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Volumn 29, Issue 2, 2010, Pages 131-138

Evaluation of quality of life in children with heart disease

Author keywords

Acquired heart disease; Congenital heart disease; Health related quality of life; Pediatrics; Quality of life

Indexed keywords

ARTICLE; CLINICAL PRACTICE; CONGENITAL HEART DISEASE; HIGH RISK POPULATION; HUMAN; MORBIDITY; MORTALITY; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PEDIATRIC CARDIOLOGY; PRIORITY JOURNAL; QUALITY OF LIFE; SOCIAL PSYCHOLOGY; SURVIVAL;

EID: 77955334002     PISSN: 10589813     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ppedcard.2010.06.008     Document Type: Article
Times cited : (20)

References (56)
  • 1
    • 0037167689 scopus 로고    scopus 로고
    • Improved survival of patients undergoing palliation of hypoplastic left heart syndrome: lessons learned from 115 consecutive patients
    • Tweddell J.S., Hoffman G.M., Mussatto K.A., et al. Improved survival of patients undergoing palliation of hypoplastic left heart syndrome: lessons learned from 115 consecutive patients. Circulation 2002, 106:I82-I89.
    • (2002) Circulation , vol.106
    • Tweddell, J.S.1    Hoffman, G.M.2    Mussatto, K.A.3
  • 2
    • 18144453162 scopus 로고    scopus 로고
    • Survival after reconstructive surgery for hypoplastic left heart syndrome: a 15-year experience from a single institution
    • III
    • Mahle W.T., Spray T.L., Wernovsky G., Gaynor J.W., Clark B.J. Survival after reconstructive surgery for hypoplastic left heart syndrome: a 15-year experience from a single institution. Circulation 2000, 102:136-141. III.
    • (2000) Circulation , vol.102 , pp. 136-141
    • Mahle, W.T.1    Spray, T.L.2    Wernovsky, G.3    Gaynor, J.W.4    Clark, B.J.5
  • 3
    • 0035316293 scopus 로고    scopus 로고
    • Task force 1: the changing profile of congenital heart disease in adult life
    • Warnes C.A., Liberthson R., Danielson G.K., et al. Task force 1: the changing profile of congenital heart disease in adult life. J Am Coll Cardiol 2001, 37:1170-1175.
    • (2001) J Am Coll Cardiol , vol.37 , pp. 1170-1175
    • Warnes, C.A.1    Liberthson, R.2    Danielson, G.K.3
  • 4
    • 0034099787 scopus 로고    scopus 로고
    • Neurodevelopmental outcome and lifestyle assessment in school-aged and adolescent children with hypoplastic left heart syndrome
    • Mahle W.T., Clancy R.R., Moss E.M., Gerdes M., Jobes D.R., Wernovsky G. Neurodevelopmental outcome and lifestyle assessment in school-aged and adolescent children with hypoplastic left heart syndrome. Pediatrics 2000, 105:1082-1089.
    • (2000) Pediatrics , vol.105 , pp. 1082-1089
    • Mahle, W.T.1    Clancy, R.R.2    Moss, E.M.3    Gerdes, M.4    Jobes, D.R.5    Wernovsky, G.6
  • 5
    • 0034702915 scopus 로고    scopus 로고
    • Cognitive development after the Fontan operation
    • Wernovsky G., Stiles K.M., Gauvreau K., et al. Cognitive development after the Fontan operation. Circulation 2000, 102:883-889.
    • (2000) Circulation , vol.102 , pp. 883-889
    • Wernovsky, G.1    Stiles, K.M.2    Gauvreau, K.3
  • 6
    • 0344708490 scopus 로고    scopus 로고
    • Neurodevelopmental status at eight years in children with dextro-transposition of the great arteries: the Boston Circulatory Arrest Trial
    • Bellinger D.C., Wypij D., duPlessis A.J., et al. Neurodevelopmental status at eight years in children with dextro-transposition of the great arteries: the Boston Circulatory Arrest Trial. J Thoracic Cardiovasc Surg 2003, 126:1385-1396.
    • (2003) J Thoracic Cardiovasc Surg , vol.126 , pp. 1385-1396
    • Bellinger, D.C.1    Wypij, D.2    duPlessis, A.J.3
  • 7
    • 0031612462 scopus 로고    scopus 로고
    • How does the intervention of cardiac surgery affect the self-perception of children with congenital heart disease?
    • Wray J., Sensky T. How does the intervention of cardiac surgery affect the self-perception of children with congenital heart disease?. Child Care Health Dev 1998, 24:57-72.
    • (1998) Child Care Health Dev , vol.24 , pp. 57-72
    • Wray, J.1    Sensky, T.2
  • 8
    • 0029881382 scopus 로고    scopus 로고
    • Behavioral adjustment of children with surgically palliated complex congenital heart disease
    • Casey F.A., Sykes D.H., Craig B.G., Power R., Mulholland H.C. Behavioral adjustment of children with surgically palliated complex congenital heart disease. J Pediatr Psychol 1996, 21:335-352.
    • (1996) J Pediatr Psychol , vol.21 , pp. 335-352
    • Casey, F.A.1    Sykes, D.H.2    Craig, B.G.3    Power, R.4    Mulholland, H.C.5
  • 9
    • 0031815801 scopus 로고    scopus 로고
    • Psychological adaptation and adjustment of mothers of children with congenital heart disease: stress, coping, and family functioning
    • Davis C.C., Brown R.T., Bakeman R., Campbell R. Psychological adaptation and adjustment of mothers of children with congenital heart disease: stress, coping, and family functioning. J Pediatr Psychol 1998, 23:219-228.
    • (1998) J Pediatr Psychol , vol.23 , pp. 219-228
    • Davis, C.C.1    Brown, R.T.2    Bakeman, R.3    Campbell, R.4
  • 10
    • 0035869096 scopus 로고    scopus 로고
    • Exercise performance after the arterial switch operation for D-transposition of the great arteries
    • Mahle W.T., McBride M.G., Paridon S.M. Exercise performance after the arterial switch operation for D-transposition of the great arteries. Am J Cardiol 2001, 87:753-758.
    • (2001) Am J Cardiol , vol.87 , pp. 753-758
    • Mahle, W.T.1    McBride, M.G.2    Paridon, S.M.3
  • 11
    • 0035195524 scopus 로고    scopus 로고
    • Functional limitations in young children with congenital heart defects after cardiac surgery
    • Limperopoulos C., Majnemer A., Shevell M.I., et al. Functional limitations in young children with congenital heart defects after cardiac surgery. Pediatrics 2001, 108:1325-1331.
    • (2001) Pediatrics , vol.108 , pp. 1325-1331
    • Limperopoulos, C.1    Majnemer, A.2    Shevell, M.I.3
  • 12
    • 45849129460 scopus 로고    scopus 로고
    • A cross-sectional study of exercise performance during the first 2 decades of life after the Fontan operation
    • Paridon S.M., Mitchell P.D., Colan S.D., et al. A cross-sectional study of exercise performance during the first 2 decades of life after the Fontan operation. J Am Coll Cardiol 2008, 52:99-107.
    • (2008) J Am Coll Cardiol , vol.52 , pp. 99-107
    • Paridon, S.M.1    Mitchell, P.D.2    Colan, S.D.3
  • 13
    • 0021248683 scopus 로고
    • Methodology in behavioral and psychosocial cancer research Conceptualizing disease impact and treatment outcomes
    • Ware J.E. Methodology in behavioral and psychosocial cancer research Conceptualizing disease impact and treatment outcomes. Cancer 1984, 53:2316-2326.
    • (1984) Cancer , vol.53 , pp. 2316-2326
    • Ware, J.E.1
  • 14
    • 0024002889 scopus 로고
    • Quality of life: what is it? How should it be measured? Oncology (Williston Park), 1988 May
    • Aaronson NK. Quality of life: what is it? How should it be measured? Oncology (Williston Park) 1988; 1988 May;2: 69-76.
    • (1988) , vol.2 , pp. 69-76
    • Aaronson, N.K.1
  • 15
    • 4344597883 scopus 로고    scopus 로고
    • Measuring child health: scientific questions, challenges, and recommendations
    • Drotar D. Measuring child health: scientific questions, challenges, and recommendations. Ambul Pediatr 2004, 4:353-357.
    • (2004) Ambul Pediatr , vol.4 , pp. 353-357
    • Drotar, D.1
  • 16
    • 77955337518 scopus 로고    scopus 로고
    • World Health Organization. Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19-22 June 1946; signed on 22 July 1946 by the representatives of 61 States (Official Records of the World Health Organization, no) and entered into force on 7 April 1948.
    • World Health Organization. Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19-22 June 1946; signed on 22 July 1946 by the representatives of 61 States (Official Records of the World Health Organization, no. 2, p. 100) and entered into force on 7 April 1948.
    • , vol.2 , pp. 100
  • 17
    • 0025517785 scopus 로고
    • Functional status II(R): a measure of child health status
    • Stein RE, MD, Jessop DJ, Phd Functional status II(R): a measure of child health status. Med Care 1990, 28:1041-1055.
    • (1990) Med Care , vol.28 , pp. 1041-1055
    • Stein, R.E.1    Jessop, D.J.2
  • 19
    • 0035954119 scopus 로고    scopus 로고
    • Measuring quality of life: using quality of life measures in the clinical setting
    • Higginson I.J., Carr A.J. Measuring quality of life: using quality of life measures in the clinical setting. BMJ 2001, 322:1297-1300.
    • (2001) BMJ , vol.322 , pp. 1297-1300
    • Higginson, I.J.1    Carr, A.J.2
  • 20
    • 17544382779 scopus 로고    scopus 로고
    • A difference in perception of quality of life in chronically ill children was found between parents and pediatricians
    • Janse A.J., Uiterwaal C.S., Gemke R.J., Kimpen J.L., Sinnema G. A difference in perception of quality of life in chronically ill children was found between parents and pediatricians. J Clin Epidemiol 2005, 58:495-502.
    • (2005) J Clin Epidemiol , vol.58 , pp. 495-502
    • Janse, A.J.1    Uiterwaal, C.S.2    Gemke, R.J.3    Kimpen, J.L.4    Sinnema, G.5
  • 21
    • 65349177093 scopus 로고    scopus 로고
    • Quality-of-life concerns differ among patients, parents, and medical providers in children and adolescents with congenital and acquired heart disease
    • Marino B.S., Tomlinson R.S., Drotar D., et al. Quality-of-life concerns differ among patients, parents, and medical providers in children and adolescents with congenital and acquired heart disease. Pediatrics 2008, 123:e708-e715.
    • (2008) Pediatrics , vol.123
    • Marino, B.S.1    Tomlinson, R.S.2    Drotar, D.3
  • 22
    • 7644226158 scopus 로고    scopus 로고
    • Caliber of quality-of-life assessments in congenital heart disease: a plea for more conceptual and methodological rigor
    • Moons P., Van Deyk K., Budts W., De Geest S. Caliber of quality-of-life assessments in congenital heart disease: a plea for more conceptual and methodological rigor. Arch Pediatr Adolesc Med 2004, 158:1062-1069.
    • (2004) Arch Pediatr Adolesc Med , vol.158 , pp. 1062-1069
    • Moons, P.1    Van Deyk, K.2    Budts, W.3    De Geest, S.4
  • 23
    • 0028133538 scopus 로고
    • A critical appraisal of the quality of quality-of-life measurements
    • Gill T.M., Feinstein A.R. A critical appraisal of the quality of quality-of-life measurements. JAMA 1994, 272:619-626.
    • (1994) JAMA , vol.272 , pp. 619-626
    • Gill, T.M.1    Feinstein, A.R.2
  • 24
    • 0031777269 scopus 로고    scopus 로고
    • The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument development, descriptive statistics, and cross-informant variance
    • Varni J.W. The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument development, descriptive statistics, and cross-informant variance. J Behav Med 1998, 21:179-204.
    • (1998) J Behav Med , vol.21 , pp. 179-204
    • Varni, J.W.1
  • 25
    • 4344717341 scopus 로고    scopus 로고
    • Evidence that school-age children can self-report on their health Ambulatory Pediatrics
    • Riley A.W. Evidence that school-age children can self-report on their health Ambulatory Pediatrics. Official J Ambul Pediatr Assoc 2004, 4:371-376.
    • (2004) Official J Ambul Pediatr Assoc , vol.4 , pp. 371-376
    • Riley, A.W.1
  • 26
    • 4344586407 scopus 로고    scopus 로고
    • Measuring health status and quality of life for US children: relationship to race, ethnicity, and income status
    • Olson L.M., Pat Frintner M. Measuring health status and quality of life for US children: relationship to race, ethnicity, and income status. Ambul Pediatr 2004, 4:377-386.
    • (2004) Ambul Pediatr , vol.4 , pp. 377-386
    • Olson, L.M.1    Pat Frintner, M.2
  • 28
    • 0033073557 scopus 로고    scopus 로고
    • The PedsQL: measurement model for the pediatric quality of life inventory
    • Varni J.W., Seid M., Rode C.A. The PedsQL: measurement model for the pediatric quality of life inventory. Med Care 1999, 37:126-139.
    • (1999) Med Care , vol.37 , pp. 126-139
    • Varni, J.W.1    Seid, M.2    Rode, C.A.3
  • 29
    • 1942441531 scopus 로고    scopus 로고
    • A cardiac-specific health-related quality of life module for young adults with congenital heart disease: development and validation
    • Kamphuis M., Zwinderman K.H., Vogels T., et al. A cardiac-specific health-related quality of life module for young adults with congenital heart disease: development and validation. Qual Life Res 2004, 13:735-745.
    • (2004) Qual Life Res , vol.13 , pp. 735-745
    • Kamphuis, M.1    Zwinderman, K.H.2    Vogels, T.3
  • 30
    • 0242558153 scopus 로고    scopus 로고
    • The pediatric quality of life inventory in children with heart disease
    • Uzark K., Jones K., Burwinkle T.M., Varni J.W. The pediatric quality of life inventory in children with heart disease. Prog Pediatr Cardiol 2003, 18:141-149.
    • (2003) Prog Pediatr Cardiol , vol.18 , pp. 141-149
    • Uzark, K.1    Jones, K.2    Burwinkle, T.M.3    Varni, J.W.4
  • 31
    • 0035405246 scopus 로고    scopus 로고
    • Factors associated with self-perceived state of health in adolescents with congenital cardiac disease attending paediatric cardiologic clinics
    • Kendall L., Lewin R.J., Parsons J.M., Veldtman G.R., Quirk J., Hardman G.E. Factors associated with self-perceived state of health in adolescents with congenital cardiac disease attending paediatric cardiologic clinics. Cardiol Young 2001, 11:431-438.
    • (2001) Cardiol Young , vol.11 , pp. 431-438
    • Kendall, L.1    Lewin, R.J.2    Parsons, J.M.3    Veldtman, G.R.4    Quirk, J.5    Hardman, G.E.6
  • 32
    • 33747739136 scopus 로고    scopus 로고
    • The development of a new measure of quality of life for children with congenital cardiac disease
    • Macran S., Birks Y., Parsons J., et al. The development of a new measure of quality of life for children with congenital cardiac disease. Cardiol Young 2006, 16:165-172.
    • (2006) Cardiol Young , vol.16 , pp. 165-172
    • Macran, S.1    Birks, Y.2    Parsons, J.3
  • 33
    • 43049179995 scopus 로고    scopus 로고
    • The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease
    • Marino B.S., Shera D., Wernovsky G., et al. The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease. Qual Life Res 2008, 17:613-626.
    • (2008) Qual Life Res , vol.17 , pp. 613-626
    • Marino, B.S.1    Shera, D.2    Wernovsky, G.3
  • 36
    • 11944265594 scopus 로고
    • Validity of psychological assessment: validation of inferences from persons' responses and performances as scientific inquiry into score meaning
    • Messick S. Validity of psychological assessment: validation of inferences from persons' responses and performances as scientific inquiry into score meaning. Am Psychol 1995, 50:741-749.
    • (1995) Am Psychol , vol.50 , pp. 741-749
    • Messick, S.1
  • 37
    • 0029130577 scopus 로고
    • Constructing validity: basic issues in objective scale development
    • Clark L.A., Watson D. Constructing validity: basic issues in objective scale development. Psychol Assess 1995, 7:309-319.
    • (1995) Psychol Assess , vol.7 , pp. 309-319
    • Clark, L.A.1    Watson, D.2
  • 38
    • 0036112505 scopus 로고    scopus 로고
    • Assessing health status and quality-of-life instruments: attributes and review criteria
    • Lohr K.N. Assessing health status and quality-of-life instruments: attributes and review criteria. Qual Life Res 2002, 11:193-205.
    • (2002) Qual Life Res , vol.11 , pp. 193-205
    • Lohr, K.N.1
  • 42
    • 0942287075 scopus 로고    scopus 로고
    • Health-related quality of life in children attending a cardiology clinic
    • Walker R.E., Gauvreau K., Jenkins K.J. Health-related quality of life in children attending a cardiology clinic. Pediatr Cardiol 2004, 25:40-48.
    • (2004) Pediatr Cardiol , vol.25 , pp. 40-48
    • Walker, R.E.1    Gauvreau, K.2    Jenkins, K.J.3
  • 43
    • 33747634678 scopus 로고    scopus 로고
    • Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery
    • Majnemer A., Limperopoulos C., Shevell M., Rohlicek C., Rosenblatt B., Tchervenkov C. Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery. Cardiol Young 2006, 16:157-164.
    • (2006) Cardiol Young , vol.16 , pp. 157-164
    • Majnemer, A.1    Limperopoulos, C.2    Shevell, M.3    Rohlicek, C.4    Rosenblatt, B.5    Tchervenkov, C.6
  • 44
    • 0025832538 scopus 로고
    • The impact of maternal perceptions and medical severity on the adjustment of children with congenital heart disease
    • DeMaso D.R., Campis L.K., Wypij D., Bertram S., Lipshitz M., Freed M. The impact of maternal perceptions and medical severity on the adjustment of children with congenital heart disease. J Pediatr Psychol 1991, 16:137-149.
    • (1991) J Pediatr Psychol , vol.16 , pp. 137-149
    • DeMaso, D.R.1    Campis, L.K.2    Wypij, D.3    Bertram, S.4    Lipshitz, M.5    Freed, M.6
  • 45
    • 21844435494 scopus 로고    scopus 로고
    • Quality of life following surgery for congenital cardiac malformations in neonates and infants
    • Mussatto K., Tweddell J. Quality of life following surgery for congenital cardiac malformations in neonates and infants. Cardiol Young 2005, 15(Suppl 1):174-178.
    • (2005) Cardiol Young , vol.15 , Issue.SUPPL. 1 , pp. 174-178
    • Mussatto, K.1    Tweddell, J.2
  • 46
  • 47
    • 60949110963 scopus 로고    scopus 로고
    • Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review
    • Latal B. Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review. BMC Pediatr 2009, 9:6.
    • (2009) BMC Pediatr , vol.9 , pp. 6
    • Latal, B.1
  • 48
    • 0042433546 scopus 로고    scopus 로고
    • Quality of life of children after repair of transposition of the great arteries
    • Culbert E.L., Ashburn D.A., Cullen-Dean G., et al. Quality of life of children after repair of transposition of the great arteries. Circulation 2003, 108:857-862.
    • (2003) Circulation , vol.108 , pp. 857-862
    • Culbert, E.L.1    Ashburn, D.A.2    Cullen-Dean, G.3
  • 49
    • 0035908958 scopus 로고    scopus 로고
    • General health status of children with D-transposition of the great arteries after the arterial switch operation
    • Dunbar-Masterson C., Wypij D., Bellinger D.C., et al. General health status of children with D-transposition of the great arteries after the arterial switch operation. Circulation 2001, 104:I138-I142.
    • (2001) Circulation , vol.104
    • Dunbar-Masterson, C.1    Wypij, D.2    Bellinger, D.C.3
  • 50
    • 0036900711 scopus 로고    scopus 로고
    • Long term behavioural outcome after neonatal arterial switch operation for transposition of the great arteries
    • Hovels-Gurich H.H., Konrad K., Wiesner M., et al. Long term behavioural outcome after neonatal arterial switch operation for transposition of the great arteries. Arch Dis Child 2002, 87:506-510.
    • (2002) Arch Dis Child , vol.87 , pp. 506-510
    • Hovels-Gurich, H.H.1    Konrad, K.2    Wiesner, M.3
  • 51
    • 34250834457 scopus 로고    scopus 로고
    • Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease
    • Brosig C.L., Mussatto K.A., Kuhn E.M., Tweddell J.S. Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatr Cardiol 2007, 28:255-262.
    • (2007) Pediatr Cardiol , vol.28 , pp. 255-262
    • Brosig, C.L.1    Mussatto, K.A.2    Kuhn, E.M.3    Tweddell, J.S.4
  • 52
    • 33645314424 scopus 로고    scopus 로고
    • Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure
    • McCrindle B.W., Williams R.V., Mitchell P.D., et al. Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation 2006, 113:1123-1129.
    • (2006) Circulation , vol.113 , pp. 1123-1129
    • McCrindle, B.W.1    Williams, R.V.2    Mitchell, P.D.3
  • 53
    • 1442324358 scopus 로고    scopus 로고
    • Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators
    • DeMaso D.R., Lauretti A., Spieth L., et al. Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators. Am J Cardiol 2004, 93:582-587.
    • (2004) Am J Cardiol , vol.93 , pp. 582-587
    • DeMaso, D.R.1    Lauretti, A.2    Spieth, L.3
  • 54
    • 1842529455 scopus 로고    scopus 로고
    • The longitudinal impact of psychological functioning, medical severity, and family functioning in pediatric heart transplantation
    • DeMaso D.R., Douglas Kelley S., Bastardi H., O'Brien P., Blume E.D. The longitudinal impact of psychological functioning, medical severity, and family functioning in pediatric heart transplantation. J Heart Lung Transplant 2004, 23:473-480.
    • (2004) J Heart Lung Transplant , vol.23 , pp. 473-480
    • DeMaso, D.R.1    Douglas Kelley, S.2    Bastardi, H.3    O'Brien, P.4    Blume, E.D.5
  • 55
    • 33344459001 scopus 로고    scopus 로고
    • Longitudinal assessment of psychological functioning in children after heart or heart-lung transplantation
    • Wray J., Radley-Smith R. Longitudinal assessment of psychological functioning in children after heart or heart-lung transplantation. Journal of Heart and Lung Transplantation 2006, 25:345-352.
    • (2006) Journal of Heart and Lung Transplantation , vol.25 , pp. 345-352
    • Wray, J.1    Radley-Smith, R.2


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