A sociological focus on 'expert patients'

Health Sociology Review

Volumn 18, Issue 2, 2009, Pages 139-144

  Lindsay, Sally ^a   Vrijhoef, Hubertus J M ^b  

^a University of Toronto   (Canada)

^b MAASTRICHT UNIVERSITY   (Netherlands)

Author keywords

Chronic illness; Expert patient; Self management; Sociology of health

Indexed keywords

EID: 79952658637     PISSN: 14461242     EISSN: None     Source Type: Journal    
DOI: 10.5172/hesr.18.2.139     Document Type: Article

References (48)

1. Blakeman T, Macdonald W, Bower P, Gately C and Chew-Graham C (2006) A qualitative study of GPs' attitudes to self-management of chronic disease, British Journal of General Practice 56: 407-414.
2. Bury M (1982) Chronic illness as biographical disruption, Sociology of Health and Illness 4: 167-182.
3. Bury M (2001) Illness narratives: Fact or fiction, Sociology of Health and Illness 23(3): 263-285.
4. Carr J and Moffett M (2005) The impact of social deprivation on chronic back pain outcomes, Chronic Illness 1: 121-129.
5. Chodosh J, Morton S, Mojica W, Maglione M, Suttorp M, Holton L et al (2005) Meta-analysis: Chronic disease self-management programs for older adults, Annals of Internal Medicine 143: 427-438.
6. Clark N (2003) Management of chronic disease by patients, Annual Review of Public Health 24: 289-313.
7. DeAngelis C and Zylke J (2006) Theme issue on chronic diseases in infants, children and young adults, Journal of the American Medical Association 296(14): 1780.
8. st Century, Stationery Office: London.
9. Department of Health (2004) Choosing Health: Making Healthy Choices Easier, Stationery Office: London.
10. Department of Health (2005) Supporting People with Long-Term Conditions, DoH: Leeds.
11. Fox N, Ward K and O'Rourke A (2005) The expert patient, Social Science and Medicine 60: 1299-1309.
12. Gallant M (2003) The influence of social support on chronic illness self-management: A review and directions for research, Health Education and Behavior 30: 170-195.
13. Gately C, Rogers A and Sanders C (2007) Re-thinking the relationship between long-term condition self-management, education and the utilisation of health services, Social Science and Medicine 65: 934-945.
14. Gortzis LG (2009) e-Health: Are there expert patients out there? Health Sociology Review 18(2): 173-181.
15. Greenhalgh T (2009) Chronic illness: Beyond the expert patient, British Medical Journal 338: 629-631.
16. Greenhalgh T, Collard A and Begum N (2005) Sharing stories: Complex intervention for diabetes education in minority ethnic groups who do not speak English, British Medical Journal 330: 628-634.
17. Griffiths C, Foster G, Ramsay J, Eldridge S and Taylor S (2007) How effective are expert patient (lay led) education programs for chronic disease?' British Medical Journal 334: 1254-1256.
18. Hawley K (2006) Report on the Pilot of the Expert Patients Programme for Children, NHS: London.
19. Jauffret-Roustide M (2009) Self-support for drug users in the context of harm reduction policy: A lay expertise defined by drug users, life skills and citizenship, Health Sociology Review 18(2): 159-172.
20. Jordan J and Osborne R (2007) Chronic disease self-management education programs: Challenges ahead, Medical Journal of Australia 186(2): 84-87.
21. Kendall E and Rogers A (2007) Extinguishing the social? State sponsored self-care policy and the chronic disease self-management program, Disability and Society 22(2): 129-143.
22. Kennedy AP and Rogers AE (2009) The needs of others: The norms of self-management skills training and the differing priorities of asylum seekers with HIV, Health Sociology Review 18(2): 145-158.
23. Kennedy A, Rogers A and Bower P (2007) Support for self care for patients with chronic disease, British Medical Journal 335: 968-970.
24. Korp P (2008) The symbolic power of 'healthy lifestyles', Health Sociology Review 17(1): 18-26.
25. Lindsay S (2007a) Decision-making and expert patients, in Tolana P (ed) Decision Making in Medicine and Health Care, Nova Science Publishers: New York, pp.7-9.
26. Lindsay S (2007b) The impact of 'expert patient' and self-care initiatives on health care providers, in Pearle I (ed) Industrial Psychology Research Trends, Nova Science Publishers: New York.
27. Lindsay S (2008) How and why the motivation and skill to self-manage coronary heart disease are socially unequal, Research in the Sociology of Health Care 26: 17-39.
28. Lindsay S (2009a) Prioritizing illness: Self-managing multiple chronic diseases, Canadian Journal of Sociology 36: in press.
29. Lindsay S (2009b) The influence of childhood poverty on the self-management of chronic disease in later life, Research in the Sociology of Health Care 27: 161-183.
30. Lindsay S, Smith S, Baker R and Bellaby P (2009) The health impact of an online heart disease support group: A comparison of moderated vs. unmoderated support, Health Education Research 24(4): 646-654.
31. Lorig K, Gonzalez V and Laurent D (1999) Chronic Disease Self-Management Course Leader's Manual, Stanford Patient Education Research Centre: Palo Alto CA.
32. Lorig K and Holman H (2003) Self-management education: History, definition, outcomes and mechanisms, Annals of Behavioural Management 26(1): 1-7.
33. Lorig K, Lubeck D, Kraines R, Seleznick M and Holman H (1985) Outcomes of self-help education for patients with arthritis, Arthritis and Rheumatism 28(6): 680-685.
34. Lorig K, Ritter P, Stewart A, Sobel D, Brown B, Bandura A, Gonzalez V, Laurent D and Holman H (2001) Chronic disease self-management program: 2-year health status and health care utilization outcomes, Medical Care 39(11): 1217-1223.
35. Mol A (2008) The Logic of Care: Health and the Problem of Patient Choice, Routledge: London.
36. O'Donnell C, Higgins M, Chauhan R and Mullen K (2007) They think we're OK and we know we're not: A qualitative study of asylum seekers' access, knowledge and views to health care in the UK, BMC Health Services Research 7:75.
37. Reeves D, Kennedy A, Fullwood C, Bower P, Gardner C, Gately C, Lee V, Richardson G and Rogers A (2008) Predicting who will benefit from an Expert Patients Programme self-management course, British Journal of General Practice 58: 1-8.
38. Rich M, Taylor SA and Chalfen R (2000) Illness as a social construct: Understanding what asthma means to the patient to better treat the disease, The Joint Commission 26(5): 244-253.
39. Rogers A, Kennedy A, Nelson E and Robinson A (2005) Uncovering the limits of patient-centredness: Implementing a self-management trial for chronic illness, Qualitative Health Research 15: 224-239.
40. Sawyer S and Aroni R (2005) Self management in adolescents with chronic illness, Medical Journal of Australia 183(8): 405-409.
41. Seear K (2009) The third shift: Health, work and expertise among women with endometriosis, Health Sociology Review 18(2): 194-206.
42. Taylor D and Bury M (2007) Chronic illness, expert patients and the care transition, Sociology of Health and Illness 29(1): 27-45.
43. Vicarelli MG and Bronzini M (2009) From the 'expert patient' to 'expert family': A feasibility study on family learning for people with long-term conditions in Italy, Health Sociology Review 18(2): 182-193.
44. Wanless D (2002) Securing our Future Health, HM Treasury: London.
45. Warsi A, Wang P, LaValley M, Avorn J and Solomon S (2004) Self-management education programs in chronic disease: A systematic review and methodological critique of the literature, Archives of Internal Medicine 164: 1641-1649.
46. Wilson P (2001) A policy analysis of the expert patient in the United Kingdom: Self-care as an expression of pastoral power, Health and Social Care in the Community 9(3): 134-142.
47. Wilson P, Kendall S and Brooks F (2006) Nurses' responses to expert patient, International Journal of Nursing Studies 43: 803-818.
48. Wilson P, Kendall S and Brooks F (2007) The expert patients programme: A paradox of patient empowerment and medical dominance, Health and Social Care in the Community 15(5): 426-438.