Perceptions of persons with multiple sclerosis on cognitive changes and their impact on daily life

Disability and Rehabilitation

Volumn 28, Issue 12, 2006, Pages 779-788

  Shevil, Eynat ^a   Finlayson, Marcia ^a  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

Activities of daily living; Cognition; Multiple sclerosis; Participation; Qualitative research; Quality of life

Indexed keywords

ADULT; ARTICLE; CASE REPORT; COGNITIVE DEFECT; DAILY LIFE ACTIVITY; DEMOGRAPHY; DISABILITY; DISEASE SEVERITY; EMOTIONALITY; EMPLOYEE; FEMALE; FUNCTIONAL ASSESSMENT; HUMAN; INTERVIEW; MALE; MULTIPLE SCLEROSIS; PARENTHOOD; PATIENT ATTITUDE; PATIENT PARTICIPATION; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; QUALITY OF LIFE; QUESTIONNAIRE; RETIREMENT; SELF CONCEPT; SOCIOECONOMICS; THEMATIC ANALYSIS;

ADOLESCENT; ADULT; COGNITION; DISABLED PERSONS; FEMALE; HUMANS; INTERVIEWS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PERCEPTION; QUALITY OF LIFE; QUESTIONNAIRES; TIME FACTORS;

EID: 33745077681     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.1080/09638280500387013     Document Type: Article

References (35)

1. Prosiegel, M and Michael, C. (1993) Neuropsychology and multiple sclerosis: Diagnostic and rehabilitative approaches J Neurologic Sci, 115, pp. Sl-S4.
2. Brassington, J and Marsh, N. (1998) Neuropsychological aspects of multiple sclerosis Neuropsychol Rev, 8, pp. 43-72.
3. Weinshenker, B. (1994) Natural history of multiple sclerosis Ann Neurol, 36, pp. S6-S11.
4. Freeman, J and Hobart, J and Thompson, A. (1996) Outcomes-based research in neurorehabilitation: The need for multidisciplinary team involvement Disab Rehabil, 18, pp. 106-110.
5. Amato, M and Ponziani, G and Siracusa, G and Sorbi, S. (2001) Cognitive dysfunction in early-onset multiple sclerosis: A reappraisal after 10 years Arch Neurol, 58, pp. 1602-1606.
6. Peyser, J and Rao, S and LaRocca, N and Kaplan, E. (1990) Guidelines for neuropsychological research in multiple sclerosis Arch Neurol, 47, pp. 94-97.
7. Rao, S. (1990) Neurobehavioral aspects of multiple sclerosis. New York: Oxford University Press.
8. Beatty, W. (1993) Cognitive and emotional disturbances in multiple sclerosis Neurologic Clinics, 11, pp. 189-204.
9. Amato, M and Ponziani, G and Pracucci, G and Bracco, L. (1995) Cognitive impairment in early-onset multiple sclerosis Arch Neurol, 52, pp. 168-172.
10. DeLuca, J and Barbieri-Berger, S and Johnson, S. (1994) The nature of memory impairments in multiple sclerosis: Acquisition versus retrieval J Clin Environ Psychol, 16, pp. 183-189.
11. Rao, S and Leo, G and Bernadin, L and Unverzagt, F. (1991) Cognitive dysfunction in multiple sclerosis. I. Frequency, patterns, and predictions Neurology, 41, pp. 685-691.
12. Rao, S and Leo, G and Aubin-Faubert, P. (1989) On the nature of memory disturbance in multiple sclerosis J Clin Experim Neuropsychol, 11, pp. 699-712.
13. Beatty, W and Monson, N. (1996) Problem solving by patients with multiple sclerosis: Comparison of performance on the Wisconsin and California Card Sorting Tests J Int Neuropsycholog Soc, 2, pp. 134-140.
14. Mahler, M. (1992) Behavioral manifestations associated with multiple sclerosis Psychiat Clinics of N Am, 15, pp. 427-438.
15. Hakim, E and Bakheit, A and Bryant, T and Roberts, M and McIntosh-Michaelist, S and Spackman, A and Martin, J and McLellan, D. (2000) The social impact of multiple sclerosis - a study of 305 patients and their relatives Disab Rehab, 22, pp. 288-293.
16. Rao, S and Leo, G and Ellington, L and Nauertz, T and Bernardin, L and Unverzagt, F. (1991) Cognitive dysfunction in multiple sclerosis. II. Impact on employment and social functioning Neurology, 41, pp. 692-696.
17. Stenager, E and Knudsen, L and Jensen, K. (1991) Multiple sclerosis: The impact of physical impairment and cognitive dysfunction on social and spare time activities Psychother Psychosomatics, 56, pp. 123-128.
18. Edgley, K and Sullivan, M and Dehoux, E. (1991) A survey of multiple sclerosis: Determinants of employment status Can J Rehab, 4, pp. 127-132.
19. Sullivan, M and Edgley, K and Dehoux, E. (1990) A survey of multiple sclerosis: Perceived cognitive problems and compensatory strategy use Can J Rehab, 4, pp. 99-105.
20. Ritvo, P and Fischer, J and Miller, D and Andrews, H and Paty, D and LaRocca, N. (1997) MSQLI - multiple sclerosis quality of life inventory: A user's manual. New York: National Multiple Sclerosis Society.
21. Oakley, F and Kielhofner, G and Barris, R. (1985) An occupational therapy approach to assessing psychiatric patients' adaptive functioning Am J Occupat Ther, 39, pp. 147-154.
22. deVries, M. (1992) The experience of psychopathology: Investigating mental disorders in their natural settings. Cambridge: Cambridge University Press.
23. Larson, R and Csikszentmihalyi, M. (1983) The Experience Sampling Method. In Naturalistic approaches to studying social interaction: A new direction for methodology of social and behavioral science. San Francisco: Jossey-Bass.
24. Csikszentmihalyi, M and Larson, R. (1987) Validity and reliability of the experience sampling method J Nervous Mental Dis, 175, pp. 526-537.
25. Strauss, A and Corbin, J. (1998) Basics of qualitative research: Techniques and procedures for developing grounded theory 2nd ed. Thousand Oaks: Sage.
26. Miles, M and Huberman, A. (1994) Qualitative data analysis: An expanded sourcebook 2nd ed. Thousand Oaks: Sage Publications.
27. Muhr, T. (1997) Atlas.ti. Berlin: Scientific Software Development.
28. Finlayson, M and Winkler Impey, M and Nicolle, C and Edwards, J. (1998) Self-care, productivity and leisure limitations of people with multiple sclerosis in Manitoba Can J Occupat Ther, 65, pp. 299-308.
29. Mosley, L and Lee, G and Hughes, M and Chatto, C. (2003) Analysis of symptoms, functional impairments, and participation in occupational therapy for individuals with multiple sclerosis Occupat Ther Health Care, 17, pp. 27-43.
30. George, L. (1993) Sociological perspectives on life transitions Ann Rev Sociol, 19, pp. 353-373.
31. Jonsson, H and Josephsson, S and Kielhofner, G. (2001) Narratives and experience in an occupational transition: A longitudinal study of the retirement process Am J Occupat Ther, 55, pp. 424-432.
32. Derouesne, C and Thibault, S and Lagha-Pierucci, S and Baudouin-Madec, V and Ancri, D and Lacomblez, L. (1999) Decreased awareness of cognitive deficits in patients with mild dementia of the Alzheimer type Int J Geriat Psychiatry, 14, pp. 1019-1030.
33. McGlynn, S and Schacter, D. (1989) Unawareness of deficits in neuropsychological syndromes J Clin Experim Neuropsychol, 11, pp. 143-205.
34. Vogel, A and Stokholm, J and Gade, A and Andersen, B and Hejl, A and Waldemar, G. (2004) Awareness of deficits in mild cognitive impairment and Alzheimer's Disease: Do MCI patients have impaired insight? Dement Geriat Cognit Disorders, 17, pp. 181-187.
35. Toglia, J. (2005) A dynamic interactional approach to cognitive rehabilitation. In Cognition and occupation in rehabilitation: Cognitive models for intervention in occupational therapy 2nd ed. Baltimore: American Occupational Therapy Association.