Negotiating Informed Consent with Children in School-Based Research: A Critical Review

Children and Society

Volumn 24, Issue 6, 2010, Pages 471-482

  Gallagher, Michael ^a   Haywood, Sarah L ^a   Jones, Manon W ^a   Milne, Sue ^a  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 77957360462     PISSN: 09510605     EISSN: 10990860     Source Type: Journal    
DOI: 10.1111/j.1099-0860.2009.00240.x     Document Type: Review

References (46)

1. Alderson P. In the genes or in the stars? Children's competence to consent. Journal of Medical Ethics 1992, 18:119-124.
2. Alderson P, Morrow V. Ethics, Social Research and Consulting with Children and Young People 2004, Barnardos, Ilford
3. Allen G. Research ethics in a culture of risk. Ethical Research with Children 2005, 15-26. Farrell A. ed, Open University Press, Berkshire
4. Alvesson M, Sköldberg K. Reflexive Methodology 2000, Sage, London
5. Archard D. Sexual Consent 1998, Westview Press, Boulder, CO
6. Balen R, Blyth E, Calabretto H, Fraser C, Horrocks C, Manby M. Involving children in health and social research: 'human becomings' or 'active beings'? Childhood 2006, 13:29-48.
7. Revised Ethical Guidelines for Educatonal Research 2004, BERA, Macclesfield
8. Code of Ethics and Conduct 2006, BPS, Leicester
9. Conducting Research With People not Having the Capacity to Consent to Their Participation. A Practical Guide for Researchers 2008, BPS, Leicester
10. Cocks AJ. The ethical maze: finding an inclusive path towards gaining children's agreement to research participation. Childhood 2006, 13:247-266.
11. Cree VE, Kay H, Tisdall K. Research with children: sharing the dilemmas. Child and Family Social Work 2002, 7:47-56.
12. Crow G, Wiles R, Heath S, Charles V. Research ethics and data quality: the implications of informed consent. International Journal of Research Methodology 2006, 9:83-95.
13. David M, Edwards R, Alldred P. Children and school-based research: 'informed consent' or 'educated consent'. British Educational Research Journal 2001, 27:347-365.
14. Davis JM. Understanding the meanings of children: a reflexive process. Children and Society 1998, 12:325-335.
15. Davis JM, Watson N, Cunningham-Burley S. Learning the lives of disabled children: developing a reflexive approach. Research with Children 2000, 201-224. Christensen P, James A, eds, Falmer Press, London and New York
16. Edwards R, Alldred P. Children and young people's views of social research. The case of research on home-school relations. Childhood 1999, 6:261-281.
17. Faden RR, Beauchamp TL. A History and Theory of Informed Consent 1989, Oxford University Press, Oxford
18. Farrell A. Ethics and Research with Children. Ethical Research with Children 2005, 1-14. Farrell A. ed, Open University Press, Berkshire
19. Finlay L, Gough B. Reflexivity. A Practical Guide for Researchers in Health and Social Sciences 2003, Blackwell, Oxford
20. Gallagher M. Ethics. Researching with Children and Young People 2009, 11-28. Tisdall EKMDavis JGallagher M. eds, Sage, London, Thousand Oaks, New Delhi and Singapore
21. Graham J, Grewal I, Lewis J. Ethics in social research: The views of research participants. 2007, http://www.gsr.gov.uk/downloads/professional_guidance/ethics_in_gsr/ethics_participants.pdf, [Accessed on 23 June 2008]
22. Haggerty KD. Ethics creep: governing social science research in the name of ethics. Qualitative Sociology 2004, 27:391-414.
23. Heath S, Charles V, Crow G, Wiles R. Informed consent, gatekeepers and go-betweens: negotiating consent in child- and youth-orientated institutions. British Educational Research Journal 2007, 33:403-417.
24. Hill M. Ethical considerations in researching children's experiences. Researching Children's Experiences, Approaches and Methods 2005, 61-86. Greene SHogan D. eds, Sage, London
25. Homan R. The Ethics of Social Research 1991, Longman, Harlow
26. Hood S, Kelley P, Mayall B. Children as research subjects. Children and Society 1996, 10:117-128.
27. Lee N. Childhood and Society: Growing up in an Age of Uncertainty 2001, Open University Press, Buckingham
28. Lindsay G. Researching children's perspectives: Ethical issues. Researching Children's Perspectives 2000, 3-20. Lewis ALindsay G. eds, Open University Press, Buckingham
29. Malone S. Ethics at home: informed consent in your own backyard. Qualitative Studies in Education 2003, 16:797-815.
30. Masson J. Researching children's perspectives: legal issues. Researching Children's Perspectives 2000, 34-45. Lewis ALindsay G. eds, Open University Press, Buckingham
31. Masson J. The Legal Context. Doing Research with Children and Young People 2004, 43-58. Fraser SLewis VDing SKellett MRobinson C. eds, Thousand Oaks, London
32. Morgan R. Social research ethics governance in Irish universities: observational data and analysis. 2007, http://www.ucc.ie/en/lawsite/research/research-projects/ethics-governance/DocumentFile,33596,en.pdf, [Accessed 5 June 2007]
33. Morris J. Don't Leave us out. Involving Disabled Children and Young People with Communication Impairments 1998, Joseph Rowntree Foundation, York
34. Morrow V, Richards M. The ethics of social research with children: an overview. Children and Society 1996, 10:90-105.
35. Prout A. The Future of Childhood: Towards the Interdisciplinary Study of Children 2005, Routledge Falmer, London
36. Reeves A, Bryson C, Ormston R, White C. Children's perspectives on participating in survey research. 2007, http://www.natcen.ac.uk/natcen/pages/publications/Children_Perspectives_on_Participating.pdf, [Accessed on 23 June 2008]
37. Russell L. It's a question of trust: balancing the relationship between students and teachers in ethnographic fieldwork. Qualitative Research 2005, 5:181-199.
38. Schober MF, Conrad FG, Fricker SC. Misunderstanding standardized interview language in research interviews. Applied Cognitive Psychology 2004, 18:169-188.
39. Scott JK, Wishart JG, Bowyer DJ. Do current consent and confidentiality requirements impede or enhance research with children with learning disabilities? Disability and Society 2006, 21:273-287.
40. Sin CH. Seeking informed consent: reflections on research practice. Sociology 2005, 39:277-294.
41. Skolbekken J, Ursin LO, Solberg B, Christensen E, Ytterhus B. Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context. Critical Public Health 2005, 15:335-347.
42. Small R. Codes are not enough: what philosophy can contribute to the ethics of educational research. Journal of Philosophy of Education 2001, 35:387-406.
43. Weindling P. The origins of informed consent: the international scientific commission on medical war crimes, and the Nuremberg Code. Bulletin of the History of Medicine 2001, 75:37-71.
44. Wiles R, Crow G, Charles V, Heath S. Informed consent and the research process: following rules or striking balances? Sociological Research Online 2007, 12. http://www.socresinline.org.uk/12/2/wiles.html, [Accessed on 26 April 2007]
45. Williams G. Bioethics and large-scale biobanking: individualistic ethics and collective projects. Genomics, Society and Policy 2005, 1:50-66.
46. Williamson E, Goodenough T, Kent J, Ashcroft R. Conducting research with children: the limits of confidentiality. Children and Society 2005, 19:397-409.