Family needs and psychosocial functioning of caregivers of individuals with spinal cord injury from Colombia, South America

NeuroRehabilitation

Volumn 27, Issue 1, 2010, Pages 83-93

  Arango Lasprilla, Juan Carlos ^a   Plaza, Silvia Leonor Olivera ^b   Drew, Allison ^a   Romero, Jose Libardo Perdomo ^c   Pizarro, Jose Anselmo Arango ^b   Francis, Kathryn ^b   Kreutzer, Jeffrey ^a  

^a VIRGINIA COMMONWEALTH UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b SURCOLOMBIANA UNIVERSITY   (Colombia)

^c UNIVERSIDAD COOPERATIVA DE COLOMBIA   (Colombia)

Author keywords

caregivers; outcome assessment; Spinal cord injuries

Indexed keywords

ADULT; ARTICLE; CAREGIVER BURDEN; CAREGIVER SUPPORT; COMMUNITY PROGRAM; CORRELATION ANALYSIS; CROSS-SECTIONAL STUDY; DEPRESSION; EMOTIONAL STABILITY; FAMILY FUNCTIONING; FEMALE; FINANCIAL MANAGEMENT; HEALTH; HEALTH EDUCATION; HOUSEHOLD; HUMAN; INTERPERSONAL SUPPORT EVALUATION LIST; JOB STRESS; LIFE SATISFACTION; MALE; NEEDS ASSESSMENT; NORMAL HUMAN; PATIENT HEALTH QUESTIONNAIRE; PERSONAL NEEDS; PSYCHOLOGICAL BALANCE; QUESTIONNAIRE; RESPITE CARE; SATISFACTION WITH LIFE SCALE; SLEEP; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT; SOUTH AMERICA; SPINAL CORD INJURY; SUPPORT GROUP; ZARIT BURDEN INTERVIEW; ADAPTIVE BEHAVIOR; CAREGIVER; COLOMBIA; COST OF ILLNESS; FAMILY; HUMAN RELATION; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGY; SATISFACTION; SPINAL CORD INJURIES;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; COLOMBIA; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; DEPRESSION; FAMILY; FEMALE; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; PERSONAL SATISFACTION; QUESTIONNAIRES; SOCIAL SUPPORT; SPINAL CORD INJURIES; STRESS, PSYCHOLOGICAL;

EID: 77954725908     PISSN: 10538135     EISSN: None     Source Type: Journal    
DOI: 10.3233/NRE-2010-0583     Document Type: Article

References (60)

1. E. Bamford, D. Grundy and J. Russell, Social needs of the patient and his family, British Medical Journal 292 (1986), 546-548.
2. L. Blanes, M.I.S. Carmagnani and L.M. Ferreira, Healthrelated quality of life of primary caregivers of persons with paraplegia, Spinal Cord 45 (2007), 399-403.
3. K.A. Boschen, M. Tonack and J. Gargaro, The impact of being a support provider to a person living in the community with a spinal cord injury, Rehabilitation Psychology 50 (2005), 397-407.
4. C.N. Budh and A. Osteraker, Life satisfaction in individuals with a spinal cord injury and pain, Clinical Rehabilitation 21 (2007), 89-96.
5. R.C. Chan, P.W. Lee and F. Lieh-Mak, Coping with spinal cord injury: Personal and marital adjustment in the Hong Kong Chinese setting, Spinal Cord 38 (2000), 687-696.
6. R.C.K. Chan, Stress and coping in spouses of persons with spinal cord injuries, Clinical Rehabilitation 14 (2000), 137-144.
7. H.Y. Chen and J.R.P. Boore, Living with a spinal cord injury: A grounded theory approach, Journal of Clinical Nursing 17 (2008), 116-124.
8. M. Cleveland, Family adaptation to traumatic spinal cord injury: Response to crisis, Family Relations 29 (1980), 558-565.
9. S. Cohen and H. Hoberman, Positive events and social supports as buffers of life change stress, Journal of Applied Social Psychology 13 (1983), 99-125.
10. E. Diener, R.A. Emmons, R.J. Larsen and S. Griffin, The Satisfaction With Life Scale, Journal of Personality Assessment 49 (1985), 71-75.
11. L.E. Dreer, T.R. Elliott, R. Shewchuck, J.W. Berry and P. Rivera, Family caregivers of persons with spinal cord injury: predicting caregivers at risk for probable depression, Rehabilitation Psychology 52 (2007), 351-357. (Pubitemid 47444914)
12. T.R. Elliott, D. Brossart, J.W. Berry and P.R. Fine, Problemsolving training via videoconferencing for family caregivers of persons with spinal cord injuries: A randomized controlled trial, Behaviour Research and Therapy 46 (2008), 1220-1229.
13. T.R. Elliott and P. Rivera, Spinal cord injury, in: Handbook of Psychology, Volume 9 Health Psychology, A. Nezu, C. Nezu and P. Geller, eds, Wiley & Sons, Inc. New Jersey, 2003, pp. 415-435.
14. T.R. Elliott, R.M. Shewchuk and J.S. Richards, Family caregiver social problem-solving abilities and adjustment during the initial year of the caregiving role, Journal of Counseling Psychology 48 (2001), 223-232.
15. T.L. Fisher, P.W. Laud, M.G. Byfield, T.T. Brown, M.J. Hayat and I.G. Fiedler, Sexual health after spinal cord injury: A longitudinal study, Archives of Physical Medicine and Rehabilitation 83 (2002), 1043-1051.
16. D.D. French, R.R. Campbell, S. Sabharwal, A.L. Nelson, P.A. Palacios and D. Gavin-Dreschnack, Health care costs for patients with chronic spinal cord injury in the veterans health administration, Journal of Spinal Cord Medicine 30 (2007), 477-481.
17. K.R. Hammell, Psychosocial outcome following spinal cord injury, Paraplegia 32 (1994), 771-779.
18. G. Hart, Spinal cord injury: Impact on clients' significant others, Rehabilitation Nursing 6 (1981), 11-15.
19. C. Junque, O. Bruma and M. Mataro, Information needs of the traumatic brain injury patient's family members regarding the consequences of the injury and associated perception of physical, cognitive, emotional and quality of life changes, Brain Injury 11 (1997), 251-258.
20. G. Karlikaya, G. Yukse, F. Varlibas and H. Tireli, Caregiver burden in dementia: A study in the Turkish population, Internet Journal of Neurology 4 (2005).
21. B. Kemp, J.S. Krause and R. Adkins, Depression among African Americans, Latinos, and Caucasians with spinal cord injury: An exploratory study, Rehabilitation Psychology 44 (1999), 235-247.
22. P. Kennedy and B.A. Rogers, Anxiety and depression after spinal cord injury: A longitudinal analysis, Archives of Physical Medicine and Rehabilitation 81 (2000), 932-937.
23. S.A.Kolakowsky-Hayner, E.V. Gourley III, J.S. Kreutzer, J.H. Marwitz, M.A. Meade and D.X. Cifu, Post-injury substance abuse among persons with brain injury and persons with spinal cord injury, Brain Injury 16 (2002), 583-592.
24. J.S. Krause, Life satisfaction after spinal cord injury: A descriptive study, Rehabilitation Psychology 37 (1992), 61-70.
25. J. Kreutzer, C. Devany and S. Berquist, Family needs after brain injury: A quantitative analysis, Journal of Head Trauma Rehabilitation 9 (1994), 104-115.
26. K. Kroenke, R.L. Spitzer and J.B. Williams, The PHQ-9: Validity of a brief depression severity measure, Journal of General Internal Medicine 16 (2001), 606-613.
27. I.B. Lidal, M. Veenstra, N. Hjeltnes and F. Biering-Sorensen, Health-related quality of life in persons with long-standing spinal cord injury, Spinal Cord 46 (2008), 710-715.
28. K. Lin, C. Chuang, M. Kao, I. Lien and J. Tsauo, Quality of life of spinal cord injured patients in Taiwan: A subgroup study, Spinal Cord 35 (1997), 841-849.
29. K.T. Lucke, H. Coccia, J.S. Goode and J.F. Lucke, Quality of life in spinal cord injured individuals and their caregivers during the initial 6 months following rehabilitation, Quality of Life Research 13 (2004), 97-110.
30. S.D. Majerovitz, Predictors of burden and depression among nursing home family caregivers, Aging & Mental Health 11 (2007), 323-329.
31. C. Manigandan, B. Saravanan, A. Macaden, L. Gopalan, G. Tharion and S. Bhattacharji, Psychological wellbeing among carers of people with spinal cord injury: A preliminary investigation from South India, Spinal Cord 38 (2000), 559-562.
32. E. Martz, H. Livneh, M. Priebe, L.A. Wuermser and L. Ottomanelli, Predictors of psychosocial adaptation among people with spinal cord injury or disorder, Archives of Physical Medicine and Rehabilitation 86 (2005), 1182-1192. (Pubitemid 40797773)
33. M.A. Meade, L.A. Taylor, J.S. Kreutzer, J.H. Marwitz and V. Thomas, A preliminary study of acute family needs after spinal cord injury: Analysis and implications, Rehabilitation Psychology 49 (2004), 150-155.
34. C. Migliorini, B. Tonge and G. Taleporos, Spinal cord injury and mental health, Australian and New Zealand Journal of Psychiatry 42 (2008), 309-314.
35. R.F. Murray, A. Asghari, D.D. Egorov, S.B. Rutkowski, P.J. Siddall, R.J. Soden and R. Ruff, Impact of spinal cord injury on self-perceived pre- and postmorbid cognitive, emotional, and physical functioning, Spinal Cord 45 (2007), 429-436.
36. National Institute of Neurological Disorders and Stroke. (2008). Spinal Cord Injury: Hope Through Research. Retrieved August 27, 2008 from.
37. National Institutes of Health. (2008). Spinal Cord Trauma. Retrieved August 27, 2008 from http://www.nlm.nih.gov/medli neplus/ency/article/001066. htm.
38. National Spinal Cord Injury Statistical Center. (2008). Spinal Cord Injury Facts & Figures at a Glance. Retrieved August 27, 2008 from http://www.spinalcord.uab.edu/show.asp?durki= 116979.
39. PASW for Windows, Rel. 17.0.2. 2009. Chicago: SPSS Inc.
40. M.W.M. Post, J. Bloemen and L.P. deWitte, Burden of support for partners of persons with spinal cord injuries, Spinal Cord 43 (2005), 311-319.
41. M.M. Priebe, A.E. Chiodo, W.M. Scelza, S.C. Kirshblum, L. Wuermser and C.H. Ho, Spinal cord injury medicine. 6. Economic and societal issues in spinal cord injury, Archives of Physical Medicine and Rehabilitation 88 (2007), S84-S88. (Pubitemid 46281868)
42. J.T. Raj, C. Manigandan and K.S. Jacob, Leisure satisfaction and psychiatric morbidity among informal carers of people with spinal cord injury, Spinal Cord 44 (2006), 676-679.
43. H.R. Rivera, Depression symptoms in cancer caregivers, Clinical Journal of Oncology Nursing 13 (2009), 195-202.
44. S. Robinson-Whelen and D.H. Rintala, Informal care providers for veterans with SCI: Who are they and howare they doing? Journal of Rehabilitation Research and Development 40 (2003), 511-516.
45. A. Sato, K. Ricks and S. Watkins, Needs of caregivers of clients with multiple sclerosis, Journal of Community Health Nursing 13 (1996), 31-42.
46. R. Schulz, S.J. Czaja, A. Lustig, B. Zdaniuk, L.M. Martire and D. Perdomo, Improving the quality of life of caregivers of persons with spinal cord injury: A randomized controlled trial, Rehabilitation Psychology 54 (2009), 1-15.
47. R.C. Schulz, C.A. Tompkins, D. Wood and S. Decker, The social psychology of caregiving: Physical and psychological costs of providing support to the disabled, Journal of Applied Social Psychology 17 (1987), 401-428.
48. R.M. Shewchuk, J.S. Richards and R. Elliott, Dynamic processes in health outcomes among caregivers of patients with spinal cord injuries, Health Psychology 17 (1998), 125-129.
49. M.L. Sipski and J.S. Richards, Spinal cord injury rehabilitation: State of the science, American Journal of Physical Medicine & Rehabilitation 85 (2006), 310-342.
50. Spinal Cord Injury Network. (2009). Causes of Spinal Cord Injury. Retrieved March 12, 2010 from http://www.spinalinjury. net/causes-of-spinal- cord-injury.htm.
51. G.M. Stanton, Aneeds assessment of significant others following the patient's spinal cord injury, Journal of Neurosurgical Nursing 16 (1984), 253-256.
52. D.G. Tate, M.B. Forchheimer, J.S. Krause, M.A. Meade and C.H. Bombardier, Patterns of alcohol and substance use and abuse in persons with spinal cord injury: Risk factors and correlates, Archives of Physical Medicine and Rehabilitation 85 (2004), 1837-1847.
53. F.A. Vargo, Adaptation to disability by the wives of spinal cord males-Aphenomenological approach, Journal of Applied Rehabilitation Counseling 15 (1983), 28-32.
54. M. Vissers, R. Van Den Berg-Emons, T. Sluis, M. Bergen, H. Stam and H. Bussmann, Barriers and facilitators of everyday physical activity in persons with a spinal cord injury after discharge from the rehabilitation centre, Journal of Rehabilitation Medicine 40 (2008), 461-467.
55. D.A. Weitzenkamp, K.A. Gerhart, S.W. Charlifue, G.G. Whiteneck and G. Savic, Spouses of spinal cord injury survivors: The added impact of caregiving, Archives of Physical Medicine and Rehabilitation 78 (1997), 822-827.
56. L. Wulsin, E. Somoza and J. Heck, The feasibility of using the Spanish PHQ-9 to screen for depression in primary care in Honduras, The Primary Care Companion to the Journal of Clinical Psychiatry 4 (2002), 191-195.
57. M. Wyndaele and J.J. Wyndaele, Incidence, prevalence and epidemiology of spinal cord injury: What learns a worldwide literature survey? Spinal Cord 44 (2006), 523-529.
58. M.E. Young, D.H. Rintala, C.D. Rossi, K.A. Hart and M.J. Fuhrer, Alcohol and marijuana use in a community-based sample of persons with spinal cord injury, Archives of Physical Medicine and Rehabilitation 76 (1995), 525-532.
59. S.H. Zarit, K.E. Reever and J. Bach-Peterson, Relatives of the impaired elderly: Correlates of feelings of burden, Gerontologist 20 (1980), 649-655.
60. H.J. Znoj and P. Lude, Regulation of emotion and psychological symptoms in people with spinal cord injury, Swiss Journal of Psychology 61 (2002), 203-210.