Self-support for drug users in the context of harm reduction policy: A lay expertise defined by drug users' life skills and citizenship

Health Sociology Review

Volumn 18, Issue 2, 2009, Pages 159-172

  Jauffret Roustide, Marie ^a  

^a National Institute for Health Research ^*  (France)

Author keywords

Citizenship; Drug addiction; Expertise; Patients; Public health policy; Self help groups; Sociology

Indexed keywords

EID: 79952638862     PISSN: 14461242     EISSN: None     Source Type: Journal    
DOI: 10.5172/hesr.18.2.159     Document Type: Article

References (75)

1. Ahern J, Stuber J and Galea S (2007) Stigma, discrimination and the health of drug users, Drug and Alcohol Dependence 88: 188-196.
2. Albrecht G, Ravaud J-F and Stiker H-J (2001) L'émergence des disabilities studies: État des lieux et perspectives, Sciences Sociales et Santé 19: 43-76.
3. Anspach R (1979) From stigma to identity politics: Political activism among the physically disabled and former mental patients, Social Science and Medicine 13A: 765-773.
4. Balian R and White C (1998) Defining the drug-user, International Journal of Drug Policy 9: 391-396.
5. Ball J and Ross A (1991) The Effectiveness of Methadone Maintenance Treatment, Springer Verlag: New York.
6. Barbot J (2005) How to build an 'active' patient? The work of AIDS associations in France, Social Science and Medicine 62: 538-551.
7. Bergeron H (1999) L'Etat et la Toxicomanie, Presses Universitaires de France: Paris.
8. Blendon RJ and Young JT (1998) The public and the war on illicit drugs, Journal of the American Medical Association 279(11): 827-832.
9. Borkman T (1997) A selective look at self-help groups in the United States, Health and Social Care in the Community 5(6): 357-364.
10. Bourdieu P (1984a) Questions de Sociologie, Editions de Minuit: Paris, France.
11. Bourdieu P (1984b) Espace social et génèse des 'classes', Actes de la recherche en Sciences Sociales 52-53: 4.
12. Broqua C and Jauffret-Roustide M (2004) Collective users in the field of AIDS and drug addiction, Medecine Science 20(4): 457-459.
13. Brown P and Zavestoski S (2004) Social movements in health: An introduction, Sociology of Health and Illness 26(6): 679-694.
14. Chamak B (2008) Autism and social movements: French parents' associations and international autistic individuals' organizations, Sociology of Health and Illness 30(1): 76-96.
15. Crofts N and Herkt D (1995) A history of peer-based drug-user groups in Australia, The Journal of Drug Issues 25(3): 599-616.
16. Davey-Rothwell MA, Kuramato SJ and Latkin CA (2008) Social networks, norms and 12-step programs, Am I Drug Alcohol Abuse 34(2): 185-193.
17. Defert D (1989) Le malade réformateur, Sida 89(5): 14-17.
18. Dodier N (2003) Leçons politiques de l'épidémie de sida, Editions de l'EHESS: Paris, France.
19. Edwards J and Cheers B (2007) Is social capital good for everyone? The case of same-sex attracted women in rural South Australian communities, Health Sociology Review 16(3-4): 226-236.
20. Ehrenberg A (1998) La fatigue d'être soi, Odile Jacob: Paris, France.
21. Ehrenberg A (2004) Les changements de la relation normal-pathologique' À propos de la souffrance psychologique et de la santé mentale. Esprit 5: 133-156.
22. Emmanuelli J and Desenclos JC (2005) Harm reduction interventions, behaviours and associated health outcomes in France, 1996-2003, Addiction 100: 1690-1700.
23. Epstein S (1995) The construction of lay expertise: AIDS activism and the forging of credibility in the reform of clinical trials, Science, Technology and Human Values 20(4): 408-437.
24. Epstein S (1996) Impure Science. Aids, Activism and the Politics of Knowledge, University of California Press: Los Angeles.
25. Erickson PG (1995) Harm reduction: What it is and what it is not, Drug and Alcohol Review 14: 283-285.
26. Ezard N (2001) Public health, human rights and the harm reduction paradigm: From harm reduction to vulnerability reduction, International Journal of Drug Policy 12: 207-219.
27. Fraser S and Moore D (2008) Dazzled by unity? Order and chaos in public discourse on illicit drug use, Social Science and Medicine 66: 740-752.
28. Friedman SR (1993) Going beyond education to mobilizing subcultural change, International Journal of Drug Policy 4: 91-95.
29. Friedman SR (1996) Theoretical bases for understanding drug users' organizations, International Journal of Drug Policy 7: 212-219.
30. Friedman SR (1998) The political economy of drug-user scapegoating - and the philosophy and politics of resistance, Drugs: Education, Prevention and Policy 5(1): 15-32.
31. Friedman SR, Des Jarlais DC and Sotheran JL (1987) AIDS and self-organizations among intravenous drug-users, International Journal of the Addictions 22: 201-219.
32. Friedman SR, de Jong W and Des Jarlais DC (1990) Organizing Intravenous Drug Users for AIDS Prevention, in Platt JJ, Kaplan DC and McKim PJ (eds) The Effectiveness of Drug Abuse Treatment: Dutch and American Perspectives, Robert E Krieger Publishing Company: Malabar Florida, pp.315-330.
33. Friedman SR, de Jong W and Des Jarlais DC (1992) Problems of Dynamics of Organizing Intravenous Drug Users for AIDS Prevention, Health Education Research 3: 49-57.
34. Friedman SR, de Jong W and Wodak A (1993) Community development as a response to HIV among drug injectors, Current Science 7(1): 263-269.
35. Friedman SR, Southwell M, Bueno R, Paone D, Byrne J and Crofts N (2001a) Harm reduction - a historical view from the left, International Journal of Drug Policy 12: 3-14.
36. Friedman SR, Southwell M, Crofts N, Paone D, Byrne J and Bueno R (2001b) Harm reduction - a historical view from the left: a response to commentaries, International Journal of Drug Policy 12: 259-263.
37. Friedman SR, de Jong W, Rossi D, Touzé G, Rockwell R, Des Jarlais DC and Elovich R (2006) Harm reduction theory: Users' culture, micro-social indigenous harm reduction, and the self-organization and outside-organizing of users' groups, International Journal of Drug Policy 18(2): 107-117.
38. Gamson J (1989) Silence, death and the invisible enemy: Aids activism and social movement newness, Social Problems 36(4): 351-367.
39. Grund JP (1993) Drug Use as a Social Ritual: Functionality, Symbolism and Determinants of Self Regulation, Erasmus Universiteiits Drukkerij: Rotterdam.
40. Hathaway AD (2001) Shortcomings of harm reduction. Towards a morally invested drug reform strategy, International Journal of Drug Policy 12: 125-137.
41. Henman AR, Paone D, Des Jarlais DC, Kochems LM and Friedman SR (1998) Injection drug users as social actors: A stigmatized community's participation in the syringe exchange programs of New York City, AIDS Care 10(4): 397-408.
42. Hunt N (2004) Public health or human rights: What comes first? International Journal of Drug Policy 15: 231-237.
43. Ingold FR (1988) Les effets de la libéralisation de la vente des seringues: rapport d'évaluation, IREP, Paris.
44. Ingold FR (1992) La transmission du VIH chez les toxicomanes. Pratiques, attitudes et représentations: situation et tendances, IREP, Paris.
45. Ingold FR (1996) Etude multicentrique sur les attitudes et les comportements des toxicomanes face au risque de contamination par le VIH et les virus de l'hépatite B et C. IREP, Paris.
46. Jacobson PD and Soliman S (2002) Co-opting the health and human rights movements, Journal of Law Medicine and Ethics 30(4): 705.
47. Jauffret M (2000) La réduction des risques: enjeux autour d'une mobilisation collective Mana, Revue de Sociologie et d'Anthropologie 8: 161-188.
48. Jauffret-Roustide M (2004) Les Drogues: Approche Sociologique, Economique et Politique, La Documentation Française: Paris.
49. de Jong W (1990) AIDS and self-organization of drug users in the Netherlands, in Platt JJ, Kaplan DC and McKim PJ (eds) The Effectiveness of Drug Abuse Treatment: Dutch and American Perspectives, Robert E Krieger Publishing Company: Malabar Florida, USA, pp.303-313.
50. Katz AH (1979) Self-help health groups: some clarifications, Social Science of Medicine 13A: 491-494.
51. Katz AH and Bender EI (1976) Self-help groups in Western society: History and prospects, The Journal of Applied Behavioural Science 12: 265-282.
52. Keane H (2003) Critiques of harm reduction, morality and the promise of human rights, International Journal of Drug Policy 14: 227-232.
53. Kleinig J (2004) Ethical issues of substance use interventions, Substance Use and Misuse 40: 3.
54. Landzerius K (2005) Introduction: patient organization movements and new metamorphoses in patienthood, Social Science and Medicine 62: 529-537.
55. Mathieu L (2001) Mobilisations de Prostituées, Belin: Paris, France.
56. Miller P (2001) A critical review of the harm minimisation ideology in Australia, Critical Public Health 11(2): 167-178.
57. Moore D. and Fraser S (2006) Putting at risk what we know: reflecting on the drug-using subject in harm reduction and its political implications, Social Science and Medicine 62: 3035-3047.
58. Moore LD and Wenger LD (1995) The social context of needle exchange and user self-organisation in San Francisco: Possibilities and pitfalls, The Journal of Drug Issues 25(3): 583-598.
59. Nurco DN (1981) The self-help movement and narcotics addicts, American Journal of Drug and Alcohol Abuse 8(2): 139-151.
60. O'Hare P, Newcombe P, Matthews A, Buning E and Drucker E (eds) (1992) The Reduction Of Drug-Related Harm, Routledge: London, UK.
61. Patouillard V (1998) Une Colère Politique. L'usage Du Corps Dans Une Situation Exceptionnelle: Le Zap d'Act-Up Paris, Sociétés Contemporaines 31: 15-30.
62. Pinell P, Broqua C, De Buscher P.O, Jauffret M and Thiaudière C (2002) Une Epidémie Politique. La Lutte Contre Le Sida en France (1981-1996), Presses Universitaires de France: Paris, France.
63. Piven FF and Cloward RA (1977) Poor People's Movement: Why They Succeed, How They Fail, Vintage: New York.
64. Pollak M (1993) Une Identité Blessée, Métaillé: Paris, France.
65. Prior L (2003) Belief, knowledge and expertise: The emergence of the lay expert in medical sociology, Sociology of Health and Illness 25: 41-57.
66. Rabeharisoa V (2006) From representation to mediation: The shaping of collective mobilisation on muscular dystrophy in France, Social Science and Medicine 62: 564-576.
67. Rhodes T (1994) HIV outreach, peer education and community change: Developments and dilemmas, Health Education Journal 53: 92-99.
68. Riley D, Sawka E, Conley P, Hewitt D, Mitic W, Poulin C, Room R, Single E and Topp J (1999) Harm reduction: Concepts and practice. A policy discussion paper, Substance Use and Misuse 34(1): 9-24.
69. Snow D, Rochford B, Worden S and Benford R (1986) Frame alignments, processes, micromobilization, and movement participation, American Sociological Review 51: 464-481.
70. Stimson GV and Donoghoe MC (1996) Health promotion and the facilitation of individual change. The case of syringe distribution and exchange, in Rhodes T and Hartnoll R (eds) AIDS, Drugs and Prevention: Perspectives on Individual and Community Action, Routledge: London, UK, pp.10-21.
71. Thorpe R (2008) Integrating biomedical and CAM approaches: The experiences of people living with HIV/AIDS, Health Sociology Review 17(4): 410-418.
72. Trautmann F (1995) Peer support as a method of harm reduction in injecting drug-user communities: Experiences in Dutch projects and the European peer support project, The Journal of Drug Issues 25(3): 617-628.
73. Wallace RJ (1999) Addiction as a defect of the will: Some philosophical reflections, Law and Philosophy 18: 621-654.
74. Wodak A (1993) Organisations of injecting drug-users in Australia, International Journal of Drug Policy 4: 96-97.
75. Young M, Stuber J, Ahern J and Galea S (2005) Interpersonal discrimination and the health of illicit drug users, The American Journal of Drug and Alcohol Abuse 31: 371-391.