Improving the Quality of Life of Caregivers of Persons With Spinal Cord Injury: A Randomized Controlled Trial

Rehabilitation Psychology

Volumn 54, Issue 1, 2009, Pages 1-15

  Schulz, Richard ^a   Czaja, Sara J ^b   Lustig, Amy ^c   Zdaniuk, Bozena ^c   Martire, Lynn M ^a   Perdomo, Dolores ^b  

^a UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF PITTSBURGH   (United States)

Author keywords

caregiving; intervention; spinal cord injury

Indexed keywords

ADULT; AGE FACTORS; AGED; CAREGIVERS; COMBINED MODALITY THERAPY; COST OF ILLNESS; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; SICK ROLE; SOCIAL SUPPORT; SPINAL CORD INJURIES;

EID: 60849136018     PISSN: 00905550     EISSN: None     Source Type: Journal    
DOI: 10.1037/a0014932     Document Type: Article

References (47)

1. Andresen E.M., Malmgren J.A., Carter W.B., and Patrick D.L. Screening for depression in well older adults: Evaluation of a short form of the CES-D (Center for Epidemiologic Studies Depression Scale). American Journal of Preventive Medicine 10 (1994) 77-84
2. Bedard M., Molloy D.W., Squire L., Dubois S., Lever J.A., and O'Donnell M. The Zarit Burden Interview: A new short version and screening version. The Gerontologist 41 (2001) 652-657
3. Belle S.H., Burgio L., Burns R., Coon D., Czaja S.J., Gallagher-Thompson D., et al., REACH II Investigators. Enhancing the quality of life of dementia caregivers from different ethnic or racial groups. Annals of Internal Medicine 145 (2006) 727-738
4. Bookwala J., and Schulz R. Spousal similarity in subjective well-being. The cardiovascular health study. Psychology and Aging 11 (1996) 582-591
5. Boschen K.A., Tonack M., and Gargaro J. The impact of being a support provider to a person living in the community with a spinal cord injury. Rehabilitation Psychology 50 (2005) 397-407
6. Brodaty H., Green A., and Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. Journal of the American Geriatrics Society 51 (2003) 657-664
7. Burton L., Schulz R., Jackson S., Hirsch C., and Zdaniuk B. Transitions in spousal caregiving: Experience from the Caregiver Health Effects Study (CHES). The Gerontologist 40 (2000) 73
8. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. (1988), Erlbaum, Hillsdale, NJ
9. Cohen S., and Wills T.A. Stress, social support, and the buffering hypothesis. Psychological Bulletin 98 (1985) 310-357
10. Davison A.C., and Hinkley D.V. Bootstrap methods and their application (1997), Cambridge University Press, United Kingdom
11. Dreer L.E., Elliott T.R., Shewchuk R., Berry J.W., and Rivera P. Family caregivers of persons with spinal cord injury: Predicting caregivers at risk for probable depression. Rehabilitation Psychology 52 (2007) 351-357
12. Eisdorfer C.E., Czaja S.J., Loewenstein D.L., Rubert M.P., Arguelles S., Mitrani V., et al. The effect of a family therapy and technology-based intervention on caregiver depression. The Gerontologist 43 (2003) 521-531
13. Elliott, T., & Berry, J. W. (in press). Brief problem-solving training for family caregivers of persons with recent-onset spinal cord injuries: A randomized controlled trial. Journal of Clinical Psychology
14. Elliott T., and Shewchuk R. Recognizing the family caregiver: Integral and formal members of the rehabilitation process. Journal of Vocational Rehabilitation 10 (1998) 123-132
15. Elliott T., Shewchuk R., and Richards J. Family caregiver social problem-solving abilities and adjustment during the initial year of the caregiving role. Journal of Counseling Psychology 48 (2001) 223-232
16. Irwin M., Artin K.H., and Oxman M.N. Screening for depression in the older adult: Criterion validity of the 10-item Center for Epidemiological Studies Depression Scale (CES-D). Archives of Internal Medicine 159 (1999) 1701-1704
17. Katz S., Ford A.B., Moskowitz R.W., Jackson B.A., and Jaffe M.W. Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. Journal of the American Medical Association 185 (1963) 914-919
18. Lawton M.P., and Brody E.M. Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist 9 (1969) 179-186
19. Lucke K.T., Coccia H., Goode J.S., and Lucke J.F. Quality of life in spinal cord injured individuals and their caregivers during the initial 6 months following rehabilitation. Quality of Life Research 13 (2004) 97-110
20. Martire L.M., Lustig A.P., Schulz R., Miller G.E., and Helgeson V.S. Is it beneficial to involve a family member? A meta-analytic review of psychosocial interventions for chronic illness. Health Psychology 23 (2004) 599-611
21. Martire L.M., and Schulz R. Involving family in psychosocial interventions for chronic illness. Current Directions in Psychological Science 16 (2007) 90-94
22. Pinquart M., and Sorenson S. Differences between caregivers and non-caregivers in psychological health and physical health: A meta-analysis. Psychology and Aging 18 (2003) 250-267
23. Radloff L. The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement 1 (1977) 385-401
24. Rodgers M.L., Strode A.D., Norell D.M., Short R.A., Dyck D.G., and Becker B. Adapting multiple-family group treatment for brain and spinal cord injury intervention development and preliminary outcomes. American Journal of Physical Medicine and Rehabilitation 86 (2007) 482-492
25. Rubin D.B. Multiple imputation for nonresponse in surveys (1987), John Wiley & Sons, Inc, New York, NY
26. Schafer J.L. Multiple imputation: A primer. Statistical Methods in Medical Research 8 (1999) 3-15
27. Schafer J.L., and Graham J.W. Missing data: Our view of the state of the art. Psychological Methods 7 (2002) 147-177
28. Scheier M.F., Helgeson V.S., Schulz R., Colvin S., Berga S., Bridges M.W., et al. Interventions to enhance physical and psychological functioning among younger women who are ending nonhormonal adjuvant treatment for early stage breast cancer. Journal of Clinical Oncology 23 (2005) 4298-4311
29. Schulz R. Handbook on dementia caregiving: Evidence-based interventions for family caregivers (2000), Springer, New York, NY
30. Schulz R., and Beach S. Caregiving as a risk factor for mortality. The caregiver health effects study. Journal of the American Medical Association 282 (1999) 2215-2219
31. Schulz, R., Beach, S. R., Hebert, R., Martire, L. M., Monin, J. K., Tompkins, C. A., et al. (in press). Spousal suffering and partner's depression and cardiovascular disease: The Cardiovascular Health Study. American Journal of Geriatric Psychiatry
32. Schulz R., Boerner K., Shear K., Zhang S., and Gitlin L.N. Predictors of complicated grief among dementia caregivers: A prospective study of bereavement. American Journal of Geriatric Psychiatry 14 (2006) 650-658
33. Schulz R., Martire L., and Klinger J. Evidence-based caregiver interventions in geriatric psychiatry. Psychiatric Clinics of North America 28 (2005) 1007-1038
34. Schulz R., and Martire L.M. Family caregiving in persons with dementia: Prevalence, health effects, and support strategies. American Journal of Geriatric Psychiatry 12 (2004) 240-249
35. Schulz R., McGinnis K.A., Zhang S., Martire L.M., Hebert R.S., Beach S.R., et al. Dementia patient suffering and caregiver depression. Alzheimer Disease and Associated Disorders 22 (2008) 170-176
36. Schulz R., Newsom J.T., Fleissner K., deCamp A.R., and Nieboer A.P. The effects of bereavement after family caregiving. Aging and Mental Health 1 (1997) 269-282
37. Schulz R., O'Brien A.T., Bookwala J., and Fleissner K. Psychiatric and physical morbidity effects of Alzheimer's Disease caregiving: Prevalence, correlates, and causes. The Gerontologist 35 (1995) 771-791
38. Schulz R., O'Brien A., Czaja S., Ory M., Norris R., Martire L.M., et al. Dementia caregiver intervention research: in search of clinical significance. The Gerontologist 42 (2002) 589-602
39. Schulz R., and Quittner A.L. Caregiving through the life-span: Overview and Future Directions. Health Psychology 17 (1998) 107-111
40. Schulz R., and Williamson G.M. Psychosocial and behavioral dimensions of physical frailty. Journals of Gerontology (Special Issue on Physical Frailty: A Treatable Cause of Dependence in Old Age) 48 (1993) 39-43
41. Selwood A., Johnston K., Katona C., Lyketsos C., and Livingston G. Systematic review of the effect of psychological interventions on family caregivers of people with dementia. Journal of Affective Disorders 101 (2007) 75-89
42. Sheija A., and Manigandan C. Efficacy of support groups for spouses of patients with spinal cord injury and its impact on their quality of life. International Journal of Rehabilitation Research 28 (2005) 379-383
43. Shewchuk R.M., Richards J.S., and Elliott T.R. Dynamic processes in health outcomes among caregivers of patients with spinal cord injuries. Health Psychology 17 (1998) 125-129
44. Sorensen S., Pinquart M., and Duberstein P. How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist 42 (2002) 356-372
45. Weitzenkamp D.A., Gerhart K.A., Charlifue S.W., Whiteneck G.G., and Savic G. Spouses of spinal cord injury survivors: The added impact of caregiving. Archives of Physical Medicine and Rehabilitation 78 (1997) 822-827
46. Wisniewski S., Belle S.H., Coon D.W., Marcus S.M., Ory M.G., Burgio L., et al. The Resources for Enhancing Alzheimer's Caregiver Health (REACH): Project design and baseline characteristics. Psychology and Aging 18 (2003) 375-384
47. Zarit S.H., Orr N.K., and Zarit J.M. The hidden victims of Alzheimer's disease: Families under stress (1985), University Press, New York, NY