Quality of life 10 years after a very severe traumatic brain injury (TBI): The perspective of the injured and the closest relative

Brain Injury

Volumn 12, Issue 8, 1998, Pages 631-648

  Koskinen, S ^a  

^a Natl Assoc of Disabled in Finland   (Finland)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AFFECTIVE NEUROSIS; ARTICLE; BRAIN INJURY; CLINICAL ARTICLE; FAMILY LIFE; FEMALE; FOLLOW UP; HUMAN; MALE; QUALITY OF LIFE; QUESTIONNAIRE; REHABILITATION;

EID: 0031818181     PISSN: 02699052     EISSN: None     Source Type: Journal    
DOI: 10.1080/026990598122205     Document Type: Article

References (44)

1. BROOKS, D. N. and McKINLAY, W.: Personality and behavioural change after severe blunt head injury - a relative's view. Journal of Neurology, Neurosurgery and Psychiatry, 46: 336-344, 1983.
2. BROOKS, N., CAMPSIE, E., SYMINGTON, C. et al: The five year outcome of severe blunt head injury: a relative's view. Journal of Neurology, Neurosurgery and Psychiatry, 49: 764-770, 1986.
3. BROOKS, N.: Behavioural abnormalities in head injured patients, Scandinavian Journal of Rehabilitation Medicine Supplement, 17: 41-46, 1988.
4. LEZAK, M. D.: Living with the characterologically altered brain injured patient. Journal of Clinical Psychology, 39: 592-598, 1978.
5. LEZAK, M. D.: Psychological implications of traumatic brain damage for the patient's family. Rehabilitation Psychology, 31: 241-250, 1986.
6. LEZAK, M.: Brain damage is a family affair. Journal of Clinical and Experimental Neuropsychohgy, 10: 111-123, 1988.
7. McKINLAY, W. W., BROOKS, D. N., BOND, M. R. et al: The short-term outcome of severe blunt head injury as reported by relatives of the injured persons. Journal of Neurology, Neurosurgery and Psychiatry, 44: 527-533, 1981.
8. PRIGATANO, G. P.: Personality and psychosocial consequences after brain injury. In M. Meier, A. Benton and L. Diller (editors) Neuropsychological Rehabilitation (New York: Guilford Publications Inc.), pp. 355-378, 1987.
9. BROOKS, N.: Planning the future: The situation after discharge from rehabilitation. International Symposium Neurorehabilitation: A perspective for the future, 13-15, Klinik Bavaria, W-8351 Schaufling bei Deggendorf, Germany, 1993.
10. MOUTON, M. V. and WEHMAN, P.: Psychosocial and emotional sequelae of individuals with traumatic brain injury: a literature review and recommendations. Brain Injury, 9: 81-92, 1995.
11. LIVINGSTON, G. M. and BROOKS, D. N.: The burden on families of the brain injured: A review. Journal of Head Trauma Rehabilitation, 3: 6-15, 1988.
12. BERGQUIST, T. F., BOLL, T. J., CORRIGAN, J. D. et al.: Neuropsychological rehabilitation: Proceedings of a consensus conference. Journal of Head Trauma Rehabilitation, 9: 50-61, 1994,
13. LINGE, F. R.: Faith, hope, and love: nontraditional therapy in recovery from serious head injury, a personal account. In N. Kapur (editor) Injured Brains of Medical Minds. Views from Within (Oxford: Oxford University Press), pp. 324-340, 1997.
14. KLONOFF, P. S., COSTA, L. D. and SNOW, W. G.: Predictors and indicators of quality of life in patients with closed-head injury. Journal of Clinical and Experimental Neuropsychology, 8: 469-485, 1986.
15. FLANAGAN,J. C.: Measurement of quality of life: current state of the art. Archives of Physical Medicine Rehabilitation, 63: 56-59, 1982.
16. VIITANEN, M., FUGL-MEYER, K. S., BERNSPÅNG, B. et al.: Life satisfaction in long-term survivors after stroke. Scandinavian Journal of Rehabilitation Medicine, 20: 17-24, 1988.
17. BROOKS, N., McKiNiAY, W., SYMINGTON, C. et al.: Return to work within the first seven years of severe head injury. Brain Injury', 1: 5-19, 1987.
18. ODDY, M. and HUMPHREY, M.: Social recovery during the year following severe head injury. Journal of Neurology, Neurosurgery and Psychiatry, 43: 798-802, 1980.
19. ODDY, M., COUGHLAN, T., TYERMAN, A. et al.: Social adjustment after closed head injury: a further follow-up of seven years after injury. Journal of Neurology, Neurosurgery and Psychiatry, 48: 567-568, 1985.
20. PONSFORD, J. L., OLVER, J. H. and CURRAN, C.: A profile of outcome: 2 years after traumatic brain injury. Brain Injury, 9: 1-10, 1995.
21. MARSH, N. V., KNIGHT, R. G. and GODFREY, H. P. D.: Long-term psychosocial adjustment following very severe closed head injury. Neuropsychology, 4: 13-27, 1990.
22. RAPPAPORT, M., HERRERO-BACKE, C., RAPPAPOKT, M. L. et al.: Head injury outcome up to ten years later. Archives of Physical Medicine Rehabilitation, 70: 885-892, 1989.
23. SBORDONE, R.J., LITER, J. C. and PETTLER-JENNING, P.: Recovery of function following severe traumatic brain injury: a retrospective 10-year follow-up. Brain Injury, 9: 285-300, 1995.
24. SCHALÉN, W., HANSSON, L., NORDSTRÖM, G. et al.: Psychosocial outcome 5-8 years after severe traumatic brain lesions and the impact of rehabilitation services. Brain Injury, 8: 49-64, 1994.
25. THOMSEN, I. V.: The patient with severe head injury and his family: a follow-up study of 50 patients. Scandinavian Journal of Rehabilitation Medicine, 6: 180-183, 1974.
26. THOMSEN, I. V.: Late outcome of very severe blunt head trauma: a 10-15 year second follow-up. Journal of Neurology, Neurosurgery and Psychiatry, 47: 260-268, 1984.
27. KREUTZER, J. S., GERVASIO, A. H. and CAMPLAIR, P. S.: Primary caregivers' psychological status and family functioning after traumatic brain injury. Brain Injury, 8: 197-210, 1994.
28. KREUTZER, J. S., GERVASIO, A. H. and CAMPLAIR, P. S.: Patient correlates of caregivers' distress and family functioning after traumatic brain injury. Brain Injury, 8: 211-230, 1994.
29. LEATHEM, J., HEATH, E. and WOOLLEY, C.: Relatives' perceptions of role change, social support and stress after traumatic brain injury. Brain Injury, 10: 27-38, 1996.
30. RÖNTY, H.: Cerebral trauma. A clinical, computed tomography, quantitative EEC, blood transfusion, blood circulation, isotope and neuropsychological follow-up study (Oulu: Acta Universitatis Ouluensis), series D medica, 182, 1988.
31. VILKKI, J., AHOLA, K., HOLST, P. et al.: Prediction of psychosocial recovery after head injury with cognitive tests and neurobehavioural ratings. Journal of Clinical and Experimental Neuropsychology, 16: 325-338, 1994.
32. ASIKAINEN, I., KASTE, M. and SAKNA, S.: Patients with traumatic brain injury referred to a rehabilitation and re-employment programme: social and professional outcome for 508 Finnish patients 5 or more years after injury. Brain Injury, 10: 883-900, 1996.
33. KAITARO, T., KOSKINEN, S. and KAIPIO, M.-L.: Neuropsychological problems in everyday life: a 5-year follow-up study of young severely closed-head-injured patients. Brain Injury, 9: 713-727, 1995.
34. McKINLAY, W. W., BROOKS, D. N. and HICKOX, A.: Questionnaire for relatives. Questionnaire for relatives/post head injury progress assessment (Case management services LTD) (Unpublished), 1990.
35. GOODGOLD,J. (editor.): Rehabilitation medicine (St. Louis: Mosby), 1988.
36. LEVIN, H. S., HIGH, W. M., GOETHE, K. E. et al.: The neurobehavioural rating scale: assessment of the behavioural sequelae of head injury by the clinician. Journal of Neurology, Newosurgery and Psychiatry, 50: 183-193, 1987.
37. CICHOWSKI, K. (editor): R1C-FAS III-Rehabilitation Institute of Chigaco Functional Assessment Scale (Chigaco: Rehabilitation Institute of Chicago), 1992.
38. PRIGATANO, G. P.: Neuropsychologicat Rehabilitation after Brain Injury (Baltimore: The Johns Hopkins University Press), 1986.
39. PRIGATANO, G. P.: The relationship of frontal lobe damage to diminished awareness: studies in rehabilitation. In H. S. Levin, H. M. Eisenberg and A. L. Benton (editors), Frontal Lobe Function and Dysfunction (New York: Oxford University Press), pp. 381-397, 1991.
40. PRIGATANO, G. P. and ALTMAN, I. M.: Impaired awareness of behavioural limitations after traumatic brain injury. Archives Physical Medicine Rehabilitation, 71: 1058-1064, 1990.
41. FLEMING, J. M., STRONG, J. and ASHTON, R.: Self-awarenes of deficits in adults with traumatic brain injury: how best to measure? Brain Injury, 10: 1-15, 1996.
42. LIVINGSTONE, M. G., BROOKS, D. N. and BOND, M. R.: Patient outcome in the year following severe head injury and relative's psychiatric and social functioning. Journal of Neurology, Neurosurgery and Psychiatry, 48: 876-881, 1985.
43. BROOKS, N., CAMPSIE, L., SYMINGTON, C. et al.: The effects of severe head injury on patient and relative within seven years of injury. Journal of Head Trauma Rehabilitation, 2: 1-13, 1987.
44. SERIO, C. D., KREUTZER, J. S. and GERVASIO, A. H.: Predicting family needs after brain injury: Implications for intervention. Journal of Head Trauma Rehabilitation, 10: 32-45, 1995.