Parents' Experiences With Childhood Deafness: Implications for Family-Centered Services

Communication Disorders Quarterly

Volumn 29, Issue 2, 2008, Pages 82-98

  Jackson, Carla Wood ^a   Turnbull, Ann P ^b  

^a FLORIDA STATE UNIVERSITY   (United States)

^b UNIVERSITY OF KANSAS   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 77950632397     PISSN: 15257401     EISSN: None     Source Type: Journal    
DOI: 10.1177/1525740108314865     Document Type: Article

References (39)

1. Blue-Banning, M.J., Summers, J.A., Frankland, H.C., Lord-Nelson, L., & Beegle, G. (2004). Dimensions of family and professional partnership: Constructive guidelines for collaboration. Exceptional Children, 70(2), 167-184.
2. Bodner-Johnson, B., & Sass-Lehrer, M. (1999). Family-school relationships: Concepts and premises. Washington, DC: Gallaudet University, Laurent Clerc National Deaf Education Center.
3. Bronfenbrenner, U. (1979). The ecology of human development. Boston: Harvard University Press.
4. Bronfenbrenner, U., & Crouter, A. (1983). The evolution of environmental models in developmental research. In P. H. Mussen (Series Ed.) & W. Kessen (Vol. Ed.), Handbook of child psychology history, theory, and methods (4th ed., pp. 357-414). New York: Wiley.
5. Burger, T., Spahn, C., Richter, B., Eisselle, S., Lohle, E., & Bengel, J. (2005). Parental distress: The initial phase of hearing aid and cochlear implant fitting. American Annals of the Deaf, 150(1), 5-10.
6. Calderon, R., Bargones, J., & Sidman, S. (1998). Characteristics of hearing families and their young deaf and hard of hearing children: Early intervention follow up. American Annals of the Deaf, 143(4), 347-362.
7. Calderon, R., & Greenberg, M. (1999). Stress and coping in hearing mothers of children with hearing loss: Factors affecting mother and child adjustment. American Annals of the Deaf, 144(1), 7-18.
8. Creswell, J. (1994). Research design: Qualitative & quantitative approaches. Thousand Oaks, CA: Sage.
9. Denzin, N., & Lincoln, Y. (Eds.). (2000). Handbook of qualitative research (2nd ed.). Thousand Oaks, CA: Sage.
10. Eleweke, C.J., & Rodda, M. (2000). Factors contributing to parents' selection of a communication mode to use with their deaf children. American Annals of the Deaf, 145(4), 375-383.
11. Evans, J. (1995). Conversation at home: A case study of a young deaf child's experiences in a family in which all others can hear. American Annals of the Deaf, 140(4), 324-332.
12. Freeman, B., Dieterich, C., & Rak, C. (2002). The struggle for language: Perspectives and practices of urban parents with children who are deaf or hard of hearing. American Annals of the Deaf, 147(5), 37-44.
13. Gallaudet Research Institute. (2001, January). Regional and national summary report of data from the 1999-2000 Annual Survey of Deaf and Hard of Hearing Children & Youth. Washington, DC: Author, Gallaudet University.
14. Gregory, S., Bishop, J., & Shelton, L. (1995). Deaf young people and their families: Developing understanding. New York: Cambridge University Press.
15. Henderson, D., & Hendershott, A. (1991). ASL and the family system. American Annals of the Deaf, 136(4), 325-329.
16. Hintermair, M. (2000). Hearing impairment, social networks, and coping: The need for families with hearing-impaired children to relate to other parents and to hearing-impaired adults. American Annals of the Deaf, 145(1), 41-53.
17. Jackson, C.W., & Turnbull, A.P. (2004). Impact of deafness on family life: A review of the literature. Topics in Early Childhood Special Education, 24(1), 15-29.
18. Lincoln, Y., & Guba, E.G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
19. Luckner, J.L., & Velaski, A. (2004). Healthy families of children who are deaf. American Annals of the Deaf, 149(4), 324-335.
20. Meadow-Orlans, K.P. (1995). Sources of stress from mothers and fathers of deaf and hard of hearing. American Annals of the Deaf, 140, 352-357.
21. Meadow-Orlans, K.P., Mertens, D.M., Sass-Lehrer, M.A., & Scott-Olson, K. (1997). Support services for parents and their children who are deaf or hard of hearing: A national survey. American Annals of the Deaf, 142, 278-293.
22. Meadow-Orlans, K.P., & Sass-Lehrer, M.A. (1995). Support services for families with children who are deaf: Challenges for professionals. Topics in Early Childhood Special Education, 15, 314-334.
23. Meadow-Orlans, K.P., Spencer, P.E., & Koester, L.S. (2004). The world of deaf infants: A longitudinal study. New York: Oxford University Press.
24. Moeller, M.P. (2000). Early intervention and language development in children who are deaf and hard of hearing. Pediatrics, 106(3), 1-9.
25. Most, T., & Zaidman-Zait, A. (2003). The needs of parents of children with cochlear implants. Volta Review, 103(2), 99-113.
26. Neuss, D. (2006). The ecological transition to auditory-verbal therapy: Experiences of parents whose children use cochlear implants. Volta Review, 106(2), 195-222.
27. Nunes, T., Pretzlik, U., & Ilicak, S. (2005). Validation of a parent outcome questionnaire from pediatric cochlear implantation. Journal of Deaf Studies and Deaf Education, 10, 330-356.
28. Nybo, W.L., Scherman, A., & Freeman, P.L. (1998). Grandparents' role in family systems with a deaf child. American Annals of the Deaf, 143, 260-267.
29. Prendergast, S., Lartz, M., & Fiedler, C. (2002). Ages of diagnosis, amplification, and early intervention of infants and young children with hearing loss: Findings from parent interviews. American Annals of the Deaf, 147(1), 24-30.
30. Rodwell, M. (1998). Social work constructivist research. New York: Garland.
31. Ross, L., & Lyon, P. (2007). Escaping a silent world: Profound hearing loss, cochlear implants and household interaction. International Journal of Consumer Studies, 31, 357-362.
32. Sebald, A.M., & Luckner, J.L. (2007). Successful partnerships with families of children who are deaf. Teaching Exceptional Children, 39(3), 54-60.
33. Seligman, M., & Darling, R. (1997). Ordinary families, special education (2nd ed.). New York: Guilford.
34. Spahn, C., Richter, B., Zschocke, I., Lohle, E., & Wirsching, M. (2001). The need for psychosocial support in parents with cochlear implanted children. International Journal of Pediatric Otorhinolaryngology, 57, 45-53.
35. Turnbull, A.P., & Turnbull, H.R. (2001). Families, professionals, and exceptionality: Collaborating for empowerment (4th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall.
36. Vaccari, C., & Marschark, M. (1997). Communication between parents and deaf children: Implications for social-emotional development. Journal of Child Psychology and Psychiatry, 38(7), 793-801.
37. Wang, M., Manning, H., Poston, D.J., Turnbull, A.P., & Summers, J.A. (2004). Parents' perceptions of advocacy activities and their impact on family quality of life. Research and Practice for Persons With Severe Disabilities, 29(2), 144-155.
38. Zaidman-Zait, A. (2007). Parenting a child with a cochlear implant: A critical incident study. Journal of Deaf Studies and Deaf Education, 12(2), 221-241.
39. Zaidman-Zait, A., & Most, T. (2005). Cochlear implants in children with hearing loss: Maternal expectations and impact on the family. Volta Review, 105, 129-150.