From the 'expert patient' to 'expert family': A feasibility study on family learning for people with long-term conditions in Italy

Health Sociology Review

Volumn 18, Issue 2, 2009, Pages 182-193

  Vicarelli, Maria Giovanna ^a   Bronzini, Micol ^a  

^a UNIVERSITÀ POLITECNICA DELLE MARCHE   (Italy)

Author keywords

Chronic disease; Expert patient; Family learning; Sociology; Welfare system

Indexed keywords

EID: 79952681362     PISSN: 14461242     EISSN: None     Source Type: Journal    
DOI: 10.5172/hesr.18.2.182     Document Type: Article

References (57)

1. Airey L, McKie L and Backett-Milburn K (2007) Women's experiences of combining eldercare and paid work in the Scottish food retail sector, Health Sociology Review 16(3-4): 292-303.
2. Ascoli U and Ranci C (2002) Dilemmas of the Welfare Mix. The New Structure of the Welfare in an Era of Privatisation, Kluwer: New York.
3. Barlow J, Wriht C, Sheasby J, Turner A and Hainsworth J (2002) Self-management approaches for people with chronic conditions: A review, Patient Education and Counseling 48(2): 177-187.
4. Baumeister RF, Campbell JD, Krueger JI and Vohs KD (2005) Exploding the self-esteem myth, Scientific American 292. Available at www.sciam.com.
5. Censis (2005) Gli Anziani e la Salute (Elderly people and health), Angeli: Milano.
6. Collyer FM (2007) A sociological approach to workforce shortages: Findings of a qualitative study in Australian hospitals, Health Sociology Review 16(3-4): 248-262.
7. st Century, Stationery Office: London.
8. European Commission (2002) La Risposta Dell'europa All'invecchiamento Della Popolazione Mondiale (European Response To Global Agening), EU: Bruxelles.
9. European Commission (2005) Libro Verde: Una Nuova Solidarietà Tra Le Generazioni Di Fronte Ai Cambiamenti Demografici (Green Book: A New Solidarity Between Generations Facing Demographic Changes), EU: Bruxelles.
10. Estes CL, Goldberg S, Wellin C, Linkins CW, Shostak S and Beard R (2006) Implications of welfare reform on the elderly: A case study of provider, advocate, and consumer perspectives, Journal of Aging and Social Policy 18(1): 41-63.
11. Eve R, Mares P and Munro J (2003) The Future of Self-Management Education for People with Chronic Conditions. Available at www.innovate.org.uk.
12. Facchini C (1994) Assistenza a Domicilio, Famiglia E Anziani. Un Confronto Internazionale (Home Assistance, the Family and Elderly People: An International Comparison), Angeli: Milano.
13. Facchini C (2002) Anziani. Tra Bisogni In Evoluzione E Risposte Innovative (Elderly People. Between New Needs and Innovative Responses), Angeli: Milano.
14. Ferrera M (2006) Le Politiche Sociali. L'Italia In Prospettiva Comparata (Social Policies. Italy in a Comparative Perspective), Il Mulino: Bologna.
15. Frova L, Prati S, Boccuzzo G, Capocaccia R, Conti S, Masocco M, Toccaceli V and Verdecchia A (1999) La Mortalità In Italia Nel Periodo 1970-1992: Evoluzione E Geografia (The Mortality in Italy 1970-1992: Evolution and Geography), ISTAT: Roma.
16. Gori C, Di Maio A and Pozzi A (2003) Long-term care for older people in Italy, in Comas-Herrera A, Costa-Font J, Gori C, Di Maio A, Patxot C, Pickard L, Pozzi A, Rothgang H and Wittenberg R (eds) European Study of Long-Term Care Expenditure, Report to the European Commission, Employment and Social Affairs Discussion Paper 1840, London School of Economics: London, pp.58-75.
17. Haggart J (2000) Learning Legacies - A Guide to Family Learning, NIACE: Leicester.
18. Haggart J and Spacey R (2006) Linking the Thinking in Family Learning. Embedding Family Learning Across Policy Areas, NIACE: Leicester.
19. Lindsay S (2007) Decision-making and expert patients. Expert commentary, in Tolana P (ed) Decision Making in Medicine and Health Care, Nova Science Publishers: New York.
20. Lindsay S (2008) How and why the motivation and skill to self-manage coronary heart disease are socially unequal, Research in the Sociology of Health Care 26: 17-39.
21. Lorig K (2003) Self-management education. More than a nice extra, Medical Care 41(6): 699-701.
22. rd edn, Bull Publishing: Boulder CO.
23. Natoli S (2004) L'esperienza Del Dolore. Le Forme Del Patire Nella Cultura Occidentale (Pain Experience. Shape of Suffering in Western Culture), Feltrinelli: Milano.
24. OECD (2008) The Looming Crisis of the Health Workforce: How Can OECD Countries Respond? OECD: Paris.
25. Ogg J (2005) Social exclusion and insecurity among older Europeans: The influence of welfare regimes, Ageing and Society 25(1): 69-90.
26. Paci M (1989) Pubblico E Privato Nei Moderni Sistemi Di Welfare (The Public and the Private in Modern Welfare System), Liguori: Napoli.
27. Pavolini E (2003) Le Nuove Politiche Sociali. I Sistemi Di Welfare Fra Istituzioni E Società Civile (The New Social Policies. Welfare Systems Between Institutions and Civic Society), Il Mulino: Bologna.
28. Pavolini E (2004) Regioni E Politiche Sociali Per Anziani. Le Sfide Della Non Autosufficienza (Italian Regions and Social Policies for the Elderly), Carocci: Roma.
29. Pavolini E (2006) Politiche e caratteristiche del mercato privato dell'assistenza: Il caso delle Marche, (Policies and private market for assistance: The case of Marche), Prospettive Sociali e Sanitarie 14: 8-12.
30. Pinnelli A, Racioppi F and Terzera L (2007) Genere, Famiglia E Salute (Gender, Family And Health), Angeli: Milano.
31. Quality of Life Research Unit (2009) The Quality of Life Model. Available at www.utoronto.ca/qol/concepts.htm [Date of access: 7.04.09] University of Toronto.
32. Ranci C (ed) (2001) L'assistenza Agli Anziani In Italia E In Europa. Verso La Costruzione Di Un Mercato Sociale Dei Servizi (Assistance for Elderly People in Italy and in Europe. Building a Social Market for Services), Angeli: Milano.
33. Ranci C (2004) Politica Sociale. Bisogni Sociali E Politiche Di Welfare in Italia (Social Policy. Social Needs and Welfare PoliciesiIn Italy), Il Mulino: Bologna.
34. Raphael D, Renwick R, Brown I and Rootman I (1994) The quality of life profile: A generic measure of health and well-being, Social Indicators Research 39: 65-88.
35. Rogers A, Bower P, Kennedy A, Gately C, Lee V, Reeves D, Gardner C, Richardson G, Morris F, Jerrim S and Chandler C (2005) Process Evaluation of the EPP - Report II National Primary Care Research and Development Centre, University of Manchester: Manchester.
36. Rogers A, Bower P, Gardner C, Gately C, Kennedy A, Lee V, Middleton E, Reeves D and Richardson G (2006) The National Evaluation of the Pilot Phase of the Expert Patient Programme, Final Report National Primary Care Research and Development Centre, University of Manchester: Manchester.
37. Saraceno C (2002) Social Assistance Dynamics in European Welfare States, Policy Press: Bristol.
38. Scortegagna R (2005) Invecchiare (Ageing), Il Mulino: Bologna.
39. Shaw J and Baker M (2004) Expert patientdream or nightmare? British Medical Journal 328: 723-724.
40. Shepperd S et al (2009) Avoiding hospital admission through provision of hospital care at home: A systematic review and meta-analysis of individual patient data, Canadian Medical Association Journal 180(2): 175-182.
41. Stone W (2003) Bonding, bridging and linking with social capital, Stronger Families Learning Exchange Bulletin 4: 13-16.
42. Stranges E (2007) Le sfide sociali della longevità umana: Anziani, rapporti intergenerazionali e reti sociali, (Social challenge to longevity: Elderly people, relationship in between generation and social networks), Sociologia e Politiche Sociali 10(1): 161-173.
43. Szreter S and Woolcock M (2004) Health by association? Social capital, social theory and the political economy of public health, International Journal of Epidemiology 33: 650-667.
44. Tarricone R and Tsouros AD (eds) (2008) Home care in Europe: The Solid Facts, World Health Organization: Geneva.
45. Taylor D and Bury M (2007) Chronic illness, expert patients and care transition, Sociology of Health and Illness 29(1): 27-45.
46. Tognetti Bordogna M (a cura di) (2007) I Grandi Anziani Tra Definizione Sociale E Salute (Grand Veillards: Social Definition and Health), Angeli: Milano.
47. Vicarelli G (1994) Le Mani Invisibili. La Vita E Il Lavoro Delle Donne Immigrate (Invisible Hands. Life and Work Condition of Immigrant Women), Ediesse: Roma.
48. Vicarelli G (1997a) Alle Radici Della Politica Sanitaria In Italia. Società E Salute Da Crispi Al Fascismo (To the Bottom of Health Policy in Italy. Society and Health from Crispi to Fascism), Il Mulino: Bologna.
49. Vicarelli G (1997b) La politica sanitaria tra continuità e innovazione, in Storia Dell'italia Repubblicana (Health Polcies between Continuity and Innovation), Volume III, L'Italia nella crisi mondiale. L'ultimo ventennio, Einaudi: Torino, pp.569-619.
50. Vicarelli G (a cura di) (2005) Il Malessere Del Welfare (Welfare Uneasiness), Liguori: Napoli.
51. Vicarelli G (a cura di) (2007) Donne E Professioni Nell'italia Del Novecento (Women and Professions in Italy in the Twentieth Century), Il Mulino: Bologna.
52. WHO (2002) Active Ageing. A Policy Framework, World Health Organization: Geneva.
53. Wilson MP (2001) A policy analysis of the Expert Patient in the United Kingdom: Self-care as an expression of pastoral power? Health and Social Care in the Community 9(3): 134-142.
54. Wilson MP (2008) The UK Expert Patients Program: Lessons learned and implications for cancer survivors' self-care support programs, Journal of Cancer Survivors 2: 45-52.
55. Wilson MP, Kendall S and Brooks F (2007) The Expert Patients Programme: A paradox of patient empowerment and medical dominance, Health and Social Care in the Community 15(5): 426-438.
56. Woolcock M (2001) The place of social capital in understanding social and economic outcomes, Isuma: Canadian Journal of Policy Research 2(1): 1-17.
57. Zajcyk F (2007) La Resistibile Ascesa Delle Donne In Italia (The Resistive Rise of Women in Italy), Il Saggiatore: Milano.