Palliative care services in families of males with Duchenne muscular dystrophy

Muscle and Nerve

Volumn 44, Issue 1, 2011, Pages 93-101

  Arias, Rebeca ^a   Andrews, Jennifer ^a   Pandya, Shree ^b   Pettit, Kathleen ^a   Trout, Christina ^c   Apkon, Susan ^d   Karwoski, Jane ^e   Cunniff, Christopher ^a   Matthews, Dennis ^f   Miller, Timothy ^a   Davis, Melinda F ^g   John Meaney, F ^a  

^a UNIVERSITY OF ARIZONA COLLEGE OF MEDICINE   (United States)

^b UNIVERSITY OF ROCHESTER MEDICAL CENTER   (United States)

^c UNIVERSITY OF IOWA   (United States)

^d SEATTLE CHILDREN S HOSPITAL   (United States)

^e NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES   (United States)

^f UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^g The University of Arizona   (United States)

Author keywords

Advance directives; Duchenne muscular dystrophy; Health services model; Healthcare barriers; Palliative care

Indexed keywords

ADOLESCENT; ADULT; ANALGESIA; ARTICLE; ATTENDANT CARE; AWARENESS; COUNSELING; DUCHENNE MUSCULAR DYSTROPHY; FAMILY SERVICE; FEMALE; HEALTH CARE; HEALTH SERVICE; HOSPICE CARE; HUMAN; MALE; MEDICAL STAFF; NURSING CARE; PALLIATIVE CARE SERVICE; PALLIATIVE THERAPY; PRIORITY JOURNAL; QUESTIONNAIRE; RESPITE CARE;

ADOLESCENT; ADULT; CAREGIVERS; CHILD; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; MUSCULAR DYSTROPHY, DUCHENNE; PALLIATIVE CARE; QUESTIONNAIRES; YOUNG ADULT;

EID: 79959322121     PISSN: 0148639X     EISSN: 10974598     Source Type: Journal    
DOI: 10.1002/mus.22005     Document Type: Article

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