메뉴 건너뛰기




Volumn 16, Issue 2, 2011, Pages 109-113

The importance of quality-of-life assessment in the management of patients with multiple sclerosis: Recommendations from the Middle East MS Advisory Group

Author keywords

[No Author keywords available]

Indexed keywords

CLADRIBINE; NATALIZUMAB;

EID: 79953694777     PISSN: 13196138     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article
Times cited : (12)

References (48)
  • 1
    • 0035172130 scopus 로고    scopus 로고
    • Prevalence of impairments, disabilities, handicaps and quality of life in the general population: A review of recent literature
    • Lorhandicap Group
    • Barbotte E, Guillemin F, Chau N; Lorhandicap Group. Prevalence of impairments, disabilities, handicaps and quality of life in the general population: a review of recent literature. Bull World Health Organ 2001; 79: 1047-1055.
    • (2001) Bull World Health Organ , vol.79 , pp. 1047-1055
    • Barbotte, E.1    Guillemin, F.2    Chau, N.3
  • 3
    • 0034297046 scopus 로고    scopus 로고
    • Performance of the SF-36, SF-12, and RAND-36 summary scales in a multiple sclerosis population
    • Nortvedt MW, Riise T, Myhr KM, Nyland HI. Performance of the SF-36, SF-12, and RAND-36 summary scales in a multiple sclerosis population. Med Care 2000; 38: 1022-1028.
    • (2000) Med Care , vol.38 , pp. 1022-1028
    • Nortvedt, M.W.1    Riise, T.2    Myhr, K.M.3    Nyland, H.I.4
  • 4
    • 0043125578 scopus 로고    scopus 로고
    • Evidence-based measurement in multiple sclerosis: The psychometric properties of the physical and psychological dimensions of three quality of life rating scales
    • Riazi A, Hobart JC, Lamping DL, Fitzpatrick R, Thompson AJ. Evidence-based measurement in multiple sclerosis: the psychometric properties of the physical and psychological dimensions of three quality of life rating scales. Mult Scler 2003; 9: 411-419.
    • (2003) Mult Scler , vol.9 , pp. 411-419
    • Riazi, A.1    Hobart, J.C.2    Lamping, D.L.3    Fitzpatrick, R.4    Thompson, A.J.5
  • 5
    • 37349118328 scopus 로고    scopus 로고
    • Quality of life in people with multiple sclerosis: Data from the Sonya Slifka Longitudinal Multiple Sclerosis Study
    • Wu N, Minden SL, Hoaglin DC, Hadden L, Frankel D. Quality of life in people with multiple sclerosis: data from the Sonya Slifka Longitudinal Multiple Sclerosis Study. J Health Hum Serv Adm 2007; 30: 233-267.
    • (2007) J Health Hum Serv Adm , vol.30 , pp. 233-267
    • Wu, N.1    Minden, S.L.2    Hoaglin, D.C.3    Hadden, L.4    Frankel, D.5
  • 6
    • 0021035886 scopus 로고
    • Rating neurological impairment in multiple sclerosis: An expanded disability status scale (EDSS)
    • Kurktze JF. Rating neurological impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology 1983; 33: 1444-1452.
    • (1983) Neurology , vol.33 , pp. 1444-1452
    • Kurktze, J.F.1
  • 8
    • 0032905049 scopus 로고    scopus 로고
    • The psychometric properties of clinical rating scales used in multiple sclerosis
    • Sharrack B, Hughes RA, Soudain S, Dunn G. The psychometric properties of clinical rating scales used in multiple sclerosis. Brain 1999; 122: 141-159.
    • (1999) Brain , vol.122 , pp. 141-159
    • Sharrack, B.1    Hughes, R.A.2    Soudain, S.3    Dunn, G.4
  • 9
    • 2642684571 scopus 로고    scopus 로고
    • Burden of illness of multiple sclerosis: Part II: Quality of life
    • The Canadian Burden of Illness Study Group
    • Burden of illness of multiple sclerosis: Part II: Quality of life. The Canadian Burden of Illness Study Group. Can J Neurol Sci 1998; 25: 31-38.
    • (1998) Can J Neurol Sci , vol.25 , pp. 31-38
  • 11
    • 0033780799 scopus 로고    scopus 로고
    • Quality of life and its relationship to brain lesions and atrophy on magnetic resonance images in 60 patients with multiple sclerosis
    • Janardhan V, Bakshi R. Quality of life and its relationship to brain lesions and atrophy on magnetic resonance images in 60 patients with multiple sclerosis. Arch Neurol 2000; 57: 1485-1491.
    • (2000) Arch Neurol , vol.57 , pp. 1485-1491
    • Janardhan, V.1    Bakshi, R.2
  • 12
    • 5444227104 scopus 로고    scopus 로고
    • What drives quality of life in multiple sclerosis?
    • Hemmett L, Holmes J, Barnes M, Russell N. What drives quality of life in multiple sclerosis? QJM 2004; 97: 671-676.
    • (2004) QJM , vol.97 , pp. 671-676
    • Hemmett, L.1    Holmes, J.2    Barnes, M.3    Russell, N.4
  • 13
    • 54449084785 scopus 로고    scopus 로고
    • The impact of disabilities on quality of life in people with multiple sclerosis
    • Wynia K, Middel B, van Dijk JP, De Keyser JH, Reijneveld SA. The impact of disabilities on quality of life in people with multiple sclerosis. Mult Scler 2008; 14: 972-980.
    • (2008) Mult Scler , vol.14 , pp. 972-980
    • Wynia, K.1    Middel, B.2    van Dijk, J.P.3    de Keyser, J.H.4    Reijneveld, S.A.5
  • 15
    • 0034889675 scopus 로고    scopus 로고
    • Reduced quality of life among multiple sclerosis patients with sexual disturbance and bladder dysfunction
    • Nortvedt MW, Riise T, Myhr KM, Landtblom AM, Bakke A, Nyland HI. Reduced quality of life among multiple sclerosis patients with sexual disturbance and bladder dysfunction. Mult Scler 2001; 7: 231-235.
    • (2001) Mult Scler , vol.7 , pp. 231-235
    • Nortvedt, M.W.1    Riise, T.2    Myhr, K.M.3    Landtblom, A.M.4    Bakke, A.5    Nyland, H.I.6
  • 16
    • 58149333787 scopus 로고    scopus 로고
    • The impact of sexual dysfunction on the quality of life measured by MSQoL-54 in patients with multiple sclerosis
    • Tepavcevic DK, Kostic J, Basuroski ID, Stojsavljevic N, Pekmezovic T, Drulovic J. The impact of sexual dysfunction on the quality of life measured by MSQoL-54 in patients with multiple sclerosis. Mult Scler 2008; 14: 1131-1136.
    • (2008) Mult Scler , vol.14 , pp. 1131-1136
    • Tepavcevic, D.K.1    Kostic, J.2    Basuroski, I.D.3    Stojsavljevic, N.4    Pekmezovic, T.5    Drulovic, J.6
  • 17
    • 23744432476 scopus 로고    scopus 로고
    • Quality of life and its assessment in multiple sclerosis: Integrating physical and psychological components of wellbeing
    • Mitchell AJ, Benito-Leon J, Gonzalez JM, Rivera-Navarro J. Quality of life and its assessment in multiple sclerosis: integrating physical and psychological components of wellbeing. Lancet Neurol 2005; 4: 556-566.
    • (2005) Lancet Neurol , vol.4 , pp. 556-566
    • Mitchell, A.J.1    Benito-Leon, J.2    Gonzalez, J.M.3    Rivera-Navarro, J.4
  • 18
    • 66149167333 scopus 로고    scopus 로고
    • Neurological disability, psychological distress, and health-related quality of life in MS patients within the first three years after diagnosis
    • Kern S, Schrempf W, Schneider H, Schultheiss T, Reichmann H, Ziemssen T. Neurological disability, psychological distress, and health-related quality of life in MS patients within the first three years after diagnosis. Mult Scler 2009; 15: 752-758.
    • (2009) Mult Scler , vol.15 , pp. 752-758
    • Kern, S.1    Schrempf, W.2    Schneider, H.3    Schultheiss, T.4    Reichmann, H.5    Ziemssen, T.6
  • 20
    • 0347968009 scopus 로고    scopus 로고
    • A systematic approach to analyse health-related quality of life in multiple sclerosis: The GEDMA study
    • GEDMA Study Group
    • Morales-Gonzales JM, Benito-Leon J, Rivera-Navarro J, Mitchell AJ; GEDMA Study Group. A systematic approach to analyse health-related quality of life in multiple sclerosis: the GEDMA study. Mult Scler 2004; 10: 47-54.
    • (2004) Mult Scler , vol.10 , pp. 47-54
    • Morales-Gonzales, J.M.1    Benito-Leon, J.2    Rivera-Navarro, J.3    Mitchell, A.J.4
  • 21
    • 33644583206 scopus 로고    scopus 로고
    • Depression is the main determinant of quality of life in multiple sclerosis: A classification-regression (CART) study
    • D'Alisa S, Miscio G, Baudo S, Simone A, Tesio L, Mauro A. Depression is the main determinant of quality of life in multiple sclerosis: a classification-regression (CART) study. Disabil Rehabil 2006; 28: 307-314.
    • (2006) Disabil Rehabil , vol.28 , pp. 307-314
    • D'alisa, S.1    Miscio, G.2    Baudo, S.3    Simone, A.4    Tesio, L.5    Mauro, A.6
  • 22
    • 47249156211 scopus 로고    scopus 로고
    • Ruralurban analyses of health-related quality of life among people with multiple sclerosis
    • Buchanan RJ, Zhu L, Schiffer R, Radin D, James W. Ruralurban analyses of health-related quality of life among people with multiple sclerosis. J Rural Health 2008; 24: 244-252.
    • (2008) J Rural Health , vol.24 , pp. 244-252
    • Buchanan, R.J.1    Zhu, L.2    Schiffer, R.3    Radin, D.4    James, W.5
  • 23
    • 33745077681 scopus 로고    scopus 로고
    • Perceptions of persons with multiple sclerosis on cognitive changes and their impact on daily life
    • Shevil E, Finlayson M. Perceptions of persons with multiple sclerosis on cognitive changes and their impact on daily life. Disabil Rehabil 2006; 28: 779-788.
    • (2006) Disabil Rehabil , vol.28 , pp. 779-788
    • Shevil, E.1    Finlayson, M.2
  • 24
    • 66149091139 scopus 로고    scopus 로고
    • Quality of life in multiple sclerosis is associated with lesion burden and brain volume measures
    • Mowry EM, Beheshtian A, Waubant E, Goodin DS, Cree BA, Qualley P, et al. Quality of life in multiple sclerosis is associated with lesion burden and brain volume measures. Neurology 2009; 72: 1760-1765.
    • (2009) Neurology , vol.72 , pp. 1760-1765
    • Mowry, E.M.1    Beheshtian, A.2    Waubant, E.3    Goodin, D.S.4    Cree, B.A.5    Qualley, P.6
  • 25
    • 0037327871 scopus 로고    scopus 로고
    • The use of quality of life measures in multiple sclerosis research
    • Nortvedt MW, Riise T. The use of quality of life measures in multiple sclerosis research. Mult Scler 2003; 9: 63-72.
    • (2003) Mult Scler , vol.9 , pp. 63-72
    • Nortvedt, M.W.1    Riise, T.2
  • 26
    • 0030967027 scopus 로고    scopus 로고
    • Doctors and patients don't agree: Cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis
    • Rothwell PM, McDowell Z, Wong CK, Dorman PJ. Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis. BMJ 1997; 314: 1580-1583.
    • (1997) BMJ , vol.314 , pp. 1580-1583
    • Rothwell, P.M.1    McDowell, Z.2    Wong, C.K.3    Dorman, P.J.4
  • 28
    • 0345169866 scopus 로고    scopus 로고
    • A review about the impact of multiple sclerosis on health-related quality of life
    • Benito-Leon J, Morales JM, Rivera-Navarro J, Mitchell A. A review about the impact of multiple sclerosis on health-related quality of life. Disabil Rehabil 2003; 25: 1291-1303.
    • (2003) Disabil Rehabil , vol.25 , pp. 1291-1303
    • Benito-Leon, J.1    Morales, J.M.2    Rivera-Navarro, J.3    Mitchell, A.4
  • 29
    • 66149091139 scopus 로고    scopus 로고
    • Quality of life in multiple sclerosis is associated with lesion burden and brain volume measures
    • Mowry EM, Beheshtian A, Waubant E, Goodin DS, Cree BA, Qualley P, et al. Quality of life in multiple sclerosis is associated with lesion burden and brain volume measures. Neurology 2009; 72: 1760-1765.
    • (2009) Neurology , vol.72 , pp. 1760-1765
    • Mowry, E.M.1    Beheshtian, A.2    Waubant, E.3    Goodin, D.S.4    Cree, B.A.5    Qualley, P.6
  • 30
    • 0037678692 scopus 로고    scopus 로고
    • Using the SF-36 measure to compare the health impact of multiple sclerosis and Parkinson's disease with normal population health profiles
    • Riazi A, Hobart JC, Lamping DL, Fitzpatrick R, Freeman JA, Jenkinson C, et al. Using the SF-36 measure to compare the health impact of multiple sclerosis and Parkinson's disease with normal population health profiles. J Neurol Neurosurg Psychiatry 2003; 74: 710-714.
    • (2003) J Neurol Neurosurg Psychiatry , vol.74 , pp. 710-714
    • Riazi, A.1    Hobart, J.C.2    Lamping, D.L.3    Fitzpatrick, R.4    Freeman, J.A.5    Jenkinson, C.6
  • 31
    • 0032702405 scopus 로고    scopus 로고
    • Type I interferons and the quality of life of multiple sclerosis patients. Results from a clinical trial on interferon alfa-2a
    • Nortvedt MW, Riise T, Myhr KM, Nyland HI, Hanestad BR. Type I interferons and the quality of life of multiple sclerosis patients. Results from a clinical trial on interferon alfa-2a. Mult Scler 1999; 5: 317-322.
    • (1999) Mult Scler , vol.5 , pp. 317-322
    • Nortvedt, M.W.1    Riise, T.2    Myhr, K.M.3    Nyland, H.I.4    Hanestad, B.R.5
  • 32
    • 9744268177 scopus 로고    scopus 로고
    • Quality of life measures for the palliative care of people severely affected by multiple sclerosis: A systematic review
    • Gruenewald DA, Higginson IJ, Vivat B, Edmonds P, Burman RE. Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review. Mult Scler 2004; 10: 690-704.
    • (2004) Mult Scler , vol.10 , pp. 690-704
    • Gruenewald, D.A.1    Higginson, I.J.2    Vivat, B.3    Edmonds, P.4    Burman, R.E.5
  • 35
    • 0035010231 scopus 로고    scopus 로고
    • The Multiple Sclerosis Impact Scale (MSIS-29): A new patient-based outcome measure
    • Hobart J, Lamping D, Fitzpatrick R, Riazi A, Thompson A. The Multiple Sclerosis Impact Scale (MSIS-29): a new patient-based outcome measure. Brain 2001; 124: 962-973.
    • (2001) Brain , vol.124 , pp. 962-973
    • Hobart, J.1    Lamping, D.2    Fitzpatrick, R.3    Riazi, A.4    Thompson, A.5
  • 36
    • 8944222564 scopus 로고    scopus 로고
    • Validation of the functional assessment of multiple sclerosis quality of life instrument
    • Cella DF, Dineen K, Arnason B, Reder A, Webster KA, Karabatsos G, et al. Validation of the functional assessment of multiple sclerosis quality of life instrument. Neurology 1996; 47: 129-139.
    • (1996) Neurology , vol.47 , pp. 129-139
    • Cella, D.F.1    Dineen, K.2    Arnason, B.3    Reder, A.4    Webster, K.A.5    Karabatsos, G.6
  • 37
    • 0034996747 scopus 로고    scopus 로고
    • Developing a disease-specific quality of life measure for people with multiple sclerosis
    • Ford HL, Gerry E, Tennant A, Whalley D, Haigh R, Johnson MH. Developing a disease-specific quality of life measure for people with multiple sclerosis. Clin Rehabil 2001; 15: 247-258.
    • (2001) Clin Rehabil , vol.15 , pp. 247-258
    • Ford, H.L.1    Gerry, E.2    Tennant, A.3    Whalley, D.4    Haigh, R.5    Johnson, M.H.6
  • 40
    • 46749135636 scopus 로고    scopus 로고
    • Health-related quality of life assessment in multiple sclerosis
    • Miller DM, Kinkel RP. Health-related quality of life assessment in multiple sclerosis. Rev Neurol Dis 2008; 5: 56-64.
    • (2008) Rev Neurol Dis , vol.5 , pp. 56-64
    • Miller, D.M.1    Kinkel, R.P.2
  • 41
    • 33846287988 scopus 로고    scopus 로고
    • Diseasespecific quality of life in multiple sclerosis: The effect of disease modifying treatment
    • Lily O, McFadden E, Hensor E, Johnson M, Ford H. Diseasespecific quality of life in multiple sclerosis: the effect of disease modifying treatment. Mult Scler 2006; 12: 808-813.
    • (2006) Mult Scler , vol.12 , pp. 808-813
    • Lily, O.1    McFadden, E.2    Hensor, E.3    Johnson, M.4    Ford, H.5
  • 42
    • 77952796371 scopus 로고    scopus 로고
    • Intramuscular interferon beta-1a therapy in patients with relapsing-remitting multiple sclerosis: A 15 years follow-up study
    • Bermel RA, Weinstock-Guttman B, Bourdette D, Foulds P, You X, Rudick RA. Intramuscular interferon beta-1a therapy in patients with relapsing-remitting multiple sclerosis: a 15 years follow-up study. Mult Scler 2010; 16: 588-596.
    • (2010) Mult Scler , vol.16 , pp. 588-596
    • Bermel, R.A.1    Weinstock-Guttman, B.2    Bourdette, D.3    Foulds, P.4    You, X.5    Rudick, R.A.6
  • 43
    • 78149450871 scopus 로고    scopus 로고
    • Health-related quality of life in relapsing remitting multiple sclerosis patients during treatment with glatiramer acetate: A prospective, observational, international, multi-centre study
    • Jongen PJ, Lehnick D, Sanders E, Seeldrayers P, Fredrikson S, Andersson M, et al. Health-related quality of life in relapsing remitting multiple sclerosis patients during treatment with glatiramer acetate: a prospective, observational, international, multi-centre study. Health Qual Life Outcomes 2010: 8: 133.
    • (2010) Health Qual Life Outcomes , vol.8 , pp. 133
    • Jongen, P.J.1    Lehnick, D.2    Sanders, E.3    Seeldrayers, P.4    Fredrikson, S.5    Andersson, M.6
  • 44
    • 78650128757 scopus 로고    scopus 로고
    • The Global Adherence Project (GAP): A multicenter observational study on adherence to diseasemodifying therapies in patients with relapsing-remitting multiple sclerosis
    • Devonshire V, Lapierre Y, Macdonell R, Ramo-Tello C, Patti F, Fontoura P, et al. The Global Adherence Project (GAP): a multicenter observational study on adherence to diseasemodifying therapies in patients with relapsing-remitting multiple sclerosis. Eur J Neurol 2011; 18: 69-77.
    • (2011) Eur J Neurol , vol.18 , pp. 69-77
    • Devonshire, V.1    Lapierre, Y.2    Macdonell, R.3    Ramo-Tello, C.4    Patti, F.5    Fontoura, P.6
  • 46
    • 16344394548 scopus 로고    scopus 로고
    • Role of health-related quality of life measures in the routine care of people with multiple sclerosis
    • Solari A. Role of health-related quality of life measures in the routine care of people with multiple sclerosis. Health Qual Life Outcomes 2005; 3: 16.
    • (2005) Health Qual Life Outcomes , vol.3 , pp. 16
    • Solari, A.1
  • 47
    • 0033547042 scopus 로고    scopus 로고
    • Getting oriented to patient-oriented outcomes
    • Vickrey BG. Getting oriented to patient-oriented outcomes. Neurology 1999; 53: 662-663.
    • (1999) Neurology , vol.53 , pp. 662-663
    • Vickrey, B.G.1
  • 48
    • 0034017018 scopus 로고    scopus 로고
    • Treatment of multiple sclerosis with interferon beta: An appraisal of cost-effectiveness and quality of life
    • Parkin D, Jacoby A, McNamee P, Miller P, Thomas S, Bates D. Treatment of multiple sclerosis with interferon beta: an appraisal of cost-effectiveness and quality of life. J Neurol Neurosurg Psychiatry 2000; 68: 144-149.
    • (2000) J Neurol Neurosurg Psychiatry , vol.68 , pp. 144-149
    • Parkin, D.1    Jacoby, A.2    McNamee, P.3    Miller, P.4    Thomas, S.5    Bates, D.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.