Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation

Pediatric Transplantation

Volumn 14, Issue 2, 2010, Pages 249-256

  Anthony, Samantha J ^a   Hebert, Diane ^a   Todd, Laura ^a   Korus, Moira ^a   Langlois, Valerie ^a   Pool, Rita ^a   Robinson, Lisa A ^a   Williams, Angela ^a   Pollock Barziv, Stacey M ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Kidney transplantation; Pediatric; Psychosocial; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL ARTICLE; CONTROLLED STUDY; EMOTION; FAMILY FUNCTIONING; FAMILY INTERACTION; FATIGUE; FEMALE; HEADACHE; HUMAN; KIDNEY FAILURE; KIDNEY GRAFT; KIDNEY TRANSPLANTATION; MALE; OUTCOME ASSESSMENT; PARENT; PEDIATRICS; PHYSICAL CAPACITY; PILOT STUDY; PRESCHOOL CHILD; PROSPECTIVE STUDY; QUALITY OF LIFE; SCHOOL CHILD; SCORING SYSTEM; SOCIAL PSYCHOLOGY; SYMPTOM; THIRST;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; KIDNEY FAILURE, CHRONIC; KIDNEY TRANSPLANTATION; MALE; PARENTS; PILOT PROJECTS; QUALITY OF LIFE;

EID: 76449104395     PISSN: 13973142     EISSN: 13993046     Source Type: Journal    
DOI: 10.1111/j.1399-3046.2009.01214.x     Document Type: Article

References (42)

1. Bartosh SM, Leverson G, Robillard D, Sollinger HW. Long-term outcomes in pediatric renal transplant recipients who survive into adulthood. Transplantation 2003 : 76 : 1195 1200.
2. Groothoff JW, Cransberg K, Offringa M, et al. Long-term follow-up of renal transplantation in children: A Dutch cohort study. Transplantation 2004 : 78 : 453 460.
3. Goldstein SL, Graham N, Warady BA, et al. Measuring health-related quality of life in children with ESRD: Performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory. Am J Kidney Dis 2008 : 51 : 285 297.
4. Goldstein SL, Graham N, Burwinkle T, Warady B, Farrah R, Varni JW. Health-related quality of life in pediatric patients with end-stage renal disease. Pediatr Nephrol 2006 : 21 : 846 850.
5. Horslen S, Barr ML, Christensen LL, Ettenger R, Magee JC. Pediatric transplantation in the United States, 1996-2005. Am J Transplant 2007 : 7 (5 Pt 2 1339 1358.
6. Manificat S, Dazord A, Cochat P, Morin D, Plainguet F, Debray D. Quality of life of children and adolescents after kidney or liver transplantation: Child, parents and caregiver's point of view. Pediatr Transplant 2003 : 7 : 228 235.
7. McDonald SP, Craig JC. Long-term survival of children with end-stage renal disease. N Engl J Med 2004 : 350 : 2654 2662.
8. Sundaram SS, Landgraf JM, Neighbors K, Cohn RA, Alonso EM. Adolescent health-related quality of life following liver and kidney transplantation. Am J Transplant 2007 : 7 : 982 989.
9. Neu AM. Special issues in pediatric kidney transplantation. Adv Chronic Kidney Dis 2006 : 13 : 62 69.
10. Aaronson NK. Quality of life: What is it? How should it be measured? Oncology 1988 : 2 : 69 74.
11. McDowell A, Newell C. Measuring Health: A Guide to Rating Scales and Questionnaires, 2nd edn. NY : Oxford University Press, 1996.
12. Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med 1993 : 118 : 622 629.
13. Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life: A conceptual model of patient outcomes. JAMA 1995 : 273 : 59 65.
14. World Health Organization. Constitution of the World Health Organization: Basic Document. Geneva, Switzerland : World Health Organization, 1948. Statement on Quality of Life.
15. Testa MA, Simonson DC. Assessment of quality of life outcomes. N Engl J Med 1996 : 334 : 835 840.
16. McKenna AM, Keating L, Vigneux A, Stevens S, Williams A, Geary DF. Quality of life in children with chronic kidney disease-patient and caregiver assessments. Nephrol Dial Transplant 2006 : 21 : 1899 1905.
17. Cremeens J, Eiser C, Blades M. Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2006 : 4 : 58 66.
18. Varni JW, Seid M, Rode CA. The PedsQL: Measurement model for the pediatric quality of life inventory. Med Care 1999 : 37 : 126 139.
19. McCormack HM, Djdel H, Sheather S. Clinical applications of visual analogue scales: A critical review. Psychological Med 1988 : 18 : 1007 1019.
20. Sherman SA, Eisen S, Burwinkle TM, Varni JW. The PedsQL Present Functioning Visual Analogues Scales: Preliminary reliability and validity. Health Qual Life Outcomes 2006 : 4 : 75 85.
21. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001 : 39 : 800 812.
22. Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes 2007 : 5 : 43 58.
23. Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P. The PedsQL Family Impact Module: Preliminary reliability and validity. Health Qual Life Outcomes 2004 : 2 : 55.
24. Lazzaretti CT, Carvalho JG, Mulinari RA, Rasia JM. Kidney transplantation improves the multidimensional quality of life. Transplant Proceedings 2004 : 36 : 872 873.
25. Overbeck I, Bartels M, Decker O, Harms J, Hauss J, Fangmann J. Changes in quality of life after renal transplantation. Transplant Proceedings 2005 : 37 : 1618 1621.
26. Qvist E, Narhi V, Apajasalo M, et al. Psychosocial adjustment and quality if life after renal transplantation in early childhood. Pediatr Transplant 2004 : 8 : 120 125.
27. Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. A Review. J Clin Epidemiol 1992 : 45 : 743 760.
28. Uutela A, Qvist E, Holmberg C, Pihko H, Jalanko H. Headache in children and adolescents after organ transplantation. Pediatr Transplant 2008 : 13 : 565 570.
29. Leidy NK. Functional status and the forward progress of merry go-rounds: Towards a coherent analytical framework. Nurs Res 1994 : 43 : 196 202.
30. Beck AL, Nethercut GE, Crttenden MR, Hewins J. Visibilty of handicap, self-concept, and social maturity among young adult survivors of end-stage renal disease. J Dev Behav Pediatr 1986 : 7 : 93 96.
31. Stuber ML. Psychiatric aspects of organ transplantation in children and adolescents. Psychosomatics 1993 : 4 : 379 387.
32. Noohi S, Khaghani-Zadeh M, Javadipour M, et al. Anxiety and depression are correlated with higher morbidity after kidney transplantation. Transplant Proc 2007 : 39 : 1074 1078.
33. Perez-SanGregorio MA, Rodriguez AM, Diaz-Domiguez R, Perez-Bernal J. The influence of posttransplant anxiety on long-term health of patients. Transplant Proc 2006 : 38 : 2406 2408.
34. Shapiro PA, Williams DL, Foray AT, Gelman IS, Wukich N, Sciacca R. Psychosocial evaluation and prediction of compliance and morbidity after heart transplantation. Transplantation 1995 : 60 : 1462 1466.
35. Wu YP, Aylward BS, Steele RG, Maikranz JM, Dreyer ML. Psychosocial functioning of pediatric renal and liver transplant recipients. Pediatr Transplant 2008 : 12 : 582 587.
36. Berkman LF. Social networks, support, and health: Taking the next step forward. Am J Epidemiol 1990 : 123 : 559 562.
37. Helgeson VS. Social support and quality of life. Qual Life Res 2003 : 12 : 25 31.
38. Reed A, Baz MA, McGinn L, Schofield RS. Solid organ transplant. In : Rodrigue JR, ed. Biopsychosocial Perspectives in Transplantation. New York : Kluwer Academic Plenum Publishers, 2001 : pp. 1 18.
39. Pollock-BarZiv SM, Anthony SJ, Niedra R, Dipchand AI, West LJ. Quality of life and function following cardiac transplantation in adolescents. Transplant Proc 2003 : 35 : 2468 2470.
40. Falger J, Landolt MA, Latal B, Ruth EM, Neuhans TJ, Laube GF. Outcome after renal transplantation. Part II: Quality of life and psychosocial adjustment. Pediatr Nephrol 2008 : 23 : 1347 1354.
41. Simons LE, Anglin G, Mahle WT, Vincent RN, Blount RL. Understanding the pathway between the transplant experience and health related quality of life outcomes in adolescents. Pediatr Transplant 2008 : 12 : 187 193.
42. Kurtin PS, Landgraf JM, Abetz L. Patient-based health status measurements in pediatric dialysis: Expanding the assessment of outcome. Am J Kidney Dis 1994 : 24 : 376 382.