Patient preferences for medical decision making: Who really wants to participate?

Medical Care

Volumn 38, Issue 3, 2000, Pages 335-341

  Arora, Neeraj K ^a   McHorney, Colleen A ^b  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b UNIVERSITY OF WISCONSIN SCHOOL OF MEDICINE AND PUBLIC HEALTH   (United States)

Author keywords

Medical decision making; Patient participation; Physician patient relationship

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGE; AGED; ARTICLE; ATTITUDE TO HEALTH; CHRONIC DISEASE; CONGESTIVE HEART FAILURE; CROSS-SECTIONAL STUDY; DECISION MAKING; DEPRESSION; DIABETES MELLITUS; EDUCATIONAL STATUS; EMPIRICAL APPROACH; FEMALE; HEART INFARCTION; HUMAN; HYPERTENSION; LONGITUDINAL STUDY; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; PATIENT PARTICIPATION; PATIENT SELECTION; PROFESSIONAL PATIENT RELATIONSHIP; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; STATISTICAL MODEL; STATISTICS; UNITED STATES;

EMPIRICAL APPROACH; PROFESSIONAL PATIENT RELATIONSHIP;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGE FACTORS; AGED; ATTITUDE TO HEALTH; BOSTON; CHICAGO; CHRONIC DISEASE; CROSS-SECTIONAL STUDIES; DECISION MAKING; DEPRESSIVE DISORDER; DIABETES MELLITUS; EDUCATIONAL STATUS; FEMALE; HEART FAILURE, CONGESTIVE; HUMANS; HYPERTENSION; LOGISTIC MODELS; LONGITUDINAL STUDIES; LOS ANGELES; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; MYOCARDIAL INFARCTION; PATIENT PARTICIPATION; PATIENT SELECTION; QUESTIONNAIRES;

EID: 0034146103     PISSN: 00257079     EISSN: None     Source Type: Journal    
DOI: 10.1097/00005650-200003000-00010     Document Type: Article

References (51)

1. Brody DS. The patient's role in clinical decision-making. Ann Intern Med 1980;93:718-722.
2. Roter DL, Hall JA. Doctors talking with patients, patients talking with doctors. Westport, CT: Auburn House; 1992.
3. Strull WM, Lo B, Charles G. Do patients want to participate in medical decision making? JAMA 1984;252:2990-2994.
4. Beisecker AE, Beisecker TD. Using metaphors to characterize doctor-patient relationships: Paternalism versus consumerism. Health Comm 1993;5:41-58.
5. Blanchard CG, Labrecque MS, Ruckdeschel JC, Blanchard EB. Information and decision-making preferences of hospitalized adult cancer patients. Soc Sci Med 1988;27:1139-1145.
6. Schulman BA. Active patient orientation and outcomes in hypertensive treatment: Application of a socio-organizational perspective. Med Care 1979;17:267-280.
7. Golin CE, DiMatteo MR, Gelberg L. The role of patient participation in the doctor visit: Implications for adherence to diabetes care. Diabetes Care 1996;19:1153-1164.
8. Szasz TS, Rollender MH. A contribution to the philosophy of medicine: The basic models of the doctor-patient relationship. Arch Intern Med 1956;97:585-592.
9. Greenfield S, Kaplan S, Ware JE. Expanding patient involvement in care: Effects on patient outcomes. Ann Intern Med 1985;102:520-528.
10. Greenfield S, Kaplan SH, Ware JH, Yano EM, Frank HJ. Patients' participation in medical care: Effects on blood sugar control and quality of life in diabetes. J Gen Intern Med 1988;3:448-457.
11. Mahler HIM, Kulik JA. Preferences for health care involvement, perceived control and surgical recovery: A prospective study. Soc Sci Med 1990;31:743-751.
12. Degner LF, Kristjanson LJ, Bowman D, Sloan JA, Carriera KC, O'Neil J, et al. Information needs and decisional preferences in women with breast cancer. JAMA 1997;277:1485-1492.
13. Sutherland HJ, Thomas-Llewellyn HA, Lockwood GA, Tritchler DL. Cancer patients: Their desire for information and participation in treatment decisions. J R Soc Med 1989;82:260-263.
14. Thompson SC, Pitts JS, Schwankovsky L. Preference for involvement in medical decision-making: Situational and demographic influences. Patient Education Counseling 1993;22:133-140.
15. Cassileth BR, Zupkis RV, Sutton-Smith K, March V. Information and participation preferences among cancer patients. Ann Intern Med 1980;92:832-836.
16. Deber RB, Kraetschmer N, Irvine J. What role do patients wish to play in treatment decision making? Arch Intern Med 1996;156:414-1420.
17. Degner LF, Sloan JA. Decision making during serious illness: What roles do patients really want to play? J Clin Epidemiol 1992;45:941-950.
18. Ende J, Kazis L, Ash A, Moskowitz MA. Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients. J Gen Intern Med 1989;4:23-30.
19. Brody DS, Miller SM, Lerman CE, Smith DG, Caputo C. Patient perception of involvement in medical care: Relationship to illness attitudes and outcomes. J Gen Intern Med 1989;4:506-511.
20. Sherbourne CD, Hays RD, Ordway L, DiMatteo MR, Kravitz RL. Antecedents of adherence to medical recommendations: Results from the Medical Outcomes Study. J Behav Med 1992;15:447-468.
21. Sherbourne CD, Hays RD, Wells KB. Personal and psychosocial risk factors for physical and mental health outcomes and course of depression among depressed patients. J Consult Clin Psychol 1995;63:345-355.
22. Sherbourne CD, Meredith LS, Rogers W, Ware JE. Social support and stressful life events: Age differences in their effects on health-related quality of life among the chronically ill. Qual Life Res 1992;1:235-246.
23. Tarlov AR, Ware JE, Greenfield S, Nelson EC, Perrin E, Zubkoff M. The Medical Outcomes Study: An application of methods for monitoring the results of medical care. JAMA 1989;262:925-930.
24. Stewart AL, Greenfield S, Hays RD, Wells K, Rogers WH, Berry SD, et al. Functional status and well-being of patients with chronic conditions: Results from the Medical Outcomes Study. JAMA 1989;262:907-913.
25. Kravitz RL, Greenfield S, Rogers W, Manning WG Jr, Zubkoff M, Nelson EC, et al. Differences in the mix of patients among medical specialties and systems of care: Results from the Medical Outcomes Study. JAMA 1992;267:1617-1623.
26. Ware JE, Bayliss MS, Rogers WH, Kosinski M, Tarlov AR. Differences in 4-year, health outcomes for elderly and poor, chronically ill patients treated in HMO and fee-for-service systems: Results from the Medical Outcomes Study. JAMA 1996;276:1039-1047.
27. Wells KB, Stewart A, Hays RD, Burnam MA, Rogers W, Daniels M, et al. The functioning and well-being of depressed patients: Results from the Medical Outcomes Study. JAMA 1989;262:914-919.
28. Greenfield S, Nelson EC, Zubkoff M, Manning W, Rogers W, Kravitz RL, et al. Variations in resource utilization among medical specialties and systems of care: Results from the Medical Outcomes Study. JAMA 1992;267:1624-1630.
29. Hays RD, Wells KB, Sherbourne CD, Rogers W, Spritzer K. Functioning and well-being outcomes of patients with depression compared with chronic general medical illnesses. Arch Gen Psychiatry 1995;52:11-19.
30. Sherbourne CD, Stewart AL. The MOS social support survey. Soc Sci Med 1991;32:705-714.
31. Stewart AL, Hays RD, Ware JE. Health perceptions, energy/fatigue, and health distress measures. In: Stewart AL, Ware JE, Eds. Measuring functioning and well-being: The Medical Outcomes Study approach. Durham, NC: Duke University Press, 1992:143-172.
32. Lau RR, Hartman KA, Ware JE. Health as a value: Methodological and theoretical considerations. Health Psychol 1986;5:25-43.
33. DiMatteo MR, Hays RD, Gritz ER, Bastani R, Crane L, Elashoff R, et al. Patient adherence to cancer control regimens: Scale development and initial validation. Psychol Assess 1993;5:102-112.
34. Stewart AL, Hays RD, Wells KB, Rogers WH. Development of measures of physical activity/exercise and tests of variations within chronic disease groups. Santa Monica, CA: RAND Corporation, 1993. Publication No. P-7781.
35. Katz DA, McHorney CA. Clinical correlates of insomnia in patients with chronic illness. Arch Intern Med 1998;158:1099-1107.
36. Wallen J, Waitzkin H, Stoeckle JD. Physician stereotypes about female health and illness. Women Health 1979;4:135-146.
37. Nathanson CA. Sex, illness and medical care. Soc Sci Med 1977;11:13-25.
38. Mechanic D. Sex, illness, illness behavior and use of health services. Soc Sci Med 1978;12B:207-214.
39. Wells KB, Hays RD, Burnam MA, Rogers W, Greenfield S, Ware JE. Detection of depressive disorder for patients receiving prepaid or fee-for-service care: Results from the Medical Outcomes Study. JAMA 1989;262:3298-3302.
40. Katon W, Robinson P, Von Korff M, Lin e, Bush T, Ludman E, et al. A multifaceted intervention to improve treatment of depression in primary care. Arch Gen Psychiatry 1996;53:924-932.
41. Anderson LA, Dedrick, RF. Development of the trust in physician scale: A measure to assess interpersonal trust in patient-physician relationships. Psychol Rep 1990;67:1091-1100.
42. Thorn DH, Ribisl KM, Stewart AL, Luke DA. Further validation and reliability testing of the trust in physician scale. Med Care 1999;37:510-517.
43. Marshall GN, Hays RD, Sherbourne CD, Wells KB. The structure of patient satisfaction with outpatient medical care. Psychol Assess 1993;5:477-483.
44. Marshall GN, Hays RD, Mazel, R. Health status and satisfaction with health care: Results from the Medical Outcomes Study. J Consult Clin Psychol 1996;64:380-390.
45. Deber RB. Physicians in health care management: 8. The patient-physician partnership: Decision making, problem solving and the desire to participate. Can Med Assoc J 1994;151:423-427.
46. McHorney CA, Ware JE, Rogers W, Raczek AE, Rachel JF. The validity and relative precision of MOS short- and long-form health status scales and Dartmouth COOP charts: Results from the Medical Outcomes Study. Med Care 1992;30(5 suppl):MS253-MS265.
47. Roter DL. Patient participation in the patient-provider interaction: The effects of patient question asking on the quality of interaction, satisfaction and compliance. Health Education Monographs 1977;5:281-315.
48. Kaplan SH, Greenfield S, Gandek B, Rogers WH, Ware JE, Jr. Characteristics of physicians with participatory decision-making styles. Ann Intern Med 1996;124:497-504.
49. Hall JA, Roter DL, Katz NR. Meta-analysis of correlates of provider behavior in medical encounters. Med Care 1988;26:657-675.
50. DiMatteo MR, Hays RD, Prince LM. Relationship of physicians' nonverbal communication skill to patient satisfaction, appointment noncompliance, and physician workload. Health Psychol 1986;5:581-594.
51. DiMatteo MR, Hays RD. The significance of patients' perceptions of physician conduct: A study of patient satisfaction in a family practice center. J Community Health 1980;6:18-34.