Special diabetes program for Indians: Retention in cardiovascular risk reduction

Gerontologist

Volumn 51, Issue SUPPL. 1, 2011, Pages

  Manson, Spero M ^a   Jiang, Luohua ^a   Zhang, Lijing ^a   Beals, Janette ^a   Acton, Kelly J ^b   Roubideaux, Yvette ^b  

^a UNIVERSITY OF COLORADO   (United States)

^b INDIAN HEALTH SERVICE   (United States)

Author keywords

American Indians; Cardiovascular risk prevention; Case management; Diabetes; Participant retention

Indexed keywords

ADULT; AMERICAN INDIAN; ARTICLE; CARDIOVASCULAR DISEASE; DIABETES MELLITUS; EDUCATIONAL STATUS; ETHNOLOGY; FEMALE; HUMAN; MALE; MENTAL STRESS; METHODOLOGY; MIDDLE AGED; MOTOR ACTIVITY; POVERTY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RISK FACTOR; SMOKING; STATISTICS; UNITED STATES;

ADULT; CARDIOVASCULAR DISEASES; DIABETES COMPLICATIONS; DIABETES MELLITUS; EDUCATIONAL STATUS; FEMALE; HUMANS; INDIANS, NORTH AMERICAN; MALE; MIDDLE AGED; MOTOR ACTIVITY; POVERTY; QUESTIONNAIRES; RESEARCH DESIGN; RISK FACTORS; SMOKING; STRESS, PSYCHOLOGICAL; UNITED STATES;

EID: 79956110703     PISSN: 00169013     EISSN: 17585341     Source Type: Journal    
DOI: 10.1093/geront/gnq083     Document Type: Article

References (65)

1. Anderson, R. T., Ory, M., Cohen, S., & McBride, J. S. (2000). Issues of aging and adherence to health interventions. Controlled Clinical Trials, 21, 171S-183S. doi:10.1016/S0197-2456(00)00075-1.
2. Arean, P. A., Alvidrez, J., Nery, R., Estes, C., & Linkins, K. (2003). Recruitment and retention of older minorities in mental health services research. The Gerontologist, 43, 36-44. doi:10.1093/geront/43.1.36. (Pubitemid 36222692)
3. Bailey, J. M., Bieniasz, M. E., Kmak, D., Brenner, D. E., & Ruffin, M. T. (2004). Recruitment and retention of economically underserved women to a cervical cancer prevention trial. Applied Nursing Research, 17, 55-60. doi:10.1016/j.apnr.2003.12.002. (Pubitemid 38251343)
4. Blanton, S., Morris, D. M., Prettyman, M. G., McCulloch, K., Redmond, S., Light, K. E., et al. (2006). Lessons learned in participant recruitment and retention: The EXCITE Trial. Physical Therapy, 86, 1520-1533. doi:10.2522/ptj.20060091. (Pubitemid 44672542)
5. Blumenthal, D., Sung, J., Coates, R., Williams, J., & Liff, J. (1995). Recruitment and retention of subjects for a longitudinal cancer prevention study in an inner-city black community. Health Services Research, 30, 197-205.
6. Booth, R. E., Corsi, K. F., & Mikulich-Gilbertson, S. K. (2004). Factors associated with methadone maintenance treatment retention among street-recruited injection drug users. Drug and Alcohol Dependence, 74, 177-185. doi:10.1016/j.drugalcdep.2003.12.009. (Pubitemid 38501691)
7. Brown, D. M., Thorne, J. E., Foster, G. L., Duncan, J. L., Brune, L. M., Muñana, A., et al. (2006). Factors affecting attrition in a longitudinal study of patients with AIDS. AIDS Care, 18, 821-829. doi:10.1080/ 09540120500466747. (Pubitemid 44395530)
8. Brown, D. R., Fouad, M. N., Basen-Engquist, K., & Tortolero-Luna, G. (2000). Recruitment and retention of minority women in cancer screening, prevention, and treatment trials. Annals of Epidemiology, 18, S13-S21. doi:10.1016/S1047-2797(00)00197-6.
9. Brown, D. R., & Topcu, M. (2003). Willingness to participate in clinical treatment research among older African Americans and whites. The Gerontologist, 43, 62-72. doi:10.1093/geront/43.1.62. (Pubitemid 36222695)
10. Burrows, N. R., Geiss, L. S., Engelgau, M. M., & Acton, K. J. (2000). Prevalence of diabetes among Native Americans and Alaska Natives, 1990-1997: An increasing burden. Diabetes Care, 23, 1786-1790.
11. Carlsson, A. M. (1983). Assessment of chronic pain. I. Aspects of the reliability and validity of the visual analogue scale. Pain, 16, 87-101. (Pubitemid 13084857)
12. Cassidy, E. L., Baird, E., & Sheikh, J. I. (2001). Recruitment and retention of elderly patients in clinical trials: Issues and strategies. American Journal of Geriatric Psychiatry, 9, 136-140. (Pubitemid 32298867)
13. Chang, M. W., Brown, R., & Nitzke, S. (2009). Participant recruitment and retention in a pilot program to prevent weight gain in low-income overweight and obese mothers. BMC Public Health, 9, 424. doi:10. 1186/1471-2458-9-424.
14. Chew, L. D., Bradley, K. A., & Boyko, E. J. (2004). Brief questions to identify patients with inadequate health literacy. Family Medicine, 36, 588-594. (Pubitemid 39209565)
15. Coday, M., Boutin-Foster, C., Goldman Sher, T., Tennant, J., Greaney, M. L., Saunders, S. D., et al. (2005). Strategies for retaining study participants in behavioral intervention trials: Retention experiences of the NIH behavior change consortium. Annals of Behavioral Medicine, 29, 55-65. doi:10.1207/s15324796abm2902s-9. (Pubitemid 40586355)
16. Conwell, D. S., Mosher, A., Khan, A., Tapy, J., Sandman, L., Vernon, A., et al. (2007). Factors associated with loss to follow-up in a large tuberculosis treatment trial (TBTC Study 22). Contemporary Clinical Trials, 28, 288-294. doi:10.1016/j.cct.2006.09.003. (Pubitemid 46330172)
17. Curry, L., & Jackson, J. (2003). Recruitment and retention of diverse ethnic and racial groups in health research: An evolving science. In L. Curry, & J. Jackson (Eds.), The science of inclusion: Recruiting and retaining racial and ethnic elders in health research (pp. 1-7). Washington, DC: Gerontological Society of America.
18. Davis, L. L., Broome, M. E., & Cox, R. P. (2002). Maximizing retention in community-based clinical trials. Journal of Nursing Scholarship, 34, 47-53. doi:10.1111/j.1547-5069.2002.00047.x. (Pubitemid 41755755)
19. De Bruyn, G., Hudgens, M. G., Sullivan, P. S., & Duerr, A. C. (2005). Participant retention in clinical trials of HIV vaccines. Journal of Acquired Immune Deficiency Syndrome, 39, 499-501. (Pubitemid 41003799)
20. Dilworth-Anderson, P., & Williams, S. W. (2004). Recruitment and retention strategies for longitudinal African American caregiving research: The Family Caregiving Project. Journal on Aging and Health, 16, 137S-156S. doi:10.1177/0898264304269725. (Pubitemid 39362335)
21. Dudley, J., Jin, S., Hoover, D., Metz, S., Thackeray, R., & Chmiel, J. (1995). The Multicenter AIDS Cohort Study: Retention after 9 1/2 years. American Journal of Epidemilogy, 142, 323-330.
22. Froelicher, E. S., Miller, N. H., Buzaitis, A., Pfenninger, P., Misuraco, A., Jordan, S., et al. (2003). The Enhancing Recovery in Coronary Heart Disease Trail (ENRICHD): Strategies and techniques for enhancing retention of patients with acute myocardial infarction and depression or social isolation. Journal of Cardiopulmonary Rehabilitation, 23, 269-280. (Pubitemid 36951166)
23. Furukawa, T. A., Kessler, R. C., Slade, T., & Andrews, G. (2003). The performance of the K6 and K10 screening scales for psychological distress in the Australian National Survey of Mental Health and Well-Being. Psychological Medicine, 33, 357-362. doi:10.1017/S0033291702006700. (Pubitemid 36221468)
24. Gappoo, S., Montogomery, E., Gerdts, C., Naidoo, S., Chidanyika, A., Nkala, B., et al. (2009). Novel strategies implemented to ensure high participant retention rates in a community based HIV prevention effectiveness trial in South Africa and Zimbabwe. Contemporary Clinical Trials, 30, 411-418. doi:10.1016/j.cct.2009.05.002.
25. Good, M., & Schuler, L. (1997). Subject retention in a controlled clinical trial. Journal of Advanced Nursing, 26, 351-355. doi:10.1046/j. 1365-2648.1997.1997026351.x. (Pubitemid 127453272)
26. Gorelick, P. B., Harris, Y., Burnett, B., & Bonecutter, F. J. (1998). The recruitment triangle: Reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial. Journal of the National Medical Association, 90, 141-145.
27. Hessol, N. A., Schneider, M., Greenblatt, R. M., Bacon, M., Barranday, Y., Holman, S., et al. (2001). Retention of women enrolled in a prospective study of human immunodeficiency virus infection: Impact of race, unstable housing, and use of human immunodeficiency virus therapy. American Journal of Epidemiology, 154, 563-573. doi:10.1093/aje/154.6.563. (Pubitemid 32867956)
28. Hohmann, A. A., & Parron, D. (1996). How the new guidelines on inclusion of women and minorities apply: Efficacy trials, effectiveness trials, and validity. Journal of Consulting and Clinical Psychology, 64, 851-855. doi:10.1037/0022-006X.64.5.851. (Pubitemid 26349562)
29. Howard, B. V., Lee, E. T., Cowan, L. D., Devereux, R. B., Galloway, J. M., Go, O. T., et al. (1999). Rising tide of cardiovascular disease in American Indians. The Strong Heart Study. Circulation, 99, 2389-2395. (Pubitemid 29218233)
30. Jerome, A., & Gross, R. T. (1991). Pain disability index: Construct and discriminant validity. Archives of Physical Medicine Rehabilitation, 72, 920-922.
31. Katon, W. J., Simon, G., Russo, J., Von Korff, M., Lin, E. H., Ludman, E., et al. (2004). Quality of depression care in a population-based sample of patients with diabetes and major depression. Medical Care, 42, 1222-1229. doi:10.1097/00005650-200412000-00009. (Pubitemid 39627299)
32. Katzer, L., Bradshaw, A. J., Horwath, C. C., Gray, A. R., O'Brien, S., & Joyce, J. (2008). Evaluation of a "nondieting" stress reduction program for overweight women: A randomized trial. American Journal of Health Promotion, 22, 264-274. doi:10.4278/060728113R1.1. (Pubitemid 351358323)
33. Kessler, R. C., Barker, P. R., Colpe, L. J., Epstein, J. F., Gfroerer, J. C., Hiripi, E., et al. (2003). Screening for serious mental illness in the general population. Archives of General Psychiatry, 60, 184-189. doi:10.1001/archpsyc.60.2.184. (Pubitemid 36173125)
34. Lachin, J. M., & Foulkes, M. A. (1986). Evaluation of sample size and power for analyses of survival with allowance for nonuniform patient entry, losses to follow-up and non-compliance. Biometrics, 42, 507-519. doi:10.2307/2531201.
35. Lipkus, I. M., Samsa, G., & Rimer, B. K. (2001). General performance on a numeracy scale among highly educated samples. Medical Decision Making, 21, 37-44. doi:10.1177/0272989X0102100105. (Pubitemid 32245029)
36. Marcellus, L. (2004). Are we missing anything? Pursuing research on attrition. Canadian Journal of Nursing Research, 36, 82-98. (Pubitemid 39406968)
37. Marcus, B. H., Banspach, S. W., Lefebvre, R. C., Rossi, J. S., Carleton, R. A., & Abrams, D. B. (1992). Using the stages of change model to increase the adoption of physical activity among community participants. American Journal of Health Promotion, 6, 424-429.
38. Marcus, B. H., Selby, V. C., Niaura, R. S., & Rossi, J. S. (1992). Self-efficacy and the stages of exercise behavior change. Research Quarterly for Exercise and Sport, 63, 60-66.
39. Matts, J. P., Launer, C. A., Nelson, E. T., Miller, C., & Dain, B. (1998). A graphical assessment of the potential impact of losses to follow-up on the validity of study results. Statistical Medicine, 16, 1943-1954. doi:10.1002/(SICI)1097-0258(19970915)16:17<1943::AID-SIM631>3.0.CO;2-R. (Pubitemid 27397265)
40. Mazzuca, S. A., Brandt, K. D., Katz, B. P., Lane, K. A., Bradley, J. D., Heck, L. W., et al. (2004). Subject retention and adherence in a randomized placebo-controlled trial of a disease-modifying osteoarthritis drug. Arthritis and Rheumatology, 51, 933-940. doi:10.1002/art.20831. (Pubitemid 39648185)
41. Morse, E. V., Simon, P. M., Besch, C. L., & Walker, J. (1995). Issues of recruitment, retention, and compliance in community-based clinical trials with traditionally underserved populations. Applied Nursing Research, 8, 8-14. doi:10.1016/S0897-1897(95)80240-1.
42. Neill, K. M., & Chessa, F. (1998). Recruitment and retention of women in nontherapeutic clinical trials. Applied Nursing Research, 3, 148-151. doi:10.1016/S0897-1897(98)80152-3. (Pubitemid 128654551)
43. Newberry, A., Sherwood, P., Hricik, A., Kuo, J., Crago, E., Hoffman, L. A., et al. (2010). Understanding recruitment and retention in neurological research. Journal of Neuroscience, 42, 47-57.
44. Nez Henderson, P., Jacobsen, C., & Beals, J. (2005). AI-SUPERPFP Team. Correlates of cigarette smoking among selected Southwest and Northern plains tribal groups: The AI-SUPERPFP study. American Journal of Public Health, 95, 867-872. doi:10.2105/AJPH.2004.050096. (Pubitemid 40593752)
45. Noe, T. D., Manson, S. M., Croy, C., McGough, H., Henderson, J., & Buchwald, D. S. (2007). The influence of community-based participatory research principles on the likelihood of participation in health research in American Indian communities. Ethnicity & Disease, 17, (Suppl. 1), S6-S14.
46. Orr, P. R., Blackhurst, D. W., & Hawkins, B. S. (1992). Patient and clinic factors predictive of missed visits and inactive status in a multi-center clinical trial. Controlled Clinical Trials, 13, 40-49. doi:10.1016/0197- 2456(92)90028-X.
47. Parker, R. M., Baker, D. W., Williams, M. V., & Nurss, J. R. (1995). The test of functional health literacy in adults: A new instrument for measuring patients' literacy skills. Journal of General Internal Medicine, 10, 537-541.
48. Parra-Medina, D., D'antonio, A., Smith, S. M., Levin, S., Kirkner, G., & Mayer-Davis, E. (2004). Successful recruitment and retention strategies for a randomized weight management trial for people with diabetes living in rural, medically underserved counties of South Carolina: The POWER study. Journal of the American Dietetic Association, 104, 70-75. doi:10.1016/j.jada. 2003.10.014. (Pubitemid 38058302)
49. Prochaska, J. O., Johnson, S., & Lee, P. (1998). The transtheoretical model of behavior change. In S. A. Shumaker, E. B. Schron, J. K. Ockene, & W. L. McBee (Eds.), The handbook of health behavior change, second edition (pp. 59-84). New York: Springer Publishing Company Book section.
50. Raghunathan, T. E., Solenberger, P. W., & Hoewyk, J. V. (2009). IVEware: Imputation and variance estimation software. Ann Arbor, MI: University of Michigan Survey Research Center Software.
51. Robinson, K. A., Dennison, C. R., Wayman, D. W., Pronovost, P. J., & Needham, D. M. (2007). Systematic review identifies number of strategies important for retaining study participants. Journal of Clinical Epidemiology, 60, 757-765. doi:10.1016/j.clinepi.2006.11.023.
52. Sangha, O., Stucki, G., Liang, M. H., Fossel, A. H., & Katz, J. N. (2003). The Self-Administered Comorbidity Questionnaire: A new method to assess comorbidity for clinical and health services research. Arthritis Rheum, 49, 156-163. doi:10.1002/art.10993. (Pubitemid 36418272)
53. SAS Institute. (2008). SAS (version 9.2). Cary, NC: SAS Institute Software.
54. Shavers, V., Lynch, C., & Burmeister, L. (2002). Racial differences in factors that influence the willingness to participate in medical research studies. Annals of Epidemiology, 12, 249-256. doi:10.1016/S1047-2797(01)00265-4. (Pubitemid 34414937)
55. Shumaker, S. A., Dugan, E., & Bowen, D. J. (2000). Enhancing adherence in randomized controlled trials. Controlled Clinical Trials, 21, 226S-232S. doi:10.1016/S0197-2456(00)00083-0.
56. Tansey, C., Matte, A., Needham, D. M., & Herridge, M. (2007). Review of retention strategies in longitudinal studies and application to follow-up of ICU survivors. Intensive Care Medicine, 33, 2051-2057. doi:10.1007/s00134-007- 0817-6. (Pubitemid 350164557)
57. Thornquist, M., Patrick, D., & Omenn, G. (1991). Participation and adherence among older men and women recruited to the Beta-Carotene and Retinol Efficacy trial (CARET). The Gerontologist, 31, 593-597.
58. Topolski, T. D., LoGerfo, J., Patrick, D. L., Williams, B., Walwick, J., & Patrick, M. B. (2006). The Rapid Assessment of Physical Activity (RAPA) among older adults. Preventing Chronic Disease, 3, A118.
59. Velicer, W. F., Fava, J. L., Prochaska, J. O., Abrams, D. B., Emmons, K. M., & Pierce, J. P. (1995). Distribution of smokers by stage in three representative samples. Preventive Medicine, 24, 401-411. doi:10.1006/pmed.1995. 1065.
60. Velicer, W. F., Hughes, S. L., Fava, J. L., Prochaska, J. O., & DiClemente, C. C. (1995). An empirical typology of subjects within stage of change. Addictive Behavior, 20, 299-320. doi:10.1016/0306-4603(94)00069-B.
61. Villcorta, V., Kegeles, S., Galea, J., Konda, K., Cuba, J., Palacios, C., et al. (2007). Innovative approaches to cohort retention in a community-based HIV/STI prevention trial for socially marginalized Peruvian young adults. Clinical Trials, 4, 32-41. doi:10.1177/1740774506075869.
62. Warren-Findlow, J., Prohaska, T., & Freedman, D. (2003). Challenges and opportunities in recruiting and retaining underrepresented populations into health promotion research. The Gerontologist, 43, 37-46. doi:10.1093/geront/43. suppl-1.37. (Pubitemid 36343571)
63. Williams, M., Powers, M., Yun, Y. D., & Foa, E. (2010). Minority participation in randomized controlled trials for obsessive-compulsive disorder. Journal of Anxiety Disorders, 24, 171-177. doi:10.1093/aje/kwn072.
64. Williams, P., Van Dyke, R., Eagle, M., Smith, D., Vincent, C., Ciupak, G., et al. (2008). Association of site-specific and participant-specific factors with retention of children in a long-term pediatric cohort study. American Journal of Epidemiology, 167, 1375-1386. doi:10.1093/aje/kwn072. (Pubitemid 351770559)
65. Yass-Reed, E. M., Barry, N. J., & Dacey, C. M. (1993). Examination of pretreatment predictors of attrition in a VLCD and behavior therapy weight-loss program. Addictive Behaviors, 18, 431-435. doi:10.1016/0306-4603(93)90060-M. (Pubitemid 23253873)