Health-related quality of life of primary caregivers of persons with paraplegia

Spinal Cord

Volumn 45, Issue 6, 2007, Pages 399-403

  Blanes, L ^a   Carmagnani, M I S ^a   Ferreira, L M ^a  

^a FEDERAL UNIVERSITY OF SÃO PAULO   (Brazil)

Author keywords

Caregiver burden; Caregivers; Paraplegia; Quality of life

Indexed keywords

ADULT; ARTICLE; BRAZIL; CAREGIVER; CAREGIVER BURDEN; CHRONIC DISEASE; CLINICAL ARTICLE; CLINICAL ASSESSMENT; EMOTION; FEMALE; HEALTH SURVEY; HUMAN; INTERVIEW; MALE; PAIN; PARAPLEGIA; PRIORITY JOURNAL; QUALITY OF LIFE; RATING SCALE; RELATIVE; RESPONSIBILITY; SCORING SYSTEM; SHORT FORM 36; SPINAL CORD INJURY; STRUCTURED QUESTIONNAIRE; WORK SCHEDULE;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; CAREGIVERS; CHRONIC DISEASE; CROSS-SECTIONAL STUDIES; FAMILY HEALTH; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; MALE; MIDDLE AGED; PAIN MEASUREMENT; PARAPLEGIA; PREVALENCE; PSYCHOPHYSIOLOGIC DISORDERS; QUALITY OF LIFE; QUESTIONNAIRES; SEX DISTRIBUTION; SPINAL CORD INJURIES; STRESS, PSYCHOLOGICAL;

EID: 34249950936     PISSN: 13624393     EISSN: 14765624     Source Type: Journal    
DOI: 10.1038/sj.sc.3102038     Document Type: Article

References (20)

1. Medeiros MMC, Ferraz MB, Quaresma MR. The effect of rheumatoid arthritis on the quality of life of primary caregivers. J Rheumatol 2000; 27: 76-83.
2. Azevedo GR, Santos VLCG (Handicapped). Caregiver: the social representations of family members about the caregiving process. Rev Latino-am Enfermagem 2006; 14: 770-780.
3. Baumgarten M. The health of persons giving care to the demented elderly: a critical review of the literature. J Clin Epidemiol 1989; 42: 1137-1148.
4. Stewart AL, Hays RD, Ware JE. The MOS Short Form General Health Survey: reliability and validity in a patient population. Med Care 1988; 26: 724-735.
5. Elmstahl S, Malmberg B, Annerstedt L. Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch Phys Med Rehabil 1996; 77: 177-182.
6. Ciconelli RM, Ferraz MB, Santos W, Meinão I, Quaresma MR. Brazilian-Portuguese version ofthe SF-36, A reliable and valid quality of life outcome measure. Rev Bras Reumatol 1999; 39: 143-150.
7. Ehrlich F, Bowring G, Draper B, Poulos C, Salgado R. Caring for carers - a national problem. Med J Aust 1992; 156: 590-592.
8. Corcoran MA. Management decisions made by caregiver spouses of persons with Alzheimer's disease. Am J Ocup Ther 1994; 48: 38-45.
9. Zarit SH, Todd P, Zarit J. Subjective burden of husbands and wives as caregivers: a longitudinal study. Gerontologist 1986; 26: 260-266.
10. Fink SV. The influence of family resources and family demands on the strains and well-being of caregiving families. Nurs Res 1995; 44: 139-146.
11. Russo J, Vitalino PP, Brewer DD, Katon W, Becker J. Psychiatric disorders in spouse caregivers of care recipients with Alzheimer's disease and matched controls: a diathesis-stress model of psychopathology. J Abnorm Psychol 1995; 104: 197-204.
12. De Vivo MJ, Fine PR. Spinal Cord Injury: its short-term impact on marital status. Arch Phys Med Rehabil 1985; 66: 501-504.
13. Chan RC. Stress and coping in spouses of persons with spinal cord injuries. Clin Rehabil 2000; 14: 137-144.
14. De Vivo MJ, Hawkins LN, Richards JS, Go BK. Outcomes of post-spinal cord injury marriages. Arch Phys Med Rehabil 1995; 76: 130-138.
15. Belasco AG, Sesso R. Burden and quality of life of caregivers for hemodialysis patients. Am J Kidney Dis 2002; 39: 805-812.
16. Karlin NJ, Retzlaff PD. Psychopathology in caregivers of the chronically ill: personality and clinical syndromes. Hosp J 1995; 10: 55-61.
17. Schulz R, O'Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregivers: prevalence, correlates and causes. Gerontologist 1995; 35: 771-791.
18. Ünalan H et al. Quality of life of primary caregivers of spinal cord injury survivors living in the community: controlled study with short form-36 questionnaire. Spinal cord 2001; 39: 318-322.
19. Potaszniz H, Nelson G. Stress and social support: the burden experienced by the family of a mentally ill person. Am J Community Psychol 1984; 12: 589-607.
20. Faro ACM. Atividades realizadas no domicílio pelo cuidador familiar da pessoa com lesão medular. Rev Paul Enf 2001; 20: 33-42.