Development of a pain and discomfort module for use with the WHOQOL-100

Quality of Life Research

Volumn 13, Issue 6, 2004, Pages 1139-1152

  Mason, Victoria L ^a   Skevington, Suzanne M ^a   Osborn, Mike ^b  

^a University of Bath   (United Kingdom)

^b ROYAL UNITED HOSPITAL   (United Kingdom)

Author keywords

Chronic pain; Focus groups; Quality of Life; Web survey; WHOQOL 100

Indexed keywords

ADULT; AGED; ANALGESIA; ANGER; ARTICLE; BODY BURDEN; CHRONIC PAIN; CLINICAL ARTICLE; FEAR; FEMALE; FRUSTRATION; GUILT; HEALTH CARE PERSONNEL; HEALTH SURVEY; HUMAN; INTERPERSONAL COMMUNICATION; LONELINESS; MALE; PAIN ASSESSMENT; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; QUALITY OF LIFE; RELIABILITY; UNCERTAINTY; VALIDATION PROCESS; WORLD HEALTH ORGANIZATION;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CHRONIC DISEASE; FEMALE; FOCUS GROUPS; GREAT BRITAIN; HUMANS; MALE; MIDDLE AGED; PAIN; PAIN MEASUREMENT; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE; SOCIAL ADJUSTMENT;

EID: 3042833615     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1023/B:QURE.0000031344.53009.eb     Document Type: Article

References (45)

1. Fallowfield L. The Quality of Life: The Missing Measurement in Health Care. London: Souvenir Press, 1990.
2. Detmar SB, Muller MJ, Schornagel JH, et al. Role of health-related quality of life in palliative chemotherapy treatment decisions. J Clin Oncol 2002; 20: 1056-1062.
3. Cohen I, Rainville J. Aggressive exercise as treatment for chronic low back pain. Sports Med 2002; 32: 75-82.
4. Saunders C, Egger M, Donovan J, et al. Reporting on quality of life in randomised control trials: Bibliographic study. BMJ 1998; 317: 1191-1194.
5. Muldoon MF, Barger SD, Flory JD, Manuck SB. What are quality of life measurements measuring? Br Med J 1998; 316: 542-545.
6. Schappert SM. National Ambulatory Medical Care Survey: 1989 summary. National Center for Health Statistics. Vital Health Stat 13 1992; No. 110.
7. Gureje O, Von Korff M, Simon GE, Gater R. Persistent Pain and Well-being: A World Health Organisation Study in Primary Care. JAMA 1998; 280: 147-151.
8. Aronoff GM. Chronic pain and the disability epidemic. Clin J Pain 1991; 7: 330-338.
9. Loeser JD. What is chronic pain? Theor Med 1991; 12: 213-225.
10. The WHOQOL Group. The World Health Organisation Quality of Life Assessment (the WHOQOL): Position paper from the World Health Organisation. Soc Sci Med 1995; 41: 1403-1409.
11. The WHOQOL Group. The WHOQOL: Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585.
12. Skevington SM. Investigating the relationship between pain and discomfort and quality of life using the WHOQOL. Pain 1998; 76: 395-406.
13. Skevington SM, Carse MS, Williams AC. Validation of the WHOQOL-100: Pain management improves quality of life for chronic pain patients. Clin J Pain 2001; 17: 264-275.
14. Dunn V. The holistic assessment of the patient in pain. Prof Nurse 2000; 15: 791-793.
15. Turk DC, Okifuji, A. Pain: Assessment of patients' reporting of pain: An integrated perspective. Lancet 1999; 353: 1784-1788.
16. Maniadakis N, Gray A. The economic burden of back pain in the UK. Pain 2000; 84: 95-103.
17. BBC News. UK Internet usage surges. Jupiter MMXI. 2001. Available at http://news.bbc.co.uk/1/hi/business/ 1500668.stm. Accessed 12-12-2002.
18. Chan C, Bumatay M, Shandwick W, Pileggi S. Internet usage climbs to a record height in October. Nielsen Net Ratings. 2001. Available at http://www.nielsen-netratings.com/pr/pr_011113.pdf. Accessed 12-12-2002.
19. NUA. How many online? NUA . 2002. Available at http:// www.nua.ie/surveys/how_many_online/index.html. Accessed 12-12-2002.
20. Taylor MR, Alman A, Manchester DK. Use of the Internet by patients and their families to obtain genetics-related information. Mayo Clin Proc 2001; 76: 769-771.
21. Bliven BD, Kaufman SE, Spertus JA. Electronic collection of health related quality of life data: Validity, time benefits and patient preference. Qual Life Res 2001; 10: 15-22.
22. Elliott AM, Smith BH, Penny KI, et al. The epidemiology of chronic pain in the community. Lancet 1999; 354: 1248-1252.
23. International Association for the Study of Pain and Subcommittee on Taxonomy. Classification of chronic pain. Pain 1986; (Suppl 3).
24. Mays N, Pope C. Rigour in qualitative research. BMJ 1995; 311: 109-112.
25. Kuzel AJ. Sampling in qualitative inquiry. In: Crabtree BF, Miller WL (eds), Doing Qualitative Research. London: Sage, 1992; 31-44.
26. Skevington SM. Measuring quality of life in Britain: Introducing the WHOQOL-100. J Psychosom Res 1999; 47: 449-459.
27. Skevington SM, MacArthur P, Somerset M. Developing items for the WHOQOL: An investigation of contemporary beliefs about quality of life related to health in Britain. Br J Health Psychol 1997; 2: 55-72.
28. Morgan DL. Focus groups as a qualitative research. Sage University Paper Series on Qualitative Research Methods. Beverly Hills, California: Sage, 1988.
29. Morgan DL, Kreuger RA. The Focus Group Kit. Beverly Hills, California: Sage Publications, 1998.
30. Melzack, R. The McGill Pain questionnaire: Major properties and scoring methods. Pain 1975; 7: 277-299.
31. Whitney CW, Von Korff M. Regression to the mean in treated versus untreated chronic pain. Pain 1992; 50: 281-285.
32. Hammond A, Freeman K. One-year outcomes of a randomized controlled trial of an educational-behavioural joint protection programme for people with rheumatoid arthritis. Rheumatology (Oxford) 2001; 40: 1044-1051.
33. Jensen MP, Karoly P, Huger R. The development and preliminary validation of an instrument to assess patients' attitudes toward pain. J Psychosom Res 1987; 31: 393-400.
34. Harkapaa K, Jarvikoski A, Mellin G, et al. Health locus of control beliefs and psychological distress as predictors for treatment outcome in low-back pain patients: Results of a 3-month follow-up of a controlled intervention study. Pain 1991; 46: 35-41.
35. Fernandez E, Turk DC. The scope and significance of anger in the experience of chronic pain. Pain 1995; 61: 165-175.
36. Symonds TL, Burton AK, Tillotson KM, Main CJ. Absence resulting from low back trouble can be reduced by psychosocial intervention at the work place. Spine 1995; 20: 2738-2745.
37. George SZ, Fritz JM, Erhard RE. A comparison of fear-avoidance beliefs in patients with lumbar spine pain and cervical spine pain. Spine 2001; 26: 2139-2145.
38. Cohen I, Rainville J. Aggressive exercise as treatment for chronic low back pain. Sports Med 2002; 32: 75-82.
39. Thomas SP. A phenomenologic study of chronic pain. West J Nurs Res 2000; 22: 683-699.
40. Snelling J. The effect of chronic pain on the family unit. J Adv Nurs 1994; 19: 543-551.
41. Sodergren, SC, Hyland ME. What are the positive consequences of illness? Psychol Health 2000; 15: 85-97.
42. Sodergren SC, Hyland ME, Singh SJ, Sewell L. The effect of rehabilitation on positive interpretations of illness. Psychol Health 2002; 17(6): 753-760.
43. Folkman S. Positive psychological states and coping with severe stress. Soc Sci Med 1997; 45: 1207-1221.
44. Loeser JD. Economic implications of pain management. Acta Anaesthesiol Scand 1999; 43: 957-959.
45. Maetzel A, Li L. The economic burden of low back pain: A review of studies published between 1996 and 2001. Best Pract Res Clin Rheumatol 2002; 16: 23-30.