As normal a life as possible: Mothers and their daughters with congenital heart disease

Health Care for Woman International

Volumn 23, Issue 5, 2002, Pages 481-491

  Gantt, Laura ^a,b  

^a WAKEMED HEALTH AND HOSPITALS   (United States)

^b NONE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHRONIC DISEASE; COMPARATIVE STUDY; CONGENITAL HEART MALFORMATION; COST OF ILLNESS; FEMALE; HUMAN; MIDDLE AGED; MOTHER CHILD RELATION; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; UNITED STATES; WOMEN'S HEALTH;

ADOLESCENT; ADULT; CHILD; CHRONIC DISEASE; COST OF ILLNESS; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; MIDDLE AGED; MOTHER-CHILD RELATIONS; QUALITY OF LIFE; UNITED STATES; WOMEN'S HEALTH;

EID: 0036653841     PISSN: 07399332     EISSN: None     Source Type: Journal    
DOI: 10.1080/073993302760190083     Document Type: Article

References (33)

1. Anderson, J. (1981). The construction of the illness experience: Families with a chronically ill child. Journal of Advanced Nursing, 6, 427-434.
2. Bossert, E., Holaday, B., Harkins, A., & Turner-Henson, A. (1990). Strategies of normalization used by parents of chronically ill school age children. Journal of Child & Adolescent Psychiatric & Mental Health Nursing, 3(2), 57-61.
3. Boyd, C. (1990). Testing a model of mother-daughter identification. Western Journal of Nursing Research, 12(4), 448-468.
4. Bromberg, E. (1983). Mother-daughter relationships in later life: The effect of quality of relationship on mutual aid. The Journal of Gerontological Social Work, 6(1), 75-92.
5. Casey, F., Sykes, D., Craig, B., Power, R., & Mulholland, H. (1996). Behavioral adjustment of children with surgically palliated complex congenital heart disease. Journal of Pediatric Psychology, 21(3), 335-352.
6. Chenitz, W. C., & Swanson, J. M. (1986). From practice to grounded theory: Qualitative research in nursing. Menlo Park, CA: Addison-Wesley.
7. Clements, D., Copeland, L., & Loftus, M. (1990). Critical times for families with a chronically ill child. Pediatric Nursing, 16(2), 157-161.
8. Cooper, H. (1959). Psychological aspects of congenital heart disease. South African Medical Journal, 33(17), 349-352.
9. D'Antonio, I. (1976). Mothers' responses to the functioning and behavior of their cardiac children in child-rearing situations. Maternal-Child Nursing Journal, 5(4), 225-257.
10. Deatrick, J., & Knafl, K. (1990). Management behaviors: Day-to-day adjustments to childhood chronic conditions. Journal of Pediatric Nursing, 5(1), 15-22.
11. Deatrick, J., Knafl, K., & Murphy-Moore, C. (1999). Clarifying the concept of normalization. Image, 31(3), 209-214.
12. Deatrick, J., Knafl, K., & Walsh, M. (1988). The process of parenting a child with a disability: Normalization through accommodations. Journal of Advanced Nursing, 13, 15-21.
13. Doucet, S. (1981). The young adults' perception of the impact of congenital heart disease on his lifestyle. Nursing Papers, 12-13, 3-16.
14. Fischer, L. (1986). Linked lives: Adult daughters and their mothers. New York: Harper & Row.
15. Freud, S. (1933). New introductory lectures on psychoanalysis. New York: W.W. Norton.
16. Gantt, L. (1992). Growing up heartsick: The experiences of young women with congenital heart disease. Health Care for Women International, 13(3), 241-248.
17. Goldberg, S., Morris, P., Simmons, R., Fowler, R., & Levison, H. (1990). Chronic illness and parenting stress: A comparison of three groups of parents. Journal of Pediatric Psychology, 15(3), 347-358.
18. Knafl, K., & Deatrick, J. (1986). How families manage chronic conditions: An analysis of the concept of normalization. Research in Nursing and Health, 9, 215-222.
19. Kong, S., Tay, J., Yip, W., & Chay, S. (1986). Emotional and social effects of congenital heart disease in Singapore. Australian Pediatrics, 22, 101-106.
20. Leung, S., Steinbeck, K., Morris, S., Kohn, M., Towns, S., & Bennett, D. (1997). Chronic illness perception in adolescence: Implications for the doctor-patient relationship. Journal of Paediatric Child Health, 33, 107-112.
21. Levy, D. (1951, 1966). Maternal overprotection. New York: W.W. Norton.
22. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
23. Linde, L. (1982). Psychiatric aspects of congenital heart disease. Psychiatric Clinics of North America, 5(3), 399-406.
24. Linde, L., Rasof, B., Dunn, O., & Rabb, E. (1966). Attitudinal factors in congenital heart disease. Pediatrics, 38(1), 92-101.
25. Marshall, C., & Rossman, G. (1989). Designing qualitative research. Newbury Park, CA: Sage.
26. Maxwell, J. A. (1992). Understanding and validity in qualitative research. Harvard Educational Review, 63(3), 279-299.
27. Miles, M., & Huberman, A. (1994). Qualitative data analysis: An expanded sourcebook (2nd ed.). Thousand Oaks, CA: Sage.
28. Miles, M. S., D'Auria, J., Hart, E., Sedlack, D., & Watral, M. (1993). Parental role alterations experienced by mothers of children with a life-threatening illness. In S. Funk et al. (Eds.) Key aspects of caring for the chronically ill (pp. 281-289). New York, NY: Springer.
29. Newman, M. A. (1986). Health as expanding consciousness. St. Louis, MO: Mosby.
30. Northam, E. (1997). Psychosocial impact of chronic illness in children. Journal of Paediatric Child Health, 33, 369-372.
31. Rollins, J., & White, P. (1982). The relationship between mothers' and daughters' sex-role attitudes and self-concepts in three types of family environments. Sex Roles, 8, 1141-1155.
32. Strauss, A., Corbin, J., Fagerhaugh, S., Glaser, B., Maines, D., Suczek, B., &Wiener, C. (1984). Chronic illness and the quality of life (2nd ed.). St. Louis, MO: Mosby.
33. West, P. (1990). The status and validity of accounts obtained at interview: A contrast between two studies of families with a disabled child. Social Science and Medicine, 30(11), 1229-1239.