A comparison of self-reported and record-linked blood donation history in an Australian cohort

Transfusion

Volumn 51, Issue 10, 2011, Pages 2189-2198

  Bertalli, Nadine A ^{a,b,c,d,e,f,g,h}   Allen, Katrina J ^{a,b,c,d,e,f,g,h}   McLaren, Christine E ^{a,b,c,d,e,f,g,h}   Turkovic, Lidija ^{a,b,c,d,e,f,g,h}   Osborne, Nicholas J ^{a,b,c,d,e,f,g,h}   Constantine, Clare C ^{a,b,c,d,e,f,g,h}   Delatycki, Martin B ^{a,b,c,d,e,f,g,h}   English, Dallas R ^{a,b,c,d,e,f,g,h}   Giles, Graham G ^{a,b,c,d,e,f,g,h}   Hopper, John L ^{a,b,c,d,e,f,g,h}   Anderson, Gregory J ^{a,b,c,d,e,f,g,h}   Olynyk, John K ^{a,b,c,d,e,f,g,h}   Powell, Lawrie W ^{a,b,c,d,e,f,g,h}   Gurrin, Lyle C ^{a,b,c,d,e,f,g,h}  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b ROYAL CHILDREN'S HOSPITAL   (Australia)

^c UNIVERSITY OF CALIFORNIA   (United States)

^d CANCER EPIDEMIOLOGY CENTRE   (Australia)

^e UNIVERSITY OF QUEENSLAND   (Australia)

^f FREMANTLE HOSPITAL   (Australia)

^g UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^h CURTIN UNIVERSITY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; BLOOD BANK; BLOOD DONOR; ELECTRONIC MEDICAL RECORD; FOLLOW UP; GENOTYPE; HOMOZYGOTE; HUMAN; INFORMATION RETRIEVAL; INFORMED CONSENT; QUESTIONNAIRE; RED CROSS; SELF REPORT;

ADULT; AGED; BLOOD BANKS; BLOOD DONORS; COHORT STUDIES; ELECTRONIC HEALTH RECORDS; FEMALE; HUMANS; MALE; MIDDLE AGED; SELF REPORT; VICTORIA;

EID: 80054743184     PISSN: 00411132     EISSN: 15372995     Source Type: Journal    
DOI: 10.1111/j.1537-2995.2011.03141.x     Document Type: Article

References (40)

1. Stephen N,. Review of the Australian blood banking and plasma product sector. Canberra: AGPS; 2001.
2. Flood P, Wills P, Lawler P, Ryan G, Rickard KA,. Review of Australia's plasma fractionation arrangements. Canberra: Commonwealth of Australia; 2006.
3. Wallace EL, Churchill WH, Surgenor DM, Cho GS, McGurk S,. Collection and transfusion of blood and blood components in the United States, 1994. Transfusion 1998; 38: 625-36. (Pubitemid 28350689)
4. Greinacher A, Fendrich K, Hoffmann W,. Demographic changes: the impact for safe blood supply. Transfus Med Hemother 2010; 37: 141-8.
5. Greinacher A, Fendrich K, Brzenska R, Kiefel V, Hoffmann W,. Implications of demographics on future blood supply: a population-based cross-sectional study. Transfusion 2011; 51: 702-9.
6. Glynn SA, Kleinman SH, Schreiber GB, Zuck T, Combs SM, Bethel J, Garratty G, Williams AE,. Motivations to donate blood: demographic comparisons. Transfusion 2002; 42: 216-25.
7. Veldhuizen IJ, Doggen CJ, Atsma F, De Kort WL,. Donor profiles: demographic factors and their influence on the donor career. Vox Sang 2009; 97: 129-38.
8. Nilsson Sojka B, Sojka P,. The blood-donation experience: perceived physical, psychological and social impact of blood donation on the donor. Vox Sang 2003; 84: 120-8. (Pubitemid 36565088)
9. Ringwald J, Zimmermann R, Eckstein R,. Keys to open the door for blood donors to return. Transfus Med Rev 2010; 24: 295-304.
10. Duboz P, Cuneo B,. How barriers to blood donation differ between lapsed donors and non-donors in France. Transfus Med 2010; 20: 227-36.
11. Mathew SM, King MR, Glynn SA, Dietz SK, Caswell SL, Schreiber GB,. Opinions about donating blood among those who never gave and those who stopped: a focus group assessment. Transfusion 2007; 47: 729-35. (Pubitemid 46449635)
12. Ahmed F, Coyne T, Dobson A, McClintock C,. Iron status among Australian adults: findings of a population based study in Queensland, Australia. Asia Pac J Clin Nutr 2008; 17: 40-7.
13. Looker AD, Cogswell M, Gunter E,. Iron deficiency-United States, 1999-2000. MMWR Morb Mortal Wkly Rep 2002; 51: 897-9.
14. Brownlie TT, Utermohlen V, Hinton PS, Haas JD,. Tissue iron deficiency without anemia impairs adaptation in endurance capacity after aerobic training in previously untrained women. Am J Clin Nutr 2004; 79: 437-43. (Pubitemid 41115588)
15. Haas JD, Brownlie TT,. Iron deficiency and reduced work capacity: a critical review of the research to determine a causal relationship. J Nutr 2001; 131: 676S-88S. discussion 88S-90S.
16. Beard JL, Connor JR,. Iron status and neural functioning. Annu Rev Nutr 2003; 23: 41-58. (Pubitemid 37059715)
17. Bruner AB, Joffe A, Duggan AK, Casella JF, Brandt J,. Randomised study of cognitive effects of iron supplementation in non-anaemic iron-deficient adolescent girls. Lancet 1996; 348: 992-6. (Pubitemid 26340755)
18. Ahluwalia N, Sun J, Krause D, Mastro A, Handte G,. Immune function is impaired in iron-deficient, homebound, older women. Am J Clin Nutr 2004; 79: 516-21. (Pubitemid 41115599)
19. Chandra RK,. Nutrition and the immune system from birth to old age. Eur J Clin Nutr 2002; 56 Suppl 3: S73-6.
20. Adams PC, Barton JC,. Haemochromatosis. Lancet 2007; 370: 1855-60. (Pubitemid 350180034)
21. Olynyk JK, Trinder D, Ramm GA, Britton RS, Bacon BR,. Hereditary hemochromatosis in the post-HFE era. Hepatology 2008; 48: 991-1001.
22. Feder JN, Gnirke A, Thomas W, Tsuchihashi Z, Ruddy DA, Basava A, Dormishian F, Domingo R Jr, Ellis MC, Fullan A, Hinton LM, Jones NL, Kimmel BE, Kronmal GS, Lauer P, Lee VK, Loeb DB, Mapa FA, McClelland E, Meyer NC, Mintier GA, Moeller N, Moore T, Morikang E, Wolff RK, et al,. A novel MHC class I-like gene is mutated in patients with hereditary haemochromatosis. Nat Genet 1996; 13: 399-408. (Pubitemid 26256612)
23. Steinberg KK, Cogswell ME, Chang JC, Caudill SP, McQuillan GM, Bowman BA, Grummer-Strawn LM, Sampson EJ, Khoury MJ, Gallagher ML,. Prevalence of C282Y and H63D mutations in the hemochromatosis (HFE) gene in the United States. JAMA 2001; 285: 2216-22. (Pubitemid 32416767)
24. Allen KJ, Gurrin LC, Constantine CC, Osborne NJ, Delatycki MB, Nicoll AJ, McLaren CE, Bahlo M, Nisselle AE, Vulpe CD, Anderson GJ, Southey MC, Giles GG, English DR, Hopper JL, Olynyk JK, Powell LW, Gertig DM,. Iron-overload-related disease in HFE hereditary hemochromatosis. N Engl J Med 2008; 358: 221-30.
25. McLaren GD, McLaren CE, Adams PC, Barton JC, Reboussin DM, Gordeuk VR, Acton RT, Harris EL, Speechley MR, Sholinsky P, Dawkins FW, Snively BM, Vogt TM, Eckfeldt JH,. Clinical manifestations of hemochromatosis in HFE C282Y homozygotes identified by screening. Can J Gastroenterol 2008; 22: 923-30.
26. Gordeuk VR, Reboussin DM, McLaren CE, Barton JC, Acton RT, McLaren GD, Harris EL, Reiss JA, Adams PC, Speechley M, Phatak PD, Sholinsky P, Eckfeldt JH, Chen WP, Passmore L, Dawkins FW,. Serum ferritin concentrations and body iron stores in a multicenter, multiethnic primary-care population. Am J Hematol 2008; 83: 618-26.
27. Barton JC, Preston BL, McDonnell SM, Rothenberg BE,. Severity of iron overload in hemochromatosis: effect of volunteer blood donation before diagnosis. Transfusion 2001; 41: 123-9. (Pubitemid 32142257)
28. McDonnell SM, Grindon AJ, Preston BL, Barton JC, Edwards CQ, Adams PC,. A survey of phlebotomy among persons with hemochromatosis. Transfusion 1999; 39: 651-6. (Pubitemid 29275337)
29. Coughlin SS,. Recall bias in epidemiologic studies. J Clin Epidemiol 1990; 43: 87-91. (Pubitemid 20036970)
30. Crawford DH, Powell LW, Halliday JW,. Factors influencing disease expression in hemochromatosis. Annu Rev Nutr 1996; 16: 139-60. (Pubitemid 26286850)
31. Giles GG, English DR,. The Melbourne Collaborative Cohort Study. IARC Sci Publ 2002; 156: 69-70.
32. Cohen J,. A coefficient of agreement for nominal scales. Educ Psychol Meas 1960; 20: 37-46.
33. Bland JM, Altman DG,. Statistical methods for assessing agreement between two methods of clinical measurement. Lancet 1986; 1: 307-10. (Pubitemid 16134762)
34. Carstensen B, Simpson J, Gurrin L,. Statistical models for assessing agreement in method comparison studies with replicate measurements. Int J Biostat 2008; 4: 16.
35. Sandhu JS, Campbell PM, Preiksaitis JK, Carriere KC, Hessel PA,. Validation of self-reported transfusion histories in renal dialysis patients. Can J Public Health 1999; 90: 201-4. (Pubitemid 29319903)
36. CBER. Guidance for industry: variances for blood collection from individuals with hereditary hemochromatosis. Center for Biologics Evaluation and Research, US Food and Drug Administration; 2001.
37. Powell LW, Dixon JL, Ramm GA, Purdie DM, Lincoln DJ, Anderson GJ, Subramaniam VN, Hewett DG, Searle JW, Fletcher LM, Crawford DH, Rodgers H, Allen KJ, Cavanaugh JA, Bassett ML,. Screening for hemochromatosis in asymptomatic subjects with or without a family history. Arch Intern Med 2006; 166: 294-301. (Pubitemid 43244317)
38. Niederau C, Fischer R, Purschel A, Stremmel W, Haussinger D, Strohmeyer G,. Long-term survival in patients with hereditary hemochromatosis. Gastroenterology 1996; 110: 1107-19. (Pubitemid 26113751)
39. Adams PC, Speechley M, Kertesz AE,. Long-term survival analysis in hereditary hemochromatosis. Gastroenterology 1991; 101: 368-72.
40. Falize L, Guillygomarc'h A, Perrin M, Laine F, Guyader D, Brissot P, Turlin B, Deugnier Y,. Reversibility of hepatic fibrosis in treated genetic hemochromatosis: a study of 36 cases. Hepatology 2006; 44: 472-7. (Pubitemid 44214887)