How do we facilitate carers' involvement in decision making?

Journal of Advanced Nursing

Volumn 34, Issue 3, 2001, Pages 329-337

  Walker, Esther ^a   Dewar, Belinda Jane ^a  

^a QUEEN MARGARET UNIVERSITY   (United Kingdom)

Author keywords

Care planning; Carers; Cultural change; Decision making; Health care practitioners; Involvement; Nurses; Practice development

Indexed keywords

AGED; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; DEMENTIA; EDUCATION; FAMILY; GERONTOPSYCHIATRY; HEALTH CARE QUALITY; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICES RESEARCH; HOSPITAL; HOSPITAL PERSONNEL; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; NURSING METHODOLOGY RESEARCH; ORGANIZATION; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PATIENT CARE PLANNING; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SYSTEM ANALYSIS; TREATMENT OUTCOME;

AGED; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CAREGIVERS; DECISION MAKING, ORGANIZATIONAL; DEMENTIA; FAMILY; FOCUS GROUPS; GERIATRIC PSYCHIATRY; HOSPITALS, SPECIAL; HUMANS; NURSING METHODOLOGY RESEARCH; ORGANIZATIONAL CASE STUDIES; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PATIENT CARE PLANNING; PATIENT CARE TEAM; PERSONNEL, HOSPITAL; PROFESSIONAL-FAMILY RELATIONS; QUALITY INDICATORS, HEALTH CARE; QUESTIONNAIRES; SYSTEMS ANALYSIS;

EID: 0035348573     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2648.2001.01762.x     Document Type: Article

References (39)

1. Adams T. (1994) The emotional experience of caregivers to relatives who are chronically confused - implications for community mental health nursing. International Journal of Nursing Studies 31, 545-553.
2. Adams T. (1996) Informal family caregiving to older people with dementia: research priorities for community psychiatric nursing. Journal of Advanced Nursing 24, 703-710.
3. Allen D. (2000) Negotiating the role of expert carers on an adult hospital ward. Sociology of Health and Illness 22, 149-171.
4. Ashworth P., Longmate M. & Morrison P. (1992) Patient participation: its meaning and significance in the context of caring. Journal of Advanced Nursing 17, 1430-1439.
5. Biley F. (1992) Some determinants that effect patient participation in decision-making about nursing care. Journal of Advanced Nursing 17, 414-421.
6. Brown S.M., Humphrey R. & Taylor E. (1996) A model of the nature of family therapist relationships: implications for education. American Journal of Occupational Therapy 51, 597-603.
7. Gallery P. & Smith L. (1991) A study of role negotiation between nurses and the parents of hospitalized children. Journal of Advanced Nursing 16, 772-781.
8. Camden and Islington Community Health Services NHS Trust (1998) Beech House Inquiry: Report of the Internal relating to the mistreatment of patients residing at Beech House, St Pancras Hospital during the period March 1993-April 1996. Camden and Islington Community Health Services NHS Trust.
9. Casey A. (1995) Partnership nursing: influences on involvement of informal carers. Journal of Advanced Nursing 22, 1058-1062.
10. Chadderton H. (1995) An analysis of the concept of participation within the context of health care planning. Journal of Nursing Management 3, 221-228.
11. Clarke C.L. (1999) Family care-giving for people with dementia: some implications for policy and professional practice. Journal of Advanced Nursing 29, 712-720.
12. Davies S., Laker S. & Ellis L. (1997) Promoting autonomy and independence for older people within nursing practice: a literature review. Journal of Advanced Nursing 26, 408-417.
13. Department of Health (1990) The National Health Service and Community Care Act. HMSO, London.
14. Department of Health (1991) The Patient's Charter. HMSO, London.
15. Department of Health (1998) A first Class Service: Quality in the New NHS (White Paper). HMSO, London.
16. Glaser B. & Strauss A.L. (1967) The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine, Chicago.
17. Hughes E.C. (1984) The Sociological Eye. Transaction Books. London.
18. Jewel S.E. (1994) Patient participation: what does it mean to nurses? Journal of Advanced Nursing 19, 433-438.
19. Keady J. (1996) The experience of dementia: a review of the literature and implications for nursing practice. Journal of Clinical Nursing 5, 275-288.
20. Keady J. & Nolan M.R. (1994) The carer-led assessment process (CLASP): a framework for the assessment of need in dementia caregivers. Journal of Clinical Nursing 3, 103-108.
21. Kenny T. (1990) Erosion of individuality in care of elderly people in hospital: an alternative approach. Journal of Advanced Nursing 10, 125-135.
22. King's Fund (1998) The Carers Compass: Directions for Improving Support to Carers. King's Fund Publishing, London.
23. Kirk S. (1998) Trends in community care and patient participation: implications for the roles of informal carers and community nurses in the United Kingdom. Journal of Advanced Nursing 28, 370-381.
24. Laitinen P. (1992) Participation of informal caregivers in the hospital care of elderly patients and their evaluations of the care given: pilot study in three different hospitals. Journal of Advanced Nursing 17, 1233-1237.
25. Li H., Stewart B.J., Imale M.A., Archbold P.G. & Feluer L. (2000) Families and hospitalised elderly: a typology of family care actions. Research in Nursing Health 23, 3-16.
26. MacDonald C. & Teven T. (1997) Who's in Control? A pilot study examining and questioning the use of anti-psychotic drugs in people with dementia who exhibit challenging behaviours. Dementia Services Development Centre, University of Stirling, Stirling.
27. McGown A. & Braithwaite V. (1992) Stereotypes of emotional caregivers and their capacity to absorb information: the views of nurses, stroke carers and the general public. Journal of Advanced Nursing 17, 822-828.
28. Meyer J. (1995) Stages in the process: a personal account. Nurse Researcher 2, 24-37.
29. Mistiaen P., Duijnhower E., Wijkel D., De Bont M. & Veeger A. (1997) The problems of elderly people at home one week after discharge from an acute care setting. Journal of Advanced Nursing 25, 1233-1240.
30. Nolan M.R. & Grant G. (1992) Helping 'new carers' of the frail elderly patient: the challenge for nurses in acute care settings. Journal of Clinical Nursing 1, 303-307.
31. Nolan M.R. & Grant G. (1993) Service evaluation: time to open both eyes. Journal of Advanced Nursing 18, 1434-1442.
32. Olsen R., Parker G. & Drewett A. (1997) Carers and the missing link: changing professional attitudes. Health and Social Care in the Community 5, 116-123.
33. Sharp T. (1990) Relatives' involvement in caring for the elderly mentally ill following long-term hospitalization. Journal of Advanced Nursing 15, 67-73.
34. Simpson R.G. (1997) Carers as equal partners in care planning. Journal of Psychiatric and Mental Health Nursing 4, 345-354.
35. The Carers National Association (1998) Ignored and invisible. The Carers National Association, London.
36. Walker E. & Dewar B.J. (2000) Moving on from interpretivism: an argument for constructivist evaluation. Journal of Advanced Nursing 32, 713-720.
37. Walker E., Dewar B. & Runciman P. (1998) Developing Professional Practice: An Evaluation of Work Based Learning in a Community Health Nursing Degree. Queen Margaret University College, Edinburgh.
38. Walker E., Dewar B. & Riddell H. (1999) Guidelines to Facilitate the Involvement of Lay Carers in the Care Planning of the Person with Dementia in Hospital. Queen Margaret University College, Edinburgh.
39. Warner L. & Wexler S. (1998) Eight hours a day and taken for granted? The Princess Royal Trust for Carers.