Neurodevelopmental conditions and aging: Report on the Atlanta Study Group Charrette on Neurodevelopmental Conditions and Aging*

Disability and Health Journal

Volumn 1, Issue 2, 2008, Pages 116-124

  Janicki, Matthew P ^a   Henderson, C Michael ^b   Rubin, I Leslie ^c  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

^b UNIVERSITY OF ROCHESTER SCHOOL OF MEDICINE AND DENTISTRY   (United States)

^c MOREHOUSE SCHOOL OF MEDICINE   (United States)

Author keywords

Aging; Disabilities; Genetic conditions; Intellectual disabilities; Neurodevelopmental conditions

Indexed keywords

4 AMINOBUTYRIC ACID A RECEPTOR STIMULATING AGENT;

AGING; AUTISM; CEREBRAL PALSY; CULTURAL FACTOR; DEVELOPMENTAL DISORDER; DIET THERAPY; DOWN SYNDROME; ENVIRONMENTAL FACTOR; EVIDENCE BASED MEDICINE; FRAGILE X SYNDROME; GERIATRIC DISORDER; HUMAN; INCIDENCE; LIFESPAN; MATURATION; NEURODEVELOPMENTAL DISEASE; NEUROLOGIC DISEASE; PRADER WILLI SYNDROME; PREVALENCE; PRIORITY JOURNAL; REVIEW; RISK FACTOR; SCREENING TEST; SOCIAL ASPECT; SPINA BIFIDA; UNITED STATES; WILLIAMS BEUREN SYNDROME;

AGE FACTORS; AGING; DEVELOPMENTAL DISABILITIES; DISABLED PERSONS; GEORGIA; HUMANS; MENTAL RETARDATION; NERVOUS SYSTEM DISEASES;

EID: 41449117495     PISSN: 19366574     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.dhjo.2008.02.004     Document Type: Review

References (51)

1. Klingbeil H., Baer H.R., and Wilson P.E. Aging with a disability. Arch Phys Med Rehabil 85 7 Suppl 3 (2004) S68-S73
2. O'Brien G., Barnard L., Pearson J., and Rippon L. Physical health and clinical phenotypes. In: Prasher V.P., and Janicki M.P. (Eds). Physical Health of Adults With Intellectual Disabilities (2002), Blackwell, Oxford 35-62
3. In: Prasher V.P., and Janicki M.P. (Eds). Physical Health of Adults With Intellectual Disabilities (2002), Blackwell, Oxford
4. US Surgeon General. Closing the Gap: A National Blueprint to Improve the Health of Persons With Mental Retardation: Report of the Surgeon General's Conference on Health Disparities and Mental Retardation (2002), US Department of Health and Human Services, Washington, DC
5. Currie D.M., Gershkoff A.M., and Cifu D.X. Geriatric rehabilitation: 3. Mid- and late-life effects of early-life disabilities. Arch Phys Med Rehabil 74 5-S (1993) S413-S416
6. Holland A.J. Ageing and learning disability. Br J Psychiatry 176 (2000) 26-31
7. Nakamura E., and Tanaka S. Biological ages of adult men and women with Down's syndrome and its changes with aging. Mech Ageing Dev 105 1-2 (1998) 89-103
8. Prasher V.P. Down Syndrome and Alzheimer's Disease: Biological Correlates. Oxon: Radcliffe (2006)
9. Pueschel S.M. Adults With Down Syndrome. Baltimore: Paul Brookes (2006)
10. Overeynder J.C., Janicki M.P., and Turk M.A. Aging and Cerebral Palsy-Pathways to Successful Aging: The National Action Plan (1994), New York State Developmental Disabilities Planning Council, Albany
11. Dykens E.M., Hodapp R.M., Walsh K., and Nash L.J. Adaptive and maladaptive behavior in Prader-Willi syndrome. J Am Acad Child Adolesc Psychiatry 31 6 (1992) 1131-1136
12. Dykens E.M., Summar K., and Roof E. Adults with Prader-Willi syndrome. In: Reynolds C., and Goldsten S. (Eds). Handbook of Neurodevelopmental and Genetic Disorders in Adults (2005), Guilford Press, New York 439-457
13. Holland AJ. Ageing in Prader-Willi syndrome. Presentation at the International Association for the Scientific Study of Intellectual Disabilities 15th Roundtable for the Aging Special Interest Research Group, April 28, 2006, University of Toronto, Toronto, Ontario, Canada.
14. Jacquemont S., Farzin F., Hall D., et al. Aging in individuals with the FMR1 mutation. Am J Ment Retard 109 2 (2004) 154-164
15. Ristow M. Neurodegenerative disorders associated with diabetes mellitus. J Mol Med 82 8 (2004) 510-529
16. Cherniske E.M., Carpenter T.O., Klaiman C., et al. Multisystem study of 20 older adults with Williams syndrome. Am J Med Genet A 131 3 (2004) 255-264
17. Davies M., Udwin O., and Howlin P. Adults with Williams syndrome. Preliminary study of social, emotional and behavioural difficulties. Br J Psychiatry 172 (1998) 273-276
18. Devenny D.A., Krinsky-McHale S.J., Kittler P.M., et al. Age-associated memory changes in adults with Williams syndrome. Dev Neuropsychol 26 3 (2004) 691-706
19. Hocking D.R., Bradshaw J.L., McGinley S., and Rinchard N.J. Gait dysfunction in Williams syndrome: is there evidence of cerebellar involvement?. Parkinsonism Relat Disord 14 Suppl (2008) S69
20. Hagerman P.J., and Hagerman R.J. Fragile X-associated tremor/ataxia syndrome (FXTAS). Ment Retard Dev Disabil Res Rev 10 1 (2004) 25-30
21. Hagerman R.J., Ono M.Y., and Hagerman P.J. Recent advances in fragile X: a model for autism and neurodegeneration. Curr Opin Psychiatry 18 5 (2005) 490-496
22. Fink M., Taylor M.A., and Ghaziuddin N. Catatonia in autistic spectrum disorders: a medical treatment algorithm. Int Rev Neurobiol 72 (2006) 233-244
23. Merrick J., Zachor D., and Kandel I. Aging with autism. Int J Disabil Human Dev 5 1 (2006) 17-21
24. Ohta M., Kano Y., and Nagai Y. Catatonia in individuals with autism spectrum disorders in adolescence and early adulthood: a long-term prospective study. Int Rev Neurobiol 72 (2006) 41-54
25. Zaffuto-Sforza C.D. Aging with cerebral palsy. Phys Med Rehabil Clin N Am 16 1 (2005) 235-249
26. Turk M.A., Scandale J., Rosenbaum P.F., and Weber R.J. The health of women with cerebral palsy. Phys Med Rehabil Clin N Am 12 1 (2001) 153-168
27. Müller T., Arbeiter K., and Aufricht C. Renal function in meningomyelocele: risk factors, chronic renal failure, renal replacement therapy and transplantation. Curr Opin Urol 12 6 (2002) 479-484
28. Verhoef M., Barf H.A., Post M.W., et al. Functional independence among young adults with spina bifida, in relation to hydrocephalus and level of lesion. Dev Med Child Neurol 48 2 (2006) 114-119
29. Davidson P.W., Janicki M.P., Sulkes S.B., et al. Associations between behavior problems and health status in older adults with intellectual disability. Aging Ment Health 7 6 (2003) 411-412
30. Janicki M.P., Henderson C.M., Davidson P.W., et al. Health characteristics and health services utilization in older adults with intellectual disabilities living in community residences. J Intel Disabil Res 46 4 (2002) 287-298
31. Merrick J., Davidson P.W., Morad M., et al. Older adults with intellectual disability in residential care centers in Israel: health status and service utilization. Am J Ment Retard 1009 5 (2004) 413-420
32. Wang K.-Y., Hsieh K., Davidson P.W., and Janicki M.P. Carer reports of health status among adults with intellectual/developmental disabilities in Taiwan living at home and in institutions. J Intel Disabil Res 51 3 (2007) 173-183
33. Brown W.T. Recent research advances in understanding neurodevelopmental conditions in older adults. In: Heller T., Marks B., Janicki M., Hammel J., and Factor A. (Eds). Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living for Persons Aging with Developmental Disabilities: Report of the 2007 State of Science Research Symposium on Aging with Developmental Disabilities (2008), The Rehabilitation Research and Training Center on Aging with Developmental Disabilities, Department of Disability and Human Development, University of Illinois at Chicago, Chicago
34. Stoddart K. Aging in autism spectrum disorders. Presentation at the International Association for the Scientific Study of Intellectual Disabilities 15th Roundtable for the Aging Special Interest Research Group, April 28, 2006, University of Toronto, Toronto, Ontario, Canada.
35. Ghasia F., Brunstrom J., Gordon M., and Tychsen L. Frequency and severity of visual sensory and motor deficits in children with cerebral palsy: gross motor function classification scale. Invest Ophthalmol Vis Sci 49 2 (2008) 572-580
36. Turk M.A., Overeynder J.C., and Janicki M.P. Uncertain Future: Aging and Cerebral Palsy-Clinical Concerns (1995), New York State Developmental Disabilities Planning Council, Albany
37. Roland M., Jacobs R., Angone E., et al. Principles of management of adolescents with spina bifida in the ambulatory setting. Eur J Pediatr Surg 7 Suppl 1 (1997) 57-58
38. McDonnell G.V., and McCann J.P. Why do adults with spina bifida and hydrocephalus die? A clinic-based study. Eur J Pediatr Surg 10 Suppl 1 (2000) 31-32
39. Holland A.J., Whittington J.E., Butler J., et al. Behavioural phenotypes associated with specific genetic disorders: evidence from a population-based study of people with Prader-Willi syndrome. Psychol Med 33 1 (2003) 141-153
40. Cassidy S.B. Prader-Willi syndrome. J Med Genet 34 11 (1997) 917-923
41. Dykens E.M., Cassidy S.B., and King B.H. Maladaptive behavior differences in Prader-Willi syndrome due to paternal deletion versus maternal uniparental disomy. Am J Ment Retard 104 1 (1999) 67-77
42. Dykens E.M. Maladaptive and compulsive behavior in Prader-Willi syndrome: new insights from older adults. Am J Ment Retard 109 2 (2004) 142-153
43. Schrander-Stumpel C.T., Curfs L.M., Sastrowijoto P., et al. Prader-Willi syndrome: causes of death in an international series of 27 cases. Am J Med Genet A 124 4 (2004) 333-338
44. Martin A., State M., Koenig K., et al. Prader-Willi syndrome. Am J Psychiatry 155 (1998) 1265-1273
45. Dykens E.M. Anxiety, fears, and phobias in persons with Williams syndrome. Dev Neuropsychol 23 1-2 (2003) 291-316
46. Brown W.T., Jenkins E.C., Krawczun M.S., et al. The fragile X syndrome. Ann N Y Acad Sci 477 (1986) 129-150
47. Amiri K., Hagerman R.J., and Hagerman P.J. Fragile X-associated tremor/ataxia syndrome: an aging face of the fragile X gene. Arch Neurol 65 1 (2008) 19-25
48. Turk M. Aging with developmental disabilities: nonspecific neuromotor conditions - cerebral palsy and spina bifida. In: Heller T., Marks B., Janicki M., Hammel J., and Factor A. (Eds). Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living for Persons Aging with Developmental Disabilities: Report of the 2007 State of Science Research Symposium on Aging with Developmental Disabilities (2008), The Rehabilitation Research and Training Center on Aging with Developmental Disabilities, Department of Disability and Human Development, University of Illinois at Chicago, Chicago
49. Dalton A.J., Aisen P.S., and Sano M.C. Vitamin E in aging persons with Down syndrome. Available at. http://clinicaltrials.gov/ct2/show/NCT00056329 Accessed February 7, 2008
50. Davidson P.W., Henderson C.M., Janicki M.P., et al. Ascertaining health-related information on adults with intellectual disabilities: development and field testing of the Rochester Health Status Survey. J Policy Pract Intellect Disabil 5 1 (2008) 12-23
51. The National Children's Study. Available at. http://www.nationalchildrensstudy.gov Accessed February 7, 2008