Exploring the relation of health-promoting behaviors to role participation and health-related quality of life in women with multiple sclerosis: A pilot study

American Journal of Occupational Therapy

Volumn 64, Issue 4, 2010, Pages 650-659

  Tyszka, Andrea Carr ^a   Farber, Ruth S ^b  

^a UNIVERSITY OF THE SCIENCES   (United States)

^b TEMPLE UNIVERSITY   (United States)

Author keywords

Health behavior; Health promotion; Human activities; Multiple sclerosis; Quality of life

Indexed keywords

ADULT; AGED; ARTICLE; FEMALE; HEALTH BEHAVIOR; HUMAN; MIDDLE AGED; MULTIPLE SCLEROSIS; PILOT STUDY; QUALITY OF LIFE; ROLE PLAYING; YOUNG ADULT;

ADULT; AGED; FEMALE; HEALTH BEHAVIOR; HUMANS; MIDDLE AGED; MULTIPLE SCLEROSIS; PILOT PROJECTS; QUALITY OF LIFE; ROLE; YOUNG ADULT;

EID: 77955824483     PISSN: 02729490     EISSN: None     Source Type: Journal    
DOI: 10.5014/ajot.2010.07121     Document Type: Article

References (57)

1. American Occupational Therapy Association. (2002). Occupational therapy practice framework: Domain and process. American Journal of Occupational Therapy, 56, 609-639.
2. American Occupational Therapy Association. (2008a). Occupational therapy practice framework: Domain and process (2nd ed.). American Journal of Occupational Therapy, 62, 625-683.
3. American Occupational Therapy Association. (2008b). Occupational therapy services in the promotion of health and the prevention of disease and disability. American Journal of Occupational Therapy, 62, 694-703.
4. Aronson, K. J. (1997). Quality of life among people with multiple sclerosis and their caregivers. Neurology, 48, 74-80.
5. Baker, N. A., & Tickle-Degnen, L. (2001). The effectiveness of physical, psychological, and functional interventions in treating clients with multiple sclerosis: A meta-analysis. American Journal of Occupational Therapy, 55, 324-331.
6. Brown, T. R., Sc Kraft, G. H. (2005). Exercise and rehabilitation for individuals with multiple sclerosis. Physical Medicine and Rehabilitation Clinics of North America, 16, 513-555. doi:10.10l6/j.pmr.2005.01.005
7. Cantor, N., & Sanderson, C. (1999). Life task participation and well-being: The importance of taking part in daily life. In D. Kahneman, E. Diener, Sc R. Schwarz (Eds.), Wellbeing: The foundations ofhedonic psychology (pp. 230-243). New York: Russell Sage Foundation.
8. Carlson, E. D. (2000). A case study in translation methodology using the Health-Promotion Lifestyle Profile II. Public Health Nursing, 17, 61-70. doi:10.1046/j.1525-1446. 2000.00061.x
9. Christiansen, C. H. (1999). Defining lives: Occupation as identity: An essay on competence, coherence, and the creation of meaning (Eleanor Clarke Slagle Lecture). American Journal of Occupational Therapy, 53, 547-558.
10. Coulthard-Morris, L. (2000). Clinical and rehabilitation outcome measures. In J. S. Burks Sc K. P. Johnson (Eds.), Multiple sclerosis: Diagnosis, medical management, and rehabilitation (pp. 221-290). New York: Demos Publishing.
11. Farber, R. S. (2005, March). Participation and social support of mothers with multiple sclerosis: An exploratory study. Poster session presented at Temple University Interdisciplinary Center of Excellence: Women's Health Research and Leadership, Philadelphia.
12. Farber, R. S. (2006a, June). The mother's interpersonal environment: The relationship of social support, role participation, and maternal role satisfaction of mothers with multiple sclerosis. Poster session presented at the 12th Annual North American Collaborating Center Conference on ICF, Vancouver, British Columbia.
13. Farber, R. S. (2006b, April). Participation and social support of mothers with multiple sclerosis: An exploratory study. Paper presented at the AOTA Annual Conference Sc Expo, Charlotte, NC.
14. Farber, R. S., & Davidoff, M. S. (2008, August). Examination of the relationship of role participation, parental participation, and the perception of social environment in mothers with multiple sclerosis and spinal cord injury. Poster presentation, 14th Annual North American Collaborating Center Conference on ICF, Evaluating Social Participation: Applications of ICF and ICF-CY, Quebec City, Canada.
15. Finger, M. E., Cieza, A., Stoll, J., Stucki, G., Sc Huber, E. O. (2006). Identification of intervention categories for physical therapy, based on the International Classification of Functioning Disability and Health: A Delphi exercise. Physical Therapy, 86, 1203-1220. doi:10.2522/ptj.20050134
16. Fransen, J., Uebelhart, D., Stucki, G., Langenegger, T., Seitz, M., & Michel, B. A. (2002). The ICIDH-2 as a framework for the assessment of functioning and disability in rheumatoid arthritis. Annals of the Rheumatic Diseases, 61, 225231. doi: 10.1136/ard.61.3.225
17. Geyh, S., Müller, R., Peter, C., Cieza, A., Bickenbach, J., & Stuckiet, G. (2008). Personal factors in the literature: A systematic review and content analysis. Paper presented at the l4th annual North American Collaborating Center (NACC) Conference on the International Classification of Functioning, Disability and Health (ICF), Quebec City, Quebec.
18. Gottberg, K., Einarsson, U., Ytterberg, C., de Pedro Cuesta, J., Fredrikson, S., von Koch, L., et al. (2006). Health-related quality of life in a population-based sample of people with multiple sclerosis in Stockholm County. Multiple Sclerosis, 12, 605-612. doi:10.1177/1352458505070660
19. Gutman, S. A. (2008). From the Desk of the Editor-State of the journal. American Journal of Occupational Therapy, 62, 619-621.
20. Gutman, S. A., & Schindler, V. P. (2007). The neurological basis of occupation. Occupational Therapy International, 14, 71-85. doi:10.1002/oti.225
21. Heinemann, A. (2005). Putting outcome measurement in context: A rehabilitation psychology perspective. Rehabilitation Psychology, 50(1), 6-14. doi:10.1037/0090-5550.50.1.6
22. Isaksson, A.-K., Ahlström, G., Sc Gunnarsson, L.-G. (2005). Quality of life and impairment in patients with multiple sclerosis. Journal of Neurology, Neurosurgery, and Psychiatry, 76, 64-69. doi:10.1136/jnnp.2003.029660
23. Law, M. (2002). Participation in the occupations of everyday life. American Journal of Occupational Therapy, 56, 640-649.
24. Law, M., Steinwender, S., & Leclair, L. (1998). Occupation, health, and well-being. Canadian Journal of Occupational Therapy, 65, 81-91.
25. Matuska, K., Giles-Heinz, A., Flinn, N., Neighbor, M., & Bass-Haugen, J. (2003). Brief Report- Outcomes of a pilot occupational therapy wellness program for older adults. American Journal of Occupational Therapy, 57, 220-224.
26. Matuska, K., Mathiowetz, V., Sc Finlayson, M. (2007). Use and perceived effectiveness of energy conservation strategies for managing multiple sclerosis fatigue. American Journal of Occupational Therapy, 61, 62-69.
27. Merck. (2003). Multiple sclerosis. In Merck Manual Online. Retrieved November 22, 2006, from www.merck.com/sec06/ch092/ch092b.html
28. Mohr, D. C., Goodkin, D. E., Nelson, S., Cox, D., & Weiner, M. (2002). Moderating effects of coping on the relationship between stress and the development of new brain lesions in multiple sclerosis. Psychosomatic Medicine, 64, 803809. doi:10.1097/01.PSY.0000024238.11538.EC
29. Mohr, D. C., Hart, S., & Vella, L. (2007). Reduction in disability in a randomized controlled trial of telephoneadministered cognitive- behavioral therapy. Health Psychology, 26, 554-563. doi:10.1037/0278-6133.26.5.554
30. Morales-Gonzáles, J. M., Benito-León, J., Rivera-Navarro, J., & Mitchell, A. J.; GEDMA Study Group. (2004). A systematic approach to analyse health-related quality of life in multiple sclerosis: The GEDMA study. Multiple Sclerosis, 10, 47-54. doi:10.1191/1352458504ms967oa
31. Moyers, P. A. (2007). A legacy of leadership: Achieving our Centennial Vision (Presidential address). American Journal of Occupational Therapy, 61, 622-628.
32. Nortvedt, M. W., Riise, T., Myhr, K.-M., Landtblom, A.-M., Bakke, A., & Nyland, H. I. (2001). Reduced quality of life among multiple sclerosis patients with sexual disturbance and bladder dysfunction. Multiple Sclerosis, 7, 231-235.
33. O'Neill, D., & Kenny, E. (1998). Spirituality and chronic illness [Abstract]. Journal of Nursing Scholarship, 30, 275-280. doi:10.1111/j.1547- 5069.1998.tb01305.x
34. Patti, F., Ciancio, M. R., Reggio, E., Lopes, R., Palermo, F., Cacopardo, M., et al. (2002). The impact of outpatient rehabilitation on quality of life in multiple sclerosis. Journal of Neurology, 249, 1027-1033. doi:10.1007/s004l5002-0778-1
35. Patti, F., Pozzilli, C., Montanari, E., Pappalardo, A., Piazza, L., Levi, A., et al.; Italian Study Group on Quality of Life in MS. (2007). Effects of education level and employment status on HRQoL in early relapsing-remitting multiple sclerosis. Multiple Sclerosis, 13, 783-791. doi: 10.1177/ 1352458506073511
36. Petajan, J. H., Gappmaier, E., White, A. T., Spencer, M. K., Mino, L., & Hicks, R. W. (1996). Impact of aerobic training on fitness and quality of life in multiple sclerosis [Abstract]. Annals of Neurology, 39, 432-441. doi: 10.1002/ana.410390405
37. Schröder, C., Johnston, M., Morrison, V., Teunissen, L., Notermans, N., & van Meeteren, N. (2007). Health condition, impairment, activity limitations: Relationships with emotions and control cognitions in people with disabling conditions. Rehabilitation Psychology, 52, 280-289. doi:10.1037/0090-5550.52.3.280
38. Schwartz, C. E. (1999). Teaching coping skills enhances quality of life more than peer support: Results of a randomized trial with multiple sclerosis patients. Health Psychology, 18, 211-220. doi:10.1037/0278-6133.18.3.211
39. Spain, L. A., Tubridy, N., Kilpatrick, T. J., Adams, S. J., Sc Holmes, A. C. (2007). Illness perception and health-related quality of life in multiple sclerosis. Acta Neurológica Scandinavica, 116, 293-299. doi:10.111 l/j.1600-0404. 2007.00895.x
40. Stuifbergen, A. K. (1995). Health-promoting behaviors and quality of life among individuals with multiple sclerosis. Scholarly Inquiry for Nursing Practice, 9, 31-50. discussion 51-55.
41. Stuifbergen, A. K., Becker, H., Blozis, S., Timmerman, G., Sc Kullberg, V. (2003). A randomized clinical trial of a wellness intervention for women with multiple sclerosis. Archives of Physical Medicine and Rehabilitation, 84, 467-476. doi: 10.1053/apmr.2003.50028
42. Stuifbergen, A. K., Blozis, S. A., Harrison, T. C., Sc Becker, H. A. (2006). Exercise, functional limitations, and quality of life: A longitudinal study of people with multiple sclerosis. Archives of Physical Medicine and Rehabilitation, 87, 935-943. doi: 10.1016/j.apmr.2006.04.003
43. Stuifbergen, A., & Roberts, G. (1997). Health promotion practices of women with multiple sclerosis. Archives of Physical Medicine and Rehabilitation, 78, S3-S9. doi: 10.1016/S0003-9993(97)90215-X
44. Stuifbergen, A., & Rogers, S. (1997). Health promotion: An essential component of rehabilitation for persons with chronic disabling conditions. Advances in Nursing Science, 19(4), 1-20.
45. Stuifbergen, A. K., Seraphine, A., & Roberts, G. (2000). An explanatory model of health promotion and quality of life in chronic disabling conditions. Nursing Research, 49, 122-129. doi: 10.1097/00006199-200005000-00002
46. Walker, S. N. (2007). HPLP and HPLPII bibliography. Retrieved May 17, 2010, from www.unmc.edu/nursing/ Health-Promoting-Lifestyle-Profile-II.htm
47. Ware, J. (2001, November). Quality of life measurement: The evolution of the field. Paper presented at Quality of Life Measurement, Building an Agenda for the Future, Kessler Medical Rehabilitation, Research, and Education Corporation, Parsippany, NJ.
48. Ware, J. E., Jr. (2003). Conceptualization and measurement of health-related quality of life: Comments on an evolving field. Archives of Physical Medicine and Rehabilitation, 84(Suppl. 2), S43-S51. doi:10.1053/apmr.2003.50246
49. Ware, J. E., Kosinski, M., & Dewey, J. E. (2002). How to score Version 2 of the SF- 36® health survey. Lincoln, RI: qualityMetric.
50. Ware, J. E., Kosins, M., & Gandel, B. (2003). SF-36® health survey: Manual and interpretation guide. Lincoln, RI: QualityMetric.
51. White, L. J., McCoy, S. C., Castellano, V., Gutierrez, G., Stevens, J. E., Walter, G. A., et al. (2004). Resistance training improves strength and functional capacity in people with multiple sclerosis. Multiple Sclerosis, 10, 668-674. doi:10.1191/1352458504ms1088oa
52. Whitford, H., Olver, I., & Peterson, M. (2008). Spirituality as a core domain in the assessment of quality of life in oncology. [Abstract]. Psycho-Oncology, 17(11), 1121-1128. Retrieved October 2, 2008, from www3.interscience. wiley.com/journal/117927815/abstract
53. Wilcock, A. A., &: Townsend, E. A. (2008). Occupational justice. In E. B. Crepeau, E. S. Cohn, & B. B. Schell (Eds.), Willard and Spackman's occupational therapy (11th ed., pp. 192-199). Philadelphia: Lippincott Williams & Wilkins.
54. Wilhite, B., Keller, M. J., Hodges, J., & Caldwell, L. (2004). Enhancing human development and optimizing health and well-being in persons with multiple sclerosis. Therapeutic Recreation Journal, 38, 167-187.
55. World Health Organization. (2001). International classification of functioning, disability and health. Geneva: Author
56. Yorkston, K. M., Johnson, K. L., & Klasner, E. R. (2005). Taking part in life: Enhancing participation in multiple sclerosis. Physical Medicine and Rehabilitation Clinics of North America, 16, 583-594. doi:10.10l6/j.pmr.2005.01. 003
57. Yorkston, K. M., Johnson, K., Klasner, E. R., Amtmann, D., Kuehn, C. M., & Dudgeon, B. (2003). Getting the work done: A qualitative study of individuals with multiple sclerosis. Disability and Rehabilitation, 25, 369-379. doi: 10.1080/0963828031000090506