Assessment of agreement between parents and children on health-related quality of life in children with cystic fibrosis

Child: Care, Health and Development

Volumn 32, Issue 1, 2006, Pages 1-7

  Havermans, Trudy ^a   Vreys, M ^a   Proesmans, M ^a   De Boeck, C ^a  

^a UNIVERSITY HOSPITALS LEUVEN   (Belgium)

Author keywords

Cystic fibrosis; Parent child agreement

Indexed keywords

ADOLESCENT; AGE DISTRIBUTION; ARTICLE; CHILD; CHILD PARENT RELATION; CLINICAL ARTICLE; CONTROLLED STUDY; CORRELATION COEFFICIENT; CYSTIC FIBROSIS; DEMOGRAPHY; EATING DISORDER; FEMALE; FORCED EXPIRATORY VOLUME; GROUPS BY AGE; HUMAN; LUNG FUNCTION TEST; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCORING SYSTEM; SEX DIFFERENCE; SPIROMETRY; STANDARDIZATION; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE;

ADOLESCENT; AGE FACTORS; CHILD; COST OF ILLNESS; CYSTIC FIBROSIS; FEMALE; HEALTH STATUS INDICATORS; HUMANS; MALE; PARENTS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SEX FACTORS;

EID: 33644871851     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2006.00564.x     Document Type: Article

References (28)

1. Abbott, J. & Gee, L. (1998) Contemporary psychosocial issues in cystic fibrosis: Treatment adherence and quality of life. Disability and Rehabilitation, 20, 262-271.
2. Abbott, J. & Gee, L. (2003) Quality of life in children and adolescents with cystic fibrosis. Pediatric Drugs, 5, 41-56.
3. Achenbach, T. M., McConaughy, S. H. & Howell, C. T. (1987) Child/ adolescent behavioural and emotional problems: Implications of cross-informant correlations for situational specificity. Psychological Bulletin, 101, 213-232.
4. American Thoracic Society (1995) Standardization of spirometry. American Journal of Respiratory Critical Care Medicine, 152, 1107-1136.
5. Berg-Nielsen, T. S., Vika, A. & Dahl, A. A. (2003) When adolescents disagree with their mothers: CBCL-YSR discrepancies related to maternal depression and adolescent self-esteem. Child: Care, Health and Development, 29, 207-213.
6. Britto, M. T., Kotagal, U. R. & Chenier, T. (2000) Adolescent vs. parental report of health-related quality of life in cystic fibrosis [abstract]. Pediatric Pulmonology, 20 (Suppl.), 333.
7. Britto, M. T., Kotagal, U. R., Chenier, T., Tsevat, J., Atherton, H. D. & Wilmott, R. W. (2004) Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis. Pediatric Pulmonology, 37, 165-171.
8. Duff, A.J., Wolfe, S.P., Dickson, C., Conway, S.P. & Brownlee, K.G. (2003) Feeding behavior problems in children with cystic fibrosis in the UK: Prevalence and comparison with healthy controls. Pediatric Gastroenterology and Nutrition, 36, 443-447.
9. Duffy, C. M., Arsenault, L. & Duffy, K. N. (1993) Levels of agreement between parents and children in rating dysfunction in juvenile rheumatoid arthritis and juvenile spondyloarthritidis. Journal of Rheumatology, 20, 2134-2139.
10. Eiser, C. & Morse, R. (2001) Can parents rate their child's health-related quality of life? Results of a systematic review. Quality of Life Research, 10, 347-357.
11. Ennett, S.T., DeVellis, B.M., Earp, J.A., Kredich, D., Warren, R.W. & Wilhelm, C.L. (1991) Disease experience and psychosocial adjustment in children with juvenile rheumatoid arthritis: Children's versus mothers' reports. Journal of Pediatric Psychology, 16, 557-568.
12. Henry, B., Aussage, P., Grosskopf, C. & Goehrs, J. M. (1998) Evaluating quality of life (QOL) in children with cystic fibrosis (CF): should we believe the child or the parent? [Abstract]. Pediatric Pulmonology, 26 (Suppl.), 401.
13. Henry, B., Aussage, P., Grosskopf, P. & Launois, R. (1996) Constructing a disease-specific quality of life questionnaire for children and adults with cystic fibrosis [Abstract]. Israelian Journal of Medical Science, 32 (Suppl.), 181.
14. Johnston, C.A., Steele, R.G., Herrera, E.A. & Phipps, S.J. (2003) Parent and child reporting of negative life events: Discrepancy and agreement across pediatric samples. Pediatric Psychology, 28, 579-588.
15. Klijn, P.H., van Stel, H.F., Quittner, A.L., van der Net, J., Doeleman, W., van der Schans, C.P. & van der Ent, C.K. (2004) Validation of the Dutch cystic fibrosis questionnaire (CFQ) in adolescents and adults. Journal of Cystic Fibrosis, 3, 29-36.
16. Landis, J. R. & Koch, G. G. (1977) The measurement of observer agreement for categorical data. Biometrics, 33, 159-174.
17. Levi, R. B. & Drotar, D. (1999) Health-related quality of life in childhood cancer: Discrepancy in parent-child reports. International Journal of Cancer, 12 (Suppl.), 58-64.
18. Loonen, H. J., Derckx, B. H. F., Koopman, H. M. & Heymans, H. A. S. (2002) Are parents able to rate the symptoms and quality of life of their offspring with IBD? Inflammatory Bowel Disease, 8, 270-276.
19. Modi, A. C. & Quittner, A. L. (2003) Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis. Journal of Pediatric Psychology, 28, 535-546.
20. Phipps, S., Fairclough, D. & Mulhern, R. K. (1995) Avoidant coping in children with cancer. Journal of Pediatric Psychology, 20, 217-232.
21. Powers, S.W., Patton, S.R., Byars, K.C., Mitchell, M.J., Jelalian, E., Mulvihill, M.M., Hovell, M.F. & Stark, L.J. (2002) Caloric intake and eating behaviour in infants and toddlers with cystic fibrosis. Pediatrics, 109, E75-5.
22. Quittner, A. L. (2003) CFQ-Cystic Fibrosis Questionnaire Revised, User Manual, English version, 2003.
23. Quittner, A. L., Drotar, D., Ievers-Landis, C., Seidner, S. & Jacobsen, J. (2000) Adherence to medical treatments in adolescents with cystic fibrosis: The development and evaluation of family-based interventions. In: Promoting Adherence to Medical Treatment in Childhood Chronic Illness: Concepts, Methods, and Interventions (ed. D. Drotar), pp. 388-407. Mahwah N.J. Lawrence Earlbaum Associates, Mahwah, NS.
24. Sturms, L. M., van der Sluis, C. K., Groothoff, J. W., ten Duis, H. J. & Eisma, W. H. (2003) Young traffic victims' long-term health-related quality of life: Child self-reports and parental reports. Archives of Physical and Medical Rehabilitation, 84, 431-436.
25. Theunissen, N. C., Vogels, T. G., Koopman, H. M., Verrips, G. H., Zwinderman, K. A., Verloove-Vanhorick, S. P. & Wit, J. M. (1998) The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7, 387-397.
26. Truby, H. & Paxton, A. S. (2001) Body image and dieting behaviour in cystic fibrosis. Pediatric, 107, E92.
27. Verrips, G. H. W., Vogels, A. G. C., den Ouden, A. L, Paneth, N & Verloove-Vanhorick, S. P. (2000) Measuring health-related quality of life in adolescents: Agreement between raters and between methods of administration. Child: Care, Health and Development, 26, 457-469.
28. Zapletal, A., Paul, T. & Smanek, M. (1977) Die bedeutung heutiger methoden der lungerfunktionsdiagnostik zur feststellung einer obstruktion der atemwege bei kindern und jugendlichen [Significance of contemporary methods of lung function testing for the detection of airway obstruction in children and adolescents]. Zeitung der Erkrank Atmong 1977, 149, 343-371.