A two-year prospective study of the health-related quality of life of children with chronic illness - The parents' perspective

Quality of Life Research

Volumn 14, Issue 2, 2005, Pages 395-405

  Sawyer, M G ^a,b   Reynolds, K E ^a,b   Couper, J J ^b   French, D J ^c   Kennedy, D ^b   Martin, J ^a   Staugas, R ^a   Baghurst, P A ^a,b  

^a WOMEN S AND CHILDREN S HOSPITAL   (Australia)

^b UNIVERSITY OF ADELAIDE   (Australia)

^c UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

Adolescents; Children; Chronic illness; Health related quality of life; Parents; Prospective

Indexed keywords

ADOLESCENT; ARTICLE; ASTHMA; CHILD CARE; CHILD PARENT RELATION; CLINICAL EXAMINATION; CONTROLLED STUDY; CYSTIC FIBROSIS; DIABETES MELLITUS; FEMALE; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; TREATMENT OUTCOME;

ADOLESCENT; ASTHMA; CHILD; CHRONIC DISEASE; DIABETES MELLITUS; FAMILY; HUMANS; PARENTS; PEER GROUP; QUALITY OF LIFE; QUESTIONNAIRES; SCHOOLS;

EID: 17744395085     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-004-0786-y     Document Type: Article

References (17)

1. TJ Power GJ Dupaul ES Shapiro 2003 Promoting Children's Health. Integrating School, Family and Community. The Guilford Press New York
2. MJ Robinson DM. Roberton 2003 Practical Paediatrics 5th ed. Churchill Livingstone Edinburgh
3. H Schipper JJ Clinch CLM. Olweny 1996 Quality of life studies: Definitions and conceptual issues B Spilker Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Lippincott-Raven New York 11 23
4. EF Juniper GH Guyatt D Feeney LE Griffith PJ Ferrie 1997 Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties. Eur Respir J 10 2285 2294
5. JM Landgraf L Abetz JE Ware 1996 Child Health Questionnaire (CHQ): A User's Manual. The Health Institute, New England Medical Centre Boston, MA
6. JW Varni M Seid PS Kurtin 2001 The PedsQL 4.0: Reliability and validity of Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39 800 812
7. JL Wallander JW Varni 1998 Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 39 29 46
8. EK Stein DJ Jessop 1989 What diagnosis does not tell: The case for a noncategorical approach to chronic illness in childhood. Soc Sci Med 29 769 778
9. C Eiser R Morse 2001 Can parents rate their child's health-related quality of life? Results of a systematic review. Qual Life Res 10 347 357
10. Sawyer MG, Reynolds KE, Couper JJ, et al. Health-related quality of life of children with chronic illness-A two year prospective study. Qual Life Res (in press).
11. MG Sawyer G Antoniou I Toogood M Rice 1997 Childhood cancer: A two-year prospective study of the psychological adjustment of children and parents. J Am Acad Child Adolesc Psychiatry 36 12 1736
12. Sawyer M, Arney F, Baghurst P, et al. The Mental Health of Young People in Australia: Child and Adolescent Component of the National Survey of Mental Health and Well-Being. Mental Health and Special Programs Branch, Commonwealth Department of Health and Aged Care. Australia. www.mentalhealth.gov.au.
13. MJ Rosier J Bishop R Nolan CF Robertson JB Carlin PD Phelan 1994 Measurement of functional severity of asthma in children. Am J Respir Crit Care Med 149 1434 1441
14. J. Cohen 1988 Statistical Power Analysis for the Behavioral Sciences 2nd ed. Lawrence Erlbaum London
15. MT Britto UR Kotagal T Chenier J Tsevat HD Atherton RW Wilmott 2004 Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis. Pediatr Pulm 37 165 171
16. E Lydick RS Epstein 1993 Interpretation of quality of life changes. Qual Life Res 2 221 226
17. TMVersion 4.0 Generic Core Scales in healthy and patient populations. Med Care 39 800 812