What matters to seriously ill older persons making end-of-life treatment decisions?: A qualitative study

Journal of Palliative Medicine

Volumn 6, Issue 2, 2003, Pages 237-244

  Fried, Terri R ^a,b   Bradley, Elizabeth H ^b  

^a VA CONNECTICUT HEALTHCARE SYSTEM   (United States)

^b YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CANCER PATIENT; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL ARTICLE; COMPARATIVE STUDY; CONGESTIVE HEART FAILURE; CONTROLLED STUDY; DECISION MAKING; DISEASE COURSE; FEMALE; HUMAN; INTERVIEW; LIFE EXPECTANCY; MALE; PHYSICIAN; QUALITATIVE ANALYSIS; TERMINAL CARE; TREATMENT OUTCOME;

EID: 0038710813     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/109662103764978489     Document Type: Article

References (37)

1. Emanuel LL, Barry MJ, Stoeckle JD, Ettelson LM, Emanuel EJ: Advance directives for medical care - A case for greater use. N Engl J Med 1991;324:889-895.
2. Frankl D, Oye RK, Bellamy PE: Attitudes of hospitalized patients toward life support: A survey of 200 medical inpatients. Am J Med 1989;86:645-648.
3. O'Brien LA, Grisso JA, Maislin G, La Pann K, Krotki KP, Greco PJ, Siegert EA, Evans LK: Nursing home residents' preferences for life-sustaining treatments. JAMA 1995;274;1775-1779.
4. Steinbrook R, Lo B, Moulton J, Saika G, Hollander H, Volberding PA: Preferences of homosexual men with AIDS for life-sustaining treatment. N Engl J Med 1986;314:457-460.
5. Brett AS: Limitations of listing specific medical interventions in advance directives. JAMA 1991;266:825-828.
6. Gillick MR: A broader role for advance medical planning. Ann Intern Med 1995;123:621-624.
7. Hanson LC, Tulsky JA, Danis M: Can clinical interventions change care at the end of life? Ann Intern Med 1997;126:381-388.
8. Pearlman RA, Cain KC, Patrick DL, Appelbaum-Maizel M, Starks HE, Jecker NS, Uhlmann RF: Insights pertaining to patient assessments of states worse than death. J Clin Ethics 1993;4:33-41.
9. Doukas DJ, McCullough LB: The values history. The evaluation of the patient's values and advance directives. J Fam Pract 1991;32:145-153.
10. Weinstein MC, Fineberg HV: Clinical Decision Analysis. Philadelphia: W.B. Saunders Company, 1980.
11. Feinstein AR: "Clinical Judgment" revisited: The distraction of quantitative models. Ann Intern Med 1994;120:799-805
12. Danis M, Mutran E, Garrett JM, Stearns SC, Slifkin RT, Hanson L, Williams JF, Churchill LR: A prospective study of the impact of patient preferences on life-sustaining treatment and hospital cost. Crit Care Med 1996;24:1811-1817.
13. Brundage MD, Davidson JR, Mackillop WJ: Trading treatment toxicity for survival in locally advanced non-small cell lung cancer. J Clin Oncol 1997;15:330-340.
14. Dales RE, O'Connor A, Hebert P, Sullivan K, McKim D, Llewellyn-Thomas H: Intubation and mechanical ventilation for COPD: Development of an instrument to elicit patient preferences. Chest 1999;116:792-800.
15. Silvestri G, Pritchard R. Welch HG: Preferences for chemotherapy in patients with advanced non-small cell lung cancer: Descriptive study based on scripted interviews. BMJ 1998;317:771-775.
16. Coppola KM, Bookwala J, Ditto PH, Lockhart LK, Danks JH, Smucker WD: Elderly adults' preferences for life-sustaining treatments: The role of impairment, prognosis, and pain. Death Stud 1999;23:617-634.
17. Ditto PH, Druley JA, Moore KA, Danks JH, Smucker WD: Fates worse than death: The role of valued life activities in health-state evaluations. Health Psychol 1996;15:332-343.
18. Patrick DL, Pearlman RA, Starks HE, Cain CK, Cole WG, Uhlmann RF: Validation of preferences for life-sustaining treatment: Implications for advance care planning. Ann Intern Med 1997;127:509-517.
19. Pearlman RA, Cain KC, Starks H, Cole WG, Uhlmann RF, Patrick DL: Preferences for life-sustaining treatments in advance care planning and surrogate decision making. J Palliat Med 2000;3:37-48.
20. Rosenfeld KE, Wenger NS, Kagawa-Singer M: End-of-life decision making. A qualitative study of elderly individuals. J Gen Intern Med 2000;15:620-625.
21. Lynn J, Harrell F Jr, Cohn F, Wagner D, Connors AF Jr: Prognosis of seriously ill hospitalized patients on the days before death: Implications for patient care and public policy. New Horiz 1997;5:56-61.
22. Knaus WA, Harrell FE, Lynn J, Goldman L, Phillips RS, Layde P, Califf R, Connors AF Jr, Lyn J: The SUPPORT prognostic model. Objective estimates of survival for seriously ill hospitalized adults. Ann Intern Med 1995;122;191-203.
23. Glaser BG, Strauss AL: The Discovery of Grounded Theory: Strategies for Qualitative Research. Chicago: Aldine Publishing Company, 1967.
24. Kitzinger J: Qualitative research: Introducing focus groups. BMJ 1995;311:299-302.
25. Fried TR, van Doorn C, Tinetti ME, Drickamer MA: Older persons' preferences for site of treatment in acute illness. J Gen Intern Med 1998;13:522-527.
26. Bradley EH, Bogardus ST, Tinetti M, Inouye S: A theory of goal setting in clinical medicine. Soc Sci Med 1999;49:267-278.
27. Bradley E, Walker L, Blechner B, Wetle T: Assessing capacity to participate in discussions of advance directives: A study of the Patient Self-Determination Act. J Am Geriatr Soc 1997;45:79-83.
28. Singer PA, Martin DK, Kelner M: Quality end-of-life care. Patients' perspectives. JAMA 1999;281:163-168.
29. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA: Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-2482.
30. Murphy DJ, Burrows D, Santilli S, Kemp AW, Tenner S, Kreling B, Teno J: The influence of the probability of survival on patients' preferences regarding cardiopulmonary resuscitation. N Engl J Med 1994;330:545-549.
31. Schonwetter RS, Walker RM, Kramer DR, Robinson BE: Resuscitation decision making in the elderly: the value of outcome data. J Gen Intern Med 1994;9:57-58.
32. The SUPPORT Principal Investigators: A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995;274:1591-1598.
33. Tulsky JA, Fischer GS, Rose MR, Arnold RM: Opening the black box: How do physicians communicate about advance directives? Ann Intern Med 1998;129:441-449.
34. Schwartz LM, Woloshin S, Black W, Welch GH: The role of numeracy in understanding the benefit of screening mammography. Ann Intern Med 1997;127:966-972.
35. Gazmararian JA, Baker DW, Williams MV, Parker RM, Scott TL, Green DC, Fehrenbach SN, Ren J, Koplan JP: Health literacy among Medicare enrollees in a managed care organization. JAMA 1999;281:545-551.
36. Sharp HM, List M, MacCracken E, Stenson K, Stocking C, Siegler M: Patients' priorities among treatment effects in head and neck cancer: Evaluation of a new assessment tool. Head Neck 1999;21:538-546.
37. Mazur DJ, Merz JF: Patients' willingness to accept life-sustaining treatment when the expected outcome is a diminished mental health state: An exploratory study. J Am Geriatr Soc 1996;44:565-568.