High treatment burden in adults with cystic fibrosis: Challenges to disease self-management

Journal of Cystic Fibrosis

Volumn 8, Issue 2, 2009, Pages 91-96

  Sawicki, Gregory S ^a   Sellers, Deborah E ^b   Robinson, Walter M ^b  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b EDUCATION DEVELOPMENT CENTER   (United States)

Author keywords

Cystic fibrosis; Quality of life; Treatment burden

Indexed keywords

ANTIBIOTIC AGENT; ANTIHISTAMINIC AGENT; AZITHROMYCIN; BETA ADRENERGIC RECEPTOR STIMULATING AGENT; DEOXYRIBONUCLEASE; DIGESTIVE TRACT AGENT; PANCREAS ENZYME; SODIUM CHLORIDE; STEROID; TOBRAMYCIN;

ADULT; ARTICLE; CYSTIC FIBROSIS; FEMALE; HEALTH CARE UTILIZATION; HEALTH SURVEY; HUMAN; KINESIOTHERAPY; LONGITUDINAL STUDY; LUNG CLEARANCE; MAJOR CLINICAL STUDY; MALE; NEBULIZATION; PHYSIOTHERAPY; QUALITY OF LIFE; SELF CARE; STRESS; TREATMENT DURATION;

EID: 60449117029     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2008.09.007     Document Type: Article

References (15)

1. Foundation C.F. Cystic Fibrosis Foundation Patient Registry Annual Data Report for 2004: Cystic Fibrosis Foundation (2005)
2. Flume P.A., O'Sullivan B.P., Robinson K.A., et al. Cystic fibrosis pulmonary guidelines: chronic medications for maintenance of lung health. Am j res crit care med 176 10 (2007) 957-969
3. Yankaskas J.R., Yankaskas B.C., Sufian B., Simon R.H., and Rodman D. Cystic fibrosis adult care: consensus conference report. Chest 125 1 Supplement (2004) 1S-39S
4. Boyle M.P. So many drugs, so little time: the future challenge of cystic fibrosis care. Chest 123 1 (2003) 3-5
5. Kettler L.J., Sawyer S.M., Winefield H.R., and Greville H.W. Determinants of adherence in adults with cystic fibrosis. Thorax 57 5 (2002) 459-464
6. Goss C.H., and Quittner A.L. Patient-reported outcomes in cystic fibrosis. Proc Am Thorac Soc 4 4 (2007) 378-386
7. Donaldson S.H., Bennett W.D., Zeman K.L., Knowles M.R., Tarran R., and Boucher R.C. Mucus clearance and lung function in cystic fibrosis with hypertonic saline. N Engl j med 354 3 (2006) 241-250
8. Geller D.E., Konstan M.W., Smith J., Noonberg S.B., and Conrad C. Novel tobramycin inhalation powder in cystic fibrosis subjects: pharmacokinetics and safety. Pediatr pulmonol 42 4 (2007) 307-313
9. Ziaian T., Sawyer M.G., Reynolds K.E., et al. Treatment burden and health-related quality of life of children with diabetes, cystic fibrosis and asthma. J paediatr child health 42 10 (2006) 596-600
10. Sawicki G.S., Sellers D.E., McGuffie K., and Robinson W. Adults with cystic fibrosis report important and unmet needs for disease information. J Cyst Fibros 6 6 (2007) 411-416
11. Liou T.G., Adler F.R., FitzSimmons S.C., Cahill B.C., Hibbs J.R., and Marshall B.C. Predictive 5-year survivorship model of cystic fibrosis. Am J Epidemiol 153 4 (2001) 345-352
12. Quittner A.L., Buu A., Messer M.A., Messer A.C., and Watrous M. Development and validation of the cystic fibrosis questionnaire in the United States. Chest 128 4 (2005) 2347-2354
13. White D., Stiller K., and Haensel N. Adherence of adult cystic fibrosis patients with airway clearance and exercise regimens. J Cyst Fibros 6 3 (2007) 163-170
14. Modi A.C., and Quittner A.L. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way?. J pediatr psychol 31 8 (2006) 846-858
15. Leventhal H., Diefenback M., and Leventhal E.A. Illness cognition: using common sense to understand treatment adherence and affect cognition interactions. Cognit Ther Res 16 2 (1992) 143-163