Quality of life in spinal cord injured individuals and their caregivers during the initial 6 months following rehabilitation

Quality of Life Research

Volumn 13, Issue 1, 2004, Pages 97-110

  Lucke, Kathleen T ^a   Coccia, Holly ^b   Goode, Joseph S ^c   Lucke, Joseph F ^a  

^a UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

^b Family Nurse Practitioner   (United States)

^c PRESBYTERIAN UNIVERSITY HOSPITAL   (United States)

Author keywords

Family caregivers; Quality of life; Rehabilitation; Spinal cord injury

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CLINICAL ARTICLE; CONTROLLED STUDY; EMOTIONAL STABILITY; FEMALE; HEALTH STATUS; HOSPITAL PATIENT; HUMAN; INTERVIEW; LONGITUDINAL STUDY; MALE; MENTAL HEALTH; MUSCLE TRAINING; PAIN ASSESSMENT; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUALITY ADJUSTED LIFE YEAR; SCORING SYSTEM; SOCIAL STATUS; SPINAL CORD TRANSSECTION; VISUAL ANALOG SCALE;

ADULT; CAREGIVERS; DISABLED PERSONS; FEASIBILITY STUDIES; FEMALE; FOLLOW-UP STUDIES; HUMANS; INTERVIEWS; MALE; MIDDLE AGED; PAIN MEASUREMENT; PENNSYLVANIA; QUALITY OF LIFE; SICKNESS IMPACT PROFILE; SPINAL CORD INJURIES;

EID: 1542375290     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1023/B:QURE.0000015284.95515.17     Document Type: Article

References (53)

1. Network SCII. Spinal Cord Injury: Facts and Figures at a Glance. University of Alabama at Birmingham, 2001.
2. Treischmann RB. Spinal Cord Injuries: Psychological, Social and Vocational Rehabilitation. New York: Demos, 1988.
3. Fuhrer MJ. Subjective well-being: Implications for medical rehabilitation outcomes and models of disablement. Am J Phys Med Rehabil 1994; 73(5): 358-364.
4. Whiteneck GC. The 44th annual John Stanley Coulter Lecture. Measuring what matters: Key rehabilitation outcomes. Arch Phys Med Rehabil 1994; 75(10): 1073-1076.
5. Whiteneck GG. Evaluating outcome after spinal cord injury: What determines success? J Spinal Cord Med 1996; 20(2): 179-185.
6. Meyers AR, Andreson EM. Enabling our instruments: Accomodation, universal design, and access to participation in research. Arch Phys Med Rehabil 2000; 81(Suppl 2): S5-S9.
7. Andresen EM. Criteria for assessing the tools of disability outcomes research. Arch Phys Med Rehabil 2000; 81(Suppl 2): S15-S20.
8. Dijkers M. Measuring quality of life: Methodological issues. Am J Phys Med Rehabil 1999; 78(3): 286-300.
9. Cushman LA, Hassett J. Spinal cord injury: 10 and 15 years after. Paraplegia 1992; 30(10): 690-696.
10. Siösteen A, et al. The quality of life of three functional spinal cord injury subgroups in a Swedish community. Paraplegia 1990; 8: 467-488.
11. Krause JS. Aging and life adjustment after spinal cord injury. Spinal Cord 1998; 36: 320-328.
12. Dowler R, et al. Impact of demographic and medical factors on satisfaction with life after spinal cord injury: A normative study. J Spinal Cord Med 2001; 24: 87-91.
13. Fuhrer MJ, et al. Relationship of life satisfaction to impairment, disability, and handicap among persons with spinal cord injury living in the community. Arch Phys Med Rehabil 1992; 73: 552-557.
14. Granger CV, et al. Functional assessment scales: A study of persons with multiple sclerosis. Arch Phys Med Rehabil 1993; 74: 133-138.
15. Dunn M, Love L, Ravesloot C. Subjective health in spinal cord injury after outpatient healthcare follow-up. Spinal Cord 2000; 38(2): 84-91.
16. Tate DG, et al. Quality of life issues among women with physical disabilities or breast cancers. Arch Phys Med Rehabil 1997; 78(12 Suppl 5): S18-S25.
17. Duggan CH, Dijkers M. Quality of life after spinal cord injury: A qualitative study. Rehabil Psychol 2001; 46(1): 3-27.
18. Abela MB, Dijkers M. Predicting life satisfaction among spinal cord injured patients one to three years post-injury. J Am Paraplegia Soc 1994; 17(2): 118-121.
19. Clayton KS, Chubon RA. Factors associated with the quality of life of long-term spinal cord injured persons. Arch Phys Med Rehabil 1994; 75: 633-638.
20. Riley BB, et al. Type of spiritual well-being among persons with chronic illness: Their relation to various forms of quality of life. Arch Phys Med Rehabil 1998; 79: 258-264.
21. Anke AG, Wagner SAE, Stanghelle JK. Pain and life quality within 2 years of spinal cord injury. Paraplegia 1995; 33: 555-559.
22. Lundqvist C, et al. Spinal cord injuries: Clinical, functional and emotional status. Spine 1991; 16: 78-83.
23. Richards JS, et al. Access to the environment and life satisfaction after spinal cord injury. Arch Phys Med Rehabil 1999; 80(11): 1501-1506.
24. Putzke JD, et al. Predictors of life satisfaction: A spinal cord injury cohort study. Arch Phys Med Rehabil 2002; 83: 555-561.
25. Pain K, et al. Quality of life: What does it mean in rehabilitation? J Rehabil 1998; 64(2): 5-13.
26. Kennedy P, Rogers B. Reported quality of life of people with spinal cord injuries: A longitudinal analysis of the first 6 months post-discharge. Spinal Cord 2000; 38: 498-503.
27. Meyers AR, Andresen EM, Hagglund KJ. A model of outcomes research: Spinal cord injury. Arch Phys Med Rehabil 2000; 81(2) (Suppl): S81-S90.
28. Stensman R. Adjustment totraumatic spinal cord injury: A longitudinal study of self-reported quality of life. Paraplegia 1994; 32: 416-422.
29. Stensman R. Severely mobility-disabled people assess the quality of their lives. Scand J Rehabil Med 1985; 17: 87-99.
30. DeVivo MJ, Richards JS. Community reintegration and quality of life following spinal cord injury. Paraplegia 1992; 30: 108-112.
31. Schulz R, Decker S. Long-term adjustment to physical disability - the role of social support, perceived control and self-blame. J Personal Soc Psychol 1985; 48(5): 1162-1172.
32. Yerxa EJ, Baum S. Engagement in daily occupations and life satisfaction among people with spinal cord injuries. Occup Ther J Res 1986; 6(5): 271-283.
33. Weitzenkamp DA, et al. Spouses of spinal cord injury survivors: The added impact of caregiving. Arch Phys Med Rehabil 1997; 78(8): 822-827.
34. Elliott TR, Shewchuk RM, Richards JS. Caregiver social problem-solving abilities and family member adjustment to recent-onset physical disability. Rehabil Psychol 1999; 44(1): 104-123.
35. Ünalan H, et al. Quality of life of primary caregivers of spinal cord injury survivors living in the community: Controlled study with Short Form-36 Questionnaire. Spinal Cord 2001; 39: 318-322.
36. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-46). Med care 1992; 30(6): 473-483.
37. Stewart AL, Hays RD, Ware JE Jr. The medical outcomes study short-form general health survey: Reliability and validity in a patient population. Med Care 1988; 26: 727-735.
38. Stewart AL, Ware JE Jr. Measuring Functioning and Well-being: The Medical Outcomes Study Approach. Durham, NC: Duke University Press, 1992.
39. Hays RD, Sherbourne CD, Mazel RM. The Rand 36-item health status survey 1.0. Health Econom 1993; 2: 217-227.
40. McHorney CA, et al. The validity and relative percision of MOS short-and long-form health status scales and Dartmouth COOP charts. Med Care, 1992: 30(Suppl): MS253-MS265.
41. VanderZee KI, Sanderman R, Heyink J. A comparison of two multidimensional measures of health status: The Nottingham Health Profile and the RAND 36-Item Health Survey. Qual Life Res 1996; 5(1): 165-174.
42. Waltz CF, Strickland OL, Lenz ER. Measurement in nursing research. 2nd ed., Philadelphia: F.A. Davis Company, 1991.
43. Schanke A, et al. Mild versus severe fatigue in polio survivors: Special characteristics. J Rehabil Med 2002; 34(3): 134-140.
44. Westgren N, Levi R. Quality of life and traumatic spinal cord injury. Arch Phys Med Rehabil 1998; 79(11): 1433-1439.
45. Lohr KN, et al. Evaluating quality of life and health status instruments: Development of scientific review criteria. Clin Therap 1996; 18(5): 979-992.
46. Andresen EM, et al. Performance of health-related quality-of-life instruments in a spinal cord injured population. Arch Phys Med Rehabil 1999; 80: 877-884.
47. Andresen EM, Meyers AR. Health related quality of life outcome measures. Arch Phys Med Rehabil 2000; 81(12 S2): S30-S45.
48. Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey: Manual and Interpretation Guide. 2nd ed., Boston, MA: The Health Institute, New England Medical Center, 1997.
49. Brown KLG. Grief as a basic conditioning factor affecting the self-care agency and self-care of family caregivers of persons with neurotrauma. In Nursing. Wayne State University: Detroit, 1996; 465.
50. Holicky R, Charlifue S. Ageing with spinal cord injury: The impact of spousal support. Disability Rehabil 1999; 21(5/6): 250-257.
51. Morrison SA, Stanwyck DJ. The effect of shorter lengths of stay on functional outcomes of spinal cord injury rehabilitation. Topics Spinal Cord Injury Rehabil 1999; 4(4): 44-45.
52. Krause JS. Dimensions of subjective well-being after spinal cord injury: An empirical analysis by gender and race/ethnicity. Arch Phys Med Rehabil 1999; 79(8): 900-909.
53. Tate DG, Forchheimer M. Health-related quality of life and life satisfaction for women with spinal cord injury. Topics Spinal Cord Injury Rehabil 2001; 7(1): 1-15.