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Volumn 17, Issue 4, 2008, Pages 613-626

The development of the pediatric cardiac quality of life inventory: A quality of life measure for children and adolescents with heart disease

Author keywords

Children adolescents; Congenital heart disease; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; EMOTIONALITY; FEMALE; HEART DISEASE; HEART SINGLE VENTRICLE; HEART VENTRICLE; HUMAN; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; PEDIATRIC CARDIAC QUALITY OF LIFE INVENTORY; PILOT STUDY; PRINCIPAL COMPONENT ANALYSIS; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; QUALITY OF LIFE;

EID: 43049179995     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-008-9323-8     Document Type: Article
Times cited : (105)

References (61)
  • 1
    • 18144453162 scopus 로고    scopus 로고
    • Survival after reconstructive surgery for hypoplastic left heart syndrome: A 15-year experience from a single institution
    • Suppl 3
    • Mahle, W. T., Spray, T. L., Wernovsky, G., Gaynor, J. W., & Clark, B. J. 3rd. (2000). Survival after reconstructive surgery for hypoplastic left heart syndrome: A 15-year experience from a single institution. Circulation, 102(Suppl 3), 136-141.
    • (2000) Circulation , vol.102 , pp. 136-141
    • Mahle, W.T.1    Spray, T.L.2    Wernovsky, G.3    Gaynor, J.W.4    Clark III, B.J.5
  • 2
    • 0027305780 scopus 로고
    • Advances in pediatric cardiac surgery
    • 9 Suppl
    • Leijala, M. (1993). Advances in pediatric cardiac surgery. Critical Care Medicine, 21(9 Suppl), S327-S329.
    • (1993) Critical Care Medicine , vol.21
    • Leijala, M.1
  • 3
    • 0034759374 scopus 로고    scopus 로고
    • Congenital heart disease and cardiac surgery in childhood: Effects on cognitive function and academic ability
    • Wray, J., & Sensky, T. (2001). Congenital heart disease and cardiac surgery in childhood: Effects on cognitive function and academic ability. Heart, 85, 687-691.
    • (2001) Heart , vol.85 , pp. 687-691
    • Wray, J.1    Sensky, T.2
  • 4
    • 0034099787 scopus 로고    scopus 로고
    • Neurodevelopmental outcome and lifestyle assessment in school-age and adolescent children with hypoplastic left heart syndrome
    • Mahle, W. T., Clancy, R. R., Moss, E., Gerdes, M., Jobes, D. R., & Wernovsky, G. (2000). Neurodevelopmental outcome and lifestyle assessment in school-age and adolescent children with hypoplastic left heart syndrome. Pediatrics, 105, 1082-1089.
    • (2000) Pediatrics , vol.105 , pp. 1082-1089
    • Mahle, W.T.1    Clancy, R.R.2    Moss, E.3    Gerdes, M.4    Jobes, D.R.5    Wernovsky, G.6
  • 11
    • 0027133203 scopus 로고
    • Cardiopulmonary performance at rest and exercise after repair of total anomalous pulmonary venous connection
    • Paridon, S. M., Sullivan, N. M., Schneider, J., & Pinsky, W. W. (1993). Cardiopulmonary performance at rest and exercise after repair of total anomalous pulmonary venous connection. American Journal of Cardiology, 72, 1444-1447.
    • (1993) American Journal of Cardiology , vol.72 , pp. 1444-1447
    • Paridon, S.M.1    Sullivan, N.M.2    Schneider, J.3    Pinsky, W.W.4
  • 12
    • 0035869096 scopus 로고    scopus 로고
    • Exercise performance after the arterial switch operation for d-transposition of the great arteries
    • Mahle, W. T., McBride, M. G., & Paridon, S. M. (2001). Exercise performance after the arterial switch operation for d-transposition of the great arteries. American Journal of Cardiology, 87, 753-758.
    • (2001) American Journal of Cardiology , vol.87 , pp. 753-758
    • Mahle, W.T.1    McBride, M.G.2    Paridon, S.M.3
  • 13
    • 0030844512 scopus 로고    scopus 로고
    • Exercise performance following repair of hypoplastic left heart syndrome: A comparison with other types of Fontan patients
    • Joshi, V. M., Carey, A., Simpson, P., & Paridon, S. M. (1997). Exercise performance following repair of hypoplastic left heart syndrome: A comparison with other types of Fontan patients. Pediatric Cardiology, 18, 357-360.
    • (1997) Pediatric Cardiology , vol.18 , pp. 357-360
    • Joshi, V.M.1    Carey, A.2    Simpson, P.3    Paridon, S.M.4
  • 14
    • 0036516181 scopus 로고    scopus 로고
    • Exercise performance in tetralogy of Fallot: The impact of primary complete repair in infancy
    • Mahle, W. T., McBride, M. G., & Paridon, S. M. (2002). Exercise performance in tetralogy of Fallot: the impact of primary complete repair in infancy. Pediatric Cardiology, 23, 224-229.
    • (2002) Pediatric Cardiology , vol.23 , pp. 224-229
    • Mahle, W.T.1    McBride, M.G.2    Paridon, S.M.3
  • 15
    • 0031612462 scopus 로고    scopus 로고
    • How does the intervention of cardiac surgery affect the self perception of children with congenital heart disease?
    • Wray, J., & Sensky, T. (1998). How does the intervention of cardiac surgery affect the self perception of children with congenital heart disease? Child: Care, Health and Development, 24, 57-72.
    • (1998) Child: Care, Health and Development , vol.24 , pp. 57-72
    • Wray, J.1    Sensky, T.2
  • 16
    • 0029881382 scopus 로고    scopus 로고
    • Behavioral adjustment of children with surgically palliated complex congenital heart disease
    • Casey, F. A., Sykes, D. H., Craig, B. G., Power, R., & Mulholland, H. C. (1996). Behavioral adjustment of children with surgically palliated complex congenital heart disease. Journal of Pediatric Psychology, 21, 335-352.
    • (1996) Journal of Pediatric Psychology , vol.21 , pp. 335-352
    • Casey, F.A.1    Sykes, D.H.2    Craig, B.G.3    Power, R.4    Mulholland, H.C.5
  • 17
    • 0031815801 scopus 로고    scopus 로고
    • Psychological adaptation and adjustment of mothers of children with congenital heart disease: Stress, coping, and family functioning
    • Davis, C. C., Brown, R. T., Bakeman, R., & Campbell, R. (1998). Psychological adaptation and adjustment of mothers of children with congenital heart disease: Stress, coping, and family functioning. Journal of Pediatric Psychology, 23, 219-228.
    • (1998) Journal of Pediatric Psychology , vol.23 , pp. 219-228
    • Davis, C.C.1    Brown, R.T.2    Bakeman, R.3    Campbell, R.4
  • 18
    • 7644226158 scopus 로고    scopus 로고
    • Caliber of quality of life assessments in congenital heart disease: A plea for more conceptual and methodological rigor
    • Moons, P., Van Deyk, K., Budts, W., & De Geest, S. (2004). Caliber of quality of life assessments in congenital heart disease: A plea for more conceptual and methodological rigor. Archives of Pediatrics and Adolescent Medicine, 158, 1062-1069.
    • (2004) Archives of Pediatrics and Adolescent Medicine , vol.158 , pp. 1062-1069
    • Moons, P.1    Van Deyk, K.2    Budts, W.3    De Geest, S.4
  • 19
    • 0031777269 scopus 로고    scopus 로고
    • The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument development, descriptive statistics, and cross-informant variance
    • Varni, J. W. (1998). The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument development, descriptive statistics, and cross-informant variance. Journal of Behavioral Medicine, 21, 179-204.
    • (1998) Journal of Behavioral Medicine , vol.21 , pp. 179-204
    • Varni, J.W.1
  • 21
    • 0033073557 scopus 로고    scopus 로고
    • TM. Measurement model for the Pediatric Quality of Life Inventory
    • TM. Measurement model for the Pediatric Quality of Life Inventory. Medical Care, 37, 126-139.
    • (1999) Medical Care , vol.37 , pp. 126-139
    • Varni, J.W.1    Seid, M.2    Rode, C.A.3
  • 22
    • 0024637480 scopus 로고
    • Generic and disease specific measures in assessing health status and quality of life
    • Patrick, D. L., & Deyo, R. A. (1989). Generic and disease specific measures in assessing health status and quality of life. Medical Care, 27, S217-S232.
    • (1989) Medical Care , vol.27
    • Patrick, D.L.1    Deyo, R.A.2
  • 25
    • 0026132160 scopus 로고
    • A modified quality of life measure for youths: Psychometric properties
    • Ingersoll, G. M., & Marrero, D. G. (1990). A modified quality of life measure for youths: Psychometric properties. Diabetes Educator, 17, 114-120.
    • (1990) Diabetes Educator , vol.17 , pp. 114-120
    • Ingersoll, G.M.1    Marrero, D.G.2
  • 26
    • 0029163421 scopus 로고
    • The quality of life of children with chronic epilepsy and their families: Preliminary findings with a new assessment measure
    • Hoare, P., & Russell, M. (1995). The quality of life of children with chronic epilepsy and their families: Preliminary findings with a new assessment measure. Developmental Medicine and Child Neurology, 37, 689-696.
    • (1995) Developmental Medicine and Child Neurology , vol.37 , pp. 689-696
    • Hoare, P.1    Russell, M.2
  • 27
    • 0028589353 scopus 로고
    • A new self assessment questionnaire to measure well-being in children, particularly those of short stature
    • Wiklund, I., Wiren, L., Erling, A., Karlberg, J., & Albertsson-Wikland, K. (1994). A new self assessment questionnaire to measure well-being in children, particularly those of short stature. Quality of Life Research, 3, 449-455.
    • (1994) Quality of Life Research , vol.3 , pp. 449-455
    • Wiklund, I.1    Wiren, L.2    Erling, A.3    Karlberg, J.4    Albertsson-Wikland, K.5
  • 28
    • 0028600666 scopus 로고
    • Development and validation of the pediatric oncology quality of life scale
    • Goodwin, D., Boggs, S. R., & Graham-Pole, J. (1994). Development and validation of the pediatric oncology quality of life scale. Psychological Assessment, 6, 321-328.
    • (1994) Psychological Assessment , vol.6 , pp. 321-328
    • Goodwin, D.1    Boggs, S.R.2    Graham-Pole, J.3
  • 31
    • 0035405246 scopus 로고    scopus 로고
    • Factors associated with self-perceived state of health in adolescents with congenital cardiac disease attending pediatric cardiologic clinics
    • Kendall, L., Lewin, R. J. P., Parsons, J. M., Veldtman, G. R., Quirk, J., & Hardman, G. F. (2001). Factors associated with self-perceived state of health in adolescents with congenital cardiac disease attending pediatric cardiologic clinics. Cardiology in the Young, 11, 431-438.
    • (2001) Cardiology in the Young , vol.11 , pp. 431-438
    • Kendall, L.1    Lewin, R.J.P.2    Parsons, J.M.3    Veldtman, G.R.4    Quirk, J.5    Hardman, G.F.6
  • 35
    • 0030141223 scopus 로고    scopus 로고
    • The use of the Nominal Group Technique in research with community nurses
    • Carney, O., McIntosh, J., & Worth, A. (1996). The use of the Nominal Group Technique in research with community nurses. Journal of Advanced Nursing, 23, 1024-1029.
    • (1996) Journal of Advanced Nursing , vol.23 , pp. 1024-1029
    • Carney, O.1    McIntosh, J.2    Worth, A.3
  • 36
  • 39
    • 0033566769 scopus 로고    scopus 로고
    • International conference on harmonization tripartite guideline: Statistical principles for clinical trials
    • Lewis, J. A. (1999). International conference on harmonization tripartite guideline: Statistical principles for clinical trials. Statistics in Medicine, 18, 1905-1942.
    • (1999) Statistics in Medicine , vol.18 , pp. 1905-1942
    • Lewis, J.A.1
  • 40
  • 41
    • 14544274112 scopus 로고    scopus 로고
    • Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer
    • Chang, P., & Yeh, C. (2005). Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Psycho-Oncology, 14, 125-134.
    • (2005) Psycho-Oncology , vol.14 , pp. 125-134
    • Chang, P.1    Yeh, C.2
  • 43
    • 0345307278 scopus 로고    scopus 로고
    • Agreement between adolescent self-report and parent reports of health and well-being: Results of an epidemiological study
    • Waters, E., Stewart-Brown, S., & Fitzpatrick, R. (2003). Agreement between adolescent self-report and parent reports of health and well-being: Results of an epidemiological study. Child: Care, Health & Development, 29, 501-509.
    • (2003) Child: Care, Health & Development , vol.29 , pp. 501-509
    • Waters, E.1    Stewart-Brown, S.2    Fitzpatrick, R.3
  • 44
    • 0036785439 scopus 로고    scopus 로고
    • Outcomes after the Fontan procedure
    • Marino, B. S. (2002). Outcomes after the Fontan procedure. Current Opinion in Pediatrics, 14, 620-626.
    • (2002) Current Opinion in Pediatrics , vol.14 , pp. 620-626
    • Marino, B.S.1
  • 45
    • 33645314424 scopus 로고    scopus 로고
    • Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure
    • McCrindle, B. W., Williams, R. V., Mitchell, P. D., Hsu, D. T., Paridon, S. M., Atz, A. M., Li, J. S., & Newburger, J. W. (2006). Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation, 113, 1123-1129.
    • (2006) Circulation , vol.113 , pp. 1123-1129
    • McCrindle, B.W.1    Williams, R.V.2    Mitchell, P.D.3    Hsu, D.T.4    Paridon, S.M.5    Atz, A.M.6    Li, J.S.7    Newburger, J.W.8
  • 51
    • 0034123192 scopus 로고    scopus 로고
    • Validation of a new quality of life measure for children with epilepsy
    • Sabaz, M., Cairns, D. R., Lawson, J. A., Nheu, N., Bleasel, A. F., & Bye, A. M. E. (2000). Validation of a new quality of life measure for children with epilepsy. Epilepsia, 41, 765-774.
    • (2000) Epilepsia , vol.41 , pp. 765-774
    • Sabaz, M.1    Cairns, D.R.2    Lawson, J.A.3    Nheu, N.4    Bleasel, A.F.5    Bye, A.M.E.6
  • 52
    • 0345307278 scopus 로고    scopus 로고
    • Agreement between adolescents self-report and parent reports of health and well-being: Results of an epidemiological study
    • Waters, E., Stewart-Brown, S., & Fitzpatrick, R. (2003). Agreement between adolescents self-report and parent reports of health and well-being: Results of an epidemiological study. Child: Care, Health and Development, 29, 501-509.
    • (2003) Child: Care, Health and Development , vol.29 , pp. 501-509
    • Waters, E.1    Stewart-Brown, S.2    Fitzpatrick, R.3
  • 53
    • 1642474363 scopus 로고    scopus 로고
    • Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis
    • Britto, M. T., Kotegal, U. R., Chenier, T., Tsevat, J., Atherton, H. D., & Wilmott, R. W. (2004). Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis. Pediatric Pulmonology, 37, 165-171.
    • (2004) Pediatric Pulmonology , vol.37 , pp. 165-171
    • Britto, M.T.1    Kotegal, U.R.2    Chenier, T.3    Tsevat, J.4    Atherton, H.D.5    Wilmott, R.W.6
  • 57
    • 0036235279 scopus 로고    scopus 로고
    • Racial differences in factors that influence the willingness to participate in medical research studies
    • Shavers, V. L., Lynch, C. F., & Burmeister, L. F. (2002). Racial differences in factors that influence the willingness to participate in medical research studies. Annals of Epidemiology, 12, 248-256.
    • (2002) Annals of Epidemiology , vol.12 , pp. 248-256
    • Shavers, V.L.1    Lynch, C.F.2    Burmeister, L.F.3
  • 58
    • 0027569430 scopus 로고
    • The MOS 36-item short form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs
    • McHorney, C. A., Ware, J. E., & Raczek, A. E. (1993). The MOS 36-item short form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31, 247-263.
    • (1993) Medical Care , vol.31 , pp. 247-263
    • McHorney, C.A.1    Ware, J.E.2    Raczek, A.E.3
  • 59
    • 0033937689 scopus 로고    scopus 로고
    • Relationship between disease and psychological adaptation in children and the childhood asthma management program and their families
    • CAMP Research Group
    • Bender, B. G., Annett, R. D., Ikle, D., DuHamel, T. R., Rand, C., & Strunk, R. C. CAMP Research Group (2000). Relationship between disease and psychological adaptation in children and the childhood asthma management program and their families. Archives of Pediatrics and Adolescent Medicine, 154, 706-713.
    • (2000) Archives of Pediatrics and Adolescent Medicine , vol.154 , pp. 706-713
    • Bender, B.G.1    Annett, R.D.2    Ikle, D.3    Duhamel, T.R.4    Rand, C.5    Strunk, R.C.6
  • 61
    • 23644437528 scopus 로고    scopus 로고
    • Biopsychosocial experiences of adults with congenital heart disease: Review of the literature
    • Kovacs, A. H., Sears, S. F., & Saidi, A. S. (2005). Biopsychosocial experiences of adults with congenital heart disease: Review of the literature. American Heart Journal, 150, 193-201.
    • (2005) American Heart Journal , vol.150 , pp. 193-201
    • Kovacs, A.H.1    Sears, S.F.2    Saidi, A.S.3


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