Group living homes for older people with dementia: The effects on psychological distress of informal caregivers

Aging and Mental Health

Volumn 12, Issue 6, 2008, Pages 761-768

  Boekhorst, Selma Te ^a,b   Pot, Anne Margriet ^a,b   Depla, Marja ^a   Smit, Dieneke ^a   Lange, Jacomine De ^a   Eefsting, Jan ^b  

^a NETHERLANDS INSTITUTE OF MENTAL HEALTH AND ADDICTION   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

Alzheimer's disease; Group living vs nursing home care; Primary caregiver; Psychological well being

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CONFOUNDING VARIABLE; DAILY LIFE ACTIVITY; DEMENTIA; DISTRESS SYNDROME; FEMALE; GROUP DYNAMICS; HOME CARE; HOSPITAL ADMISSION; HUMAN; LINEAR REGRESSION ANALYSIS; LOGISTIC REGRESSION ANALYSIS; MALE; MENTAL DISEASE; MINI MENTAL STATE EXAMINATION; NURSING COMPETENCE; NURSING HOME; OUTCOME ASSESSMENT; PRIORITY JOURNAL; QUASI EXPERIMENTAL STUDY; QUESTIONNAIRE;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; CAREGIVERS; CONFOUNDING FACTORS (EPIDEMIOLOGY); DEMENTIA; FEMALE; GROUP HOMES; HUMANS; LINEAR MODELS; LOGISTIC MODELS; MALE; MIDDLE AGED; NETHERLANDS; NURSING HOMES; OUTCOME ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; QUESTIONNAIRES; RESEARCH DESIGN; STRESS, PSYCHOLOGICAL;

EID: 56749096256     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607860802380615     Document Type: Article

References (36)

1. Annerstedt, L. (1993). Development and consequences of group living in Sweden, a new mode of care for the demented elderly. Social Science & Medicine, 37, 1529-1538.
2. Burns, A. (2000). The burden of Alzheimer's disease. International Journal of Neuropsychopharmacology, 3(7), 31-38.
3. Burns, A., & Rabins, P. (2000). Care burden in dementia. International Journal of Geriatric Psychiatry, 15, S9-S13.
4. Colvez, A., Joel, M.E., Ponton-Sanchez, A., & Royer, A.C. (2002). Health status and work burden of Alzheimer patients' informal caregivers. Comparisons of five different care programs in the European Union. Health Policy, 60, 219-233.
5. Cuijpers, P. (2005). Depressive disorders in caregivers of dementia patients: A systematic review. Aging & Mental Health, 9, 325-330.
6. Cummings, J.L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D.A., & Gornbein, J. (1994). The Neuropsychiatric Inventory, comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308-2314.
7. Donaldson, D., Tarrier, N., & Burns, A. (1998). Determinants of carer stress in Alzheimer's Disease. International Journal of Geriatric Psychiatry, 13, 248-256.
8. Elmståhl, S., Ingvad, B., & Annerstedt, L. (1998). Family caregiving in dementia: Prediction of caregiver burden 12 months after relocation to group living care. International Psychogeriatrics, 10, 127-146.
9. Folstein, F.E., Folstein, S. E., & McHugh, P.R. (1975). Mini-mental state. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189-198.
10. Funaki, Y., Kaneko, F., & Okamura, H. (2005). Study on factors associated with changes in quality of life of demented elderly persons in group homes. Scandinavian Journal of Occupational Therapy, 12, 4-9.
11. Gaugler, J.E., Anderson, K.A., Zarit, S.H., & Pearlin, L.I. (2004). Family involvement in nursing homes: Effects on stress and well-being. Aging & Mental Health, 8, 65-75.
12. Gaugler, J.E., Kane, R.L., Kane, R.A., & Newcomer, R. (2005). The longitudinal effects of early behavior problems in the dementia caregiving career. Psychology and Aging, 20(1), 100-116.
13. Gaugler, J.E., Pot, A. M., & Zarit, S.H. (2007). Long-term adaptation to institutionalization. The Gerontologist, 47, 730-740.
14. Goldberg, D.P., & Williams, P. (1988). A users guide to the General Health Questionnaire. Windsor: Nfer Nelson.
15. Goodchild, M.E., & Duncan-Jones, P. (1985). Chronicity and the General Health Questionnaire. British Journal of Psychiatry, 146, 55-61.
16. Grant, I., Adler, K.A., Patterson, T.L., Dimsdale, J.E., Ziegler, M.G., & Irwin, M.R. (2002). Health consequences of Alzheimer's caregiving transitions: Effects of placement and bereavement. Psychosomatic Medicine, 64, 477-486.
17. Hammer, R.M. (1999). The lived experience of being at home. A phenomenological investigation. Journal of Gerontological Nursing, 25, 10-18.
18. Kaufer, D.I., Cummings, J.L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., et al. (2000). Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. Journal of Neuropsychiatry and Clinical Neuroscience, 12(2), 233-239.
19. Koeter, M.W.J., & Ormel, J. (1991). General Health Questionnaire, Nederlandse bewerking handleiding. (General Health Questionnaire, Ducht version manual.). Lisse: Swets & Zeitlinger.
20. Lieberman, M.A., & Fisher, F. (2001). The effects of nursing home placement on family caregivers of patients with Alzheimer's disease. The Gerontologist, 41, 819-826.
21. Molloy, D.W., Alemayehu, E., & Roberts, R. (1991). Reliability of a Standardized Mini-Mental State Examination compared with the traditional Mini-Mental State Examination. American Journal of Psychiatry, 148(1), 102-105.
22. Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the Stress Process: An overview of concepts an their measures. The Gerontologist, 30, 583-594.
23. Port, C.L., Zimmerman, S., Williams, C.S., Dobbs, D., Preisser, J.S., & Williams, S.W. (2005). Families filling the gap: Comparing family involvement for assisted living and nursing home residents with dementia. The Gerontologist, 45 Spec. No. 1(1), 87-95.
24. Pot, A.M., Deeg, D.J.H., & Van Dyck, R. (1997). Psychological well-being of informal caregivers of elderly people with dementia: Changes over time. Aging & Mental Health, 1, 261-268.
25. Pot, A.M., Deeg, D.J.H., Van Dyck, R., & Jonker, C. (1998). Psychological distress of caregivers: The mediator effect of caregiving appraisal. Patient Education and Counseling, 34, 43-51.
26. Pot, A.M., van Dyck, R., & Deeg, D.J.H. (1995). Ervaren druk door informele zorg: constructie van een schaal. [Perceived pressure from informal care: Construction of a scale.]. Tijdschrift voor Gerontologie en Geriatrie, 26, 214-219.
27. Reggentin, H. (2005). Belastungen von Angehorigen demenziell Erkrankter in Wohngruppen im Vergleich zu hauslicher und stationarer Versorgung. (Complaints of caregivers of people with dementia among group living, nursing home residents in comparison to home care.). Zeitschrift für Gerontologie und Geriatrie, 38, 101-107.
28. Skaff, M.M., Pearlin, L.I., & Mulllan, J.T. (1996). Transitions in the caregiving career: Effects on sense of mastery. Psychological Aging, 11, 247-257.
29. Stephens, M.A., Ogrocki, P.K., & Kinney, J.M. (1991). Sources of Stress for family caregivers of institutionalized dementia patients. The Journal of Applied Gerontology, 10(3), 328-342.
30. Te Boekhorst, S., Depla, M.F.I.A., De Lange, J., Pot, A.M., & Eefsting, J.A. (2007). Kleinschalig wonen voor ouderen met dementie: een begripsverheldering. (Small-scale group living for elderly with dementia: A clarification.). Tijdschrift voor Gerontologie en Geriatrie, 38, 17-26.
31. Te Boekhorst, S., Willemse, B., Depla, M.F.I.A., Eefsting, J.A., & Pot, A.M. (2008). Working in group living homes for older people with dementia: The effects on job satisfaction and burnout and the role of job characteristics. International Psychogeriatrics, 20(5), 927-940.
32. Teunisse, S., & Derix, M.M. (1997). The interview for deterioration in daily living activities in dementia: Agreement between primary and secondary caregivers. International Psychogeriatrics, 9(suppl. 1), 155-162.
33. Tornatore, J.B., & Grant, L.A. (2002). Burden among family caregivers of persons with Alzheimer's disease in nursing homes. The Gerontologist, 42, 497-506.
34. Townsend, A.L. (1990). Nursing home care and family caregivers' stress. In M.A.P. Stephens, J.H. Cowther, S.E. Hobfoll, & D.L. Tennembaum (Eds.), Stress and coping in later-life families. New York: Hemisphere.
35. Trochim, W.K.M. (1989). An introduction to concept mapping for planning and evaluation. Evaluation and Program Planning, 1, 1-16.
36. Zarit, S.H., & Whitlach, C.J. (1992). Institutional placement: phases of the transition. The Gerontologist, 32, 665-672.