The needs of others: The norms of self-management skills training and the differing priorities of asylum seekers with HIV

Health Sociology Review

Volumn 18, Issue 2, 2009, Pages 145-158

  Kennedy, Anne P ^a   Rogers, Anne E ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

Ethnography; HIV AIDS; Self management; Socially patterned needs; Sociology

Indexed keywords

EID: 79551493732     PISSN: 14461242     EISSN: None     Source Type: Journal    
DOI: 10.5172/hesr.18.2.145     Document Type: Article

References (64)

1. Airhihenbuwa CO and Obregon R (2000) A critical assessment of theories/models used in health communication for HIV/AIDS, Journal of Health Communication 5(Supplement): 5-15.
2. Albarracin D, Durantini MR, and Earl A (2006) Empirical and theoretical conclusions of an analysis of outcomes of HIV-prevention interventions, Current Directions in Psychological Science 15(2): 73-78.
3. Allan CL and Clarke J (2005) Are HIV/AIDS services in Leeds, UK, able to meet the needs of asylum seekers? Public Health 119(4): 305-311.
4. Ashforth A (2002) An epidemic of witchcraft? The implications of AIDS for the post-apartheid state, African Studies 61(1): 121-143.
5. Batavia A (1997) Ideology and independent living: Will conservatism harm people with disabilities? The Annals of the American Academy of Political and Social Science 549: 10-24.
6. Botha KF, Du Plessis WF, Van Rooyen JM and Wissing MP (2002) Biopsychosocial determinants of self-management in culturally diverse South African patients with essential hypertension, Journal of Health Psychology 7(5): 519-531.
7. Briley DA and Aaker JL (2006) Bridging the culture chasm: Ensuring that consumers are healthy, wealthy, and wise, Journal of Public Policy and Marketing 25(1): 53-66.
8. Burnett A and Peel M (2001) Asylum seekers and refugees in Britain: What brings asylum seekers to the United Kingdom? British Medical Journal 322(7284): 485-488.
9. Bury M (1982) Chronic illness as a biographical disruption, Sociology of Health and Illness 4(2): 167-182.
10. Cayton H (2006) The flat-pack patient? Creating health together, Patient Education and Counseling 62(3): 288-290.
11. Charmaz K (1983) Loss of self: A fundamental form of suffering in the chronically ill, Sociology of Health and Illness 5(2): 168-195.
12. Cook PA, Downing J, Rimmer P, Syed Q and Bellis MA (2006) Treatment and care of HIV positive asylum seekers, Journal of Epidemiology and Community Health 60(10): 836-838.
13. Creighton S, Sethi G, Edwards SG and Miller R (2004) Dispersal of HIV positive asylum seekers: National survey of UK healthcare providers, British Medical Journal 329(7461): 322-323.
14. Crossley ML (2001) The 'Armistead' project: An exploration of gay men, sexual practices, community Health promotion and issues of empowerment, Journal of Community and Applied Social Psychology 11(2): 111-123.
15. Crossley ML (2002) The perils of health promotion and the 'barebacking' backlash, Health 6(1): 47-68.
16. st Century, The Stationery Office: London.
17. Department of Health (2006a) Our Health, Our Care, Our Say: A New Direction For Community Services, The Stationery Office: London.
18. Department of Health (2006b) Supporting People With Long Term Conditions To Self Care, DH Publications: London, 270415.
19. Donaldson L (2003) Expert patients usher in a new era of opportunity for the NHS, British Medical Journal 326(7402): 1279-1280.
20. Doyal L and Anderson J (2005) My fear is to fall in love again ... How HIV-positive African women survive in London, Social Science and Medicine 60: 1729-1738.
21. Faircloth CA, Boylstein C, Rittman M, Young ME and Gubrium J (2004) Sudden illness and biographical flow in narratives of stroke recovery, Sociology of Health and Illness 26(2): 242-261.
22. Feyer A, Francis C, Quigley R, Jessop R and Walsh J (2003) The sharing health care initiative: Issues in design of the evaluation of a national program of demonstration projects for self-management of chronic conditions, Australian Journal of Primary Health 9(2-3): 208-216.
23. Fleming E, Carter B and Pettigrew J (2008) The influence of culture on diabetes self-management: Perspectives of Gujarati Muslim men who reside in northwest England, Journal of Clinical Nursing 17(5A): 51-59.
24. Fu D, Fu H, McGowan P, Shen Y, Zhu L, Yang H et al (2003) Implementation and quantitative evaluation of chronic disease self-management programme in Shanghai, China: Randomized controlled trial, Bulletin of the World Health Organization 81: 174-182.
25. Galvin R (2002) Disturbing notions of chronic illness and individual responsibility: Towards a genealogy of morals, Health 6(2): 107-137.
26. Gately C, Rogers A and Sanders C (2007) Re-thinking the relationship between long-term condition self-management education and the utilisation of health services, Social Science and Medicine 65(5): 934-945.
27. Gausset Q (2001) AIDS and cultural practices in Africa: The case of the Tonga (Zambia), Social Science and Medicine 52: 509-518.
28. Giddens A (1991) Modernity and Self-Identity, Polity Press: Cambridge.
29. Gifford AL and Groessl EJ (2002) Chronic disease self-management and adherence to HIV medications, Jaids-Journal of Acquired Immune Deficiency Syndromes 31: S163-S166.
30. Gifford AL, Laurent DD, Gonzales VM, Chesney MA and Lorig KR (1998) Pilot randomized controlled trial of education to improve self-management skills of men with symptomatic HIV/AIDS, Journal of Acquired Immune Deficiency Syndromes and Human Retrovirology 18(2): 136-144.
31. Greenhalgh T, Helman C and Chowdhury AM (1998) Health beliefs and folk models of diabetes in British Bangladeshis: A qualitative study, British Medical Journal 316(7136): 978-983.
32. Griffiths C, Motlib J, Azad A, Ramsey J, Eldridge S, Feder G et al (2005) Randomised controlled trial of a lay-led self-management programme for Bangladeshi patients with chronic disease, British Journal of General Practice 55: 831-837.
33. Grove NJ and Zwi AB (2006) Our health and theirs: Forced migration, othering, and public health, Social Science Medicine 62(8): 1931-1942.
34. Haegart S (2000) An African ethic for nursing? Nursing Ethics 7(6): 492-502.
35. Karlsen S and Nazroo JY (2002) Agency and structure: The impact of ethnic identity and racism on the health of ethnic minority people, Sociology of Health and Illness 24(1): 1-20.
36. Kendall E and Marshall CA (2004) Factors that prevent equitable access to rehabilitation for aboriginal Australians with disabilities: The need for culturally safe rehabilitation, Rehabilitation Psychology 49(1): 5-13.
37. Kendall E and Rogers A (2007) Extinguishing the social?:State sponsored self-care policy and the Chronic Disease Management Programme, Disability and Society 22: 129-143.
38. Kennedy A, Gately C and Rogers A (2005) Process Evaluation of the EPP - Report II: Examination of the Implementation of the Expert Patients Programme within the Structures and Locality Contexts of the NHS In England, National Primary Care Research and Development Centre, University of Manchester: Manchester.
39. Kennedy A, Reeves D, Bower P, Lee V, Middleton E, Richardson G et al (2007a) The effectiveness and cost effectiveness of a national lay led self care support programme for patients with long-term conditions: a pragmatic randomised controlled trial, Journal of Epidemiology and Community Health 61: 254-261.
40. Kennedy A, Rogers A and Crossley M (2007b) Participation, roles and the dynamics of change in a group-delivered self-management course for people living with HIV, Qualitative Health Research 17(6): 744-758.
41. Kennedy A, Rogers A and Bower P (2007c) Support for self care for patients with chronic disease, British Medical Journal 335(7627): 968-970.
42. Lorig K, Ritter P and Gonzales VM (2003) Hispanic chronic disease self-management - A randomized community-based outcome trial, Nursing Research 52(6): 361-369.
43. Lorig K, Sobel DS, Stewart AL, Brown BW, Bandura A, Ritter P et al (1999) Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization a randomized trial, Medical Care 37(1): 5-14.
44. Marks R, Allegrante JP and Lorig K (2005) A review and synthesis of research evidence for self-efficacy-enhancing interventions for reducing chronic disability: Implications for health education practice (Part 1), Health Promotion Practice 6(1): 37-43.
45. Miewald CE (1997) Is awareness enough? The contradictions of self-care in a chronic disease clinic, Human Organization 56(3): 353-363.
46. Mshana G, Plummer ML, Wamoyi J, Shigongo ZS, Ross DA and Wight D (2006) She was bewitched and caught an illness similar to AIDS: AIDS and sexually transmitted infection causation beliefs in rural northern Tanzania, Culture, Health and Sexuality 8(1): 45-58.
47. Muecke MA (1992) New Paradigms for Refugee Health-Problems, Social Science and Medicine 35(4): 515-523.
48. Munene JC, Schwartz SH and Smith PB (2000) Development in sub-Saharan Africa: Cultural influences and managers' decision behaviour, Public Administration and Development 20: 339-351.
49. Newman CE, Bonar M, Greville HS, Thompson SC, Bessarab D and Kippax SC (2007) Everything is okay: The influence of neoliberal discourse on the reported experiences of Aboriginal people in Western Australia who are HIV-positive, Culture, Health and Sexuality 9(6): 571-584.
50. Odutolu O (2005) Convergence of behaviour change models for AIDS risk reduction in sub-Saharan Africa, International Journal of Health Planning and Management 20: 239-252.
51. Osborne RH, Jordan JE and Rogers A (2008) A critical look at the role of self-management for people with arthritis and other chronic diseases, Nat Clin Pract Rheum 4(5): 224-225.
52. Pollard AJ and Savulescu J (2004) Eligibility of overseas visitors and people of uncertain residential status for NHS treatment, British Medical Journal 329(7461): 346-349.
53. Rabkin JG and Ferrando S (2004) A 'Second Life' agenda: Psychiatric research issues raised by protease inhibitor treatments for people with the human immunodeficiency virus or the acquired immunodeficiency syndrome, Archives of General Psychiatry 54(11): 1049-1053.
54. Rogers A and Allison T (2004) What if my back breaks? Making sense of musculoskeletal pain among South Asian and African-Caribbean people in the North West of England, Journal of Psychosomatic Research 57(1): 79-87.
55. Salama P, Spiegel P, Talley L, Waldman R, Salama P, Spiegel P et al (2004) Lessons learned from complex emergencies over past decade, Lancet 364(9447): 1801-1813.
56. Sanders C, Rogers A, Gately C and Kennedy A (2008) Planning for end of life care within lay-led chronic illness self-management training: The significance of 'death awareness' and biographical context in participant accounts, Social Science and Medicine 66(4): 982-993.
57. Siegal K and Lekas H (2002) AIDS as a chronic illness: Psychosocial implications, AIDS 16(Supplement 4): S69-S76.
58. Swerissen H, Belfrage J, Weeks A, Jordan L, Walker C, Furler J et al (2006) A randomised control trial of a self-management program for people with a chronic illness from Vietnamese, Chinese, Italian and Greek backgrounds, Patient Education and Counseling 64(1-3): 360-368.
59. UNAIDS (2006) 2006 Report on the Global AIDS Epidemic, Geneva.
60. Wagner EH (2001) Meeting the needs of chronically ill people, British Medical Journal 323(7319): 945-946.
61. Walker C, Weeks A, McAvoy B and Demetriou E (2005) Exploring the role of self-management programmes in caring for people from culturally and linguistically diverse backgrounds in Melbourne, Australia, Health Expectations 8: 315-323.
62. Wanless D (2002) Securing Our Future Health: Taking A Long-Term View, HM Treasury: London.
63. Williams S (2000) Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept, Sociology of Health and Illness 22(1): 40-67.
64. Wilson T, Buck D and Ham C (2005) Rising to the challenge: Will the NHS support people with long-term conditions? British Medical Journal 330: 657-661.