Strategies for retaining study participants in behavioral intervention trials: Retention experiences of the NIH behavior change consortium

Annals of Behavioral Medicine

Volumn 29, Issue SUPPL., 2005, Pages 55-65

  Coday, Mace ^a   Boutin Foster, Carla ^b   Sher, Tamara Goldman ^c   Tennant, Jennifer ^d   Greaney, Mary L ^e   Saunders, Sandra D ^e   Somes, Grant W ^a  

^a UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

^b WEILL CORNELL MEDICAL COLLEGE   (United States)

^c ILLINOIS INSTITUTE OF TECHNOLOGY   (United States)

^d RUSH UNIVERSITY MEDICAL CENTER   (United States)

^e UNIVERSITY OF RHODE ISLAND   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANTILIPEMIC AGENT;

ARTICLE; CLINICAL TRIAL; FINANCIAL MANAGEMENT; HEALTH BEHAVIOR; HEALTH CARE ORGANIZATION; HEALTH STATUS; HIP FRACTURE; HUMAN; KINESIOTHERAPY; PROPHYLAXIS; QUALITATIVE ANALYSIS;

HEALTH BEHAVIOR; HEALTH PROMOTION; HUMANS; NATIONAL INSTITUTES OF HEALTH (U.S.); RETENTION (PSYCHOLOGY); UNITED STATES;

EID: 17844409359     PISSN: 08836612     EISSN: None     Source Type: Journal    
DOI: 10.1207/s15324796abm2902s_9     Document Type: Article

References (40)

1. Bailey KR: Generalizing the results of randomized clinical trials. Controlled Clinical Trials. 1994, 15:15-23.
2. Lovato LC, Hill K, Hertert S, Hunninghake DB, Probstfield JL: Recruitment for controlled clinical trials: Literature summary and annotated bibliography. Controlled Clinical Trials. 1997, 18:328-352.
3. Atkins CJ, Patterson TL, Roppe BE, et al.: Recruitment issues, health habits, and the decision to participate in a health promotion program. American Journal of Preventive Medicine. 1987, 3:87-94.
4. Bell-Syer SE, Moffett JA: Recruiting patients to randomized trials in primary care: principles and case study. Family Practice. 2000, 17:187-191.
5. Gorelick PB, Richardson D, Hudson E, et al.: Establishing a community network for recruitment of African Americans into a clinical trial. The African-American antiplatelet stroke Prevention Study (AAASPS) experience. Journal of the National Medical Association. 1996, 88:701-704.
6. Giuliano AR, Mokuau N, Hughes C, et al.: Participation of minorities in cancer research: The influence of structural, cultural, and linguistic factors. Annals of Epidemiology. 2000, 10:S22-S34.
7. Wisdom K, Neighbors K, Williams VH, Havstad SL, Tilley BC: Recruitment of African Americans with type 2 diabetes to a randomized controlled trial using three sources. Ethnicity & Health. 2002, 7:267-278.
8. Yancey AK, Miles OL, McCarthy WJ, et al.: Differential response to targeted recruitment strategies to fitness promotion research by African-American women of varying body mass index. Ethnicity and Disease. 2001, 11:115-123.
9. Yancey AK, Kumanyika SK, Ponce NA, et al.: Population-based interventions engaging communities of color in healthy eating and active living: A review. Preventing Chronic Disease. Retrieved January 2004 from http://www.cdc.gov/pcd/ issues/2004/jan/yancey.htm
10. Curry L, Jackson J: The science of including older ethnic and racial group participants in health-related research. Gerontologist. 2003, 43:15-17.
11. Levkoff S, Sanchez H: Lessons learned about minority recruitment and retention from the centers on minority aging and health promotion. Gerontologist. 2003, 43:18-26.
12. Gilliss CL, Lee KA, Gutierrez Y, et al.: Recruitment and retention of healthy minority women into community-based longitudinal research. Journal of Women's Health and Gender-Based Medicine. 2001, 10:77-85.
13. Marx M, Cohen-Mansfield J, Guralnik JM: Recruiting community-dwelling elderly at risk for physical disability into exercise research. Journal of Aging and Physical Activity. 2003, 11:229-241.
14. Yancey A: Facilitating health promotion in communities of color. Cancer Research, Therapy and Control. 1999, 8:113-122.
15. Hunt JR, White E: Retaining and tracking cohort study members. Epidemiologic Reviews. 1998, 20:57-70.
16. Schwartz CE, Fox BH: Who says yes? Identifying selection biases in a psychosocial intervention study of multiple sclerosis. Social Science & Medicine. 1995, 40:359-370.
17. Siddiqui O, Flay BR, Hu FB: Factors affecting attrition in a longitudinal smoking prevention study. Preventive Medicine. 1996, 25:554-560.
18. Schmidt JA, Gruman C, King MB, Wolfson LI: Attrition in an exercise intervention: a comparison of early and later dropouts. Journal of the American Geriatrics Society. 2000, 48:952-960.
19. Hansen WB, Collins LM, Malotte CK, Johnson CA, Fielding JE: Attrition in prevention research. Journal of Behavioral Medicine. 1985, 5:261-275.
20. Altman DG, Schulz KF, Moher D, et al.: The revised CONSORT statement for reporting randomized trials: Explanation and elaboration. Annals of Internal Medicine. 2001, 134:663-694.
21. BCC Recruitment and Retention Workgroup: Mission Statement. Retrieved March 2004 from http://www1.od.nih.gov/behaviorchange/workgroups/R&R/ recruitment.htm.
22. Ory MG, Jordan PJ, Bazzarre T: The Behavior Change Consortium: Setting the stage for a new century of health behavior-change research. Health Education Research. 2002, 17:500-511.
23. Boles M, Getchell WS, Feldman G, McBride R, Hart RG: Primary prevention studies and the healthy elderly: Evaluating barriers to recruitment. Journal of Community Health. 2000, 25:279-292.
24. Winkleby MA, Robinson TN, Sundquist J, Kraemer HC: Ethnic variation in cardiovascular disease risk factors among children and young adults: Findings from the Third National Health and Nutrition Examination Survey, 1988-1994. Journal of the American Medical Association. 1999, 281:1006-1113.
25. Harris DJ, Douglas PS: Enrollment of women in cardiovascular clinical trials funded by the National Heart, Lung, and Blood Institute. The New England Journal of Medicine. 2000, 343:475-480.
26. Goodwin PJ, Leszcz M, Quirt G, et al.: Lessons learned from enrollment in the BEST study - A multicenter, randomized trial of group psychosocial support in metastatic breast cancer. Journal of Clinical Epidemiology. 2000, 53:47-55.
27. Valanis B, Blank J, Glass A: Mailing strategies and costs of recruiting heavy smokers in CARET, a large chemoprevention trial. Controlled Clinical Trials. 1998, 19:25-38.
28. Butterfield PG, Yates SM, Rogers B, Healow JM: Overcoming subject recruitment challenges: Strategies for successful collaboration with novice research agencies. Applied Nursing Research. 2003, 16:46-52.
29. McLeroy KR, Bibeau D, Steckler A, Glanz K: An ecological perspective on health promotion programs. Health Education Quarterly. 1988, 15:351-377.
30. Bandura A: Social cognitive theory: An agentic perspective. Annual Review of Psychology. 2001, 52:1-26.
31. Bandura A: Social Foundations of Thought and Action. Englewood Cliffs, NJ: Prentice-Hall, 1986.
32. Stanford PD, Monte DA, Briggs FM, et al.: Recruitment and retention of adolescent participants in HIV research: Findings from the REACH (Reaching for Excellence in Adolescent Care and Health) Project. The Journal of Adolescent Health. 2003, 32:192-203.
33. Johnson RE, Williams RD, Nagy MC, Fouad MN: Retention of under-served women in clinical trials: A focus group study. Ethnicity & Disease. 2003, 13:268-278.
34. Deeg DJ, van Tilburg T, Smit JH, de Leeuw ED: Attrition in the Longitudinal Aging Study Amsterdam, The effect of differential inclusion in side studies. Journal of Clinical Epidemiology. 2002, 55:319-328.
35. Martinson BC, Lazovich D, Lando HA, et al.: Effectiveness of monetary incentives for recruiting adolescents to an intervention trial to reduce smoking. Preventive Medicine. 2000, 31:706-713.
36. Tishler CL, Bartholomae S: The recruitment of normal healthy volunteers: A review of the literature on the use of financial incentives. Journal of Clinical Pharmacology. 2002, 42:365-375.
37. Jones FC, Broome ME: Focus groups with African American adolescents: Enhancing recruitment and retention in intervention studies. Journal of Pediatric Nursing. 2001, 16:88-96.
38. Brown DR, Fouad MN, Basen-Engquist K, Tortolero-Luna G: Recruitment and retention of minority women in cancer screening, prevention, and treatment trials. Annals of Epidemiology. 2000, 10:S13-S21.
39. Cassidy EL, Baird E, Sheikh JI: Recruitment and retention of elderly patients in clinical trials: issues and strategies. The American Journal of Geriatric Psychiatry. 2001, 9:136-140.
40. Newes-Adeyi G, Helitzer DL, Caulfield LE, Bronner Y: Theory and practice: Applying the ecological model to formative research for a WIC training program in New York State. Health Education Research. 2000, 15:283-291.