메뉴 건너뛰기




Volumn 24, Issue 4, 2008, Pages 265-269

Is there a role for palliative care in progressive pediatric neuromuscular diseases? the answer is yes!

Author keywords

[No Author keywords available]

Indexed keywords


EID: 59849083893     PISSN: 08258597     EISSN: None     Source Type: Journal    
DOI: 10.1177/082585970802400406     Document Type: Review
Times cited : (15)

References (26)
  • 1
    • 35949003587 scopus 로고    scopus 로고
    • Palliative care becomes "uninformed euthanasia" when patients are not offered noninvasive life preserving options
    • Bach JR. Palliative care becomes "uninformed euthanasia" when patients are not offered noninvasive life preserving options. J Palliat Care 2007; 23: 181-184.
    • (2007) J Palliat Care , vol.23 , pp. 181-184
    • Bach, J.R.1
  • 2
    • 59849099033 scopus 로고    scopus 로고
    • American Academy of Hospice and Palliative Care Medicine, Accessed June 11, 2008
    • American Academy of Hospice and Palliative Care Medicine. Position statements: definition of palliative care. Revised: 2008. Accessed June 11, 2008. http://www.aahpm.org/positions/definition.html
    • Position statements: Definition of palliative care. Revised: 2008
  • 3
    • 38849184781 scopus 로고    scopus 로고
    • Barriers to palliative care for children: Perceptions of pediatric health care providers
    • Davies B, Sehring SA, Partridge JC, Copper BA, Hughes A, Philp JC, et al. Barriers to palliative care for children: perceptions of pediatric health care providers. Pediatrics 2008; 121: 282-288.
    • (2008) Pediatrics , vol.121 , pp. 282-288
    • Davies, B.1    Sehring, S.A.2    Partridge, J.C.3    Copper, B.A.4    Hughes, A.5    Philp, J.C.6
  • 4
    • 27244443700 scopus 로고    scopus 로고
    • Integrating palliative care into chronic care for children with severe neurodevelopmental disabilities
    • Graham RJ, Robinson WM. Integrating palliative care into chronic care for children with severe neurodevelopmental disabilities. J Dev Behav Pediatr 2005; 25: 361-365.
    • (2005) J Dev Behav Pediatr , vol.25 , pp. 361-365
    • Graham, R.J.1    Robinson, W.M.2
  • 5
    • 0141859888 scopus 로고    scopus 로고
    • Spinal muscular atrophy, type 1
    • Hardart MKM, Truog RD. Spinal muscular atrophy, type 1. Arch Dis Child 2003; 88: 848-850.
    • (2003) Arch Dis Child , vol.88 , pp. 848-850
    • Hardart, M.K.M.1    Truog, R.D.2
  • 7
    • 0036895043 scopus 로고    scopus 로고
    • Survival in Duchenne muscular dystrophy: Improvements in life expectancy since 1967 and the impact of home nocturnal ventilation
    • Eagle M, Baudouin SV, Chandler C, Giddings DR, Bullock R, Bushby K. Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscul Disord 2002; 12: 926-929.
    • (2002) Neuromuscul Disord , vol.12 , pp. 926-929
    • Eagle, M.1    Baudouin, S.V.2    Chandler, C.3    Giddings, D.R.4    Bullock, R.5    Bushby, K.6
  • 8
    • 0347480491 scopus 로고    scopus 로고
    • The Duchenne muscular dystrophy population in Denmark, 1977-2001: Prevalence, incidence, and survival in relation to the introduction of ventilator use
    • Jeppesen J, Green A, Steffensen BF, Rahbek J. The Duchenne muscular dystrophy population in Denmark, 1977-2001: prevalence, incidence, and survival in relation to the introduction of ventilator use. Neuromuscul Disord 2003; 13: 804-812.
    • (2003) Neuromuscul Disord , vol.13 , pp. 804-812
    • Jeppesen, J.1    Green, A.2    Steffensen, B.F.3    Rahbek, J.4
  • 9
    • 33646034598 scopus 로고    scopus 로고
    • Trends in survival from muscular dystrophy in England and Wales and impact on respiratory services
    • Calvert LK, McKeever TM, Kinnear WJ, Britton JR. Trends in survival from muscular dystrophy in England and Wales and impact on respiratory services. Respir Med 2006; 100: 1058-1063.
    • (2006) Respir Med , vol.100 , pp. 1058-1063
    • Calvert, L.K.1    McKeever, T.M.2    Kinnear, W.J.3    Britton, J.R.4
  • 10
    • 0031759227 scopus 로고    scopus 로고
    • Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy
    • Simonds AK, Muntoni F, Heather S, Fielding S. Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy. Thorax 1998; 53: 949-952.
    • (1998) Thorax , vol.53 , pp. 949-952
    • Simonds, A.K.1    Muntoni, F.2    Heather, S.3    Fielding, S.4
  • 11
    • 0028291379 scopus 로고
    • Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy
    • Raphael J-C, Chevret S, Chastang C, Bouvet F. Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy. Lancet 1994; 343: 1600-1604.
    • (1994) Lancet , vol.343 , pp. 1600-1604
    • Raphael, J.-C.1    Chevret, S.2    Chastang, C.3    Bouvet, F.4
  • 12
    • 33845442767 scopus 로고    scopus 로고
    • New challenges in the management of prolonged survivors of pediatric neuromuscular diseases: A pulmonologist's perspective
    • Birnkrant DJ. New challenges in the management of prolonged survivors of pediatric neuromuscular diseases: a pulmonologist's perspective. Pediatr Pulmonol 2006; 41: 1113-1117.
    • (2006) Pediatr Pulmonol , vol.41 , pp. 1113-1117
    • Birnkrant, D.J.1
  • 14
    • 34247522015 scopus 로고    scopus 로고
    • Medical considerations of long-term survival of Werdnig-Hoffman disease
    • Bach JR. Medical considerations of long-term survival of Werdnig-Hoffman disease Am J Phys Med Rehabil 2007; 86: 349-355.
    • (2007) Am J Phys Med Rehabil , vol.86 , pp. 349-355
    • Bach, J.R.1
  • 15
    • 59849098229 scopus 로고    scopus 로고
    • Incidence and outcomes of cardiopulmonary resuscitation in patients with end-stage Duchenne muscular dystrophy [abstract]
    • Noritz G, Birnkrant DJ. Incidence and outcomes of cardiopulmonary resuscitation in patients with end-stage Duchenne muscular dystrophy [abstract]. Chest 2007; 132: 607S.
    • (2007) Chest , vol.132
    • Noritz, G.1    Birnkrant, D.J.2
  • 18
    • 0028337330 scopus 로고
    • Life satisfaction and well-being measures in ventilator assisted individuals with traumatic tetraplegia
    • Bach JR, Tilton MC. Life satisfaction and well-being measures in ventilator assisted individuals with traumatic tetraplegia. Arch Phys Med Rehabil 1994; 75: 626-632.
    • (1994) Arch Phys Med Rehabil , vol.75 , pp. 626-632
    • Bach, J.R.1    Tilton, M.C.2
  • 19
    • 4644281705 scopus 로고    scopus 로고
    • Congenital neurodevelopmental diagnoses and an intensive care unit: Defining a population
    • Graham RJ, Dumas HM, O'Brien JE, Burns JP. Congenital neurodevelopmental diagnoses and an intensive care unit: defining a population. Pediatr Crit Care Med 2004; 5: 321-328.
    • (2004) Pediatr Crit Care Med , vol.5 , pp. 321-328
    • Graham, R.J.1    Dumas, H.M.2    O'Brien, J.E.3    Burns, J.P.4
  • 22
    • 34249891604 scopus 로고    scopus 로고
    • Chronic ventilator need in the community: A 2005 pediatric census of Massachusetts
    • Graham RJ, Fleegler EW, Robinson WM. Chronic ventilator need in the community: a 2005 pediatric census of Massachusetts. Pediatrics 2007; 119; e1280-e1287.
    • (2007) Pediatrics , vol.119
    • Graham, R.J.1    Fleegler, E.W.2    Robinson, W.M.3
  • 23
    • 34547229715 scopus 로고    scopus 로고
    • What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida
    • Binks JA, Barden WS, Burke TA, Young NL. What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 2007; 88: 1064-1073.
    • (2007) Arch Phys Med Rehabil , vol.88 , pp. 1064-1073
    • Binks, J.A.1    Barden, W.S.2    Burke, T.A.3    Young, N.L.4
  • 25
    • 34250856324 scopus 로고    scopus 로고
    • Respiratory support for the severely handicapped child with neuromuscular disease: Ethics and practicality
    • Simonds AK. Respiratory support for the severely handicapped child with neuromuscular disease: ethics and practicality. Semin Respir Crit Care Med 2007; 28: 342-354.
    • (2007) Semin Respir Crit Care Med , vol.28 , pp. 342-354
    • Simonds, A.K.1
  • 26
    • 33947101080 scopus 로고    scopus 로고
    • Noninvasive positive pressure ventilation in critical and palliative care settings: Understanding the goals of therapy
    • Curtis JR, Cook DJ, Sinuff T, White DB, Hill N, Keenan SP, et al. Noninvasive positive pressure ventilation in critical and palliative care settings: understanding the goals of therapy. Crit Care Med 2007; 35: 932-939.
    • (2007) Crit Care Med , vol.35 , pp. 932-939
    • Curtis, J.R.1    Cook, D.J.2    Sinuff, T.3    White, D.B.4    Hill, N.5    Keenan, S.P.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.