Pediatric end stage renal disease health-related quality of life differs by modality: A PedsQL ESRD analysis

Pediatric Nephrology

Volumn 24, Issue 8, 2009, Pages 1553-1560

  Goldstein, Stuart L ^a   Rosburg, Nicole M ^b   Warady, Bradley A ^c   Seikaly, Mouin ^d   McDonald, Ruth ^e   Limbers, Christine ^f   Varni, James W ^f  

^a BAYLOR COLLEGE OF MEDICINE   (United States)

^b TEXAS CHILDREN S HOSPITAL   (United States)

^c CHILDREN S MERCY HOSPITAL   (United States)

^d CHILDREN S MEDICAL CENTER   (United States)

^e SEATTLE CHILDREN S RESEARCH INSTITUTE   (United States)

^f TEXAS A AND M UNIVERSITY   (United States)

Author keywords

Children; Dialysis; End stage renal disease; Health related quality of life; Renal transplant

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; EFFECT SIZE; ETHNICITY; FEMALE; HEMODIALYSIS; HUMAN; KIDNEY FAILURE; KIDNEY TRANSPLANTATION; MAINTENANCE THERAPY; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PERITONEAL DIALYSIS; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; KIDNEY FAILURE, CHRONIC; KIDNEY TRANSPLANTATION; MALE; QUALITY OF LIFE; QUESTIONNAIRES; RENAL DIALYSIS;

EID: 67649400373     PISSN: 0931041X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00467-009-1174-1     Document Type: Article

References (22)

1. McDonald SP, Craig JC (2004) Long-term survival of children with end-stage renal disease. N Engl J Med 350:2654-2662
2. Gerson A, Hwang W, Fiorenza J, Barth K, Kaskel F, Weiss L, Zelikovsky N, Fivush B, Furth S (2004) Anemia and health-related quality of life in adolescents with chronic kidney disease. Am J Kidney Dis 44:1017-1023
3. Eijsermans RM, Creemers DG, Helders PJ, Schroder CH (2004) Motor performance, exercise tolerance, and health-related quality of life in children on dialysis. Pediatr Nephrol 19:1262-1266
4. Goldstein SL, Graham N, Burwinkle T, Warady B, Farrah R, Varni JW (2006) Health-related quality of life in pediatric patients with ESRD. Pediatr Nephrol 21:846-850
5. Goldstein SL, Graham N, Warady BA, Seikaly M, McDonald R, Burwinkle TM, Limbers CA, Varni JW (2008) Measuring health-related quality of life in children with ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of Life Inventory™ (PedsQL™). Am J Kidney Dis 51:285-297
6. Aday LA (1996) Designing and conducting health surveys: A comprehensive guide, 2nd edn. Jossey-Bass, San Francisco
7. Fowler FJ (1995) Improving survey questions: Design and evaluation, 1st edn. Sage, Thousand Oaks
8. Schwarz N, Sudman N (1996) Answering questions: Methodology for determining cognitive and communicative processes in survey research, 1st edn. Jossey-Bass, San Francisco
9. Fairclough DL (2002) Design and analysis of quality of life studies in clinical trials: Interdisciplinary statistics, 1st edn. Chapman & Hall/CRC, New York
10. Hollingshead AB (1975) Four Factor Index of Social Status. Yale University, New Haven CT
11. Shadish WR, Cook TD, Campbell DT (2002) Experimental and quasi-experimental designs for generalized causal inference. 2nd edn. Houghton-Mifflin, Boston
12. Cohen J (1988) Statistical power analysis for the behavioral sciences, 2nd edn. Erlbaum, Hillsdale
13. Goldstein SL, Gerson AC, Goldman CW, Furth S (2006) Quality of life for children with chronic kidney disease. Semin Nephrol 26:114-117
14. Fine RN (1984) Choosing a dialysis therapy for children with end-stage renal disease. Am J Kidney Dis 4:249-252
15. Tsai TC, Liu SI, Tsai JD, Chou LH (2006) Psychosocial effects on caregivers for children on chronic peritoneal dialysis. Kidney Int 70:1983-1987
16. Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P (2004) The PedsQL Family Impact Module: Preliminary reliability and validity. Health Qual Life Outcomes 2:55
17. Scarpelli AC, Paiva SM, Pordeus IA, Varni JW, Viegas CM, Allison PJ (2008) The pediatric quality of life inventory (PedsQL) family impact module: Reliability and validity of the Brazilian version. Health Qual Life Outcomes 6:35
18. Reynolds JM, Morton MJ, Garralda ME, Postlethwaite RJ, Goh D (1993) Psychosocial adjustment of adult survivors of a paediatric dialysis and transplant programme. Arch Dis Child 68:104-110
19. Morton MJ, Reynolds JM, Garralda ME, Postlethwaite RJ, Goh D (1994) Psychiatric adjustment in end-stage renal disease: A follow up study of former paediatric patients. J Psychosom Res 38:293-303
20. Henning P, Tomlinson L, Rigden SP, Haycock GB, Chantler C (1988) Long term outcome of treatment of end stage renal failure. Arch Dis Child 63:35-40
21. Collins AJ, Foley R, Herzog C, Chavers B, Gilbertson D, Ishani A, Kasiske B, Liu J, Mau LW, McBean M, Murray A, St Peter W, Xue J, Fan Q, Guo H, Li Q, Li S, Peng Y, Qiu Y, Roberts T, Skeans M, Snyder J, Solid C, Wang C, Weinhandl E, Zaun D, Zhang R, Arko C, Chen SC, Dalleska F, Daniels F, Dunning S, Ebben J, Frazier E, Hanzlik C, Johnson R, Sheets D, Wang X, Forrest B, Constantini E, Everson S, Eggers P, Agodoa L (2008) Excerpts from the United States Renal Data System 2007 annual data report. Am J Kidney Dis 51:S1-320
22. Schwimmer JB, Burwinkle TM, Varni JW (2003) Health-related quality of life of severely obese children and adolescents. JAMA 289:1813-1819