What influences individuals to engage in advance care planning?

American Journal of Hospice and Palliative Medicine

Volumn 27, Issue 5, 2010, Pages 306-312

  Levi, Benjamin H ^a   Dellasega, Cheryl ^a   Whitehead, Megan ^a   Green, Michael J ^a  

^a PENN STATE COLLEGE OF MEDICINE   (United States)

Author keywords

advance care planning; advance directive; bioethics; decision making; end of life; focus group; living will

Indexed keywords

AGED; ARTICLE; ATTITUDE TO HEALTH; DAILY LIFE ACTIVITY; DECISION MAKING; FEMALE; HUMAN; INFORMATION PROCESSING; LITERATURE; LIVING WILL; MALE; METHODOLOGY; MIDDLE AGED; PATIENT CARE; PATIENT EDUCATION; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; SELF CARE; UNITED STATES;

ACTIVITIES OF DAILY LIVING; ADVANCE CARE PLANNING; ADVANCE DIRECTIVES; AGED; AGED, 80 AND OVER; ANECDOTES AS TOPIC; ATTITUDE TO HEALTH; DECISION MAKING; FEMALE; FOCUS GROUPS; HUMANS; MALE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; PENNSYLVANIA; QUALITY OF LIFE; QUESTIONNAIRES; SELF CARE;

EID: 77955320062     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909109355280     Document Type: Article

References (50)

1. Doukas DJ, McCullough LB The values history. The evaluation of the patient's values and advance directives. J Fam Pract. 1991; 32(2):145-153.
2. Lo B., Steinbrook R. Resuscitating advance directives. Arch Intern Med. 2004;164(14):1501-1506.
3. Miles SH, Koepp R., Weber EP Advance end-of-life treatment planning. A research review. Arch Intern Med. 1996;156(10):1062-1068.
4. Prendergast TJ Advance care planning: pitfalls, progress, promise. Crit Care Med. 2001;29(2 suppl):N34-N39.
5. Schwartz CE, Wheeler HB, Hammes B.,et al.Early intervention in planning end-of-life care with ambulatory geriatric patients: results of a pilot trial. Arch Intern Med. 2002;162(14):1611-1618.
6. Perkins HS Controlling death: the false promise of advance directives. Ann Intern Med. 2007;147(1):51-57.
7. Singer PA, Martin DK, Lavery JV, Thiel EC, Kelner M., Mendelssohn DC Reconceptualizing advance care planning from the patient's perspective. Arch Intern Med. 1998;158(8):879-884.
8. McAuley WJ, Buchanan RJ, Travis SS, Wang S., Kim M. Recent trends in advance directives at nursing home admission and one year after admission. Gerontologist. 2006;46(3):377-381.
9. Stelter KL, Elliott BA, Bruno CA Living will completion in older adults. Arch Intern Med. 1992;152(5):954-959.
10. Curtis JR, Patrick DL, Caldwell ES, Collier AC Why don't patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Arch Intern Med. 2000; 160(11):1690-1696.
11. Despreaux MC, Coughlin DT, Drickamer MA Discussing advance directives: a study of outpatients' attitudes. J Gen Intern Med. 1996;11(1):114.
12. Forow L. The green eggs and ham phenomenon. Hastings Center Report. 1994;24(6):S29-S32.
13. Holley JL, Hines SC, Glover JJ, Babrow AS, Badzek LA, Moss AH Failure of advance care planning to elicit patients' preferences for withdrawal from dialysis. Am J Kidney Dis. 1999; 33(4):688-693.
14. Marchand L., Fowler KJ, Kokanovic O. Building successful coalitions to promote advance care planning. Am J Hosp Palliat Care. 2005;22(6):437-441.
15. Marchand L., Fowler KJ, Kokanovic O. Building successful coalitions for promoting advance care planning. Am J Hosp Palliat Care. 2006;23(2):119-126.
16. Perkins HS, Geppert CM, Gonzales A., Cortez JD, Hazuda HP Cross-cultural similarities and differences in attitudes about advance care planning. J Gen Intern Med. 2002;17(1):48-57.
17. Support PI A Controlled trial to improve care for seriously ill hospitalized patients: the study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA. 1995;274(20):1591-1598.
18. Teno JM, Lynn J., Phillips RS,et al.Do formal advance directives affect resuscitation decisions and the use of resources for seriously ill patients? SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. J Clin Ethics. 1994;5(1):23-30.
19. Upadya A., Muralidharan V., Thorevska N., Amoateng-Adjepong Y., Manthous CA Patient, physician, and family member understanding of living wills. Am J Respir Crit Care Med. 2002;166(11):1430-1435.
20. Volandes AE, Lehmann LS, Cook EF, Shaykevich S., Abbo ED, Gillick MR Using video images of dementia in advance care planning. Arch Intern Med. 2007;167(8):828-833.
21. Ditto PH, Danks JH, Smucker WD,et al.Advance directives as acts of communication: a randomized controlled trial. Arch Intern Med. 2001;161(3):421-430.
22. Fagerlin A., Schneider CE Enough. The failure of the living will. Hastings Cent Rep. 2004;34(2):30-42.
23. Hammes BJ, Rooney BL Death and end-of-life planning in one midwestern community. Arch Intern Med. 1998;158(4):383-390.
24. Teno J., Lynn J., Phillips R.,et al.Do advance directives save resources? Clin Res. 1993;41(2):551A.
25. Teno JM, Licks S., Lynn J.,et al.Do advance directives provide instructions that direct care? SUPPORT Investigators. Study to understand prognoses and preferences for outcomes and risks of treatment. J Am Geriatr Soc. 1997;45(4):508-512.
26. Tulsky JA Beyond advance directives: importance of communication skills at the end of life. JAMA. 2005;294(3):359-365.
27. Larson DG, Tobin DR End-of-life conversations: evolving practice and theory. JAMA. 2000;284(12):1573-1578.
28. Arora NK, McHorney CA Patient preferences for medical decision making: who really wants to participate? Med Care. Mar 2000;38(3):335-341.
29. Berry SR, Singer PA The cancer specific advance directive. Cancer. 1998;82(8):1570-1577.
30. Ditto PH, Jacobson JA, Smucker WD, Danks JH, Fagerlin A. Context changes choices: a prospective study of the effects of hospitalization on life-sustaining treatment preferences. Med Decis Making. 2006;26(4):313-322.
31. Fried TR, Bradley EH What matters to seriously ill older persons making end-of-life treatment decisions?: A qualitative study. J Palliat Med. 2003;6(2):237-244.
32. Fried TR, Bradley EH, Towle VR Assessment of patient preferences: integrating treatments and outcomes. J Gerontol B Psychol Sci Soc Sci. 2002;57(6):S348-354.
33. Fried TR, Bradley EH, Towle VR, Allore H. Understanding the treatment preferences of seriously ill patients. N Engl J Med. 2002;346(14):1061-1066.
34. Fried TR, Byers AL, Gallo WT,et al.Prospective study of health status preferences and changes in preferences over time in older adults. Arch Intern Med. 2006;166(8):890-895.
35. Singer PA Disease-specific advance directives. Lancet. 1994; 344(8922):594-596.
36. Carr D., Khodyakov D. End-of-life health care planning among young-old adults: an assessment of psychosocial influences. J Gerontol B Psychol Sci Soc Sci. 2007;62(2):S135-S141.
37. Annas GJ Culture of life" politics at the bedside-the case of Terri Schiavo. N Engl J Med. 2005;352(16):1710-1715.
38. Quill TE Terri Schiavo-a tragedy compounded. N Engl J Med. 2005;352(16):1630-1633.
39. Wolfson J. Erring on the side of Theresa Schiavo: reflections of the special guardian ad litem. Hastings Cent Rep. 2005;35(3): 16-19.
40. Gordon NP, Shade SB Advance directives are more likely among seniors asked about end-of-life care preferences. Arch Intern Med. 1999;159(7):701-704.
41. Green MJ, Levi BH Development of an interactive computer program for advance care planning. Health Expectations. 2009; 12(1):60-69.
42. Morgan DL Focus Groups. Ann Rev Sociol. 1996;22:129-152.
43. Kreuger RA Focus Groups: A Practical Guide for Applied Research. London: SAGE; 1988.
44. Miller WJ, Rollnick S. Motivational Interviewing: Preparing People for Change. 2nd ed. New York, NY: Guilford Press; 2002.
45. Hawkins NA, Ditto PH, Danks JH, Smucker WD Micromanaging death: process preferences, values, and goals in end-of-life medical decision making. Gerontologist. 2005; 45(1):107-117.
46. Caralis PV, Davis B., Wright K., Marcial E. The influence of ethnicity and race on attitudes toward advance directives, life-prolonging treatments, and euthanasia. J Clin Ethics. 1993;4(2): 155-165.
47. McKinley ED, Garrett JM, Evans AT, Danis M. Differences in end-of-life decision making among black and white ambulatory cancer patients. J Gen Intern Med. 1996;11(11): 651-656.
48. Basch CE Focus group interview: an underutilized research technique for improving theory and practice in health education. Health Educ Q. 1987;14(4):411-448.
49. Dilorio C., Hockenberry-Eaton M., Maibach E., Rivero T. Focus groups: an interview method for nursing research. J Neurosci Nurs. 1994;26(3):175-180.
50. Steinhauser KE, Christakis NA, Clipp EC,et al.Preparing for the end of life: preferences of patients, families, physicians, and other care providers. J Pain Symptom Manage. 2001;22(3): 727-737.