The association of stress-coping variables to quality of life among caregivers of individuals with traumatic brain injury

NeuroRehabilitation

Volumn 27, Issue 1, 2010, Pages 49-62

  Chronister, Julie ^a   Chan, Fong ^b   Sasson Gelman, E Joy ^a   Chiu, Chung Yi ^c  

^a SAN FRANCISCO STATE UNIVERSITY   (United States)

^b UNIVERSITY OF WISCONSIN MADISON   (United States)

^c UNIVERSITY OF TEXAS AT DALLAS   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CAREGIVER SUPPORT; CLINICAL ASSESSMENT; CLINICAL ASSESSMENT TOOL; COPING BEHAVIOR; CORRELATION ANALYSIS; EMOTION; EMOTIONAL STRESS; FAMILY NEEDS QUESTIONNAIRE; FEMALE; HUMAN; INTERPERSONAL SUPPORT EVALUATION LIST; JOB SATISFACTION; MALE; MODIFIED CAREGIVING APPRAISAL SCALE; NEEDS ASSESSMENT; NORMAL HUMAN; PERSONAL NEEDS; PROBLEM SOLVING; QUALITY OF LIFE; SKILL RETENTION; SOCIAL AVOIDANCE BEHAVIOR; SOCIAL SUPPORT; STRESS MANAGEMENT; TRAUMATIC BRAIN INJURY; WORLD HEALTH ORGANIZATION QUALITY OF LIFE; ADAPTIVE BEHAVIOR; AGED; BRAIN INJURIES; COST OF ILLNESS; FAMILY; HEALTH SERVICE; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGY; QUESTIONNAIRE;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; BRAIN INJURIES; CAREGIVERS; COST OF ILLNESS; FAMILY; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 77954701927     PISSN: 10538135     EISSN: None     Source Type: Journal    
DOI: 10.3233/NRE-2010-0580     Document Type: Article

References (52)

1. M.I. Anderson, T.R. Parmenter and M. Mok, The relationship between neurobehavioral problems of severe traumatic brain injury (TBI), family functioning and the psychological wellbeing of the spouse/caregiver: Path model analysis, Brain Injury 16 (2002), 743-757.
2. C.S. Aneshensel, L.I. Pearlin, J.T. Mullan, S.H. Zarit and C.J. Whitlatch, Profiles in Caregiving: The Unexpected Career, New York: Academic Press, 1995.
3. I. Brisette, M.F. Scheier and C.S. Carver, The role of optimism in social network development, coping, and psychological adjustment during a life transition, Journal of Personality and Social Psychology 82 (2002), 102-111.
4. C. Campbell, Needs of relatives and helpfulness of support groups in severe head injury, Rehabilitation Nursing 13 (1988), 320-325.
5. C.S. Carver, M.F. Scheier and J.K.Weintraub, Assessing coping strategies: A theoretically based approach, Journal of Personality and Social Psychology 56 (1989), 267-283.
6. A. Chandra and A. Ozturk, In context: Quality of life issues and assessment tools as they relate to patients with chronic nonmalignant pain, Hospital Topics: Research and Perspectives on Healthcare 83 (2005), 33-37.
7. J. Chronister, Social support and rehabilitation: Theory, research and measurement, in: Understanding Psychosocial Adjustment to Chronic Illness and Disability: A Handbook for Evidenced-Based Practitioners in Rehabilitation, F. Chan, E. Cardoso and J. Chronister, eds, New York: Springer, 2009, pp. 149-183.
8. K. Chwalisz, The perceived stress model of caregiver burden: Evidence form spouses of persons with brain injuries, Rehabilitation Psychology 41 (1996), 91-114.
9. J. Cohen, Statistical Power Analysis for the Behavioral Sciences (2nd ed.), 1988, Hillsdale, NJ: Erlbaum.
10. S. Cohen and H.M. Hoberman, Positive events and social supports as buffers of life change stress, Journal of Applied Social Psychology 13 (1983), 99-125.
11. S. Cohen, R. Mermelstein, T. Kamarck and H.M. Hoberman, Measuring the functional components of social support, in: Social Support: Theory, Research and Applications, I.G. Sarason and B.R. Sarason, eds, Boston: Martinus Nijhoff Publishers, 1983, pp. 73-94.
12. J.M. Douglas and F.J. Spellacy, Correlated of depression in adults with severe traumatic brain injury and their carers, Disability & Rehabilitation 22 (2000), 683-689.
13. T.C. Ergh, L.R. Rapport, R.D. Coleman and R.A. Hanks, Predictors of caregiver and family functioning following traumatic brain injury: Social support moderates caregiver distress, Journal of Head Trauma Rehabilitation 17 (2002), 155-174.
14. L. Fallowfield, The Quality of Life: The Missing Measurement in Health Care, London: Souvenir Press, 1990.
15. J.M. Fleming, J. Strong and R. Ashton, Cluster analysis of self-awareness levels in adults with traumatic brain injury and relationship to outcome, Journal of Head Trauma Rehabilitation 13 (1998), 39-51.
16. P.A. Frazier, A.P. Tix and K.E. Barron, Testing moderator and mediator effects in counseling psychology research, Journal of Counseling Psychology 51 (2004), 115-134.
17. R.A. Hanks, L.J. Rapport and S. Vangel, Caregiving appraisal after traumatic brain injury: The effects of functional status, coping style, social support, and family functioning, NeuroRehabilitation 22 (2007), 43-52.
18. J.K.J. Harris, H.P.D. Godfrey, F.M. Partridge and R.G. Knight, Caregiver depression following traumatic brain injury: A consequent of adverse effects on family members? Brain Injury 15 (2001), 223-238.
19. R.L. Heilbronner, C. Millsaps, R. Azrin and W. Mittenberg, Psychometric properties of the Patient Competency Rating Scale, Journal of Clinical and Experimental Neuropsychology 15 (1993), 67-68.
20. W.T.Hoyt, Z.E. Imel and F. Chan, Multiple regression and correlation techniques: Recent controversies and best practices, Rehabilitation Psychology 53 (2008), 321-339.
21. R.G. Knight, R. Devereux and H.P.D. Godfrey, Caring for a family member with a traumatic brain injury, Brain Injury 12 (1998), 467-481.
22. S. Koskinen, Quality of life 10 years after a very severe traumatic brain injury (TBI): The perspective of the injured and the closest relative, Brain Injury 12 (1998), 631-648.
23. J.S. Kreutzer, C.D. Serioand S. Bergquist, Family needs after brain injury: A quantitative analysis, Journal of Head Trauma Rehabilitation 9 (1994), 104-115.
24. M.P. Lawton, M.H. Kleban, M. Moss, M. Rovine and A. Glicksman, Measuring caregiving appraisal, Journal of Gerontology 44 (1989), 61-71.
25. M.P. Lawton, M. Moss, M.H. Kleban, A. Glicksman and M. Rovine, A two-factor model of caregiving appraisal and psychological well-being, Journal of Gerontology 46 (1991), 181-189.
26. R.S. Lazarus and S. Folkman, Stress, Appraisal, and Coping, New York: Springer, 1984.
27. R.S. Lazarus and S. Folkman, Transactional theory and research on emotions and coping, European Journal of Personality 1 (1987), 141-169.
28. L.R. Leach, D.R.G. Frank, D.E. Bouman and J. Farmer, Family functioning, social support, and depression after traumatic brain injury, Brain Injury 8 (1994), 559-606.
29. J.M. Leathem, L.J. Murphy and R.A. Flett, Self and informant - ratings on the Patient Competency Rating Scale in patients with traumatic brain injury, Journal of Clinical and Experimental Neuropsychology 20 (1998), 694-705.
30. J. W. Lim, and B. Zebrack, Caring for family members with chronic physical illness: A critical review of caregiver literature, Health and Quality of Life Outcomes 2 (2004), 50.
31. R.T. Linn, K. Allen and B.S. Willer, Affective symptoms in the chronic stage of traumatic brain injury: A study of married couples, Brain Injury 8 (1994), 135-147.
32. H. Livneh and L.M. Wilson, Coping strategies as predictors and mediators of disability-related variables and psychosocial adaptation: An exploratory investigation, Rehabilitation Counseling Bulletin 46 (2003), 194-208.
33. J. Machamer, N. Temkin and S. Dikmen, Significant other burden and factors related to it in traumatic brain injury, Journal of Clinical and Experimental Neuropsychology 24 (2002), 420-433.
34. N.V. Marsh, D.A. Kersel, J.H. Havill and J.W. Sleigh, Caregiver burden at six months following severe traumatic brain injury, Brain Injury 12 (1998), 225-238.
35. N.V. Marsh, D.A.Kersel, J.H. Havill and J.W. Sleigh, Caregiver burden at one year following severe traumatic brain injury, Brain Injury 12 (1998), 1045-1059.
36. V.L. Mason, S.M. Skevington and M. Osborn, Development of a pain and discomfort module for use with the WHOQOL-100, Quality of Life Research 13 (2004), 1139-1152.
37. M. Mathis, Personal needs of families of critically ill patients with and without brain injury, Journal of Neurosurgical Nursing 16 (1984), 36-44.
38. N. Mauss-Clum and M. Ryan, Brain injury and the family, Journal of Neurosurgical Nursing 13 (1981), 165-169.
39. R.H. Moos and A. Schaefer, Coping resources and processes: Current concepts and measures, in: Handbook of Stress: Theoretical and Clinical Aspects, L. Goldberger and S. Breznitz, eds, (2nd ed.), New York: Free Press, 1993, pp. 234-257.
40. S. Moules and B. Chandler, A study of the health and social needs of carers of traumatically brain injured individuals served by one community rehabilitation team, Brain Injury 13 (1999), 983-993.
41. N. Nabors, J. Seacat and M. Rosenthal, Predictors of caregiver burden following traumatic brain injury, Brain Injury 16 (2002), 1039-1050.
42. P.M. Pelletier and D.P. Alfano, Depression, social support and family coping following traumatic brain injury, Rottman Institute Abstracts (2000), 45-49.
43. A. Perlesz, G. Kinsella and S. Crowe, Impact of traumatic brain injury on the family: A critical review, Rehabilitation Psychology 44 (1999), 6-35.
44. G.P. Prigatano et al., Neuropsychological Rehabilitation after Brain Injury, Baltimore: Johns Hopkins University Press, 1986.
45. A.M. Sander, W.M. High, H.J. Hannay and M. Sherer, Predictors of psychological health in caregivers of patients with closed head injury, Brain Injury 11 (1997), 235-249.
46. C.D. Serio, J.S. Kreutzer and A.D. Witol, Family needs after traumatic brain injury: A factor analytic study of the family needs questionnaire, Brain Injury 11 (1997), 1-9.
47. P. Stebbins and K.I. Pakenham, Irrational schematic beliefs and psychological distress in caregivers of people with traumatic brain injury, Rehabilitation Psychology 46 (2001), 178-194.
48. M.A. Struchen, T.B. Atchison, T.M. Roebuch, J.S. Caroselli and A.M. Sander, A multidimensional measure of caregiving appraisal: Validation of the caregiving appraisal scale in traumatic brain injury, Journal of Head Trauma Rehabilitation 17(2002), 132-154.
49. S.L.Wade, K.O. Yeates, E.A. Borawskil, G. Taylor, D. Drotar and T. Stancin, The relationship of caregiver coping to family outcomes during the initial year following pediatric traumatic brain injury, Journal of Clinical and Consulting Psychology 69 (2001), 406-415.
50. R.Wells, J. Dywan and J. Dumas, Life satisfaction and distress in family caregivers as related to specific behavioral changes after traumatic brain injury, Brain Injury 19 (2005), 1105-1115.
51. WHOQOL Group, Development of the World Health Organization WHOQOL-BREF quality of life assessment, Psychological Medicine 28 (1998), 551-558.
52. C.B. Wortman and T.L. Conway, The role of social support in adaptation and recovery from physical illness, in: Social Support and Health, S. Cohen and S.L. Syme's, eds, San Diego, CA: Academic Press, 1985, pp. 281-302.