Assessment of patient preferences: Integrating treatments and outcomes

Journals of Gerontology - Series B Psychological Sciences and Social Sciences

Volumn 57, Issue 6, 2002, Pages

  Fried, Terri R ^a   Bradley, Elizabeth H ^a   Towle, Virginia R ^a  

^a VA CONNECTICUT HEALTHCARE SYSTEM   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGE; AGED; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CONGESTIVE HEART FAILURE; CORRELATION ANALYSIS; DECISION MAKING; ETHNIC GROUP; FEMALE; HEALTH STATUS; HUMAN; ILLNESS BEHAVIOR; INSTRUMENT; INTERVIEW; LIFE EXPECTANCY; MAJOR CLINICAL STUDY; MALE; MALIGNANT NEOPLASTIC DISEASE; OUTCOMES RESEARCH; PATIENT ATTITUDE; PRIORITY JOURNAL; PSYCHOMETRY; RELIABILITY; SCORING SYSTEM; VALIDATION PROCESS;

EID: 0036841208     PISSN: 10795014     EISSN: None     Source Type: Journal    
DOI: 10.1093/geronb/57.6.S348     Document Type: Article

References (43)

1. Aday, L. A. (1996). Designing and Conducting Health Surveys. San Francisco: Jossey-Bass.
2. Brett, A. S. (1991). Limitations of listing specific medical interventions in advance directives. Journal of the American Medical Association, 266, 825-828.
3. Brundage, M. D., Davidson, J. R., & Mackillop, W. J. (1997). Trading treatment toxicity for survival in locally advanced non-small cell lung cancer. Journal of Clinical Oncology, 15, 330-340.
4. Charlson, M. E., Pompei, P., Ales, K. L., & MacKenzie, C. R. (1987). A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. Journal of Chronic Disease, 40, 373-383.
5. Connecticut Hospice, Inc., The (1996). Summary Guidelines for Initiation of Advanced Care. Branford, CT: Author.
6. Coppola, K. M., Ditto, P. H., Danks, J. H., & Smucker, W. D. (2001). Accuracy of primary care and hospital-based physicians' predictions of elderly outpatients' treatment preferences with and without advance directives. Archives of Internal Medicine, 161, 431-440.
7. Council on Scientific Affairs, American Medical Association. (1996). Good care of the dying patient. Journal of the American Medical Association, 275, 474-478.
8. Dales, R., O'Connor, A., Hebert, P., Sullivan, K., McKim, D., & Llewellyn-Thomas, H. (1999). Intubation and mechanical ventilation for COPD: Development of an instrument to elicit patient preferences. Chest, 116, 792-800.
9. Danis, M., Garrett, J., Harris, R., & Patrick, D. L. (1994). Stability of choices about life-sustaining treatment. Annals of Internal Medicine, 120, 567-573.
10. Danis, M., Mutran, E., Garrett, J. M., Steams, S. C., Slifkin, R. T., Hanson, L., et al. (1996). A prospective study of the impact of patient preferences on life-sustaining treatment and hospital cost. Critical Care Medicine, 24, 1811-1817.
11. Ditto, P. H., Danks, J. H., Smucker, W. D., Bookwala, J., Coppola, K. M., Dresser, R., et al. (2001). Advance directives as acts of communication. A randomized controlled trial. Archives of Internal Medicine, 161, 421-430.
12. Doukas, D. J., & McCullough, L. B. (1991). The values history. The evaluation of the patient's values and advance directives. Journal of Family Practice, 32, 145-153.
13. Emanuel, L. L. (1995). Advance directives: Do they work? Journal of the American College of Cardiology, 25, 35-38.
14. Emanuel, L. L., Barry, M. J., Stoeckle, J. D., Ettelson, L. M., & Emanuel, E. J. (1991). Advance directives for medical care - A case for greater use. New England Journal of Medicine, 324, 889-895.
15. Emanuel, L. L., & Emanuel, E. J. (1989). The Medical Directive. A new comprehensive advance care document. Journal of the American Medical Association, 261, 3288-3293.
16. Fienberg, S. E., Loftus, E. F., & Tanur, J. M. (1985). Cognitive aspects of health survey methodology: An overview. Milbank Memorial Fund Quarterly - Health & Society, 63, 547-564.
17. Garrett, J. M., Harris, R. P., Norburn, J. K., Patrick, D. L., & Danis, M. (1993). Life-sustaining treatments during terminal illness: Who wants what? Journal of General Internal Medicine, 8, 361-368.
18. Gillick, M. R. (1995). A broader role for advance medical planning. Annals of Internal Medicine, 123, 621-624.
19. Gillick, M., Berkman, S., & Cullen, L. (1999). A patient-centered approach to advance medical planning in the nursing home. Journal of the American Geriatrics Society, 47, 227-230.
20. Hamel, M. B.,Teno, J. M., Goldman, L., Lynn, J., Davis, R. B., Galanos, A. N., et al. (1999). Patient age and decisions to withhold life-sustaining treatments from seriously ill, hospitalized adults. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Annals of Internal Medicine, 130, 116-125.
21. Hanson, L. C., Danis, M., & Garrett, J. (1997). What is wrong with end-of-life care? Opinions of bereaved family members. Journal of the American Geriatrics Society, 45, 1339-1344.
22. Hanson, L. C., Tulsky, J. A., & Danis, M. (1997). Can clinical interventions change care at the end of life? Annals of Internal Medicine, 126, 381-388.
23. Inouye, S. K., Peduzzi, P. N., Robison, J. T., Hughes, J. S., Horwitz, R. I., & Concato, J. (1998). Importance of functional measures in predicting mortality among older hospitalized patients. Journal of the American Medical Association, 279, 1187-1193.
24. Kind, P., & Dolan, P. (1995). The effect of past and present illness experience on the valuations of health states. Medical Care, 33, AS255-AS263.
25. Knaus, W. A., Harrell, F. E., Jr., Lynn, J., Goldman, L., Phillips, R. S., Connors, A. F., Jr., et al. (1995). The SUPPORT prognostic model: Objective estimates of survival for seriously ill hospitalized adults. Annals of Internal Medicine, 122, 191-203.
26. Lawton, M. P., & Brody, E. M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist, 9, 179-196.
27. Llewellyn-Thomas, H. A. (1997). Investigating patients' preferences for different treatment options. Canadian Journal of Nursing Research. 29, 45-64.
28. Lo, B., Snyder, L., & Sox, H. C. (1999). Care at the end of life: Guiding practice where there are no easy answers. Annals of Internal Medicine, 130, 772-773.
29. Lynn, J. (1997). Measuring quality of care at the end of life: A statement of principles. Journal of the American Geriatrics Society, 45, 526-527.
30. McKinley, E. D., Garrett, J. M., Evans, A. T., & Danis, M. (1996). Differences in end-of-life decision making among Black and White ambulatory cancer patients. Journal of General Internal Medicine, 11, 651-656.
31. McNeil, B. J., Pauker, S. G., Sox, H. C., Jr., & Tversky, A. (1982). On the elicitation of preferences for alternative therapies. New England Journal of Medicine, 306, 1259-1262.
32. Mehrez, A., & Gafni, A. (1989). Quality-adjusted life years, utility theory, and healthy-years equivalents. Medical Decision Making, 9, 142-149.
33. Murphy, D. J., Burrows, D., Santilli, S., Kemp, A. W., Tenner, S., Kreling, B., et al. (1994). The influence of the probability of survival on patients' preferences regarding cardiopulmonary resuscitation. New England Journal of Medicine, 330, 545-549.
34. Murphy, D. J., Kraus, W. A., & Lynn, J. (1990). Study population in SUPPORT: Patients (as defined by disease categories and mortality projections), surrogates, and physicians. Journal of Clinical Epidemiology, 43(Suppl), 11S-28S.
35. O'Brien, L. A., Grisso, J. A., Maislin, G., LaPann, K., Krotki, K. P., Greco, P. J., et al. (1995). Nursing home residents' preferences for life-sustaining treatments. Journal of the American Medical Association, 274, 1775-1779.
36. Pearlman, R. A., Cain, K. C., Patrick, D. L., Appelbaum-Maizel, M., Starks, H. E., Jecker, N. S., et al. (1993). Insights pertaining to patient assessments of states worse than death. Journal of Clinical Ethics, 4, 33-41.
37. Sachs, G. A., Ahronheim, J. C., Rhymes, J. A., Volicer, L., & Lynn, J. (1995). Good care of dying patients: The alternative to physician-assisted suicide and euthanasia. Journal of the American Geriatrics Society, 43, 553-562.
38. Sharp, H. M., List, M., MacCracken, E., Stenson, K., Stocking, C., & Siegler, M. (1999). Patients' priorities among treatment effects in head and neck cancer: Evaluation of a new assessment tool. Head & Neck, 21, 538-546.
39. Singer, P. A., Martin, D. K., & Kelner, J. (1999). Quality end-of-life care. Patients' perspectives. Journal of the American Medical Association. 281, 163-168.
40. Steinbrook, R., Lo, B., Moulton, J., Saika, G., Hollander, H., & Volberding, P. A. (1986). Preferences of homosexual men with AIDS for life-sustaining treatment. New England Journal of Medicine, 314, 457-460.
41. Steinhauser, K. E., Clipp, E. C., McNeilly, M., Christakis, N. A., McIntyre, L. M., & Tulsky, J. A. (2000). In search of a good death: Observations of patients, families, and providers. Annals of Internal Medicine, 132, 825-832.
42. Tulsky, J. A., Fischer, G. S., Rose, M. R., & Arnold, R. M. (1998). Opening the black box: How do physicians communicate about advance directives? Annals of Internal Medicine, 129, 441-449.
43. Uhlmann, R. F., Pearlman, R. A., & Cain, K. C. (1988). Physicians' and spouses' predictions of elderly patients' resuscitation preferences. Journal of Gerontology: Medical Sciences, 32, M115-M121.