메뉴 건너뛰기




Volumn 46, Issue 1, 2011, Pages 36-44

Longitudinal assessment of health-related quality of life in an observational cohort of patients with cystic fibrosis

Author keywords

minority status; national database; patient reported outcomes

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; BODY IMAGE; BODY WEIGHT; CHILD; EATING DISORDER; FEMALE; HEALTH STATUS; HUMAN; LUNG FIBROSIS; MAJOR CLINICAL STUDY; MALE; NUTRITIONAL STATUS; PHYSICAL ACTIVITY; PRESCHOOL CHILD; PRIORITY JOURNAL; PROGNOSIS; QUALITY OF LIFE; RATING SCALE; SCHOOL CHILD; SCORING SYSTEM; STRUCTURED QUESTIONNAIRE; SYMPTOMATOLOGY; WEIGHT REDUCTION;

EID: 78650492873     PISSN: 87556863     EISSN: 10990496     Source Type: Journal    
DOI: 10.1002/ppul.21325     Document Type: Article
Times cited : (84)

References (24)
  • 1
    • 34247161203 scopus 로고    scopus 로고
    • Monitoring quality of life in outpatients with cystic fibrosis: Feasibility and longitudinal results
    • Goldbeck L, Zerrer S, Schmitz TG,. Monitoring quality of life in outpatients with cystic fibrosis: feasibility and longitudinal results. J Cyst Fibros 2007; 6: 171-178.
    • (2007) J Cyst Fibros , vol.6 , pp. 171-178
    • Goldbeck, L.1    Zerrer, S.2    Schmitz, T.G.3
  • 2
    • 34548255391 scopus 로고    scopus 로고
    • Patient-reported outcomes in cystic fibrosis
    • Goss CH, Quittner AL,. Patient-reported outcomes in cystic fibrosis. Proc Am Thorac Soc 2007; 4: 378-386.
    • (2007) Proc Am Thorac Soc , vol.4 , pp. 378-386
    • Goss, C.H.1    Quittner, A.L.2
  • 3
    • 27144479427 scopus 로고    scopus 로고
    • Development and validation of the Cystic Fibrosis Questionnaire in the United States: A health-related quality-of-life measure for cystic fibrosis
    • Quittner AL, Buu A, Messer MA, Modi AC, Watrous M,. Development and validation of The Cystic Fibrosis Questionnaire in the United States: a health-related quality-of-life measure for cystic fibrosis. Chest 2005; 128: 2347-2354.
    • (2005) Chest , vol.128 , pp. 2347-2354
    • Quittner, A.L.1    Buu, A.2    Messer, M.A.3    Modi, A.C.4    Watrous, M.5
  • 4
    • 33746261692 scopus 로고    scopus 로고
    • US Food and Drug Administration, Center for Biologics Evaluation and Research, US Dept of Health and Human Services
    • US Food and Drug Administration. Guidance for industry patient-reported outcome measures: use in medical product development to support labeling claims. Center for Biologics Evaluation and Research, US Dept of Health and Human Services, 2009. Available at. http://www.fda.gov/downloads/Drugs/Guidance- ComplianceRegulatoryInformation/Guidances/UCM193282.pdf
    • (2009) Guidance for Industry Patient-reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims
  • 5
    • 0242572145 scopus 로고    scopus 로고
    • Quality of life in cystic fibrosis: The impact of gender, general health perceptions and disease severity
    • Gee L, Abbott J, Conway SP, Etherington C, Webb AK,. Quality of life in cystic fibrosis: the impact of gender, general health perceptions and disease severity. J Cyst Fibros 2003; 2: 206-213.
    • (2003) J Cyst Fibros , vol.2 , pp. 206-213
    • Gee, L.1    Abbott, J.2    Conway, S.P.3    Etherington, C.4    Webb, A.K.5
  • 6
    • 14844307605 scopus 로고    scopus 로고
    • Associations between clinical variables and quality of life in adults with cystic fibrosis
    • DOI 10.1016/j.jcf.2004.12.005, PII S156919930400205X
    • Gee L, Abbott J, Hart A, Conway SP, Etherington C, Webb AK,. Associations between clinical variables and quality of life in adults with cystic fibrosis. J Cyst Fibros 2005; 4: 59-66. (Pubitemid 40347779)
    • (2005) Journal of Cystic Fibrosis , vol.4 , Issue.1 , pp. 59-66
    • Gee, L.1    Abbott, J.2    Hart, A.3    Conway, S.P.4    Etherington, C.5    Webb, A.K.6
  • 7
    • 3042792538 scopus 로고    scopus 로고
    • The impact of treatment of pulmonary exacerbations on the health-related quality of life of patients with cystic fibrosis: Does hospitalization make a difference?
    • Yi MS, Tsevat J, Wilmott RW, Kotagal UR, Britto MT,. The impact of treatment of pulmonary exacerbations on the health-related quality of life of patients with cystic fibrosis: does hospitalization make a difference? J Pediatr 2004; 144: 711-718.
    • (2004) J Pediatr , vol.144 , pp. 711-718
    • Yi, M.S.1    Tsevat, J.2    Wilmott, R.W.3    Kotagal, U.R.4    Britto, M.T.5
  • 8
    • 0036204597 scopus 로고    scopus 로고
    • Effects of tobramycin solution for inhalation on global ratings of quality of life in patients with cystic fibrosis and Pseudomonas aeruginosa infection
    • Quittner AL, Buu A,. Effects of tobramycin solution for inhalation on global ratings of quality of life in patients with cystic fibrosis and Pseudomonas aeruginosa infection. Pediatr Pulmonol 2002; 33: 269-276.
    • (2002) Pediatr Pulmonol , vol.33 , pp. 269-276
    • Quittner, A.L.1    Buu, A.2
  • 9
    • 0033775148 scopus 로고    scopus 로고
    • Health-related quality of life for adults with cystic fibrosis: A regression approach to assessing the impact of recombinant human DNase
    • Johnson JA, Connolly M, Zuberbuhler P, Brown NE,. Health-related quality of life for adults with cystic fibrosis: a regression approach to assessing the impact of recombinant human DNase. Pharmacotherapy 2000; 20: 1167-1174.
    • (2000) Pharmacotherapy , vol.20 , pp. 1167-1174
    • Johnson, J.A.1    Connolly, M.2    Zuberbuhler, P.3    Brown, N.E.4
  • 13
    • 38349058630 scopus 로고    scopus 로고
    • A phase 2 study of aztreonam lysine for inhalation to treat patients with cystic fibrosis and Pseudomonas aeruginosa infection
    • Retsch-Bogart GZ, Burns JL, Otto KL, Liou TG, McCoy K, Oermann C, Gibson RL,. A phase 2 study of aztreonam lysine for inhalation to treat patients with cystic fibrosis and Pseudomonas aeruginosa infection. Pediatr Pulmonol 2008; 43: 47-58.
    • (2008) Pediatr Pulmonol , vol.43 , pp. 47-58
    • Retsch-Bogart, G.Z.1    Burns, J.L.2    Otto, K.L.3    Liou, T.G.4    McCoy, K.5    Oermann, C.6    Gibson, R.L.7
  • 15
    • 0242565793 scopus 로고    scopus 로고
    • Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis
    • Modi AC, Quittner AL,. Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis. J Pediatr Psychol 2003; 28: 535-545.
    • (2003) J Pediatr Psychol , vol.28 , pp. 535-545
    • Modi, A.C.1    Quittner, A.L.2
  • 17
    • 66649116259 scopus 로고    scopus 로고
    • Determination of the minimal clinically important difference scores for the Cystic Fibrosis Questionnaire-Revised Respiratory Symptom Scale in two populations of patients with cystic fibrosis and chronic Pseudomonas aeruginosa airway infection
    • Quittner AL, Modi AC, Wainwright C, Otto K, Kirihara J, Montgomery AB,. Determination of the minimal clinically important difference scores for the Cystic Fibrosis Questionnaire-Revised Respiratory Symptom Scale in two populations of patients with cystic fibrosis and chronic Pseudomonas aeruginosa airway infection. Chest 2009; 135: 1610-1618.
    • (2009) Chest , vol.135 , pp. 1610-1618
    • Quittner, A.L.1    Modi, A.C.2    Wainwright, C.3    Otto, K.4    Kirihara, J.5    Montgomery, A.B.6
  • 21
    • 38349182794 scopus 로고    scopus 로고
    • Health-related quality of life in adults with cystic fibrosis: The role of coping
    • Abbott J, Hart A, Morton A, Gee L, Conway S,. Health-related quality of life in adults with cystic fibrosis: the role of coping. J Psychosom Res 2008; 64: 149-157.
    • (2008) J Psychosom Res , vol.64 , pp. 149-157
    • Abbott, J.1    Hart, A.2    Morton, A.3    Gee, L.4    Conway, S.5
  • 22
    • 33644871851 scopus 로고    scopus 로고
    • Assessment of agreement between parents and children on health-related quality of life in children with cystic fibrosis
    • Havermans T, Vreys M, Proesmans M, De Boeck C,. Assessment of agreement between parents and children on health-related quality of life in children with cystic fibrosis. Child Care Health Dev 2006; 32: 1-7.
    • (2006) Child Care Health Dev , vol.32 , pp. 1-7
    • Havermans, T.1    Vreys, M.2    Proesmans, M.3    De Boeck, C.4
  • 23
    • 60449117029 scopus 로고    scopus 로고
    • High treatment burden in adults with cystic fibrosis: Challenges to disease self-management
    • Sawicki GS, Sellers DE, Robinson WM,. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros 2009; 8: 91-96.
    • (2009) J Cyst Fibros , vol.8 , pp. 91-96
    • Sawicki, G.S.1    Sellers, D.E.2    Robinson, W.M.3
  • 24
    • 78650461605 scopus 로고    scopus 로고
    • A biopsychosocial model of CF: Social and emotional functioning, adherence and quality of life
    • In: Allen J., Panitch H., Rubenstein R., editors. New York: Informa Healthcare.
    • Barker DH, Quittner AL,. A biopsychosocial model of CF: social and emotional functioning, adherence and quality of life. In:, Allen J, Panitch H, Rubenstein R, editors. Lung biology in health and disease series: cystic fibrosis. New York: Informa Healthcare, 2010; 468-481.
    • (2010) Lung Biology in Health and Disease Series: Cystic Fibrosis , pp. 468-481
    • Barker, D.H.1    Quittner, A.L.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.