The PedsQL™ Present Functioning Visual Analogue Scales: Preliminary reliability and validity

Health and Quality of Life Outcomes

Volumn 4, Issue , 2006, Pages

  Sherman, Sandra A ^a   Eisen, Sarajane ^b   Burwinkle, Tasha M ^c   Varni, James W ^d  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b AUBURN UNIVERSITY   (United States)

^c TEXAS A AND M HEALTH SCIENCE CENTER   (United States)

^d TEXAS A M COLLEGE OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ANGER; ANXIETY; ARTICLE; CHILD; CORRELATION ANALYSIS; EMOTIONAL STRESS; FATIGUE; FEMALE; HOSPITAL ADMISSION; HUMAN; MAJOR CLINICAL STUDY; MALE; PAIN; PAIN ASSESSMENT; QUESTIONNAIRE; SCORING SYSTEM; SELF REPORT; SYMPTOM; TEST RETEST RELIABILITY; VALIDATION PROCESS; VISUAL ANALOG SCALE; ADULT; CUSTODY; HOSPITALIZED ADOLESCENT; HOSPITALIZED CHILD; INSTRUMENTATION; MENTAL STRESS; PARENT; PEDIATRICS; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; SELF EVALUATION; TIME; UNITED STATES; VALIDATION STUDY;

ADOLESCENT; ADOLESCENT, HOSPITALIZED; ADULT; ANXIETY; CHILD; CHILD, HOSPITALIZED; CHILD, PRESCHOOL; FATIGUE; FEMALE; HUMANS; MALE; PAIN MEASUREMENT; PARENTS; PEDIATRICS; PROXY; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; SELF-ASSESSMENT; STRESS, PSYCHOLOGICAL; TEXAS; TIME FACTORS;

EID: 33750481504     PISSN: 14777525     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-4-75     Document Type: Article

References (64)

1. Acquadro C, Berzon R, Dubois D, Leidy NK, Marquis P, Revicki D, Rothman M: Incorporating the patient's perspective into drug development and communication: An ad hoc task force report of the patient-reported outcomes (PRO) harmonization group meeting at the Food and Drug Administration, February 16, 2001. Value in Health 2003, 6:522-531.
2. Willke RJ, Burke LB, Erickson P: Measuring treatment impact: A review of patient-reported outcomes and other efficacy end-points in approved product labels. Controlled Clinical Trials 2004, 25:535-552.
3. Varni JW, Katz ER, Colegrove R, Dolgin M: Adjustment of children with newly diagnosed cancer: Cross-informant variance. Journal of Psychosocial Oncology 1995, 13:23-38.
4. Koot HM, Wallander JL: Quality of life in child and adolescent illness: Concepts, methods and findings. East Sussex, UK, Brunner-Routledge; 2001.
5. Fayers PM, Machin D: Quality of life: Assessment, analysis, and interpretation. New York, Wiley; 2000.
6. Varni JW, Seid M, Rode CA: The PedsQL: Measurement model for the Pediatric Quality of Life Inventory. Medical Care 1999, 37:126-139.
7. Varni JW, Seid M, Kurtin PS: The PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care 2001, 39:800-812.
8. Eiser C, Morse R: Quality of life measures in chronic diseases of childhood. Health Technology Assessment 2001, 5:1-158.
9. Matza LS, Swensen AR, Flood EM, Secnik K, Leidy NK: Assessment of health-related quality of life in children: A review of conceptual, methodological, and regulatory issues. Value in Health 2004, 7:79-92.
10. Varni JW, Thompson KL, Hanson V: The Varni/Thompson Pediatric Pain Questionnaire: I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain 1987, 28:27-38.
11. Varni JW, Burwinkle TM, Seid M, Skarr D: The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics 2003, 3:329-341.
12. Varni JW, Wilcox KT, Hanson V, Brik R: Chronic musculoskeletal pain and functional status in juvenile rheumatoid arthritis: An empirical model. Pain 1988, 32:1-7.
13. Thompson KL, Varni JW: A developmental cognitive-biobehavioral approach to pediatric pain assessment. Pain 1986, 25:282-296.
14. Thompson KL, Varni JW, Hanson V: Comprehensive assessment of pain in juvenile rheumatoid arthritis: An empirical model. Journal of Pediatric Psychology 1987, 12:241-255.
15. Stone AA, Shiffman S: Ecological momentary assessment (EMA) in behavioral medicine. Annals of Behavioral Medicine 1994, 16:199-202.
16. Varni JW, Bernstein BH: Evaluation and management of pain in children with rheumatic diseases. Rheumatic Disease Clinics of North America 1991, 17:985-1000.
17. McGrath PA: Pain in children: Nature, assessment, and treatment. New York, Guilford; 1990.
18. McGrath PA: The measurement of human pain. Endodonics and Dental Traumatology 1986, 2:124-129.
19. Huskinsson EC: Visual analogue scales. In Pain measurement and assessment Edited by: Melzack R. New York, NY , Raven Press; 1983:33-37.
20. McCormack HM, Horne DJ, Sheather S: Clinical applications of visual analogue scales: A critical review. Psychological Medicine 1988, 18:1007-1019.
21. Banthia R, Malcarne VL, Roesch SC, Ko CM, Greensbergs HL, Varni JW, Sadler GR: Correspondence between daily and weekly fatigue reports in breast cancer survivors. Journal of Behavioral Medicine 2006, 29:269-279.
22. de Boer AGEM, van Lanschot JJB, Stalmeier PFM, van Sandick JW, Hulscher JBF, de Haes JCJM, Spranger MAG: Is a single-item visual analogue scale as valid, reliable and responsive as mult-item scales in measuring quality of life? Quality of Life Research 2004, 13:311-320.
23. Levine JD, Gordon NC, Smith R: Analgesic responses to morphine and placebo in individuals with post-operative pain. Pain 1981, 10:379-389.
24. Aradine CR, Beyer JE, Tompkins JM: Children's pain perception before and after analgesia: A study of instrument construct validity and related issues. Journal of Pediatric Nursing 1988, 3:11-23.
25. O'Hara M, McGrath PJ, D'Astous JD: Oral morphine versus injected meperidine (Demerol) for pain relief in children after orthopedic surgery. Journal of Pediatric Orthopaedics 1987, 7:78-82.
26. Taenzer P: Relationships among measures of pain, mood, and narcotic requirements. In Pain measurement and assessment Edited by: Melzack R. New York, NY , Raven Press; 1983:111-118.
27. Seymour RA, Simpson JM, Charlton JE: An evaluation of length and end-phase visual analogue scales in dental pain. Pain 1985, 21:177-185.
28. Scott J, Huskinsson EL: Vertical or horizontal visual analogue scales. Annals of the Rheumatic Diseases 1979, 38:560.
29. Price DD, McGrath P, Rafii A: The validation of visual analogue scales as ration measures of experimental and chronic pain. Pain 1983, 17:45-56.
30. Pedhazur EJ, Schmelkin LP: Measurement, design, and analysis: An integrated approach. Hillsdale, NJ , Erlbaum; 1991.
31. McGrath PA, deVeber LL: The management of acute pain evoked by medical procedures in children with cancer. Journal of Pain and Symptom Management 1986, 1:145-150.
32. McGrath PA, deVeber LL, Hearn MT: Multidimensional pain assessment in children. In Advances in pain research and therapy Edited by: Fields HL, Dubner R, Cervero F. New York, NY, Raven Press; 1985:387-393.
33. Sherman SA, Varni JW, Ulrich RS, Malcarne VL: Post-occupancy evaluation of healing gardens in a pediatric cancer center. Landscape and Urban Planning 2005, 73:167-183.
34. Varni JW, Blount RL, Waldron SA, Smith AJ: Management of pain and distress. In Handbook of pediatric psychology (2nd ed) Edited by: Roberts MC. New York, Guilford; 1995:105-123.
35. Varni JW, Rapoff M, Waldron SA, Gragg RA, Bernstein BH, Lindsley CB: Chronic pain and emotional distress in children and adolescents. Journal of Developmental and Behavioral Pediatrics 1996, 17:154-161.
36. Daviss WB, Racusin R, Fleischer A, Mooney D, Ford JD, McHugo GJ: Acute stress disorder symptomatology during hospitalization for pediatric injury. Journal of the American Academy of Child and Adolescent Psychiatry 2000, 39:569-575.
37. Rennick JE, Johnston CC, Dougherty G, Platt R, Ritchie JA: Children's psychological responses after critical illness and exposure to invasive technology. Journal of Developmental and Behavioral Pediatrics 2002, 23:133-144.
38. Saylor CF, Pallmeyer TP, Finch AJ, Eason L, Trieber F, Folger C: Predictors of psychological distress in hospitalized pediatric patients. Journal of the American Academy of Child and Adolescent Psychiatry 1987, 26:232-236.
39. Turner JC: A place for attachment theory in child life programming: The potential to assess the quality of parent-child relationships. Child and Youth Care Forum 2005, 34:195-207.
40. Peterson L, Oliver KK, Saldana L: Children's coping with stressful medical procedures. In Handbook of children's coping: Linking theory and intervention Edited by: Wolchik SA, Sandler IN. New York , Plenum; 1997:333-360.
41. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P: The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 2002, 94:2090-2106.
42. Varni JW, Burwinkle TM, Katz ER: The PedsQL in pediatric cancer pain: A prospective longitudinal analysis of pain and emotional distress. Journal of Developmental and Behavioral Pediatrics 2004, 25:1-8.
43. Varni JW, Burwinkle TM, Szer IS: The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: Reliability and validity. Journal of Rheumatology 2004, 31:2494-2500.
44. Stone AA, Broderick JE, Porter LS, Kaell AT: The experience of rheumatoid arthritis pain and fatigue: Examining momentary reports and correlates over one week. Arthritis Care and Research 1997, 10:185-193.
45. Stone AA, Broderick JE, Porter LS, Krupp L, Gnys M, Paty JA, Shiffman S: Fatigue and mood in chronic fatigue syndrome patients: Results of a momentary assessment protocol examining fatigue and mood levels and diurnal patterns. Annals of Behavioral Medicine 1994, 16:228-234.
46. Henker B, Whalen CK, Jamner LD, Delfino RJ: Anxiety, affect, and activity in teenagers: Monitoring daily life with electronic diaries. Journal of the American Academy of Child and Adolescent Psychiatry 2002, 41:660-670.
47. Benestad B, Vinje O, Veierod MB, Vandvik IH: Quantitative and qualitative assessments of pain in children with juvenile chronic arthritis based on the Norwegian version of the Pediatric Pain Questionnaire. Scandinavian Journal of Rheumatology 1996, 25:293-299.
48. Thastum M, Zachariae R, Scholer M, Herlin T: A Danish adaption of the pain coping questionnaire for children: Preliminary data concerning reliability and validity. Acta Paediatricia 1999, 88:132-138.
49. Varni JW, Waldron SA, Gragg RA, Rapoff MA, Bernstein BH, Lindsley CB, Newcomb MD: Development of the Waldron/Varni Pediatric Pain Coping Inventory. Pain 1996, 67:141-150.
50. Gragg RA, Rapoff MA, Danovsky MB, al : Assessing chronic musculoskeletal pain associated with rheumatic disease: Further validation of the Pediatric Pain Questionnaire. Journal of Pediatric Psychology 1996, 21:237-250.
51. Clancy CA, McGrath PJ, Oddson BE: Pain in children and adolescents with spina bifida. Developmental Medicine and Child Neurology 2005, 47:27-34.
52. Sawyer MG, Whitham JN, Roberton DM, Taplin JE, Varni JW, Baghurst PA: The relationship between health-related quality of life, pain, and coping strategies in juvenile idiopathic arthritis. Rheumatology 2004, 43:325-330.
53. Ilowite NT, Walco GA, Pochaczevsky R: Assessment of pain in patients with juvenile rheumatoid arthritis: Relation between pain intensity and degree of joint inflammation. Annals of the Rheumatic Diseases 1992, 51:343-346.
54. Graumlich SE, Powers SW, Byars KC: Multidimensional assessment of pain in pediatric sickle cell disease. Journal of Pediatric Psychology 2001, 26:203-214.
55. Foster RL, Varni JW: Measuring the quality of children's postoperative pain management: Initial validation of the child/parent Total Quality Pain Management (TQPM) instruments. Journal of Pain and Symptom Management 2002, 23:201-210.
56. Walco GA, Dampier CD: Pain in children and adolescents with sickle cell disease: A descriptive study. Journal of Pediatric Psychology 1990, 15:643-658.
57. Walco GA, Varni JW, Ilowite NT: Cognitive-behavioral pain management in children with juvenile arthritis. Pediatrics 1992, 89:1075-1079.
58. Powell M, Seid M, Szer IS: Efficacy of custom foot orthotics in improving pain and functional status in children with juvenile idiopathic arthritis: A randomized trial. Journal of Rheumatology 2005, 32:943-950.
59. Cohen J: Statistical power analysis for the behavioral sciences. 2nd edition. Hillsdale, NJ, Erlbaum; 1988.
60. Bartko JJ: The intraclass correlation coefficient as a measure of reliability. Psychological Reports 1966, 19:3-11.
61. Wilson KA, Dowling AJ, Abdolell M, Tannock IF: Perception of quality of life by patients, partners and treating physicians. Quality of Life Research 2001, 9:1041-1052.
62. Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16:297-334.
63. Nunnally JC, Bernstein IR: Psychometric theory. 3rd edition. New York, McGraw-Hill; 1994.
64. Feldman SI, Downey G, Schaffer-Neitz R: Pain, negative mood, and perceived support in chronic pain patients: A daily diary study of people with reflex sympathetic dystrophy syndrome. Journal of Consulting and Clinical Psycology 1999, 67:776-785.