-
1
-
-
0037384715
-
Voluntariness in clinical research at the end of life
-
Agrawal, M. (2003). Voluntariness in clinical research at the end of life. Journal of Pain and Symptom Management, 25(4), S25-S32.
-
(2003)
Journal of Pain and Symptom Management
, vol.25
, Issue.4
-
-
Agrawal, M.1
-
2
-
-
44849136061
-
-
American Academy of Hospice and Palliative Medicine. (n.d.), Retrieved June, 23, 2008, from
-
American Academy of Hospice and Palliative Medicine. (n.d.). About AAHPM. Retrieved June 23, 2008, from http://www.aahpm.org/about/index.html
-
About AAHPM
-
-
-
3
-
-
84855681555
-
-
American Association of Colleges of Nursing, Retrieved March 10, 2009, from
-
American Association of Colleges of Nursing. (2009). End-of-Life Nursing Education Consortium fact sheet. Retrieved March 10, 2009, from http://www.aacn.nche.edu/ELNEC/factsheet.htm
-
(2009)
End-of-Life Nursing Education Consortium fact sheet
-
-
-
4
-
-
34748864150
-
The HIPAA authorization form and effects on survey response rates, nonresponse bias, and data quality: A randomized community study
-
3rd
-
Beebe, T.J., Talley, N.J., Camilleri, M., Jenkins, S.M., Anderson, K.J., & Locke, G.R., 3rd. (2007). The HIPAA authorization form and effects on survey response rates, nonresponse bias, and data quality: A randomized community study. Medical Care, 45, 959-965.
-
(2007)
Medical Care
, vol.45
, pp. 959-965
-
-
Beebe, T.J.1
Talley, N.J.2
Camilleri, M.3
Jenkins, S.M.4
Anderson, K.J.5
Locke, G.R.6
-
5
-
-
0026624722
-
Cognitive failure in patients with terminal cancer: A prospective study
-
Bruera, E., Miller, L., McCallion, J., Macmillan, K., Krefting, L., & Hanson, J. (1992). Cognitive failure in patients with terminal cancer: A prospective study. Journal of Pain and Symptom Management, 7, 192-195.
-
(1992)
Journal of Pain and Symptom Management
, vol.7
, pp. 192-195
-
-
Bruera, E.1
Miller, L.2
McCallion, J.3
Macmillan, K.4
Krefting, L.5
Hanson, J.6
-
6
-
-
0004147189
-
-
New York: Berkley Publishing Group
-
Byock, I. (1997). Dying well. New York: Berkley Publishing Group.
-
(1997)
Dying well
-
-
Byock, I.1
-
7
-
-
32044433532
-
Ethical considerations in end-of-life care and research
-
Casarett, D. (2005). Ethical considerations in end-of-life care and research. Journal of Palliative Medicine, 8(Suppl. 1), S148-S160.
-
(2005)
Journal of Palliative Medicine
, vol.8
, Issue.SUPPL. 1
-
-
Casarett, D.1
-
8
-
-
0035668481
-
NHPCO task force statement on the ethics of hospice participation in research
-
Casarett, D., Ferrell, B., Kirschling, J., Levetown, M., Merriman, M.P., Ramey, M., et al. (2001). NHPCO task force statement on the ethics of hospice participation in research. Journal of Palliative Medicine, 4, 441-449.
-
(2001)
Journal of Palliative Medicine
, vol.4
, pp. 441-449
-
-
Casarett, D.1
Ferrell, B.2
Kirschling, J.3
Levetown, M.4
Merriman, M.P.5
Ramey, M.6
-
9
-
-
0035059947
-
Obtaining informed consent for clinical pain research: Patients' concerns and information needs
-
Casarett, D., Karlawish, J., Sankar, P., Hirschman, K.B., & Asch, D.A. (2001). Obtaining informed consent for clinical pain research: Patients' concerns and information needs. Pain, 92, 71-79.
-
(2001)
Pain
, vol.92
, pp. 71-79
-
-
Casarett, D.1
Karlawish, J.2
Sankar, P.3
Hirschman, K.B.4
Asch, D.A.5
-
10
-
-
0033832080
-
Are special ethical guidelines needed for palliative care research?
-
Casarett, D., & Karlawish, J.H. (2000). Are special ethical guidelines needed for palliative care research? Journal of Pain and Symptom Management, 20, 130-139.
-
(2000)
Journal of Pain and Symptom Management
, vol.20
, pp. 130-139
-
-
Casarett, D.1
Karlawish, J.H.2
-
11
-
-
0034685236
-
Extent and determinants of error in doctors' prognoses in terminally ill patients: Prospective cohort study
-
Christakis, N.A., & Lamont, E.B. (2000). Extent and determinants of error in doctors' prognoses in terminally ill patients: Prospective cohort study. BMJ, 320, 469-472.
-
(2000)
BMJ
, vol.320
, pp. 469-472
-
-
Christakis, N.A.1
Lamont, E.B.2
-
12
-
-
0030722341
-
Symptom prevalence in the last week of life
-
Conill, C., Verger, E., Henriquez, I., Saiz, N., Espier, M., Lugo, F., et al. (1997). Symptom prevalence in the last week of life. Journal of Pain and Symptom Management, 14, 328-331.
-
(1997)
Journal of Pain and Symptom Management
, vol.14
, pp. 328-331
-
-
Conill, C.1
Verger, E.2
Henriquez, I.3
Saiz, N.4
Espier, M.5
Lugo, F.6
-
13
-
-
0036223262
-
Recruiting into palliative care trials: Lessons learnt from a feasibility study
-
Cook, A.M., Finlay, I.G., & Butler-Keating, R.J. (2002). Recruiting into palliative care trials: Lessons learnt from a feasibility study. Palliative Medicine, 16, 163-165.
-
(2002)
Palliative Medicine
, vol.16
, pp. 163-165
-
-
Cook, A.M.1
Finlay, I.G.2
Butler-Keating, R.J.3
-
14
-
-
0037395394
-
The last 2 years of life: Functional trajectories of frail older people
-
Covinsky, K.E., Eng, C., Lui, L.Y., Sands, L.P., & Yaffe, K. (2003). The last 2 years of life: Functional trajectories of frail older people. Journal of the American Geriatrics Society, 51, 492-498.
-
(2003)
Journal of the American Geriatrics Society
, vol.51
, pp. 492-498
-
-
Covinsky, K.E.1
Eng, C.2
Lui, L.Y.3
Sands, L.P.4
Yaffe, K.5
-
15
-
-
0029422553
-
Challenges of conducting research in palliative care
-
Davies, B., Reimer, J.C., Brown, P., & Martens, N. (1995). Challenges of conducting research in palliative care. Omega, 31, 263-273.
-
(1995)
Omega
, vol.31
, pp. 263-273
-
-
Davies, B.1
Reimer, J.C.2
Brown, P.3
Martens, N.4
-
16
-
-
34249660470
-
Delirium assessment in the critically ill
-
Devlin, J.W., Fong, J.J., Fraser, G.L., & Riker, R.R. (2007). Delirium assessment in the critically ill. Intensive Care Medicine, 33, 929-940.
-
(2007)
Intensive Care Medicine
, vol.33
, pp. 929-940
-
-
Devlin, J.W.1
Fong, J.J.2
Fraser, G.L.3
Riker, R.R.4
-
17
-
-
35348874824
-
The impact of HIPAA authorization on willingness to participate in clinical research
-
Dunlop, A.L., Graham, T., Leroy, Z., Glanz, K., & Dunlop, B. (2007). The impact of HIPAA authorization on willingness to participate in clinical research. Annals of Epidemiology, 17, 899-905.
-
(2007)
Annals of Epidemiology
, vol.17
, pp. 899-905
-
-
Dunlop, A.L.1
Graham, T.2
Leroy, Z.3
Glanz, K.4
Dunlop, B.5
-
18
-
-
4444380538
-
Recruiting patients into a primary care based study of palliative care: Why is it so difficult?
-
Ewing, G., Rogers, M., Barclay, S., McCabe, J., Martin, A., & Todd, C. (2004). Recruiting patients into a primary care based study of palliative care: Why is it so difficult? Palliative Medicine, 18, 452-459.
-
(2004)
Palliative Medicine
, vol.18
, pp. 452-459
-
-
Ewing, G.1
Rogers, M.2
Barclay, S.3
McCabe, J.4
Martin, A.5
Todd, C.6
-
19
-
-
0037385040
-
Maximizing benefits and minimizing risks in palliative care research that involves patients near the end of life
-
Fine, P.G. (2003). Maximizing benefits and minimizing risks in palliative care research that involves patients near the end of life. Journal of Pain and Symptom Management, 25(4), S53-S62.
-
(2003)
Journal of Pain and Symptom Management
, vol.25
, Issue.4
-
-
Fine, P.G.1
-
20
-
-
38049107890
-
What health care providers know (and need to know) about palliative care
-
Fox, C.R. (2007). What health care providers know (and need to know) about palliative care. Journal of Allied Health, 36, 209-215.
-
(2007)
Journal of Allied Health
, vol.36
, pp. 209-215
-
-
Fox, C.R.1
-
21
-
-
32044473088
-
Introduction: Papers from the National Institutes of Health State-of-the-Science Conference on Improving End-of- Life Care
-
Grady, P.A. (2005). Introduction: Papers from the National Institutes of Health State-of-the-Science Conference on Improving End-of- Life Care. Journal of Palliative Medicine, 8(Suppl. 1), S1-S3.
-
(2005)
Journal of Palliative Medicine
, vol.8
, Issue.SUPPL. 1
-
-
Grady, P.A.1
-
22
-
-
0032559588
-
Death and end-of-life planning in one midwestern community
-
Hammes, B.J., & Rooney, B.L. (1998). Death and end-of-life planning in one midwestern community. Archives of Internal Medicine, 158, 383-390.
-
(1998)
Archives of Internal Medicine
, vol.158
, pp. 383-390
-
-
Hammes, B.J.1
Rooney, B.L.2
-
23
-
-
36649023087
-
Research risks and benefits as perceived by persons with a terminal prognosis
-
Head, B., & Faul, A. (2007). Research risks and benefits as perceived by persons with a terminal prognosis. Journal of Hospice & Palliative Nursing, 9, 256-263.
-
(2007)
Journal of Hospice & Palliative Nursing
, vol.9
, pp. 256-263
-
-
Head, B.1
Faul, A.2
-
24
-
-
0038476183
-
The experience of research participation for family caregivers of palliative care cancer patients
-
Hudson, P. (2003). The experience of research participation for family caregivers of palliative care cancer patients. International Journal of Palliative Nursing, 9, 120-123.
-
(2003)
International Journal of Palliative Nursing
, vol.9
, pp. 120-123
-
-
Hudson, P.1
-
25
-
-
0035469305
-
Randomized controlled trials in palliative care: Overcoming the obstacles
-
Hudson, P., Aranda, S., & McMurray, N. (2001). Randomized controlled trials in palliative care: Overcoming the obstacles. International Journal of Palliative Nursing, 7, 427-434.
-
(2001)
International Journal of Palliative Nursing
, vol.7
, pp. 427-434
-
-
Hudson, P.1
Aranda, S.2
McMurray, N.3
-
26
-
-
0003528344
-
-
Institute of Medicine, Retrieved March 10, 2009, from the National Academies Press Web site
-
Institute of Medicine. (1997). Approaching death: Improving care at the end of life. Retrieved March 10, 2009, from the National Academies Press Web site: http://www.nap.edu/openbook.php?record_id=5801
-
(1997)
Approaching death: Improving care at the end of life
-
-
-
27
-
-
0035190564
-
Addressing the ethical challenges of clinical trials that involve patients with dementia
-
Karlawish, J.H., & Casarett, D. (2001). Addressing the ethical challenges of clinical trials that involve patients with dementia. Journal of Geriatric Psychiatry and Neurology, 14, 222-228.
-
(2001)
Journal of Geriatric Psychiatry and Neurology
, vol.14
, pp. 222-228
-
-
Karlawish, J.H.1
Casarett, D.2
-
29
-
-
2442596445
-
-
Last Acts, November, Retrieved May 29, 2008, from the Robert Wood Johnson Foundation Web site
-
Last Acts. (2002, November). Means to a better end: A report on dying in America today. Retrieved May 29, 2008, from the Robert Wood Johnson Foundation Web site: http://www.rwjf.org/files/publications/other/meansbetterend.pdf
-
(2002)
Means to a better end: A report on dying in America today
-
-
-
30
-
-
0034055473
-
What influences participation in clinical trials in palliative care in a cancer centre?
-
Ling, J., Rees, E., & Hardy, J. (2000). What influences participation in clinical trials in palliative care in a cancer centre? European Journal of Cancer, 36, 621-626.
-
(2000)
European Journal of Cancer
, vol.36
, pp. 621-626
-
-
Ling, J.1
Rees, E.2
Hardy, J.3
-
31
-
-
32044462507
-
Interventions to facilitate family caregiving at the end of life
-
McMillan, S.C. (2005). Interventions to facilitate family caregiving at the end of life. Journal of Palliative Medicine, 8(Suppl. 1), S132-S139.
-
(2005)
Journal of Palliative Medicine
, vol.8
, Issue.SUPPL. 1
-
-
McMillan, S.C.1
-
32
-
-
0037380340
-
Hospice patient and caregiver congruence in reporting patients' symptom intensity
-
McMillan, S.C., & Moody, L.E. (2003). Hospice patient and caregiver congruence in reporting patients' symptom intensity. Cancer Nursing, 26, 113-118.
-
(2003)
Cancer Nursing
, vol.26
, pp. 113-118
-
-
McMillan, S.C.1
Moody, L.E.2
-
33
-
-
0037262623
-
Methodologic issues in collecting data from debilitated patients with cancer near the end of life
-
McMillan, S.C., & Weitzner, M.A. (2003). Methodologic issues in collecting data from debilitated patients with cancer near the end of life. Oncology Nursing Forum, 30, 123-129.
-
(2003)
Oncology Nursing Forum
, vol.30
, pp. 123-129
-
-
McMillan, S.C.1
Weitzner, M.A.2
-
34
-
-
85050895126
-
-
National Hospice and Palliative Care Organization, October, Retrieved March 26, 2009, from
-
National Hospice and Palliative Care Organization. (2008, October). NHPCO facts and figures: Hospice care in America. Retrieved March 26, 2009, from http://www.nhpco.org/files/public/Statistics_Research/NHPCO_facts-and-figures_2008.pdf
-
(2008)
NHPCO Facts and Figures: Hospice Care in America
, vol.34
, pp. 234-238
-
-
-
35
-
-
0031038731
-
The frequency and clinical course of cognitive impairment in patients with terminal cancer
-
Pereira, J., Hanson, J., & Bruera, E. (1997). The frequency and clinical course of cognitive impairment in patients with terminal cancer. Cancer, 79, 835-842.
-
(1997)
Cancer
, vol.79
, pp. 835-842
-
-
Pereira, J.1
Hanson, J.2
Bruera, E.3
-
36
-
-
0036772203
-
What's end of life got to do with it? Research ethics with populations at life's end
-
Special No. 3
-
Phipps, E.J. (2002). What's end of life got to do with it? Research ethics with populations at life's end. The Gerontologist, 42(Special No. 3), 104-108.
-
(2002)
The Gerontologist
, vol.42
, pp. 104-108
-
-
Phipps, E.J.1
-
37
-
-
0033864966
-
Cognitive impairment and its influence on pain and symptom assessment in a palliative care unit: Development of a minimal documentation system
-
Radbruch, L., Sabatowski, R., Loick, G., Jonen-Thielemann, I., Kasper, M., Gondek, B., et al. (2000). Cognitive impairment and its influence on pain and symptom assessment in a palliative care unit: Development of a minimal documentation system. Palliative Medicine, 14, 266-276.
-
(2000)
Palliative Medicine
, vol.14
, pp. 266-276
-
-
Radbruch, L.1
Sabatowski, R.2
Loick, G.3
Jonen-Thielemann, I.4
Kasper5
Gondek, B.6
-
38
-
-
33744959637
-
Methodological issues in the recruitment of cancer pain patients and their caregivers
-
Ransom, S., Azzarello, L.M., & McMillan, S.C. (2006). Methodological issues in the recruitment of cancer pain patients and their caregivers. Research in Nursing & Health, 29, 190-198.
-
(2006)
Research in Nursing & Health
, vol.29
, pp. 190-198
-
-
Ransom, S.1
Azzarello, L.M.2
McMillan, S.C.3
-
39
-
-
0034232423
-
Patient participation in decision making at the end of life as seen by a close relative
-
Sahlberg-Blom, E., Ternestedt, B.M, & Johansson, J.E. (2000). Patient participation in decision making at the end of life as seen by a close relative. Nursing Ethics, 7, 296-313.
-
(2000)
Nursing Ethics
, vol.7
, pp. 296-313
-
-
Sahlberg-Blom, E.1
Ternestedt, B.M.2
Johansson, J.E.3
-
40
-
-
0034673992
-
In search of a good death: Observations of patients, families, and providers
-
Steinhauser, K.E., Clipp, E.C., McNeilly, M., Christakis, N.A., McIntyre, L.M., & Tulsky, J.A. (2000). In search of a good death: Observations of patients, families, and providers. Annals of Internal Medicine, 132, 825-832.
-
(2000)
Annals of Internal Medicine
, vol.132
, pp. 825-832
-
-
Steinhauser, K.E.1
Clipp, E.C.2
McNeilly, M.3
Christakis, N.A.4
McIntyre, L.M.5
Tulsky, J.A.6
-
42
-
-
33748873509
-
Caregiving systems at the end of life: How informal caregivers and formal providers collaborate
-
Waldrop, D.P. (2006). Caregiving systems at the end of life: How informal caregivers and formal providers collaborate. Families in Society, 87, 427-437.
-
(2006)
Families in Society
, vol.87
, pp. 427-437
-
-
Waldrop, D.P.1
-
43
-
-
34247629403
-
Recruitment challenges for end-of-life research
-
Williams, A. (2007). Recruitment challenges for end-of-life research. Journal of Hospice & Palliative Nursing, 9, 79-85.
-
(2007)
Journal of Hospice & Palliative Nursing
, vol.9
, pp. 79-85
-
-
Williams, A.1
-
44
-
-
33747879001
-
Interest in research participation among hospice patients, caregivers, and ambulatory senior citizens: Practical barriers or ethical constraints?
-
Williams, C.J., Shuster, J.L., Clay, O.J., & Burgio, K.L. (2006). Interest in research participation among hospice patients, caregivers, and ambulatory senior citizens: Practical barriers or ethical constraints? Journal of Palliative Medicine, 9, 968-974.
-
(2006)
Journal of Palliative Medicine
, vol.9
, pp. 968-974
-
-
Williams, C.J.1
Shuster, J.L.2
Clay, O.J.3
Burgio, K.L.4
-
45
-
-
33947601737
-
Death denial: Obstacle or instrument for palliative care? An analysis of clinical literature
-
Zimmermann, C. (2007). Death denial: Obstacle or instrument for palliative care? An analysis of clinical literature. Sociology of Health and Illness, 29, 297-314.
-
(2007)
Sociology of Health and Illness
, vol.29
, pp. 297-314
-
-
Zimmermann, C.1
|