Quality of life: Patients and doctors don't always agree: A meta-analysis

Journal of Clinical Epidemiology

Volumn 57, Issue 7, 2004, Pages 653-661

  Janse, A J ^a   Gemke, R J B J ^b   Uiterwaal, C S P M ^c   Van Der Tweel, I ^d   Kimpen, J L L ^a   Sinnema, G ^a  

^a UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^b VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^c UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^d UTRECHT UNIVERSITY   (Netherlands)

Author keywords

Health Utilities Index; Meta analysis; Perception; Physicians; Quality of life

Indexed keywords

ARTICLE; CLINICAL PRACTICE; CLINICAL TRIAL; DOCTOR PATIENT RELATION; EMBASE; HUMAN; INFORMATION PROCESSING; MEDLINE; META ANALYSIS; PARENTAL BEHAVIOR; PHYSICIAN; PRIORITY JOURNAL; PSYCINFO; QUALITY OF LIFE; SYSTEMATIC REVIEW; WELLBEING;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; HEALTH STATUS INDICATORS; HUMANS; PHYSICIANS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS;

EID: 4444321334     PISSN: 08954356     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jclinepi.2003.11.013     Document Type: Article

References (58)

1. Rowbothan M., Harden N., Stacey B., Bernstein P., Magnus-Miller L. Gabapentin for the treatment of postherpetic neuralgia: a randomized controlled trial. JAMA. 280:1998;1837-1842
2. Mant J., Carter J., Wade D.T., Winner S. Family support for stroke: a randomised controlled trial. Lancet. 356:2000;808-813
3. Tetteroo E., Graaf van der Y., Bosch J.L., Van Engelen A.D., Hunink M.G., Eikelboom B.C. Randomised comparison of primary stent placement versus primary angioplasty followed by selective stent placement in patients with iliac-artery occlusive disease. Lancet. 351:1998;1153-1159
4. Rougier P., Van Cutsum E., Bajetta E., Niederle N., Possinger K., Labianca R., Navarro M., Morant R., Bleiberg H., Wils J., Awad L., Herait P., Jacques C. Randomised trial of irinotecan versus fluorouracil by continuous infusion after fluorouracil failure in patients with metastatic colorectal cancer. Lancet. 352:1998;1407-1412
5. Ghoname E.A., Craig W.F., White P.F., Ahmed H.E., Hamza M.A., Henderson B.N., Gajraj N.M., Huber P.J., Gatchel R.J. Percutaneous electrical nerve stimulation for low back pain: a randomized crossover study. JAMA. 281:1999;818-823
6. Higginson I., Carr A.J. Measuring quality of life. Using quality of life measures in the clinical setting. BMJ. 322:2001;1297-1300
7. Cleeland C.S., Gonin R., Hatfield A.K., Edmonson J.H., Blum R.H., Stewart J.A., Pandya K.J. Pain and its treatment in outpatients with metastatic cancer. N Engl J Med. 330:1994;592-596
8. Sprangers M.A., Aaronson N.K. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol. 45:1992;743-760
9. Gill T.M., Feinstein A.R. A critical appraisal of the quality of quality-of-life measurements. JAMA. 272:1994;619-626
10. Bergner M. Quality of life, health status, and clinical research. Med Care. 27:1989;S148-S156
11. Bullinger M., Ravens Sieberer U. Health related quality of life assessment in children: a review of the literature. Rev Eur Psychol Appl. 45:1995;245-254
12. Spilker B. Introduction. Spilker B. Quality of life and pharmacoeconomics in clinical trials. 1996;1-10 Lippincott-Raven, Philadelphia
13. van Houwelingen H.C., Arends L.R., Stijnen T.h. Tutorial in biostatistics. Advanced methods in meta-analysis: multivariate approach and meta-regression. Stat Med. 21:(4):2002;589-624
14. Slevin M.L., Plant H., Lynch D., Drinkwater J., Gregory W.M. Who should measure quality of life, the doctor or the patient? Br J Cancer. 57:1988;109-112
15. Theunissen N.C.M., Kamp G.A., Koopman H.M., Zwinderman K.A.H., Vogels T., Wit J.M. Quality of life and self-esteem in children treated for idiopathic short stature. J Pediatr. 140:2002;507-515
16. Parsons S.K., Barlow S.E., Levy S.L., Supran S.E., Kaplan S.H. Health-related quality of life in pediatric bone marrow transplant survivors: according to whom? Int J Cancer Suppl. 12:1999;46-51
17. Litwin M.S., Lubeck D.P., Henning J.M., Carroll P.R. Differences in urologist and patient assessments of health related quality of life in men with prostate cancer: results of the CaPSURE database. J Urol. 159:1998;1988-1992
18. Mercier M., Schraub S., Bransfield D.D., Fournier J. Patient acceptance and differential perceptions of quality of life measures in a French oncology setting. Qual Life Res. 1:1992;53-61
19. Jemec G.B., Wulf H.C. Patient-physician consensus on quality of life in dermatology. Clin Exp Dermatol. 21:1996;177-179
20. Coates A., Thomson D., McLeod G.R., Hersey P., Gill P.G., Olver I.N., Kefford R., Lowenthal R.M., Beadle G., Walpole E. Prognostic value of quality of life scores in a trial of chemotherapy with or without interferon in patients with metastatic malignant melanoma. Eur J Cancer. 29A:1993;1731-1734
21. Saigal S., Stoskopf B.L., Feeny D., Furlong W., Burrows E., Rosenbaum P.L., Hoult L. Differences in preferences for neonatal outcomes among health care professionals, parents, and adolescents. JAMA. 281:1999;1991-1997
22. Cadman D., Goldsmith C., Bashim P. Values, preferences, and decisions in the care of children with developmental disabilities. J Dev Behav Pediatr. 5:1984;60-64
23. Jalukar V., Funk G.F., Christensen A.J., Karnell L.H., Moran P.J. Health states following head and neck cancer treatment: patient, health-care professional, and public perspectives. Head Neck. 20:1998;600-608
24. Otto R.A., Dobie R.A., Lawrence V., Sakai C. Impact of a laryngectomy on quality of life: perspective of the patient versus that of the health care provider. Ann Otol Rhinol Laryngol. 106:1997;693-699
25. Tsevat J., Cook E.F., Green M.L., Matchar D.B., Dawson N.V., Broste S.K., Wu A.W., Phillips R.S., Oye R.K., Goldman L. Health values of the seriously ill. SUPPORT investigators. Ann Intern Med. 122:1995;514-520
26. Kirigia J.M. Economic evaluation in schistosomiasis: valuation of health states preferences. A research note. Health Econ. 7:1998;551-556
27. Bennett C.L., Chapman G., Elstein A.S., Knight S.J., Nadler R.B., Sharifi R., Kuzel T. A comparison of perspectives on prostate cancer: analysis of utility assessments of patients and physicians. Eur Urol. 32:(Suppl 3):1997;86-88
28. Brown G.C., Brown M.M., Sharma S. Difference between ophtalmologists' and patients' perceptions of quality of life associated with age-related macular degeneration. Can J Ophthalmol. 35:2000;127-133
29. Spitzer W.O., Dobson A.J., Hall J., Chesterman E., Levi J., Shepherd R., Battista R.N., Catchlove B.R. Measuring the quality of life of cancer patients: a concise QL-index for use by physicians. J Chronic Dis. 34:1981;585-597
30. Hall J.A., Stein T.S., Roter D.L.R.N. Inaccuracies in physicians' perceptions of their patients. Med Care. 37:1999;1164-1168
31. Presant C.A. Quality of life in cancer patients. Who measures what? Am J Clin Oncol. 7:1984;571-573
32. Wilson I.B., Green M.L., Goldman L., Tsevat J., Cook E.F., Phillips R.S. Is experience a good teacher? How interns and attending physicians understand patients' choices for end-of-life care. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Med Decis Making. 17:1997;217-227
33. Churchill D.N., Torrance G.W., Taylor D.W., Barnes C.C., Ludwin D., Shimizu A., Smith E.K. Measurement of quality of life in end-stage renal disease: the time trade-off approach. Clin Invest Med. 10:1987;14-20
34. Diaz-Prieto A., Gorriz M.T., Badia X., Torrado H., Farrero E., Amador J., Abos R. Proxy-perceived prior health status and hospital outcome among the critically ill: is there any relationship? Intensive Care Med. 24:1998;691-698
35. Brunelli C., Costantini M., Di Giulio P., Gallucci M., Fusco F., Miccinesi G., Paci E., Peruselli C., Morino P., Piazza M., Tamburini M., Toscani F. Quality-of-life evaluation: when do terminal cancer patients and health-care providers agree? J Pain Symptom Manage. 15:1998;151-158
36. Barr R.D., Pai M.K.R., Weitzman S., Feeny D., Furlong W., Rosenbaum P., Torrance G.W. A multi-attribute approach to health status measurement and clinical management-illustrated by an application to brain tumors in childhood. Int J Oncol. 4:1994;639-648
37. Glaser A.W., Davies K., Walker D., Brazier D. Influence of proxy respondents and mode of administration on health status assessment following central nervous system tumours in childhood. Qual Life Res. 6:1997;43-53
38. Glaser A., Kennedy C., Punt J., Walker D. Standardized quantitative assessment of brain tumor survivors treated within clinical trials in childhood. Int J Cancer Suppl. 12:1999;77-82
39. Barr R.D., Simpson T., Whitton A., Rush B., Furlong W., Feeny D.H. Health-related quality of life in survivors of tumours of the central nervous system in childhood - a preference-based approach to measurement in a cross-sectional study. Eur J Cancer. 35:1999;248-255
40. Glaser A.W., Furlong W., Walker D.A., Fielding K., Davies K., Feeny D.H., Barr R.D. Applicability of the Health Utilities Index to a population of childhood survivors of central nervous system tumours in the U.K. Eur J Cancer. 35:1999;256-261
41. Billson A.L., Walker D.A. Assessment of health status in survivors of cancer. Arch Dis Child. 70:1994;200-204
42. Le Gales C., Costet N., Gentet J.C., Kalifa C., Frappaz D., Edan C., Sariban E., Plantaz D., Doz F. Cross-cultural adaptation of a health status classification system in children with cancer. First results of the French adaptation of the Health Utilities Index Marks 2 and 3. Int J Cancer Suppl. 12:1999;112-118
43. Felder-Puig R., Frey E., Sonnleithner G., Feeny D., Gadner H., Barr R.D., Furlong W., Topf R. German cross-cultural adaptation of the Health Utilities Index and its application to a sample of childhood cancer survivors. Eur J Pediatr. 159:2000;283-288
44. Gemke R.J., Bonsel G.J. Reliability and validity of a comprehensive health status measure in a heterogeneous population of children admitted to intensive care. J Clin Epidemiol. 49:1996;327-333
45. Barr R.D., Petrie C., Furlong W.J., Rothney M., Feeny D.H. Health-related quality of life during post-induction chemotherapy in children with acute lymphoblastic leukemia in remission: an influence of corticosteroid therapy. Int J Oncol. 11:1997;333-339
46. Blazeby J.M., Williams M.H., Alderson D., Farndon J.R. Observer variation in assessment of quality of life in patients with oesophageal cancer. Br J Surg. 82:1995;1200-1203
47. Sneeuw K.C., Aaronson N.K., Sprangers M.A., Detmar S.B., Wever L.D., Schornagel J.H. Evaluating the quality of life of cancer patients: assessments by patients, significant others, physicians and nurses. Br J Cancer. 81:1999;87-94
48. Sneeuw K.C., Aaronson N.K., Sprangers M.A., Detmar S.B., Wever L.D., Schornagel J.H. Value of caregiver ratings in evaluating the quality of life of patients with cancer. J Clin Oncol. 15:1997;1206-1217
49. Meers C., Hopman W., Singer M.A., MacKenzie T.A., Morton A.R.M.M. A comparison of patient, nurse, and physician assessment of health-related quality of life in end-stage renal disease. Dial Transplant. 24:1995;120-123
50. Molzahn A.E., Northcott H.C., Dossetor J.B. Quality of life of individuals with end stage renal disease: perceptions of patients, nurses, and physicians. Am Nephrol Nurses Assoc. 24:1997;325-333
51. Berlowitz D.R., Du W., Kazis L., Lewis S. Health-related quality of life of nursing home residents: differences in patient and provider perceptions. J Am Geriatr Soc. 43:1995;799-802
52. Addington-Hall J., Kalra L. Measuring quality of life. Who should measure quality of life? BMJ. 322:2001;1417-1420
53. Carr A.J., Gibson B., Robinson P.G. Measuring quality of life. Is quality of life determined by expectations or experience? BMJ. 322:2001;1240-1243
54. Dunn G. Design and analysis of reliability studies. The statistical evaluation of measurement errors. 1989;Oxford University Press, New York
55. Landis J.R., Koch G.G. The measurement of observer agreement for categorical data. Biometrics. 33:1977;159-174
56. Dunn G. Measures of proximity, agreement and disagreement. Dunn G. Design and analysis of reliability studies. 1989;Oxford University Press, New York
57. Altman D.G. Some common problems in medical research. Altman D.G. Practical statistics for medical research. 1991;396-439 Chapman and Hall, London
58. Kane R.L. Scaling heights of quality of life. J Clin Epidemiol. 54:(11):2001;1079-1080