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Volumn 55, Issue 8, 2011, Pages 763-776

Quality outcomes in group home dementia care for adults with intellectual disabilities

Author keywords

Dementia; Group homes; Intellectual disabilities; Quality care; Quality of life

Indexed keywords

ADMINISTRATIVE PERSONNEL; ADULT DISEASE; ARTICLE; CLINICAL FEATURE; DEMENTIA; HEALTH CARE POLICY; HEALTH CARE PRACTICE; HEALTH CARE QUALITY; HEALTH SERVICE; HOME CARE; HUMAN; INVESTMENT; MEDICAL STAFF; MENTAL DEFICIENCY; OUTCOME ASSESSMENT; PRACTICE GUIDELINE; STANDARD;

EID: 79960438933     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2011.01424.x     Document Type: Article
Times cited : (33)

References (77)
  • 1
    • 79960439816 scopus 로고    scopus 로고
    • AADMD National Task Group on Intellectual Disabilities and Dementia Practices. Available at: (retrieved 25 February 2011).
    • AADMD (2011) National Task Group on Intellectual Disabilities and Dementia Practices. Available at: (retrieved 25 February 2011).
    • (2011)
  • 3
    • 79960449632 scopus 로고    scopus 로고
    • Alzheimer Europe Numbers of People with Dementia in Europe Higher Than Previously Reported. Available at: (retrieved 26 October 2010).
    • Alzheimer Europe (2009) Numbers of People with Dementia in Europe Higher Than Previously Reported. Available at: (retrieved 26 October 2010).
    • (2009)
  • 6
    • 79960450327 scopus 로고    scopus 로고
    • Alzheimer's Association Changing the Trajectory of Alzheimer's Disease: A National Imperative. Available at: (retrieved 11 July 2010).
    • Alzheimer's Association (2010b) Changing the Trajectory of Alzheimer's Disease: A National Imperative. Available at: (retrieved 11 July 2010).
    • (2010)
  • 9
    • 79960465486 scopus 로고    scopus 로고
    • Alzheimer's Society of Canada Alzheimer's Care Ethical Guidelines: Quality of Life. Available at: (retrieved 12 September 2010).
    • Alzheimer's Society of Canada (2005) Alzheimer's Care Ethical Guidelines: Quality of Life. Available at: (retrieved 12 September 2010).
    • (2005)
  • 10
    • 56749096256 scopus 로고    scopus 로고
    • Group living homes for older people with dementia: the effects on psychological distress of informal caregivers
    • te Boekhorst S., Pot A. M., Depla M., Smit D., de Lange J. & Eefsting J. (2008) Group living homes for older people with dementia: the effects on psychological distress of informal caregivers. Aging & Mental Health 12, 761-8.
    • (2008) Aging & Mental Health , vol.12 , pp. 761-768
    • te Boekhorst, S.1    Pot, A.M.2    Depla, M.3    Smit, D.4    de Lange, J.5    Eefsting, J.6
  • 13
    • 69949146683 scopus 로고    scopus 로고
    • Quality of life: its application to persons with intellectual disabilities and their families - introduction and overview
    • Brown R. I., Schalock R. L. & Brown I. (2009) Quality of life: its application to persons with intellectual disabilities and their families - introduction and overview. Journal of Policy and Practice in Intellectual Disabilities 6, 2-6.
    • (2009) Journal of Policy and Practice in Intellectual Disabilities , vol.6 , pp. 2-6
    • Brown, R.I.1    Schalock, R.L.2    Brown, I.3
  • 15
    • 79960470261 scopus 로고    scopus 로고
    • CARF-CCAC Dementia Care Specialty Program Standards. Continuing communication: Aging services news, 4(1). Available at: (retrieved 22 February 2011).
    • CARF-CCAC (2010) Dementia Care Specialty Program Standards. Continuing communication: Aging services news, 4(1). Available at: (retrieved 22 February 2011).
    • (2010)
  • 16
    • 84993788530 scopus 로고    scopus 로고
    • Adults with Down syndrome and Alzheimer's disease: comparisons of services received in group homes and in special care units
    • Chaput J. L. (2002) Adults with Down syndrome and Alzheimer's disease: comparisons of services received in group homes and in special care units. Journal of Gerontological Social Work 38, 197-211.
    • (2002) Journal of Gerontological Social Work , vol.38 , pp. 197-211
    • Chaput, J.L.1
  • 17
    • 79960462761 scopus 로고    scopus 로고
    • Services for older people with learning disabilities. Presentation given at 'Conference on Older People with Learning Disabilities', Coventry, UK, March 23, 2006.
    • Cooper S.-A. (2006, March) Services for older people with learning disabilities. Presentation given at 'Conference on Older People with Learning Disabilities', Coventry, UK, March 23, 2006.
    • (2006)
    • Cooper, S.-A.1
  • 20
    • 0030817215 scopus 로고    scopus 로고
    • Defining and applying the concept of quality of life
    • Felce D. (1997) Defining and applying the concept of quality of life. Journal of Intellectual Disability Research 41, 126-35.
    • (1997) Journal of Intellectual Disability Research , vol.41 , pp. 126-135
    • Felce, D.1
  • 21
    • 79960467026 scopus 로고    scopus 로고
    • Fisher Center for Alzheimer's Research Foundation Assisted Living Facilities. Available at: (retrieved 12 July 2010).
    • Fisher Center for Alzheimer's Research Foundation (2010) Assisted Living Facilities. Available at: (retrieved 12 July 2010).
    • (2010)
  • 22
    • 33644932139 scopus 로고    scopus 로고
    • Foundation for People with Learning Disabilities The Foundation for People with Learning Disabilities, London.
    • Foundation for People with Learning Disabilities (2001) Down's Syndrome and Dementia - Briefing for Commissioners. The Foundation for People with Learning Disabilities, London.
    • (2001) Down's Syndrome and Dementia - Briefing for Commissioners
  • 24
    • 0031693744 scopus 로고    scopus 로고
    • Adapting living environments for persons with Alzheimer's disease
    • Grant L. & Sommers A. (1998) Adapting living environments for persons with Alzheimer's disease. Geriatrics 53, S61-5.
    • (1998) Geriatrics , vol.53
    • Grant, L.1    Sommers, A.2
  • 27
    • 0000981297 scopus 로고    scopus 로고
    • Down's syndrome
    • In: (eds M. P. Janicki & A. J. Dalton) - Brunner-Mazel, Philadelphia.
    • Holland A. (1999) Down's syndrome. In: Dementia, Aging, and Intellectual Disabilities (eds M. P. Janicki & A. J. Dalton), pp. 183-97. Brunner-Mazel, Philadelphia.
    • (1999) Dementia, Aging, and Intellectual Disabilities , pp. 183-197
    • Holland, A.1
  • 29
    • 34547910451 scopus 로고    scopus 로고
    • A comparison of challenging behaviour in an adult group with Down's syndrome and dementia compared with an adult Down's syndrome group without dementia
    • Huxley A., Van-Schaik P. & Witts P. (2005) A comparison of challenging behaviour in an adult group with Down's syndrome and dementia compared with an adult Down's syndrome group without dementia. British Journal of Learning Disabilities 33, 188-93.
    • (2005) British Journal of Learning Disabilities , vol.33 , pp. 188-193
    • Huxley, A.1    Van-Schaik, P.2    Witts, P.3
  • 31
    • 79960449759 scopus 로고    scopus 로고
    • Efficacy of group home care for people with intellectual disabilities affected by dementia
    • Janicki M. P. (2009) Efficacy of group home care for people with intellectual disabilities affected by dementia. Journal of Policy and Practice in Intellectual Disabilities 6, 122.
    • (2009) Journal of Policy and Practice in Intellectual Disabilities , vol.6 , pp. 122
    • Janicki, M.P.1
  • 32
    • 79960470940 scopus 로고    scopus 로고
    • Down syndrome and dementia. Presentation at the 'Many Voices, Dementia and Minority Groups 2010 Symposium' at the University of Western Australia, Perth, WA Australia, September 16, 2010.
    • Janicki M. P. (2010) Down syndrome and dementia. Presentation at the 'Many Voices, Dementia and Minority Groups 2010 Symposium' at the University of Western Australia, Perth, WA Australia, September 16, 2010.
    • (2010)
    • Janicki, M.P.1
  • 34
    • 0034198889 scopus 로고    scopus 로고
    • Prevalence of dementia and impact on intellectual disability services
    • Janicki M. P. & Dalton A. J. (2000) Prevalence of dementia and impact on intellectual disability services. Mental Retardation 38, 277-89.
    • (2000) Mental Retardation , vol.38 , pp. 277-289
    • Janicki, M.P.1    Dalton, A.J.2
  • 36
    • 0029794297 scopus 로고    scopus 로고
    • Practice guidelines for the clinical assessment and care management of Alzheimer's disease and other dementias among adults with intellectual disability
    • Janicki M. P., Heller T., Seltzer G. & Hogg J. (1996) Practice guidelines for the clinical assessment and care management of Alzheimer's disease and other dementias among adults with intellectual disability. Journal of Intellectual Disability Research 40, 374-82.
    • (1996) Journal of Intellectual Disability Research , vol.40 , pp. 374-382
    • Janicki, M.P.1    Heller, T.2    Seltzer, G.3    Hogg, J.4
  • 37
    • 0039884002 scopus 로고    scopus 로고
    • Supporting people with dementia in community settings
    • In: (eds M. P. Janicki & E. F. Ansello) - Paul H. Brookes, Baltimore.
    • Janicki M. P., McCallion P. & Dalton A. J. (2000) Supporting people with dementia in community settings. In: Community Supports for Aging Adults with Lifelong Disabilities (eds M. P. Janicki & E. F. Ansello), pp. 387-413. Paul H. Brookes, Baltimore.
    • (2000) Community Supports for Aging Adults with Lifelong Disabilities , pp. 387-413
    • Janicki, M.P.1    McCallion, P.2    Dalton, A.J.3
  • 38
    • 84993727624 scopus 로고    scopus 로고
    • Dementia-related care decision-making in group homes for persons with intellectual disabilities
    • Janicki M. P., McCallion P. & Dalton A. J. (2002) Dementia-related care decision-making in group homes for persons with intellectual disabilities. Journal of Gerontological Social Work 38, 179-96.
    • (2002) Journal of Gerontological Social Work , vol.38 , pp. 179-196
    • Janicki, M.P.1    McCallion, P.2    Dalton, A.J.3
  • 39
    • 79960452084 scopus 로고    scopus 로고
    • amp; Assessing the impact of community dementia care for adults with intellectual disabilities. Paper presented at the 2003 Joint Conference of the National Council on the Aging and the American Society on Aging, Chicago.
    • Janicki M. P., McCallion P., Force L. T. & Baxley D. (2003) Assessing the impact of community dementia care for adults with intellectual disabilities. Paper presented at the 2003 Joint Conference of the National Council on the Aging and the American Society on Aging, Chicago.
    • (2003)
    • Janicki, M.P.1    McCallion, P.2    Force, L.T.3    Baxley, D.4
  • 40
    • 84993790814 scopus 로고    scopus 로고
    • Group home care for adults with intellectual disabilities and Alzheimer's disease
    • Janicki M. P., Dalton A. J., McCallion P., Davies Baxley D. & Zendell A. (2005) Group home care for adults with intellectual disabilities and Alzheimer's disease. Dementia 4, 361-85.
    • (2005) Dementia , vol.4 , pp. 361-385
    • Janicki, M.P.1    Dalton, A.J.2    McCallion, P.3    Davies Baxley, D.4    Zendell, A.5
  • 41
    • 41449117495 scopus 로고    scopus 로고
    • Neurodevelopmental conditions and aging: report on the Atlanta study group charette on neurodevelopmental conditions and aging
    • Janicki M. P., Henderson C. M. & Rubin L. (2008) Neurodevelopmental conditions and aging: report on the Atlanta study group charette on neurodevelopmental conditions and aging. Disability and Health Journal 1, 116-24.
    • (2008) Disability and Health Journal , vol.1 , pp. 116-124
    • Janicki, M.P.1    Henderson, C.M.2    Rubin, L.3
  • 44
    • 79960446540 scopus 로고    scopus 로고
    • amp; Neurological symptoms associated with mild cognitive impairment in adults with Down syndrome. Paper presented as part of the symposium, Transitions in neurological and cognitive phenotypes and dementia status in people with Down syndrome, at the 118th annual convention of the American Psychological Association, San Diego, California, August 14, 2010.
    • Kinsky-McHale S., Urv T., Zigman W. & Silverman W. (2010, August) Neurological symptoms associated with mild cognitive impairment in adults with Down syndrome. Paper presented as part of the symposium, Transitions in neurological and cognitive phenotypes and dementia status in people with Down syndrome, at the 118th annual convention of the American Psychological Association, San Diego, California, August 14, 2010.
    • (2010)
    • Kinsky-McHale, S.1    Urv, T.2    Zigman, W.3    Silverman, W.4
  • 47
    • 0036741059 scopus 로고    scopus 로고
    • Time spent caregiving for persons with the dual disability of Down's syndrome and Alzheimer's dementia: preliminary findings
    • McCarron M., Gill M., Lawlor B. & Begley C. (2002) Time spent caregiving for persons with the dual disability of Down's syndrome and Alzheimer's dementia: preliminary findings. Journal of Learning Disabilities 6, 263-79.
    • (2002) Journal of Learning Disabilities , vol.6 , pp. 263-279
    • McCarron, M.1    Gill, M.2    Lawlor, B.3    Begley, C.4
  • 48
    • 84993767808 scopus 로고    scopus 로고
    • Alzheimer's dementia in persons with Down's syndrome: predicting time spent on day-to-day caregiving
    • McCarron M., Gill M., McCallion P. & Begley C. (2005) Alzheimer's dementia in persons with Down's syndrome: predicting time spent on day-to-day caregiving. Dementia 4, 521-38.
    • (2005) Dementia , vol.4 , pp. 521-538
    • McCarron, M.1    Gill, M.2    McCallion, P.3    Begley, C.4
  • 49
    • 77955992088 scopus 로고    scopus 로고
    • Staff perceptions of essential prerequisites underpinning end-of-life care for persons with intellectual disability and advanced dementia
    • McCarron M., McCallion P., Fahey-McCarthy E. & Connaire K. (2010a) Staff perceptions of essential prerequisites underpinning end-of-life care for persons with intellectual disability and advanced dementia. Journal of Policy and Practice in Intellectual Disabilities 7, 143-52.
    • (2010) Journal of Policy and Practice in Intellectual Disabilities , vol.7 , pp. 143-152
    • McCarron, M.1    McCallion, P.2    Fahey-McCarthy, E.3    Connaire, K.4
  • 50
    • 77953643389 scopus 로고    scopus 로고
    • Supporting persons with Down syndrome and advanced dementia: challenges and care concerns
    • McCarron M., McCallion P., Fahey-McCarthy E., Connaire K. & Dunn-Lane J. (2010b) Supporting persons with Down syndrome and advanced dementia: challenges and care concerns. Dementia 9, 285-98.
    • (2010) Dementia , vol.9 , pp. 285-298
    • McCarron, M.1    McCallion, P.2    Fahey-McCarthy, E.3    Connaire, K.4    Dunn-Lane, J.5
  • 52
    • 79960465873 scopus 로고    scopus 로고
    • Alzheimer's dementia: what you need to know, what you need to do guidance and resources on Alzheimer's dementia for carers of people with Down's syndrome. Available at: (retrieved 5 July 2010).
    • Neill M. (2007) Alzheimer's dementia: what you need to know, what you need to do guidance and resources on Alzheimer's dementia for carers of people with Down's syndrome. Available at: (retrieved 5 July 2010).
    • (2007)
    • Neill, M.1
  • 54
    • 37749031722 scopus 로고    scopus 로고
    • Natural history of decline in instrumental activities of daily living performance over the 10 years preceding the clinical diagnosis of dementia: a prospective population-based study
    • Pérès K., Helmer C., Amieva H., Orgogozo J.-M., Rouch I., Dartigues J.-F. etal. (2008) Natural history of decline in instrumental activities of daily living performance over the 10 years preceding the clinical diagnosis of dementia: a prospective population-based study. Journal of the American Geriatrics Society 56, 37-44.
    • (2008) Journal of the American Geriatrics Society , vol.56 , pp. 37-44
    • Pérès, K.1    Helmer, C.2    Amieva, H.3    Orgogozo, J.-M.4    Rouch, I.5    Dartigues, J.-F.6
  • 55
    • 77954365692 scopus 로고    scopus 로고
    • Aging adults with intellectual disabilities
    • Perkins E. A. & Moran J. A. (2010) Aging adults with intellectual disabilities. JAMA 304, 91-2.
    • (2010) JAMA , vol.304 , pp. 91-92
    • Perkins, E.A.1    Moran, J.A.2
  • 59
    • 79960445944 scopus 로고    scopus 로고
    • Progression from mild cognitive impairment to dementia in adults with Down syndrome. Paper presented as part of the symposium, Transitions in neurological and cognitive phenotypes and dementia status in people with Down syndrome, at the 118th annual convention of the American Psychological Association, San Diego, California, August 14, 2010.
    • Silverman W., Krinsky-McHale S., Schupf N. & Zigman W. (2010) Progression from mild cognitive impairment to dementia in adults with Down syndrome. Paper presented as part of the symposium, Transitions in neurological and cognitive phenotypes and dementia status in people with Down syndrome, at the 118th annual convention of the American Psychological Association, San Diego, California, August 14, 2010.
    • (2010)
    • Silverman, W.1    Krinsky-McHale, S.2    Schupf, N.3    Zigman, W.4
  • 63
    • 79960438832 scopus 로고    scopus 로고
    • Quality of life and Alzheimer's disease: standards and research. AAHSA FutureAge, November/December, 35.
    • Tellis-Nayak M. (2006) Quality of life and Alzheimer's disease: standards and research. AAHSA FutureAge, November/December, 35.
    • (2006)
    • Tellis-Nayak, M.1
  • 64
    • 67349280912 scopus 로고    scopus 로고
    • Improving dementia care in assisted living residences: addressing staff reactions to training
    • Teri L., McKenzie G. L., LaFazia D., Farran C. J., Beck C., Huda P. etal. (2009) Improving dementia care in assisted living residences: addressing staff reactions to training. Geriatric Nursing 30, 153-63.
    • (2009) Geriatric Nursing , vol.30 , pp. 153-163
    • Teri, L.1    McKenzie, G.L.2    LaFazia, D.3    Farran, C.J.4    Beck, C.5    Huda, P.6
  • 68
    • 37049004180 scopus 로고    scopus 로고
    • Goals of care in advanced dementia: quality of life, dignity and comfort
    • Volicer L. (2007) Goals of care in advanced dementia: quality of life, dignity and comfort. Journal of Nutrition, Health and Aging 11, 481.
    • (2007) Journal of Nutrition, Health and Aging , vol.11 , pp. 481
    • Volicer, L.1
  • 69
    • 79960450905 scopus 로고    scopus 로고
    • Down syndrome and dementia: a framework for supportive care in generic care homes
    • Watchman K. (2009) Down syndrome and dementia: a framework for supportive care in generic care homes. Journal of Policy and Practice in Intellectual Disabilities 6, 156.
    • (2009) Journal of Policy and Practice in Intellectual Disabilities , vol.6 , pp. 156
    • Watchman, K.1
  • 70
    • 77956602403 scopus 로고    scopus 로고
    • Staff responses to age-related health changes in people with an intellectual disability in group homes
    • Webber R., Bowers B. & McKenzie-Green B. (2010) Staff responses to age-related health changes in people with an intellectual disability in group homes. Disability and Society 25, 657-71.
    • (2010) Disability and Society , vol.25 , pp. 657-671
    • Webber, R.1    Bowers, B.2    McKenzie-Green, B.3
  • 72
  • 75
    • 39149114753 scopus 로고    scopus 로고
    • Survival times in people with dementia: analysis from population based cohort study with 14 year follow-up
    • the Medical Research Council Cognitive Function and Ageing Study.
    • Xie J., Brayne C., Matthews F. E. & the Medical Research Council Cognitive Function and Ageing Study (2008) Survival times in people with dementia: analysis from population based cohort study with 14 year follow-up. British Medical Journal 336, 258-62.
    • (2008) British Medical Journal , vol.336 , pp. 258-262
    • Xie, J.1    Brayne, C.2    Matthews, F.E.3


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