Quality of life in children with chronic kidney disease - Patient and caregiver assessments

Nephrology Dialysis Transplantation

Volumn 21, Issue 7, 2006, Pages 1899-1905

  McKenna, Ann Marie ^a   Keating, Laura E ^a   Vigneux, Annette ^a   Stevens, Sarah ^a   Williams, Angela ^a   Geary, Denis F ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Chronic renal disease; Dialysis; Health related quality of life; Paediatric; Renal transplant

Indexed keywords

CREATININE;

ACADEMIC ACHIEVEMENT; ADOLESCENT; ADULT; ANALYSIS OF VARIANCE; ARTICLE; CAREGIVER; CHILD; CHRONIC KIDNEY DISEASE; CHRONIC KIDNEY FAILURE; CONTROLLED STUDY; EMOTION; FEMALE; HEMODIALYSIS; HUMAN; KIDNEY TRANSPLANTATION; MAJOR CLINICAL STUDY; MALE; PATIENT ASSESSMENT; PERITONEAL DIALYSIS; POPULATION RESEARCH; PRIORITY JOURNAL; QUALITY OF LIFE; RATING SCALE; SAMPLE; SCORING SYSTEM; SOCIAL ASPECT; STATISTICAL SIGNIFICANCE; STUDENT T TEST;

ADOLESCENT; CAREGIVERS; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; EVALUATION STUDIES; EVALUATION STUDIES AS TOPIC; FEMALE; HEALTH STATUS INDICATORS; HUMANS; KIDNEY FAILURE, CHRONIC; MALE; PERITONEAL DIALYSIS; QUALITY OF LIFE; QUESTIONNAIRES; RENAL DIALYSIS; REPRODUCIBILITY OF RESULTS;

EID: 33745597320     PISSN: 09310509     EISSN: 14602385     Source Type: Journal    
DOI: 10.1093/ndt/gfl091     Document Type: Article

References (25)

1. National Kidney Foundation. Kidney Disease Outcomes Quality Initiative Clinical Practice Guidelines for Nutrition in Chronic Renal Failure. II. Pediatric Guidelines. Am J Kidney Dis 2000; 35: S105-sl36
2. Chavers BM, Li S, Collins AJ, Herzog CA. Cardiovascular disease in pediatric chronic dialysis patients. Kidney Int 2002; 62: 648-653
3. Mitsnefes M, Ho PL, McEnery PT. Hypertension and progression of chronic renal insufficiency in children: A report of the North American Pediatric Renal Transplant Cooperative Study (NAPRTCS). J Am Soc Nephrol 2003; 14: 2618-2622
4. Garralda ME, Jameson RA, Reynolds JM, Postelwaithe RJ. Psychiatric adjustment in children with chronic renal failure. J Child Psychol Psychiatry 1988; 29: 79-90
5. Soliday E, Kool E, Lande MB. Psychosocial adjustment in children with kidney disease. J Pediatr Psychol 2000; 25: 93-103
6. Eijsermans RM, Creemers DG, Helders PJ, Schroder CH. Motor performance, exercise tolerance, and health-related quality of life in children on dialysis. Pediatr Nephrol 2004; 19: 1262-1266
7. Manificat S, Dazord A, Cochat P, et al. Quality of life in children and adolescents after kidney or liver transplantation: Child, parents and caregiver's point of view. Pediatr Transplant 2003; 7: 228-235
8. Qvist E, Narhi V, Apajasalo M, et al. Psychosocial adjustment and quality of life after renal transplantation in early childhood. Pediatr Transplant 2004; 8: 120-125
9. Gerson AC, Riley A, Fivush BA, et al. Assessing health status and health care utilization in adolescents with chronic kidney disease. J Am Soc Nephrol 2005; 16: 1427-1432
10. Reynolds JM, Garralda ME, Postelwaithe RJ, Goh D. Changes in psychosocial adjustment after renal transplantation. Arch Dis Child 1991; 66: 508-513
11. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQL in pediatric cancer: Reliability and validity of the pediatric quality of life inventory generic core scales, multi-dimensional fatigue scale and cancer module. Cancer 2002; 94: 2090-2106
12. Chan KS, Mangione-Smith R, Burwinkle TM, Rosen M, Varni JW. The PedsQL: reliability and validity of the short-form generic core scales and asthma module. Med Care 2005; 43: 256-265
13. Varni JW, Burwinkle TM, Jacobs JR et al. The PedsQL in type 1 and type 2 diabetes: Reliability and validity of the pediatric quality of life inventory generic core scales and type 1 diabetes module. Diabetes Care 2003; 26: 631-637
14. Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 800-812
15. Shrout PE, Fleiss JL. Intraclass correlations: Uses in assessing rater reliability. Psychol Bull 1979; 86: 420-428
16. Reynolds JM, Garralda ME, Jameson RA, Postelwaithe RJ. How parents and families cope with chronic renal failure. Arch Dis Child 1988; 63: 821-826
17. Luque-Coqui M, Chartt R, Tercero G et al. Self-esteem in Mexican pediatric patients on peritoneal dialysis and kidney transplantation. Nefrologia 2003; 23: 145-149
18. Brossart DF, Clay DL, WIllson VL. Methodological and statistical considerations for threats to internal validity in pediatric outcome data: Response shift in self report outcomes. J Pediatr Psychol 2002; 27: 97-107
19. Achenbach TM, McConaughy SH, Howell CT. Child/adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity. Psychol Bull 1987; 101: 213-232
20. Varni JW, Katz ER, Seid M. The pediatric cancer quality of life inventory (PCQL): I. Instrument development, descriptive statistics and cross-informant variance. J Behav Med 1998; 21: 179-204
21. Holmbeck GN, Li ST, Schurman JV, Friedman D, Coakley RM. Collecting and managing multisource and multimethod data in studies of pediatric populations. J Pediatr Psychol 2002; 27: 5-18
22. Eiser C, Morse R. Can parents rate their child's health-related quality of life? Results of a systematic review. Qual Life Res 2001; 10: 347-357
23. Gokal R, Figueras M, Olle A, Rovira J, Badia X. Outcomes in peritoneal dialysis and haemodialysis - a comparative assessment of survival and quality of life. Nephrol Dial Transplant 1999; 14: 24-30
24. Chassany O, Sagnier P, Marquis P, Fullerton S, Aaronson N. Patient-reported outcomes: The example of health-related quality of life - a European guidance document for the improved integration of health-related quality of life asessment in the drug regulatory process. Drug Inf J 2002; 36: 209-238
25. Clarke SA, Eiser C. The measurement of health-related quality of life (QOL) in paediatric clinical trials: A systematic review. Health Qual Life Outcomes 2004; 2: 66