
    • Louisiana state legislature (US). Louisiana Revised Statutes. §22:1023(E). 2010.
    • (2010) Louisiana Revised Statutes
  • 13
    • 83455174395 scopus 로고    scopus 로고
    • Note
    • Oregon state legislature. Senate Bill 276. A bill for an act relating to genetics; creating new provisions; and amending ORS 659.036, 659.227 and 746.015. 68th Legislative Assembly. Regular session. 1995, s. 4.1 ("An individual's genetic information is the property of the individual).
  • 14
    • 84855292146 scopus 로고    scopus 로고
    • Oregon state legislature. Senate Bill 1107, (".an individual's genetic information and DNA sample are the property of the individual except when the information or sample is used in anonymous research.")
    • Oregon state legislature. Senate Bill 1107. A bill for an act relating to genetics; amending ORS 659.700, 659.705 and 659.715. 69th Legislative assembly, Regular session. 1997, s. 3.1 (".an individual's genetic information and DNA sample are the property of the individual except when the information or sample is used in anonymous research.").
    • (1997) A Bill for an act Relating to Genetics; Amending ORS 659.700, 659.705 and 659.715. 69th Legislative Assembly, Regular Session , vol.3 , Issue.1
  • 15
    • 84855255997 scopus 로고    scopus 로고
    • Oregon state legislature. Senate Bill 937, redefined the term "anonymous research" to include scientific or medical research conducted in accordance with the Federal Policy for the Protection of Human Subjects and with the approval of an institutional review board
    • Oregon state legislature. Senate Bill 937. A bill for an act relating to genetics; creating new provisions; amending ORS 659.700; and declaring an emergency. 70th Legislative assembly. Regular session. 1999 (redefined the term "anonymous research" to include scientific or medical research conducted in accordance with the Federal Policy for the Protection of Human Subjects and with the approval of an institutional review board).
    • (1999) A Bill for an act Relating to Genetics; Creating New Provisions; Amending ORS 659.700; and Declaring An Emergency. 70th Legislative Assembly. Regular Session
  • 16
    • 84855256471 scopus 로고    scopus 로고
    • Massachusetts state legislature. Senate Bill S01080, 187th General court. Regular session. Available from, Accessed 18 August 2011
    • Massachusetts state legislature. Senate Bill S01080, 187th General court. Regular session. Available from: http://www.malegislature.gov/Bills/187/Senate/S01080 [Accessed 18 August 2011].
  • 17
    • 84855256336 scopus 로고    scopus 로고
    • Vermont state legislature. House Bill 368. 2011-2012 Legislature. Regular session. Available from, Accessed 18 August 2011
    • Vermont state legislature. House Bill 368. 2011-2012 Legislature. Regular session. Available from: http://www.leg.state.vt.us/docs/2012/bills/Intro/H-368.pdf [Accessed 18 August 2011].
  • 18
    • 84855292143 scopus 로고    scopus 로고
    • Texas state legislature. House Bill 2110. 2011-2012 Legislature. Regular session. Available from, Accessed 6 September 2011
    • Texas state legislature. House Bill 2110. 2011-2012 Legislature. Regular session. Available from: http://e-lobbyist.com/gaits/text/269515 [Accessed 6 September 2011].
  • 21
    • 79956343625 scopus 로고    scopus 로고
    • Communication and dataintensive science in the beginning of the 21st century
    • Faris J, Kolker E, Szalay A, et al. Communication and dataintensive science in the beginning of the 21st century. OMICS 2011; 15(4): 213-5.
    • (2011) OMICS , vol.15 , Issue.4 , pp. 213-215
    • Faris, J.1    Kolker, E.2    Szalay, A.3
  • 22
    • 83455170103 scopus 로고    scopus 로고
    • Number 18 of The Gazette of India Extraordinary
    • Government of India. The Biological Diversity Act, 5 February 2003
    • Government of India. The Biological Diversity Act, 2002. Number 18 of The Gazette of India Extraordinary, 5 February 2003. Ministry of Law and Justice (Legislative Department). 2003.
    • (2002) Ministry of Law and Justice (Legislative Department) , pp. 2003
  • 24
    • 84855256337 scopus 로고    scopus 로고
    • Government of Sweden. Lag (2002:297) om biobankers i hälsooch sjukvården m.m. Biobanks in Medical Care Act. SFS 2002:297, section
    • Government of Sweden. Lag (2002:297) om biobankers i hälsooch sjukvården m.m. Biobanks in Medical Care Act. SFS 2002:297, section 4(3). 2002.
    • (2002) , vol.4 , Issue.3
  • 25
    • 84855292144 scopus 로고    scopus 로고
    • Government of Norway. Lov om medisinsk og helsefaglig forskning (helseforskningsloven). LOV 2008-06-20 nr 44, 6 chapter § 29
    • Government of Norway. Lov om medisinsk og helsefaglig forskning (helseforskningsloven). LOV 2008-06-20 nr 44, 6 chapter § 29. 2008.
    • (2008)
  • 26
    • 80054767343 scopus 로고    scopus 로고
    • Data protection and sample management in biobanking - a legal dichotomy
    • Schulte In den Bäumen T, Paci D, Ibarreta D. Data protection and sample management in biobanking - a legal dichotomy. Genomics, Society and Policy 2010; 6(1): 33-46.
    • (2010) Genomics, Society and Policy , vol.6 , Issue.1 , pp. 33-46
    • In den Bäumen, S.T.1    Paci, D.2    Ibarreta, D.3
  • 27
    • 79951802578 scopus 로고    scopus 로고
    • Ownership rights in research biobanks: Do we need a new kind of 'biological property'?
    • In Solbakk JH, Holm S, Hofmann B (eds), New York: Springer
    • de Faria, PL. Ownership rights in research biobanks: do we need a new kind of 'biological property'? In Solbakk JH, Holm S, Hofmann B (eds). The ethics of research biobanking. New York: Springer 2009.
    • (2009) The Ethics of Research Biobanking
    • de Faria, P.L.1
  • 28
    • 84855292145 scopus 로고    scopus 로고
    • Government of Estonia. Human Genes Research Act, §18(4)
    • Government of Estonia. Human Genes Research Act, §18(4). 2000.
    • (2000)
  • 30
    • 83455170111 scopus 로고    scopus 로고
    • United States Congress, Public Law Number 106-102, 113 Statute 1338
    • United States Congress. Gramm-Leach-Bliley Act. Public Law Number 106-102, 113 Statute 1338. 1999.
    • (1999) Gramm-Leach-Bliley Act
  • 31
    • 84855260266 scopus 로고    scopus 로고
    • The Forum on Genetic Equity, Available from, Accessed August 8, 2011
    • The Forum on Genetic Equity, Massachusetts Genetic Bill of Rights: Background Memo. Available from: http://www.geneticequity.org/?l=widgets/pdf_viewer&id=1157 [Accessed August 8, 2011].
    • Massachusetts Genetic Bill of Rights: Background Memo
  • 32
    • 84855256470 scopus 로고    scopus 로고
    • Massachusetts state legislature (US). Massachusetts General Laws. 111 §70G
    • Massachusetts state legislature (US). Massachusetts General Laws. 111 §70G. 2010.
    • (2010)
  • 34
    • 84855256334 scopus 로고    scopus 로고
    • The Forum on Genetic Equity, Massachusetts Genetic Bill of Rights: Section by Section Analysis. Available from, Accessed August 8, 2011
    • The Forum on Genetic Equity, Massachusetts Genetic Bill of Rights: Section by Section Analysis. Available from: http://geneticequity.org/index.php?l=widgets/pdf_viewer&id=1154 [Accessed August 8, 2011].
  • 35
    • 84855256469 scopus 로고    scopus 로고
    • US Department of Health & Human Services, Health Information Privacy, Frequently Asked Questions: Why was the consent requirement eliminated from the HIPAA Privacy Rule, and how will it affect individuals' privacy protections? Available from, Accessed August 8, 2011
    • US Department of Health & Human Services, Health Information Privacy, Frequently Asked Questions: Why was the consent requirement eliminated from the HIPAA Privacy Rule, and how will it affect individuals' privacy protections? Available from: http://www.hhs.gov/ocr/privacy/hipaa/faq/privacy_rule_general_topics/193.html [Accessed August 8, 2011].
  • 36
    • 84855256335 scopus 로고    scopus 로고
    • United States Congress. Common Rule. 45 Code of Federal Regulations § 46.116
    • United States Congress. Common Rule. 45 Code of Federal Regulations § 46.116. 2010.
    • (2010)
  • 37
    • 84855292142 scopus 로고    scopus 로고
    • US, H.R. 9, Designating April 25, 2011 as Genetic Equity AwarenessDay, 2011-2012, Reg. Sess., Vt, 2011 (enacted). Available from, Accessed September 1, 2011
    • US, H.R. 9, Designating April 25, 2011 as Genetic Equity AwarenessDay, 2011-2012, Reg. Sess., Vt, 2011 (enacted). Available from: http://www.leg.state.vt.us/docs/2012/resolutn/HR0009.pdf [Accessed September 1, 2011].
  • 38
    • 84855288109 scopus 로고    scopus 로고
    • Uniform Law Commission (US). Uniform Anatomical Gift Act. §16
    • Uniform Law Commission (US). Uniform Anatomical Gift Act. §16. 2006.
    • (2006)
  • 39
    • 84855256467 scopus 로고    scopus 로고
    • Vermont state legislature (US). Uniform Anatomical Gift Act. Vermont Statutes. Title 18, chapter 109, § 5246
    • Vermont state legislature (US). Uniform Anatomical Gift Act. Vermont Statutes. Title 18, chapter 109, § 5246. 2010.
    • (2010)
  • 40
    • 84985239990 scopus 로고
    • The attempt to pass the genetic privacy act in Maryland
    • Holtzman NA. The attempt to pass the genetic privacy act in Maryland. JL Med & Ethics 1995; 23(4): 367-70.
    • (1995) JL Med & Ethics , vol.23 , Issue.4 , pp. 367-370
    • Holtzman, N.A.1
  • 41
    • 0032009761 scopus 로고    scopus 로고
    • Genetic information and third party access to information: New Jersey's pioneering legislation as a model for federal privacy protection of genetic information
    • Stepanuk NA. Genetic information and third party access to information: New Jersey's pioneering legislation as a model for federal privacy protection of genetic information. Cath U L Rev 1998; 47(3): 1105-44.
    • (1998) Cath U L Rev , vol.47 , Issue.3 , pp. 1105-1144
    • Stepanuk, N.A.1
  • 42
    • 84855292141 scopus 로고    scopus 로고
    • New Jersey state legislature (US). New Jersey Statutes. §10:5-44
    • New Jersey state legislature (US). New Jersey Statutes. §10:5-44. 2010.
    • (2010)
  • 43
    • 0034279365 scopus 로고    scopus 로고
    • Engineering genetics policy: Michigan lawmakers' cautious, conservative approach to developing genetic privacy protections is sure to be a model for Congress and other states
    • Calvo C. Engineering genetics policy: Michigan lawmakers' cautious, conservative approach to developing genetic privacy protections is sure to be a model for Congress and other states. State Legislatures 2000; 26(8): 28-31.
    • (2000) State Legislatures , vol.26 , Issue.8 , pp. 28-31
    • Calvo, C.1
  • 45
    • 83455174389 scopus 로고    scopus 로고
    • Ontario provincial legislature (Canada). Personal Health Information Protection Act, 2004. Statutes of Ontario, chapter 3, Schedule A
    • Ontario provincial legislature (Canada). Personal Health Information Protection Act, 2004. Statutes of Ontario, chapter 3, Schedule A. 2004.
  • 46
    • 83455227723 scopus 로고    scopus 로고
    • British Columbia provincial legislature (Canada). Privacy Act. Registered Statutes British of Columbia, chapter 373
    • British Columbia provincial legislature (Canada). Privacy Act. Registered Statutes British of Columbia, chapter 373. 1996.
    • (1996)
  • 47
    • 83455227677 scopus 로고    scopus 로고
    • Nova Scotia Supreme Court. MacDonnell v. Halifax Herald Ltd. 279 NSR (2d) 217
    • Nova Scotia Supreme Court. MacDonnell v. Halifax Herald Ltd. 279 NSR (2d) 217. 1999.
    • (1999)
  • 48
    • 83455227722 scopus 로고    scopus 로고
    • Ontario Superior Court of Justice. Somwar v. McDonald's Restaurants of Canada Ltd. 79 OR (3d) 172 at para 29
    • Ontario Superior Court of Justice. Somwar v. McDonald's Restaurants of Canada Ltd. 79 OR (3d) 172 at para 29. 2006.
    • (2006)
  • 49
    • 3042681436 scopus 로고    scopus 로고
    • Australia Law Reform Commission and Australian Health Ethics Committee, ALRC Report 96. Sydney: Commonwealth of Australia
    • Australia Law Reform Commission and Australian Health Ethics Committee. Essentially yours: The protection of human genetic information in Australia. ALRC Report 96. Sydney: Commonwealth of Australia 2003.
    • (2003) Essentially Yours: The Protection of Human Genetic Information In Australia
  • 50
  • 51
    • 0030945556 scopus 로고    scopus 로고
    • Ownership of genetic material and information
    • De Witte JI, ten Have H. Ownership of genetic material and information. SocSci Med1997; 45(1): 51-60.
    • (1997) SocSci Med , vol.45 , Issue.1 , pp. 51-60
    • de Witte, J.I.1    ten Have, H.2
  • 55
    • 56949100272 scopus 로고    scopus 로고
    • The tragedy of the anti-commons: Property in the transition from Marx to markets
    • Heller MA. The tragedy of the anti-commons: Property in the transition from Marx to markets. Harv L Rev 1998; 111(3): 621-88.
    • (1998) Harv L Rev , vol.111 , Issue.3 , pp. 621-688
    • Heller, M.A.1
  • 56
    • 34248151488 scopus 로고    scopus 로고
    • The 'I' in the gene: Divided property, fragmented personhood, and the making of a genetic privacy law
    • Everett M. The 'I' in the gene: Divided property, fragmented personhood, and the making of a genetic privacy law. American Ethnologist 2007; 34(2): 375-86.
    • (2007) American Ethnologist , vol.34 , Issue.2 , pp. 375-386
    • Everett, M.1
  • 57
    • 83455174388 scopus 로고    scopus 로고
    • Oregon state legislature (US). Senate Bill 114. A bill for an act relating to genetic privacy; creating new provisions; amending ORS 659.036, 659.121, 659.700, 659.705, 659.710, 659.715, 659.720 and 746.135; and declaring an emergency. 71st Legislative assembly. Regular session
    • Oregon state legislature (US). Senate Bill 114. A bill for an act relating to genetic privacy; creating new provisions; amending ORS 659.036, 659.121, 659.700, 659.705, 659.710, 659.715, 659.720 and 746.135; and declaring an emergency. 71st Legislative assembly. Regular session. 2001.
    • (2001)
  • 58
    • 83455190059 scopus 로고    scopus 로고
    • United States District Court - Southern District of Florida. Greenberg et al. v. Miami Children's Hospital Research Institute. 264 F. Supp. 2d 1064
    • United States District Court - Southern District of Florida. Greenberg et al. v. Miami Children's Hospital Research Institute. 264 F. Supp. 2d 1064. 2003.
    • (2003)
  • 59
    • 83455170112 scopus 로고    scopus 로고
    • United States Circuit Court of Appeals (8th Circuit). Washington University v. Catalona. 490 F.3d 667
    • United States Circuit Court of Appeals (8th Circuit). Washington University v. Catalona. 490 F.3d 667. 2007.
    • (2007)
  • 60
    • 3042849144 scopus 로고    scopus 로고
    • Genomic research and human subject privacy
    • Lin Z, Owen AB, Altman RB. Genomic research and human subject privacy. Science 2004; 305(5681): 183.
    • (2004) Science , vol.305 , Issue.5681 , pp. 183
    • Lin, Z.1    Owen, A.B.2    Altman, R.B.3
  • 61
    • 2942522665 scopus 로고    scopus 로고
    • How (not) to protect genomic data privacy in a distributed network: Using trail re-identification to evaluate and design anonymity protection systems
    • Malin B, Sweeney L. How (not) to protect genomic data privacy in a distributed network: Using trail re-identification to evaluate and design anonymity protection systems. J Biomed Info. 2004; 37(3): 179-92.
    • (2004) J Biomed Info , vol.37 , Issue.3 , pp. 179-192
    • Malin, B.1    Sweeney, L.2
  • 62
    • 50849101381 scopus 로고    scopus 로고
    • Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays
    • Homer N, Szelinger S, Redman M, et al. Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays. PLoS Genet 2008; 4(8): e1000167.
    • (2008) PLoS Genet , vol.4 , Issue.8
    • Homer, N.1    Szelinger, S.2    Redman, M.3
  • 63
    • 58349109653 scopus 로고    scopus 로고
    • On Jim Watson's APOE status: Genetic information is hard to hide
    • Nyholt DR, Yu CE, Visscher PM. On Jim Watson's APOE status: genetic information is hard to hide. Eur J Hum Genet. 2009; 17(2): 147-9.
    • (2009) Eur J Hum Genet , vol.17 , Issue.2 , pp. 147-149
    • Nyholt, D.R.1    Yu, C.E.2    Visscher, P.M.3
  • 64
    • 83455190055 scopus 로고    scopus 로고
    • Health Council of the Netherlands, The Hague: Centre for Ethics and Health
    • Health Council of the Netherlands. The 'thousand-dollar genome': An ethical exploration. The Hague: Centre for Ethics and Health 2010.
    • (2010) The 'thousand-dollar Genome': An Ethical Exploration
  • 65
    • 79955778144 scopus 로고    scopus 로고
    • Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm
    • Wicks P, Vaughan TE, Massagli MP, et al. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol 2011; 29: 411-4.
    • (2011) Nat Biotechnol , vol.29 , pp. 411-414
    • Wicks, P.1    Vaughan, T.E.2    Massagli, M.P.3
  • 67
    • 84855256468 scopus 로고    scopus 로고
    • Ernst and Young. Beyond borders: global biotechnology report, Available from, Accessed September 30, 2011
    • Ernst and Young. Beyond borders: global biotechnology report 2011. Available from: http://www.ey.com/Publication/vwLUAssets/Beyond_borders_global_biotechnology_report_2011/$FILE/Beyond_borders_global_biotechnology_report_2011.pdf [Accessed September 30, 2011].
    • (2011)
  • 69
    • 34347211747 scopus 로고    scopus 로고
    • Opening up nanotechnology dialogue with the publics: Risk communication or 'upstream engagement'?
    • Pidgeon N, Rogers-Hayden T. Opening up nanotechnology dialogue with the publics: Risk communication or 'upstream engagement'? Health, Risk & Society 2007, 9(2): 191-210.
    • (2007) Health Risk & Society , vol.9 , Issue.2 , pp. 191-210
    • Pidgeon, N.1    Rogers-Hayden, T.2
  • 70
    • 36248973360 scopus 로고    scopus 로고
    • Science and democracy
    • Toumey C. Science and democracy. Nat Nanotechnol 2006; 1: 6-7.
    • (2006) Nat Nanotechnol , vol.1 , pp. 6-7
    • Toumey, C.1
  • 71
    • 29144432973 scopus 로고    scopus 로고
    • Nanotechnology, governance and public deliberation: What role for the social sciences?
    • Macnaghten P, Kearns MB, Wynne B. Nanotechnology, governance and public deliberation: What role for the social sciences? SciCommun 2005; 27(2): 268-91.
    • (2005) SciCommun , vol.27 , Issue.2 , pp. 268-291
    • Macnaghten, P.1    Kearns, M.B.2    Wynne, B.3
  • 72
    • 83455190057 scopus 로고    scopus 로고
    • See-through science: Why public engagement needs to move upstream
    • Willis R, Wilsdon J. See-through science: Why public engagement needs to move upstream. London: Demos 2004.
    • (2004) London: Demos
    • Willis, R.1    Wilsdon, J.2
  • 73
    • 19644363798 scopus 로고    scopus 로고
    • Anon. Going public
    • Anon. Going public. Nature 2004; 431(7011): 883.
    • (2004) Nature , vol.431 , Issue.7011 , pp. 883
  • 74
    • 33745623112 scopus 로고    scopus 로고
    • Public deliberation and governance: Engaging with science and technology in contemporary Europe
    • Hagendijk R, Irwin A. Public deliberation and governance: Engaging with science and technology in contemporary Europe. Minerva 2006; 44(2): 167-84.
    • (2006) Minerva , vol.44 , Issue.2 , pp. 167-184
    • Hagendijk, R.1    Irwin, A.2
  • 76
    • 84861652255 scopus 로고    scopus 로고
    • Lost in translation? The need for 'upstream engagement' with nanotechnology on trial
    • Joly PB, Kaufmann A. Lost in translation? The need for 'upstream engagement' with nanotechnology on trial. Science as Culture 2008; 17(3): 225-47.
    • (2008) Science As Culture , vol.17 , Issue.3 , pp. 225-247
    • Joly, P.B.1    Kaufmann, A.2
  • 77
    • 84855288108 scopus 로고    scopus 로고
    • United States Congress. 21st Century Nanotechnology Research and Development Act. Public Law Number 108-153, § 2(10)(D), 117 Statute 1923
    • United States Congress. 21st Century Nanotechnology Research and Development Act. Public Law Number 108-153, § 2(10)(D), 117 Statute 1923. 2003.
    • (2003)
  • 78
    • 68049092168 scopus 로고    scopus 로고
    • Upstream engagement and the governance of science: The shadow of the genetically modified crops experience in Europe
    • Tait J. Upstream engagement and the governance of science: The shadow of the genetically modified crops experience in Europe. EMBO Rep 2009; 10: S18-22.
    • (2009) EMBO Rep , vol.10
    • Tait, J.1
  • 79
    • 36148982246 scopus 로고    scopus 로고
    • Pharmacology, vaccinomics, and the second golden age of vaccinology
    • Poland GA. Pharmacology, vaccinomics, and the second golden age of vaccinology. Clin Pharmacol Ther 2007; 82: 623-6.
    • (2007) Clin Pharmacol Ther , vol.82 , pp. 623-626
    • Poland, G.A.1
  • 80
    • 64949127696 scopus 로고    scopus 로고
    • Risk assessment and communication tools for genotype associations with multi-factorial phenotypes: The concept of "edge effect" and cultivating an ethical bridge between omics innovations and society
    • Ozdemir V, Suarez-Kurtz G, Stenne R, et al. Risk assessment and communication tools for genotype associations with multi-factorial phenotypes: the concept of edge effect" and cultivating an ethical bridge between omics innovations and society. OMIS 2009; 13(1): 43-61.
    • (2009) OMIS , vol.13 , Issue.1 , pp. 43-61
    • Ozdemir, V.1    Suarez-Kurtz, G.2    Stenne, R.3
  • 81
    • 79952112225 scopus 로고    scopus 로고
    • The next scientific revolution: How data mashups can help save the world
    • November
    • Hey T. The next scientific revolution: How data mashups can help save the world. Harvard Business Review November 2010: 56-63.
    • (2010) Harvard Business Review , pp. 56-63
    • Hey, T.1
  • 82
    • 80052779414 scopus 로고    scopus 로고
    • Steering vaccinomics innovations with anticipatory governance and participatory foresight
    • Ozdemir V, Faraj SA, Knoppers BM. Steering vaccinomics innovations with anticipatory governance and participatory foresight. OMICS 2011; 15(9): 637-46.
    • (2011) OMICS , vol.15 , Issue.9 , pp. 637-646
    • Ozdemir, V.1    Faraj, S.A.2    Knoppers, B.M.3
  • 83
    • 80052703586 scopus 로고    scopus 로고
    • Vaccines of the 21st century and vaccinomics: Data-enabled science meets global health to spark collective action for vaccine innovation
    • Ozdemir V, Pang T, Knoppers BM, et al. Vaccines of the 21st century and vaccinomics: Data-enabled science meets global health to spark collective action for vaccine innovation. OMICS 2011; 15(9): 523-7.
    • (2011) OMICS , vol.15 , Issue.9 , pp. 523-527
    • Ozdemir, V.1    Pang, T.2    Knoppers, B.M.3
  • 84
    • 80052726768 scopus 로고    scopus 로고
    • Publics and vaccinomics: Beyond public understanding of science
    • Einsiedel EF. Publics and vaccinomics: Beyond public understanding of science. OMICS 2011; 15(9): 607-14.
    • (2011) OMICS , vol.15 , Issue.9 , pp. 607-614
    • Einsiedel, E.F.1
  • 85
    • 80053396014 scopus 로고    scopus 로고
    • Troubled waters- an examination of the disconnect between river science and law
    • Taylor MP, Ives CD, Davies PJ, et al. Troubled waters- an examination of the disconnect between river science and law. Environ SciTechnol 2011; 45(19): 8178-9.
    • (2011) Environ SciTechnol , vol.45 , Issue.19 , pp. 8178-8179
    • Taylor, M.P.1    Ives, C.D.2    Davies, P.J.3
  • 86
    • 65649085229 scopus 로고    scopus 로고
    • Boundary work in knowledge teams
    • Faraj S, Yan A. Boundary work in knowledge teams. Appl Psychol 2009; 94: 604-17.
    • (2009) Appl Psychol , vol.94 , pp. 604-617
    • Faraj, S.1    Yan, A.2
  • 87
    • 80052693665 scopus 로고    scopus 로고
    • Transcending knowledge differences in cross-functional teams
    • in press
    • Majchrzak A, More PHB, Faraj S. Transcending knowledge differences in cross-functional teams. Organizat Sci 2011 (in press).
    • (2011) Organizat Sci
    • Majchrzak, A.1    More, P.H.B.2    Faraj, S.3
  • 89
    • 84870271557 scopus 로고    scopus 로고
    • Pharmacogenomics: Reflections on the old and new social, ethical and policy issues in postgenomics medicine
    • Schwab M, Kaschka W, Spina E (eds)., Basel: Karger
    • Ozdemir V. Pharmacogenomics: Reflections on the old and new social, ethical and policy issues in postgenomics medicine. In Schwab M, Kaschka W, Spina E (eds). Pharmacogenomics in psychiatry. Advances in biological psychiatry. Basel: Karger 2010.
    • (2010) Pharmacogenomics In Psychiatry. Advances In Biological Psychiatry
    • Ozdemir, V.1
  • 90
    • 0347940486 scopus 로고
    • Law in science and science in law
    • Holmes OW. Law in science and science in law. Harvard Law Review 1899; 12(7): 443-63.
    • (1899) Harvard Law Review , vol.12 , Issue.7 , pp. 443-463
    • Holmes, O.W.1
  • 91
    • 83455227714 scopus 로고
    • Saving us from ourselves: The interaction of law and science-technology
    • Curlin JW. Saving us from ourselves: The interaction of law and science-technology. Denver Law Journal 1970; 47: 651-63.
    • (1970) Denver Law Journal , vol.47 , pp. 651-663
    • Curlin, J.W.1
  • 92
    • 34247340982 scopus 로고    scopus 로고
    • A rationale for science-policy interfaces
    • Van den Hove S. A rationale for science-policy interfaces. Futures 2010; 39(7): 807-26.
    • (2010) Futures , vol.39 , Issue.7 , pp. 807-826
    • van den Hove, S.1
  • 93
    • 0038070158 scopus 로고    scopus 로고
    • Legalising science
    • Tallacchini M. Legalising science. Health Care Anal 2002; 10(3): 329-37.
    • (2002) Health Care Anal , vol.10 , Issue.3 , pp. 329-337
    • Tallacchini, M.1
  • 94
    • 84935464287 scopus 로고
    • Legal formalism: On the immanent rationality of law
    • Weinrib EJ. Legal formalism: On the immanent rationality of law. Yale Law Journal 1988; 97(6): 949-1016.
    • (1988) Yale Law Journal , vol.97 , Issue.6 , pp. 949-1016
    • Weinrib, E.J.1
  • 95
    • 80052251383 scopus 로고    scopus 로고
    • Personalized medicine in a consumer age
    • Corrigan OP. Personalized medicine in a consumer age. Curr Pharmacogenomics Person Med 2011; 9(3): 168-76.
    • (2011) Curr Pharmacogenomics Person Med , vol.9 , Issue.3 , pp. 168-176
    • Corrigan, O.P.1
  • 97
    • 22744443316 scopus 로고    scopus 로고
    • Law's knowledge: Science for justice in legal settings
    • Jasanoff S. Law's knowledge: science for justice in legal settings. Am J Public Health 2005; 95(Suppl 1): S49-58.
    • (2005) Am J Public Health , vol.95 , Issue.SUPPL. 1
    • Jasanoff, S.1
  • 98
    • 0037333738 scopus 로고    scopus 로고
    • Education: Teaching pharmacogenomics to prepare future physicians and researchers for personalized medicine
    • Gurwitz D, Weizman A, Rehavi M. Education: Teaching pharmacogenomics to prepare future physicians and researchers for personalized medicine. Trends PharmacolSci 2003; 24(3): 122-5.
    • (2003) Trends PharmacolSci , vol.24 , Issue.3 , pp. 122-125
    • Gurwitz, D.1    Weizman, A.2    Rehavi, M.3
  • 99
    • 77952390550 scopus 로고    scopus 로고
    • Anonymization of electronic medical records for validating genome-wide association studies
    • Loukides G, Gkoulalas-Divanis A, Malin B. Anonymization of electronic medical records for validating genome-wide association studies. PNAS 2010; 107(17): 7898-903
    • (2010) PNAS , vol.107 , Issue.17 , pp. 7898-7903
    • Loukides, G.1    Gkoulalas-Divanis, A.2    Malin, B.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.