Hydroxyurea and sickle cell anemia: Effect on quality of life

Health and Quality of Life Outcomes

Volumn 4, Issue , 2006, Pages

  Ballas, Samir K ^a   Barton, Franca B ^b   Waclawiw, Myron A ^c   Swerdlow, Paul ^d   Eckman, James R ^e   Pegelow, Charles H ^f   Koshy, Mabel ^g   Barton, Bruce A ^b   Bonds, Duane R ^c  

^a THOMAS JEFFERSON UNIVERSITY   (United States)

^b MARYLAND MEDICAL RESEARCH INSTITUTE   (United States)

^c NATIONAL HEART LUNG AND BLOOD INSTITUTE   (United States)

^d WAYNE STATE UNIVERSITY   (United States)

^e EMORY UNIVERSITY   (United States)

^f UNIVERSITY OF MIAMI   (United States)

^g UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

HEMOGLOBIN F; HYDROXYUREA;

ADULT; AGE DISTRIBUTION; ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DISEASE SEVERITY; DOUBLE BLIND PROCEDURE; DRUG RESPONSE; EMOTIONAL STRESS; FEMALE; HEALTH STATUS; HEMOGLOBIN DETERMINATION; HUMAN; MAJOR CLINICAL STUDY; MALE; MULTICENTER STUDY; OUTCOMES RESEARCH; PAIN ASSESSMENT; PROFILE OF MOOD STATES; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; RATING SCALE; SCORING SYSTEM; SEX RATIO; SHORT FORM 36; SICKLE CELL ANEMIA; SICKLE CELL CRISIS; SOCIAL STATUS;

ACTIVITIES OF DAILY LIVING; ADULT; ANEMIA, SICKLE CELL; ANTISICKLING AGENTS; BLOOD CELL COUNT; DOUBLE-BLIND METHOD; ERYTHROCYTE INDICES; FEMALE; FETAL HEMOGLOBIN; HUMANS; HYDROXYUREA; MALE; MIDDLE AGED; PAIN; PAIN MEASUREMENT; QUALITY OF LIFE; SICKNESS IMPACT PROFILE; TREATMENT OUTCOME;

EID: 33750003950     PISSN: 14777525     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-4-59     Document Type: Article

References (26)

1. Fihn SD: The quest to quantify quality. JAMA 2000, 283:1740-1742.
2. Stewart AL, Greenfield S, Hays RD, Wells K, Rogers WH, Berry SD, McGlynn EA, Ware JE: Functional status and well being of patients with chronic conditions. JAMA 1989, 262:907-913.
3. Riesenberg D, Glass RM: The Medical outcomes study. JAMA 1989, 262:943.
4. Ferrell BR, Wisdom C, Wenzl C: Quality of life as an outcome variable in the management of cancer pain. Cancer 1989, 63:2321-2327.
5. Platt O, Thorington BD, Brambilla DJ, Milner PF, Rosse W, Vichinsky E, Kinney TR: Pain in sickle cell disease: rates and risk factors. N Engl J Med 1991, 325:11-16.
6. Farber MD, Koshy M, Kinney TR, the Cooperative Group: Cooperative study of sickle cell disease: demographic and socioeconomic characteristics of patients and families with sickle cell disease. J Chronic Dis 1985, 38:495-505.
7. Platt O, Brambilla DJ, Rosse W, Milner PF, Castro O, Steinberg MH, Klug PP: Mortality in sickle cell disease: Life expectancy and risk factors for early death. N Engl J Med 1994, 330:1639-1644.
8. Charache S, Terrin ML, Moore RD, Dover GJ, Barton FB, Eckert SV, McMahon RP, Bonds DR, the Investigators of the Multicenter Study of Hydroxyurea in Sickle Cell Anemia: Effect of hydroxyurea on the frequency of painful crises in sickle cell anemia. N Engl J Med 1995, 332:1317-1322.
9. Charache S, Barton FB, Moore RD, Terrin ML, Steinberg MH, Dover GJ, Ballas SK, McMahon RP, Castro O, Orringer EP: Hydroxyurea and sickle cell anemia: clinical utility of a myelosuppressive "switching" agent. Medicine 1996, 75:300-326.
10. Ware JE, Snow KK, Kosinski M, Gandek B: SF-36 Health Survey Manual and Interpretation.
11. How To Score The SF-36 Health Survey. Boston Medical Outcomes Trust 1993.
12. Hornquist JO: The concept of quality of life. Scand J Soc Med 1982, 10:57-61.
13. Hornquist JO: Quality of life: concept and assessment. Scand J Soc Med 1989, 18:69-79.
14. Steinberg MH, Lu ZH, Barton FB, Terrin MJ, Charache S, Dover GJ, the Multicenter Study of Hydroxyurea in Sickle Cell Anemia Group: Fetal hemoglobin in Sickle Cell Anemia: determinants of response to hydroxyurea. Blood 1997, 89:1078-1088.
15. Woods KF, Miller MD, Johnson MH, Tracy A, Kutlar A, Cassel CK: Functional status and well being in adults with Sickle Cell Disease. JCOM 1997, 4:15-21.
16. Revicki DA: Health-related quality of life in the evaluation of medical therapy for chronic illness. J Fam Pract 1989, 29:377-380.
17. Hanestad BR, Albrektsen G: Quality of life: perceived difficulties in adherence to a diabetes regimen, and blood glucose control. Diabet Med 1991, 8:759-764.
18. Harati Y, Gooch C, Swenson M, Edelman S, Greene D, Raskin P, Donofrio P, Cornblath D, Sachleo R, Siu CO, Kamin M: Double blind randomized trial of tramadol for the treatment of the pain of diabetic neuropathy. Neuropathy 1998, 50:1842-1846.
19. Rowbotham M, Harden N, Stacey B, Bernstein PS, Magnus-Miller L, the Gabapentin post herpetic Neuralgia Study Group: Gabapentin for the treatment of postherpetic neuralgia. A randomized controlled trial. JAMA 1998, 280:1837-1842.
20. Backonja M, Beydoun A, Edwards KR, Schwartz SL, Fonsecs V, Hes M, LaMoreaux L, Garofalo E, the Gabapentin Diabetic Neuropathy Study Group: Gabapentin for the Symptomatic treatment of painful Neuropathy in patients with Diabetes Mellitus. JAMA 1998, 280:1831-1836.
21. Fuggle P, Shand PA, Gill LJ, Davies SC: Pain, quality of life, and coping in sickle cell disease. Arch Dis Child 1996, 75:199-203.
22. Kater AP, Hejboer H, Peters M, Vogels T, Prins MH, Heymans HS: Quality of life in children with sickle cell disease in Amsterdam area (Dutch) Netherlands. Ned Tijdschr Geneeskd 1999, 143:2049-2053.
23. Anie KA, Steptoe A, Bevan DH: Sickle cell disease: Pain, coping and quality of life in a study of adults in the UK. Br J Health Psychol 2002, 7:331-334.
24. McClish DK, Penberthy LT, Bovbjerg VE, Roberts JD, Aisiku IP, Levenson JL, Roseff SD, Smith WR: Health related quality of life in sickle cell patients: the PiSCES project. Health Qual Life Outcomes 2005, 3:50.
25. Ballas SK, Dover GJ, Charache S: Effect of Hydroxyurea on the rheological properties of sickle cell erythrocytes in vivo. Am J Hematol 1989, 32:104-111.
26. Charache S, Dover GJ, Moore RD, Eckert S, Ballas SK, Koshy M, Milner PFA, Orringer EP, Phillips G Jr, Platt OS, Thomas GH: Hydroxyurea: Effect on hemoglobin F production in patients with sickle cell anemia. Blood 1992, 79:2555-2565.