Disclosure and sickle cell disorder: A mixed methods study of the young person with sickle cell at school

Social Science and Medicine

Volumn 70, Issue 12, 2010, Pages 2036-2044

  Dyson, Simon Martin ^a   Atkin, Karl ^b   Culley, Lorraine A ^a   Dyson, Sue E ^a   Evans, Hala ^a   Rowley, Dave T ^a  

^a DE MONTFORT UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF YORK   (United Kingdom)

Author keywords

Chronic illness; Education; England; Mixed methods; School health; Sickle cell; Stigma; Young people

Indexed keywords

BLOOD; CARDIOVASCULAR SYSTEM; CHILD HEALTH; EDUCATIONAL DEVELOPMENT; GENETICS; RESEARCH WORK; SOCIAL BEHAVIOR;

ABSENTEEISM; ADOLESCENT; ADULT; ARTICLE; BULLYING; CHILD; CONTROLLED STUDY; FEMALE; HEALTH PROMOTION; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; PEER GROUP; PERSONAL EXPERIENCE; SCHOOL STRESS; SICKLE CELL ANEMIA; SOCIAL ENVIRONMENT; SOCIAL INTERACTION; SOCIAL SUPPORT; STIGMA; UNITED KINGDOM;

ADOLESCENT; ADULT; ANEMIA, SICKLE CELL; ATTITUDE TO HEALTH; CHILD; CHILD, PRESCHOOL; DISCLOSURE; ENGLAND; FACULTY; FEMALE; HUMANS; INTERPERSONAL RELATIONS; INTERVIEWS AS TOPIC; MALE; PEER GROUP; PREJUDICE; QUESTIONNAIRES; SCHOOLS; YOUNG ADULT;

ENGLAND; UNITED KINGDOM;

EID: 77952672715     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.03.010     Document Type: Article

References (38)

1. Anionwu E.N., Atkin K. The politics of sickle cell and thalassaemia 2001, Open University Press, Buckingham.
2. Armstrong D., Gosling A., Weineman J., Marteau T. Research note: the place of inter-rater reliability in qualitative research: an empirical study. Sociology 1997, 31(3):597-606.
3. Atkin K., Ahmad W.I.U. Living with sickle cell disorder: how young people negotiate their care and treatment. Ethnicity, disability and chronic illness 2000, 45-66. Open University Press, Buckingham. W.I.U. Ahmad (Ed.).
4. Atkin K., Ahmad W.I.U. Living a 'normal' life: young people coping with thalassaemia major or sickle cell disorder. Social Science & Medicine 2001, 53(5):615-626.
5. Becker H. Whose side are we on?. Social Problems 1967, 14:239-247.
6. Bryman A. Barriers to integrating quantitative and qualitative research. Journal of Mixed Methods Research 2007, 1(1):8-22.
7. Ciutto L., Conti E., Evans H., Lewis R., Murphy S., Rautiainen K.C., et al. Creating asthma-friendly schools: a public health approach. Journal of School Health 2006, 76(6):255-258.
8. Cresswell J., Tashakkori A. Developing publishable mixed methods manuscripts. Journal of Mixed Methods Research 2007, 1(2):107-111.
9. Cunningham M.M., Wodrich D.L. The effect of sharing health information on teacher's production of classroom accommodations. Psychology in the Schools 2006, 43(5):553-564.
10. Denscombe M. Communities of practice: a research paradigm for the mixed methods approach. Journal of Mixed Methods Research 2008, 2(3):270-283.
11. Dubois W.E. The souls of black folks 2007 [1903], Oxford University Press, Oxford.
12. Dyson S.M., Abuateya H., Atkin K., Culley L.A., Dyson S.E., Rowley D.T. Reported school experiences of young people living with sickle cell disorder in England. British Educational Research Journal 2010, 36(1):125-142.
13. Fisher R.A. On the interpretation of Chi-Square from contingency tables and the calculation of P. Journal of the Royal Statistical Society 1922, 85(1):87-94.
14. Gagné P., Tewksbury R., McGaughey D. Coming out and crossing over: identity formation and proclamation in a transgender community. Gender and Society 1997, 11(4):478-508.
15. Glaser B., Strauss A.L. The discovery of grounded theory 1967, Aldine, Chicago.
16. Goffman E. Stigma: Notes on the management of spoiled identity 1968, Penguin, Harmondsworth.
17. Hogg C., Modell B. Sickle cell and thalassaemia: Achieving health gain 1998, Health Education Authority, London.
18. Koontz K., Short A.D., Kalinyak K., Noll R.B. A randomized controlled pilot trial of a school intervention for children with sickle cell anaemia. Journal of Paediatric Psychology 2004, 29(1):7-17.
19. Kuperminc G.P., Leadbeater B.J., Blatt S.J. School social climate and individual differences in vulnerability to psychopathology among middle school students. Journal of School Psychology 2001, 39(2):141-159.
20. Lightfoot J., Muhkerjee S., Sloper P. Supporting pupils with special health needs in mainstream schools: policy and practice. Children and Society 2001, 15:57-69.
21. Lightfoot J., Wright S., Sloper P. Supporting pupils in mainstream school with an illness or disability: young people's views. Child Care, Health and Development 1999, 25(4):267-283.
22. Lingsom S. Invisible impairments: dilemmas of concealment and disclosure. Scandinavian Journal of Disability Research 2008, 10(1):2-16.
23. Link P., Phelan J. Conceptualizing stigma. Annual Review of Sociology 2001, 27:363-385.
24. Lonardi C. The passing dilemma in socially invisible diseases: narratives on chronic headache. Social Science & Medicine 2007, 65(8):1619-1629.
25. Low J. Negotiating identities, negotiating environments: an interpretation of the experiences of students with disabilities. Disability, Handicap and Society 1996, 11(2):235-248.
26. Mukherjee S., Lightfoot J., Sloper P. The inclusion of pupils with a chronic health condition in mainstream school: what does it mean for teachers?. Educational Research 2000, 42(1):59-72.
27. NHS Sickle Cell and Thalassaemia Screening Programme Sickle cell disease in childhood 2006, NHS Sickle Cell and Thalassaemia Screening Programme and Sickle Cell Society, London.
28. Noll R.B., Vannatta K., Koontz K., Kalinyak K., Bukowski W.M., Davies W.H. Peer relationships and emotional well-being of youngsters with sickle cell disease. Child Development 1996, 67:423-436.
29. The practical management of haemoglobinopathies 2004, Blackwell, Oxford. I. Okpala (Ed.).
30. Oliver M. The politics of disablement 1990, MacMillan, Basingstoke.
31. Pawson R., Tilley N. Realistic evaluation 1997, Sage, London.
32. Renfrew D.G. A cartography of passing in everyday life. Symbolic Interaction 2004, 27(4):485-506.
33. Riessman C.K. Narrative methods for the human sciences 2008, Sage, Thousand Oaks, CA.
34. Scambler G. Sociology, social structure and health-related stigma. Health, Psychology and Medicine 2006, 11(3):288-295.
35. Schaffer J.P. Multiple hypothesis testing. Annual Review of Psychology 1995, 46:561-584.
36. Handbook of mixed methods in social and behavioural research 2003, Sage, Thousand Oaks, CA. A. Tashakkori, C. Teddlie (Eds.).
37. Teddlie C., Tashakkori A. Foundations of mixed methods research: Integrating quantitative and qualitative approaches on the social and behavioural sciences 2008, Sage, Thousand Oaks, CA.
38. Williams C. Doing health, doing gender: teenagers, diabetes and asthma. Social Science & Medicine 2000, 50(3):387-396.