Taking part in life: Enhancing participation in multiple sclerosis

Physical Medicine and Rehabilitation Clinics of North America

Volumn 16, Issue 2, 2005, Pages 583-594

  Yorkston, Kathryn M ^a   Johnson, Kurt L ^a   Klasner, Estelle R ^a  

^a UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

COST BENEFIT ANALYSIS; DAILY LIFE ACTIVITY; FUNCTIONAL ASSESSMENT; HEALTH CARE; HEALTH CARE PERSONNEL; HUMAN; MULTIPLE SCLEROSIS; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW;

ATTITUDE TO HEALTH; COMMUNICATION; GOALS; HUMANS; MULTIPLE SCLEROSIS; PATIENT PARTICIPATION; PHYSICIAN-PATIENT RELATIONS; QUALITY OF LIFE; SOCIAL ADJUSTMENT; SOCIAL ENVIRONMENT;

EID: 18944400411     PISSN: 10479651     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pmr.2005.01.003     Document Type: Review

References (41)

1. B.D. Webster All of a piece: a life with multiple sclerosis 1989 Johns Hopkins University Press Baltimore (MD)
2. S. Thorne, A. Con, and L. McGuinness Health care communication issues in multiple sclerosis: an interpretative description Qual Health Res 14 1 2004 5 22
3. P.M. Ironside, M. Scheckel, and C. Wessels Experiencing chronic illness: cocreating new understanding Qual Health Res 13 2 2003 171 183
4. C.M. Miller The lived experience of relapsing multiple sclerosis: a phenomenological study J Neurosci Nurs 29 5 1997 291 301
5. M. Finlayson, and T. Van Denend Experiencing the loss of mobility: perspectives of older adults with MS Disabil Rehabil 25 20 2003 1168 1180
6. F. Reynolds, and S. Prior Sticking jewels in your life: exploring women's strategies for negotiating an acceptable quality of life with multiple sclerosis Qual Health Res 13 9 2003 1225 1251
7. N.F. Courts, E.M. Buchanan, and P.O. Werstlein Focus groups: the lived experience of participants with multiple sclerosis J Neurosci Nurs 36 1 2004 42 47
8. A. Stuifbergen, and S. Rogers Health promotion: an essential component of rehabilitation for persons with chronic disabling conditions Adv Nurs Sci 19 4 1997 1 20
9. B. O'Day Barriers for people with multiple sclerosis who want to work: a qualitative study J Neurol Rehabil 12 3 1998 139 146
10. E. Magnus Everyday occupations and the process of redefinition: a study of how meaning in occupation influences redefinition of identity in women with a disability Scand J Occup Ther 8 3 2001 115 124
11. K.M. Yorkston, E.R. Klasner, and K.M. Swanson Communication in context: a qualitative study of the experiences of individuals with multiple sclerosis Am J Speech-Lang Pathol 10 2 2001 126 137
12. S.E. Thorne, and B.L. Paterson Two decades of insider research: what we know and don't know about chronic illness experience Annu Rev Nurs Res 18 2000 3 25
13. C.A. Loveland The experiences of African Americans and Euro-Americans with multiple sclerosis Sex Disabil 17 1 1999 19 35
14. M. Somerset, T.J. Peters, and D.J. Sharp Factors that contribute to quality of life outcomes prioritised by people with multiple sclerosis Qual Life Res 12 2003 21 29
15. A.M. Kramer Rehabilitation care and outcomes from the patient's perspective Med Care 35 Suppl 6 1997 JS48 JS57
16. K. Johnson, K.M. Yorkston, and E.R. Klasner The cost and benefits of employment: a qualitative study of experiences of individuals with multiple sclerosis Arch Phys Med Rehabil 85 2 2004 201 209
17. M.P. Dijkers Individualization in quality of life measurement: instruments and approaches Arch Phys Med Rehabil 84 4 Suppl 2 2003 S3 15
18. International Classification of Function, Disability, and Health. World Health Organization. Available at: http://www3.who.int/icf/icftemplate.cfm. Accessed December 10, 2001.
19. J. Desrosiers, L. Noreau, and A. Rochette Predictors of handicap situations following post-stroke rehabilitation Disabil Rehabil 24 15 2002 774 785
20. M. Law Participation in the occupations of everyday life Am J Occup Ther 56 2002 640 649
21. B.R. Bonder, and M.B. Wagner Functional performance in older adults 2nd edition 2001 F.A. Davis Philadelphia
22. A.R. Herzog, M.B. Ofstedal, and L.M. Wheeler Social engagement and its relationship to health Clin Geriatr Med 18 3 2002 593 609 [ix]
23. B. Willer, M. Rosenthal, and J.S. Kreutzer Assessment of community integration following rehabilitation for traumatic brain injury J Head Trauma Rehabil 8 2 1993 75 87
24. G.G. Whiteneck, S.W. Charliefue, and K.A. Gerhart Quantifying handicap: a new measure of long-term rehabilitation outcomes Arch Phys Med Rehabil 73 1992 519 526
25. M. Finlayson, M. Impey, and C. Nicolle Self-care, productivity and leisure limitations of people with multiple sclerosis in Manitoba Can J Occup Ther 65 5 1998 299 308
26. M. Dijkers Measuring the long-term outcome of traumatic brain injury: a review of the Community Integration Questionnaire J Head Trauma Rehabil 126 1997 74 91
27. M.V. Johnston, and C.S. Miklos Activity-related quality of life in rehabilitation and traumatic brain injury Arch Phys Med Rehabil 83 Suppl 2 2002 S26 S38
28. A. Singh-Manoux, M. Richards, and M. Marmot Leisure activities and cognitive function in middle age: evidence from the Whitehall II study J Epidemiol 57 11 2003 907 913
29. H. Wang, A. Karp, and B. Winblad Late-life engagement in social and leisure activities is associated with a decreased risk of dementia: a longitudinal study for the Kungsholmen Project Am J Epidemiol 155 12 2002 1081 1087
30. L.V. Sorensen, U. Axelsen, and K. Avlund Social participation and functional ability from age 75 to age 80 Scand J Occup Ther 92 2002 71 78
31. J. Verghese, R.B. Lipton, and M.J. Katz Leisure activities and the risk of dementia in the elderly N Engl J Med 348 25 2003 2508 2516
32. E.A. Hakim, A.M. Bakheit, and T.N. Bryant The social impact of multiple sclerosis: a study of 305 patients and their relatives Disabil Rehabil 22 6 2000 288 293
33. P.M. Rothwell, Z. McDowell, and C.K. Wong Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis BMJ 314 1997 1580 1583
34. W. Koopman, and A. Schweitzer The journey to multiple sclerosis: a qualitative study J Neruosci Nurs 31 1 1999 17 25
35. M. Somerset, R. Campbell, and D.J. Sharp What do people with MS want and expect from health-care services? Health Expect 4 2001 29 37
36. M. Finlayson Concerns about the future among older adults with multiple sclerosis Am J Occup Ther 58 1 2004 54 63
37. L.M. Baker Sense making in multiple sclerosis: the information needs of people during an acute exacerbation Qual Health Res 8 1 1998 106 120
38. H.R. Boeijue, M.S.H. Duijnstee, and M.H.F. Grypdonck Encountering the downward phase: biographical work in people with multiple sclerosis living at home Soc Sci Med 55 6 2002 881 893
39. H. Leino-Kilpi, E. Luoto, and J. Katajisto Elements of empowerment and MS patients J Neurosci Nurs 30 2 1998 116 123
40. S.P. Halpern The etiquette of illness 2004 Bloomsbury New York
41. K.M. Yorkston, K. Johnson, and E.R. Klasner Getting the work done: a qualitative study of individuals with multiple sclerosis Int J MS Care 5 3 2003 89