Illness perception and health-related quality of life in multiple sclerosis

Acta Neurologica Scandinavica

Volumn 116, Issue 5, 2007, Pages 293-299

  Spain, L A ^a   Tubridy, N ^b   Kilpatrick, T J ^a   Adams, S J ^a   Holmes, A C N ^a  

^a ROYAL MELBOURNE HOSPITAL   (Australia)

^b ST VINCENT S UNIVERSITY HOSPITAL   (Ireland)

Author keywords

Determinants; Health related quality of life; Illness perceptions; Multiple sclerosis; SF 36

Indexed keywords

ADULT; AGE DISTRIBUTION; ANXIETY; ARTICLE; AUSTRALIA; CLINICAL ASSESSMENT; CLINICAL FEATURE; CLINICAL RESEARCH; COGNITION; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DEPRESSION; DISABILITY; DISEASE DURATION; DISEASE SEVERITY; FATIGUE; FEMALE; HUMAN; ILLNESS BEHAVIOR; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; MOOD; MULTIPLE SCLEROSIS; PAIN; PERCEPTION; PREDICTION; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REGRESSION ANALYSIS; RISK ASSESSMENT;

ACTIVITIES OF DAILY LIVING; ADULT; ANXIETY DISORDERS; AUSTRALIA; COHORT STUDIES; COMORBIDITY; CROSS-SECTIONAL STUDIES; DEPRESSIVE DISORDER; DISABILITY EVALUATION; FATIGUE SYNDROME, CHRONIC; FEMALE; HEALTH STATUS INDICATORS; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; MULTIPLE SCLEROSIS; PAIN; QUALITY OF LIFE;

EID: 35148826911     PISSN: 00016314     EISSN: 16000404     Source Type: Journal    
DOI: 10.1111/j.1600-0404.2007.00895.x     Document Type: Article

References (50)

1. Canadian Burden of Illness Study Group. Burden of illness of multiple sclerosis. Part II. Quality of life. Can J Neurol Sci 1998 25:31 8
2. Raizi A., Hobart J, Lamping D et al. Using the SF-36 measure to compare the health impact of multiple sclerosis and Parkinson's disease with normal population health profiles. J Neurol Neurosurg Psychiatry 2003 74:710 4.
3. Nortvedt MW, Riise T, Myhr KM, Nyland HI. Quality of life as a predictor for change in disability in MS. Neurology 2000 55:51 4.
4. Somerset M, Peters TJ, Sharp DJ, Campbell R. Factors that contribute to quality of life outcomes prioritised by people with multiple sclerosis. Qual Life Res 2003 12:21 9.
5. Schreurs KM, de Ridder DT, Bensing JM. Fatigue in multiple sclerosis: reciprocal relationships with physical disabilities and depression. J Physchosom Res 2002 53:775 81.
6. Janardhan V, Bakshi R. Quality of life in patients with multiple sclerosis: the impact of fatique and depression. J Neurol Sci 2002 205:51 8.
7. Merkelbach S, Sittinger H, Koenig J. Is there a differential impact of fatigue and physical disability on quality of life in multiple sclerosis J Nerv Ment Dis 2002 190:388 93.
8. Amato MP, Ponziani G, Rossi F, Liedl CL, Stefanile C, Rossi L. Quality of life in multiple sclerosis: the impact of depression, fatigue and disability. Mult Scler 2001 7:340 4.
9. Benito-Leon J, Morales JM, Rivera-Navarro J. Health-related quality of life and its relationship to cognitive and emotional functioning in multiple sclerosis patients. Eur J Neurol 2002 9:497 502.
10. Vermersch P, De Seze J, Delisse B, Lemaire S, Stojkovic T. Quality of life in multiple sclerosis: influence of interferon-beta1 a (Avonex) treatment. Mult Scler 2002 8:377 81.
11. Nortvedt MW, Riise T, Myhr KM, Nyland HI. Quality of life in multiple sclerosis: measuring the disease effects more broadly. Neurology 1999 53:1098 103.
12. Archibald CJ, Mc Grath PJ, Ritvo PG et al. Pain prevalence, severity and impact in a clinic sample of multiple sclerosis patients. Pain 1994 58:89 93.
13. Marrie RA, Miller DM, Chelune GJ, Cohen JA. Validity and reliability of the MSQLI in cognitively impaired patients with multiple sclerosis. Mult Scler 2003 9:621 6.
14. Rao SM, Leo GJ, Ellington L, Nauertz T, Bernardin L, Unverzagt F. Cognitive dysfunction in multiple sclerosis. II. Impact on employment and social functioning. Neurology 1991 41:692 6.
15. Fruehwald S, Loeffler-Stastka H, Eher R, Saletu B, Baumhackl U. Depression and quality of life in multiple sclerosis. Acta Neurol Scand 2001 104:257 61.
16. Wang JL, Reimer MA, Metz LM, Patten SB. Major depression and quality of life in individuals with multiple sclerosis. Int J Psychiatry Med 2000 30:309 17.
17. Benedict RH, Wahlig E, Bakshi R et al. Predicting quality of life in multiple sclerosis: accounting for physical disability, fatigue, cognition, mood disorder, personality, and behavior change. J Neurol Sci 2005 231:29 34.
18. Janssens AC, Van Doorn PA, de Boer JB et al. Anxiety and depression influence the relation between disability status and quality of life in multiple sclerosis. Mult Scler 2003 9:397 403.
19. Lobentanz IS, Asenbaum S, Vass K et al. Factors influencing quality of life in multiple sclerosis patients: disability, depressive mood, fatigue and sleep quality. Acta Neurol Scand 2004 110:6 13.
20. Pfaffenberger N, Pfeiffer KP, Deibl M, Hofer S, Gunther V, Ulmer H. Association of factors influencing health-related quality of life in MS. Acta Neurol Scand 2006 114:102 8.
21. Gottberg K, Einarsson U, Ytterberg C et al. Health-related quality of life in a population-based sample of people with multiple sclerosis in Stockholm County. Mult Scler 2006 12:605 12.
22. Murphy H, Dickens C, Creed F, Bernstein R. Depression, illness perception and coping in rheumatoid arthritis. J Psychosom Res 1999 46:155 64.
23. Scharloo M, Kaptein AA, Weinman J et al. Illness perceptions, coping and functioning in patients with rheumatoid arthritis, chronic obstructive pulmonary disease and psoriasis. J Psychosom Res 1998 44:573 85.
24. Petrie KJ, Cameron LD, Ellis CJ, Buick D, Weinman J. Changing illness perceptions after myocardial infarction: an early intervention randomized controlled trial. Psychosom Med 2002 64:580 6.
25. Schiaffino KM, Shawaryn MA, Blum D. Examining the impact of illness representations on psychological adjustment to chronic illnesses. Health Psychol 1998 17:262 8.
26. Turk DC, Rudy TE, Salovey P. Implicit models of illness. J Behav Med 1986 9:453 74.
27. Vaughan R, Morrison L, Miller E. The illness representations of multiple sclerosis and their relations to outcome. Br J Health Psychol 2003 8:287 301.
28. Jopson NM, Moss-Morris R. The role of illness severity and illness representations in adjusting to multiple sclerosis. J Psychosom Res 2003 54:503 11 Discussion 513 4.
29. Rothwell PM, McDowell Z, Wong CK, Dorman PJ. Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis. BMJ 1997 314:1580 3.
30. National Health and Medical Research Council. National statement on ethical conduct in research involving humans. Canberra:Commonwealth of Australia, 1999.
31. Poser CM, Paty DW, Scheinberg L et al. New diagnostic criteria for multiple sclerosis: guidelines for research protocols. Ann Neurol 1983 13:227 31.
32. Paty DW, Oger JJ, Kastrukoff LF et al. MRI in the diagnosis of MS: a prospective study with comparison of clinical evaluation, evoked potentials, oligoclonal banding, and CT. Neurology 1988 38:180 5.
33. Kurtzke JF. Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology 1983 33:1444 52.
34. Smith A. Symbol Digit Modalites Test. Los Angeles, CA:Western Psychological Services, 1973.
35. Benedict RH, Fischer JS, Archibald CJ et al. Minimal neuropsychological assessment of MS patients: a consensus approach. Clin Neuropsychol 2002 16:381 97.
36. Demaree HA, Deluca J, Gaudino EA, Diamond BJ. Speed of information processing as a key deficit in multiple sclerosis: implications for rehabilitation. J Neurol Neurosurg Psychiatry 1999 67:661 3.
37. Rudick R, Antel J, Confavreux C et al. Recommendations from the National Multiple Sclerosis Society Clinical Outcomes Assessment Task Force. Ann Neurol 1997 42:379 82.
38. Gold SM, Schulz H, Monch A, Schulz KH, Heesen C. Cognitive impairment in multiple sclerosis does not affect reliability and validity of self-report health measures. Mult Scler 2003 9:404 10.
39. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983 67:361 70.
40. Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res 2002 52:69 77.
41. Janssens AC, Van Doorn PA, De Boer JB, Van Der Meche FG, Passchier J, Hintzen RQ. Impact of recently diagnosed multiple sclerosis on quality of life, anxiety, depression and distress of patients and partners. Acta Neurol Scand 2003 108:389 95.
42. Leventhal H, Meyer D, Nerenz D. The common sense representations of illness danger. In:Rachman S, ed. Medical psychology. New York:Pergamon Press, 1980 7 30.
43. Ware J, Kosinski M, Dewey J. How to score versions 2 of the SF-36 health survey. Lincon, RI:QualityMetric Incorporated, 2000.
44. Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Qual Life Res 1995 4:187 206.
45. Lau RR, Hartman KA. Common sense representations of common illness. Health Psychol 1983 2:167 85.
46. Barker-Collo SL. Quality of life in multiple sclerosis: does information-processing speed have an independent effect? Arch Clin Neuropsychol 2006 21:167 74.
47. Brunet DG, Hopman WM, Singer MA, Edgar CM, Mackenzie TA. Measurement of health-related quality of life in multiple sclerosis patients. Can J Neurol Sci 1996 23:99 103.
48. Carone DA, Benedict RH, Munschauer FE. Interpreting patient/informant discrepancies of reported cognitive symptoms in MS. J Int Neuropsychol Soc 2005 11:574 83.
49. Group W. Study protocol for the World Health Organisation project to develop a quality of life assessment instrument (WHOQOL). Qual Life Res 1993 2:153 9.
50. Hobart J, Freeman J, Lamping D, Fitzpatrick R, Thompson A. The SF-36 in multiple sclerosis: why basic assumptions must be tested. J Neurol Neurosurg Psychiatry 2001 71:363 70.