Patient participation in decision making at the end of life as seen by a close relative

Nursing Ethics

Volumn 7, Issue 4, 2000, Pages 296-311

  Sahlberg Blom, Eva ^a   Ternestedt, Britt Marie ^a   Johansson, Jan Erik ^b  

^a ÖREBRO UNIVERSITY   (Sweden)

^b ÖREBRO MEDICAL CENTRE HOSPITAL   (Sweden)

Author keywords

Decision making; Nursing ethics; Qualitative method; Terminal care

Indexed keywords

AGED; ARTICLE; BREAST TUMOR; COLORECTAL TUMOR; DEATH AND EUTHANASIA; DECISION MAKING; EMPIRICAL APPROACH; FAMILY; FEMALE; HUMAN; MALE; MEDICAL ETHICS; NURSING; NURSING METHODOLOGY RESEARCH; PATIENT CARE; PATIENT PARTICIPATION; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; STANDARD; TERMINAL CARE;

DEATH AND EUTHANASIA; EMPIRICAL APPROACH;

ADVANCE CARE PLANNING; AGED; BREAST NEOPLASMS; COLORECTAL NEOPLASMS; DECISION MAKING; ETHICS, NURSING; FAMILY; FEMALE; HUMANS; MALE; NURSING METHODOLOGY RESEARCH; PATIENT PARTICIPATION; PROSPECTIVE STUDIES; QUALITATIVE RESEARCH; TERMINAL CARE;

EID: 0034232423     PISSN: 09697330     EISSN: None     Source Type: Journal    
DOI: 10.1177/096973300000700404     Document Type: Article

References (39)

1. Weisman AD. Appropriate death and the hospice program. Hosp J 1988; 4(1): 65-77.
2. Weisman AD, Kastenbaum R. The psychological autopsy. A study of the terminal phase of life. Commun Ment Health J Monogr 1968; 4: 1-59.
3. Ashby M, Wakefield M. Attitudes to some aspects of death and dying, living wills and substituted health care decision making in South Australia: public opinion survey for a parliamentary select committee. Palliat Med 1993; 7: 273-82.
4. Beck-Friis B, Strang P. The organization of hospital-based home care for terminally ill cancer patients: the Motala model. Palliat Med 1993; 7: 93-100.
5. Beauchamp TL, Childress JF. Principles of biomedical ethics, fourth edition. New York: Oxford University Press, 1994.
6. Benjamin M, Curtis J. Ethics in nursing, third edition. New York: Oxford University Press, 1992.
7. Davis AJ, Aroskar MA. Ethical dilemmas and nursing practice, second edition. Norwalk, CT: Appelton-Century-Crofts, 1983.
8. Twycross RG, Lichter I. The terminal phase. In: Doyle D, Hanks GWC, MacDonald N editors. Oxford textbook of palliative medicine. Oxford: Oxford University Press, 1993: 651-61.
9. Allison A, Ewens A. Tensions in sharing client confidences while respecting autonomy: implications for interprofessional practice. Nurs Ethics 1998; 5: 441-50.
10. Bolund C. Loss, mourning and growth in the process of dying. Palliat Med 1993; 7 (suppl 1): 17-25.
11. Krypsin J, Phillips H. Beyond beneficence. An ethical perspective on terminal care. Hum Med 1987; 3: 82-92.
12. Kelner MJ, Bourgeault IL. Patient control over dying: responses of health care professionals. Soc Sci Med 1993; 36: 757-65.
13. Suominen T, Leino-Kilpi H, Laippala P. Breast cancer patients' perceived participation in health care: how do patients themselves and nurses assess this participation? Nurs Ethics 1994; 1: 96-109.
14. Savulescu J. Rational non-interventional paternalism: why doctors ought to make judgements of what is best for the patients. J Med Ethics 1995; 21: 327-31.
15. Välimäki M, Leino-Kilpi H, Helenius H. Self-determination in clinical practice: the psychiatric patient's point of view. Nurs Ethics 1996; 3: 329-44.
16. Barnes DM, Davis AJ, Moran T, Portillo CJ, Koenig BA. Informed consent in a multicultural cancer patient population: implications for nursing practice. Nurs Ethics 1998; 5: 412-23.
17. Sjökvist P. The decision to limit life support. Attitudes among intensive care professionals and the general public [Dissertation]. Lund: Lund University, 1999.
18. Blackhall LJ, Murphy ST, Frank G, Michel V, Azen S. Ethnicity and attitudes toward patient autonomy. JAMA 1995; 274: 820-25.
19. Steinberg MA, Cartwright CM, MacDonald SM, Najman JM, Williams GM. Self-determination in terminal care. A comparison of GP and community members' responses. Aust Fam Physician 1997; 26: 703-707.
20. Spriggs M. Autonomy in the face of a devastating diagnosis. J Med Ethics 1998; 24: 123-26.
21. Saunders CM. Appropriate treatment, appropriate death. In: Saunders CM editor. The management of terminal disease. London: Edward Arnold, 1978: 1-9.
22. Tranöy KE. Medicinsk etik i vår tid. Lund: Studentlitteratur, 1993.
23. Sahlberg-Blom E, Ternestedt B-M, Johansson J-E. The last month of life: continuity, care site and place of death. Palliat Med 1998; 12: 287-96.
24. Sahlberg-Blom E, Ternestedt B-M, Johansson J-E. 'Am I going to die now?' Prognostication of survival time by members of the care team. Omega J Death Dying. In press.
25. Kvale S. Interviews: an introduction to qualitative research interviewing. Thousands Oaks, CA: Sage, 1996.
26. Giorgi A. Phenomenology and psychological research. Pittsburg, PA: Duquesne University Press, 1985.
27. Andershed B, Ternestedt B-M. The illness trajectory for patients with cancer who died in two different cultures of care. Omega J Death Dying 1998; 37: 249-70.
28. Mattiasson A-C. Autonomy in nursing home settings [Dissertation]. Stockholm: Karolinska Institute, 1995.
29. Kübler-Ross E. On death and dying. London: Tavistock, 1970.
30. Vess JD, Moreland JR, Schwebel AI. An empirical assessment of the effects of cancer on family role functioning. J Psychosoc Oncol 1985; 3(1): 1-16.
31. Vess JD, Moreland JR, Schwebel AI. A follow-up study of role functioning and the psychological environment of families of cancer patients. J Psychosoc Oncol 1985; 3(2): 1-14.
32. Kristjanson LJ, Ashcroft T. The family's cancer journey: a literature review. Cancer Nurs 1994; 17: 1-17.
33. Randall F, Downie RS. Palliative care ethics. A good companion. Oxford: Oxford University Press, 1996: 60-79.
34. Malmsten K. Reflective assent in basic care. A study in nursing ethics [Dissertation]. Uppsala: Acta Universitatis Upsaliensis, 1999.
35. Greipp ME. The hospice choice: ethical decision making. J Hospice Palliat Care 1996; 13(5): 28-34.
36. Morrissey MV. Extending the theory of awareness contexts by examining the ethical issues faced by nurses in terminal care. Nurs Ethics 1997; 4: 370-79
37. Andersson M. Integritet som begrepp och princip, en studie av ett vårdetiskt ideal i utreckling [Dissertation]. Åbo: Åbo Akademiska förlag, 1994.
38. Elander G, Hermerén G. Autonomy and paternalistic behaviour in care. Scand J Caring Sci 1998; 3: 153-59.
39. James V, Field D. Who has the power? Some problems and issues affecting the nursing care of dying patients. Eur J Cancer Care 1996; 5: 73-80.