Quality of life in children with chronic kidney disease (with child and parent assessments)

Pediatric Nephrology

Volumn 25, Issue 8, 2010, Pages 1487-1496

  Buyan, Necla ^a   Türkmen, Mehmet Atilla ^b   Bilge, Ilmay ^c   Baskin, Esra ^d   Haberal, Mehmet ^d   Bilginer, Yelda ^e   Mir, Sevgi ^f   Emre, Sevinç ^c   Akman, Sema ^g   Ozkaya, Ozan ^h   Fidan, Kibriya ^a   Alpay, Harika ⁱ   Kavukcu, Salih ^b   Sever, Lale ^j   Özçakar, Zeynep Birsin ^k   Dogrucan, Nahide ^a  

^a GAZI UNIVERSITY   (Turkey)

^b DOKUZ EYLUL UNIVERSITY   (Turkey)

^c ISTANBUL UNIVERSITY   (Turkey)

^d BASKENT UNIVERSITY   (Turkey)

^e HACETTEPE UNIVERSITY   (Turkey)

^f EGE UNIVERSITY   (Turkey)

^g AKDENIZ UNIVERSITY   (Turkey)

^h ONDOKUZ MAYIS UNIVERSITY   (Turkey)

ⁱ MARMARA UNIVERSITY   (Turkey)

^j ISTANBUL UNIVERSITY   (Turkey)

^k ANKARA UNIVERSITY   (Turkey)

more..

Author keywords

Adolescent; Children; Dialysis; Kidney transplantation; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILDHOOD DISEASE; CHRONIC KIDNEY DISEASE; CONTROLLED STUDY; FEMALE; GRAFT RECIPIENT; HEMODIALYSIS PATIENT; HUMAN; MAJOR CLINICAL STUDY; MALE; PARENT COUNSELING; PATIENT COUNSELING; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SELF ESTEEM; TURKEY (REPUBLIC); WELLBEING; CASE CONTROL STUDY; CHRONIC KIDNEY FAILURE; COMPARATIVE STUDY; CROSS-SECTIONAL STUDY; MULTICENTER STUDY (TOPIC); PARENT; PEDIATRICS; PROXY; PSYCHOLOGY; SELF CONCEPT; TURKEY;

ADOLESCENT; CASE-CONTROL STUDIES; CHILD; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; KIDNEY FAILURE, CHRONIC; MALE; MULTICENTER STUDIES AS TOPIC; PARENTS; PEDIATRICS; PROXY; QUALITY OF LIFE; QUESTIONNAIRES; RENAL INSUFFICIENCY, CHRONIC; SELF CONCEPT; TURKEY;

EID: 77954423771     PISSN: 0931041X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00467-010-1486-1     Document Type: Article

References (30)

1. L Janssens JW Gorter M Ketelaar WL Kramer HR Holtslag 2008 Health-related quality-of-life measures for long-term follow-up in children after major trauma Qual Life Res 17 701 713 10.1007/s11136-008-9339-0 18437531
2. WHOQOL Group 1995 The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization Soc Sci Med 41 1403 1409 10.1016/0277-9536(95)00112-K
3. AJ Freeman EA Youngstrom E Michalak R Siegel OI Meyers RL Findling 2009 Quality of life in pediatric bipolar disorder Pediatrics 123 e446 e452 10.1542/peds.2008-0841 19254981
4. H Stam MA Grootenhuis HN Caron BF Last 2006 Quality of life and current coping in young adult survivors of childhood cancer: positive expectations about the further course of the disease were correlated with better quality of life Psychooncology 15 31 43 10.1002/pon.920 1:STN:280:DC%2BD2MnpsVCitg%3D%3D 15751002 (Pubitemid 43141516)
5. U Ravens-Sieberer M Redegeld M Bullinger 2001 Quality of life after in-patient rehabilitation in children with obesity Int J Obes Relat Metab Disord 25 Suppl 1 S63 S65 10.1038/sj.ijo.0801702 11466592 (Pubitemid 32565160)
6. N Kojima Y Ohya M Futamura M Akashi H Odajima Y Adachi F Kobayashi A Akasawa 2009 Exercise-induced asthma is associated with impaired quality of life among children with asthma in Japan Allergol Int 58 187 192 10.2332/allergolint.08-OA-0034 19240375
7. NM Orzechowski DM Davis TG Mason 3rd CS Crowson AM Reed 2009 Health-related quality of life in children and adolescents with juvenile localized scleroderma Rheumatology (Oxford) 48 670 672 10.1093/rheumatology/ kep059
8. R Shroff S Ledermann 2009 Long-term outcome of chronic dialysis in children Pediatr Nephrol 24 463 474 10.1007/s00467-007-0700-2 18214549
9. SL Goldstein N Graham T Burwinkle B Warady R Farrah JW Varni 2006 Health-related quality of life in pediatric patients with ESRD Pediatr Nephrol 21 846 850 10.1007/s00467-006-0081-y 16703376 (Pubitemid 43740954)
10. SL Goldstein N Graham BA Warady M Seikaly R McDonald TM Burwinkle CA Limbers JW Varni 2008 Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL) Am J Kidney Dis 51 285 297 10.1053/j.ajkd.2007.09.021 18215706
11. SL Goldstein NM Rosburg BA Warady M Seikaly R McDonald C Limbers JW Varni 2009 Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis Pediatr Nephrol 24 1553 1560 10.1007/s00467-009-1174-1 19421787
12. AM McKenna LE Keating A Vigneux S Stevens A Williams DF Geary 2006 Quality of life in children with chronic kidney disease-patient and caregiver assessments Nephrol Dial Transplant 21 1899 1905 10.1093/ndt/gfl091 16611686 (Pubitemid 43985718)
13. RM Eijsermans DG Creemers PJ Helders CH Schröder 2004 Motor performance, exercise tolerance, and health-related quality of life in children on dialysis Pediatr Nephrol 19 1262 1266 10.1007/s00467-004-1583-0 15368119 (Pubitemid 39462428)
14. J Falger MA Landolt B Latal EM Rüth TJ Neuhaus GF Laube 2008 Outcome after renal transplantation. Part II: quality of life and psychosocial adjustment Pediatr Nephrol 23 1347 1354 10.1007/s00467-008-0798-x 18386069
15. S Manificat A Dazord P Cochat D Morin F Plainguet D Debray 2003 Quality of life of children and adolescents after kidney or liver transplantation: child, parents and caregiver's point of view Pediatr Transplant 7 228 235 10.1034/j.1399-3046.2003.00065.x 1:STN:280:DC%2BD3szgt1Cisw%3D%3D 12756049 (Pubitemid 36682148)
16. E Eser H Yüksel H Baydur M Erhart G Saatli B Cengiz Ozyurt C Ozcan U Ravens-Sieberer 2008 The psychometric properties of the new Turkish generic health-related quality of life questionnaire for children (Kid-KINDL) Turk Psikiyatri Derg 19 409 417 19110983
17. U Ravens-Sieberer M Bullinger 1998 Assessing the health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results Qual Life Res 7 399 407 10.1023/A:1008853819715 1:STN:280:DyaK1czls1Onuw%3D%3D 9691720 (Pubitemid 28343449)
18. U Ravens-Sieberer 2001 The revised KINDL-R:Final results on reliability, validity and responsiveness of a modular HRQOL instrument for children and adolescents. 8. Jahrestagung der International Society for Quality of Life Research (ISOQOL) Qual Life Res 10 199
19. KO Mc Graw SP Wong 1996 Forming inferences about some intraclass correlation coefficients Psychol Methods 1 30 46 10.1037/1082-989X.1.1.30
20. MA Grootenhuis H Stam BF Last JW Groothoff 2006 The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood Pediatr Nephrol 21 538 544 10.1007/s00467-006-0030-9 16511685
21. JW Groothoff MA Grootenhuis M Offringa MP Gruppen JC Korevaar HS Heymans 2003 Quality of life in adults with end-stage renal disease since childhood is only partially impaired Nephrol Dial Transplant 18 310 317 10.1093/ndt/18.2.310 12543886 (Pubitemid 36181682)
22. T Jozefiak B Larsson L Wichstrøm F Mattejat U Ravens-Sieberer 2008 Quality of Life as reported by school children and their parents: a cross-sectional survey Health Qual Life Outcomes 6 34 45 10.1186/1477-7525-6-34 18489777 (Pubitemid 351803150)
23. VM Wagner E Müller-Godeffroy S von Sengbusch S Häger U Thyen 2005 Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus Eur J Pediatr 164 491 496 10.1007/s00431-005-1681-4 1:CAS:528:DC%2BD2MXmsFWmtbc%3D 15875213 (Pubitemid 41073815)
24. E Qvist V Närhi M Apajasalo K Rönnholm H Jalanko F Almqvist C Holmberg 2004 Psychosocial adjustment and quality of life after renal transplantation in early childhood Pediatr Transplant 8 120 125 10.1046/j.1399-3046.2003.00121.x 15049791 (Pubitemid 38508422)
25. I Riaño-Galán S Málaga L Rajmil G Ariceta M Navarro C Loris A Vallo 2009 Quality of life of adolescents with end-stage renal disease and kidney transplant Pediatr Nephrol 24 1561 1568 10.1007/s00467-009-1175-0 19475433
26. M Wilson-Genderson HL Broder C Phillips 2007 Concordance between caregiver and child reports of child's oral health-related quality of life Community Dent Oral Epidemiol 35 32 40 10.1111/j.1600-0528.2007.00403.x 17615048
27. NC Theunissen TG Vogels HM Koopman GH Verrips KA Zwinderman SP Verloove-Vanhorick JM Wit 1998 The proxy problem: child report versus parent report in health-related quality of life research Qual Life Res 7 387 397 10.1023/A:1008801802877 1:STN:280:DyaK1czls1Onug%3D%3D 9691719 (Pubitemid 28343448)
28. AR Hughes K Farewell D Harris JJ Reilly 2007 Quality of life in a clinical sample of obese children Int J Obes 31 39 44 10.1038/sj.ijo.0803410 1:STN:280:DC%2BD28jjsFGnug%3D%3D (Pubitemid 46006013)
29. V Matziou P Perdikaris D Feloni M Moshovi K Tsoumakas A Merkouris 2008 Cancer in childhood: children's and parents' aspects for quality of life Eur J Oncol Nurs 12 209 216 10.1016/j.ejon.2007.10.005 18295541
30. GN Holmbeck ST Li JV Schurman D Friedman RM Coakley 2002 Collecting and managing multisource and multimethod data in studies of pediatric populations J Pediatr Psychol 27 5 18 10.1093/jpepsy/27.1.5 11726675 (Pubitemid 34019643)